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Hello!

51 REPLIES 51
Lulu34
Member

Re: Hello!

caro thats not neccessarily the case the neuts can go up and down a bit... mine were higher this week before number 5 tomorrow than they have been before 3 and 4 although a bit lower than they have been on the actual day of chemo... so not sure if i will need them rechecked or if they are happy just to give it anyway... neuts are 1.35 today. hope your feeling a bit better... im a bit nervous about my first CMF especially as im going to the lakes for the weekend.

Hi Amanda as i said my hair falling out wasnt really that bad for me... but like a lot of the girls i shaved it off when it started coming out rather than waiting for it all to fall out to gain a bit of control back... depending on what kind of chemo your having will depend when your hair starts to grow back... if your on FEC it should start growing a few weeks after your last treatment... im having Epi-CMF and for some people it start to grow back when they are on the CMF part of treatment.

personally i dont mind having no hair... its quite liberating... but i will be looking forward to it growing back as i wouldnt want to keep the bald look permanently.

Nicki theres not really much you can do to prepare for chemo.... i was worried about feeling sick but have had very little nausea as they give you plenty antisickness tablets... my main problem has been with my veins due to the Epirubicin (the E in FEC) and there isnt really anything that can be done to help them.... best advise is just take it a day at a time and get plenty of rest... after the first one i wasnt so tired but it builds up.

hi maria glad the herceptin hasnt been too bad for you so far.. im not getting it but was on tamox for 3 years and didnt really have many problems with it.

Lulu x

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Re: Hello!

well hi to u all first time doing anything like this i not quite sure how it workes i have had breast cancer for about 7 monthes now been thour a lot have had cemo radio now am on tamo and just started herceptin hand 2 now not 2 bad feel ok just neen to chat to other people that r going thour the same thing as me well speak soon by for now

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Re: Hello!

hi there just join this site never done this be four i have had breast cancer 7 monthes now been thour a lot had cemo and radio now am on tamo and just started herceptin had it 2 time now it seam ok u were the first one on the site that s why i just wanted to say hi not sure how it workes but hope to chat soon ok

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Re: Hello!

Well ladies looks like i'm joining you all on the FEC rollercoaster. due to start week beginning 28th. Then onto Rads for 15 sessions then Hertceptin then tamoxifen.... going to be a long 6 months....

Got to have this porta catherter thingy fitted because of my rubbish veins as well next week and they are also giving me a drug to temporay shut down my ovaries.

Any tips to prepare for chemo would be greatly recieved.

Off to sort a wig out next week just in case the cold cap doesnt work or I cant tollerate it.

Caro glad the 2nd one wasnt so bad - it would take a lot to put me off my food too!!

Lulu thanks for the tips on the hair hadnt heard that one!!

Keep well everyone

Nicki

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Re: Hello!

Good news Nicki! Hope the line's ok. I'm still not feeling too bad after my 2nd chemo on Monday; a bit of nausea occasionally but nothing to prevent me eating!!

Hey Lulu, bit worried about how low my neuts were though after only one chemo; is that normal?! They'd only come back up to 1.7 on the day they gave me my second chemo, so I'm guessing because they're starting off low they can only get lower, which probably means they'll be low throughout my 6 cycles of chemo...? Am now paranoid about risk of infection; any idea of what the risk is btw??? How were your neuts yesterday? Hope they were good. When're you due your chemo?

Caro xxx

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Re: Hello!

Hi all, I'm a 47 year old from West Sussex. Diagnosed 16th July (found by accident having a mammogram for a cyst in other breast), mastectomy 11th August and first chemo on 3rd Sept. Hated the chemo as I was very sick that evening and felt pretty naff the next day. Noticed my hair is starting to fall out today and, surprisingly, this is the worst bit for me. I just can't begin to think what it will be like to have no hair. Pathetic I know, given everything else that's happening to me. Is there anyone that can give me an idea as to when I can expect it to grow back and are there any people using this site in my area?

Lulu34
Member

Re: Hello!

thats great news nicki.

a hickman line is a central line and gets inserted either through the big vein in your neck which leads into your heart or sometimes into the top chamber of your heart.... it does have its disadvantages as well but if i had the opportunity to have it before treatment i personally would have accepted it as i have had bilateral cancer and some swelling in both arms and knackered veins.

a lot of people dread losing their hair but tbh it never really bothered me emotionally... i thought it was quite amusing but my family were a bit freaked by it.... my sis shaved mine off and we were in hysterics... i just figured its only hair... and it will grow back... and so many times iv heard folk say i wish i could shave it off and start again... so thought this was my one and only opportunity to do that. for me it was painful coming out and still get a tender head every now and then although still have a slight covering of hair... beware though it comes from you private parts before your head and that was a bit of a surprise to me.

caro hope your not feeling too floored after you FECing... im wiating to hear how my neuts are as had blood taken this morning but last 3 times have needed repeat bloods done on the day so not holding my breath they will be any good.... but would make a nice change if they were ok.

kerry and pixie how are your seromas now? i had a haematoma.... which is bruising and it formed a hard lump but was quite deep inside the breast as there was no evidence of bruising on the skin... it was in exactly the same place as my tumour was but eventually it just softened and went away after a number of weeks and i didnt need to get it drained at all.

take care girls

love Lulu x

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Re: Hello!

Fingers crossed you wont feel to rough tonight Caro.

I have just seen the surgeon and they have got it all thank god no more surgery, well after having both off there wasnt really many more places it could go!!!! But huge relief regardless....

I am seeing the ONC on wed and they have already talked to me about having a hickman line (think thats whats its called) in my neck to administer chemo as my veins are appalling already, maybe talk to them about it?

Keep well

Love

Nicki

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Re: Hello!

Hi Nicki

Glad to hear the surgery went well; that's one big hurdle over with! I had my 2nd FEC this morning. Had to hang around for a couple of hours whilst I had another blood test, as my neutrophils were too low on Friday. Luckily they were up enough today for me to get FEC-ed! Was quite uncomfortable today, as my hand was really sore whilst they administered the epirubicin. Feeling ok at mo; last time the nausea kicked in in the evening, so we'll see....

Love to all.
Caroxxxx

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Re: Hello!

Hi Ladies,

Lovely to hear all the positive things with people moving on. So cant wait untill im writing the same in the future

Had the Bi lateral mastectomy this week and feel like a huge weight has now been lifted so glad its over with. Am back at home now with hubby and the kids and trying to get as much rest as posiible slept for three hours today and am still tired. Due to start chemo in two weeks and totally dreading it. Seems ridiculous but am dreading losing my hair more than having lost my breasts!!!

Hope you are all doing well,

Caro, hows the chemo going???

Take care all and hopefully carry on enjpying the sunshine this weekend.

Love Nicki

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Re: Hello!

It's brilliant to hear from ladies who've been through the 'younger woman diagnosis' and come out of it the other end. Very inspiring!

Pixie - nobody mentioned the possibility of the seroma going hard :-o. That sounds horrid. At the moment I'm having mine drained twice a week so looks like I'll be back in for drainage again tomorrow.
It's just uncomfortable, and wibbly. Which is bearable...but I didn't know whether to try leaving it and see if it gets better of it's own accord? I have heard that sometimes they'd rather you do this than keep having it drained as that might introduce infection. Gah..it's all this conflicting information!

Mind you nobody said BC would be easy.

Kerry
xxx

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Re: Hello!

thanks to lucy, val and monica - its really encouraging to hear about people who have moved on after their BC at such a young age and still having a positive attitude 2nd time round! I do worry its gonna be like a big black cloud hovering over me forever and am so grateful for the support on here to help put things in perspective.
I have to say monica - i recon you could definitely get away with gategrashing the warrington forum from your profile pic you don't look anywhere near 40 nevermind 50!
xxx

lucyloo
Member

Re: Hello!

I too was dx at the age of 39 and was single at the time with two children the youngest being just 12 weeks old thought it was the end of my world as it was an aggressive form with node involvement but hey ho that was over 13 years ago now and i have led a well and full active life since, due to excellent care from the christie hospital, was discharged last year but am still on hormone treatment, just want to wish all you young ladies well and to let you know there is light at the end of the tunnel, treatment is do able and you will come through this.

scottishlass
Member

Re: Hello!

Hi I too like Daisyleaf landed on this thread and read through all the messages. I feel so sad that so many of you young girls are having to deal with this horror of a disease. I just want to let you know that I had a 5.5cm tumour at aqe 39, two kids 7 and 14 and was a s scared as hell. I have had reoccurence and have been on chemo again, but never in a month of Sundays would I have imagined I would be here still. I am 59 now. I wish I could have helped you, SpecialK and all you other young lasses. But take courage, not all diagnosis means the worst ....I thought it did.....and life is good again. Not sure this will help you but that is the intention of this message. One day at a time girls, love Val XX

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Re: Hello!

Hello, not sure why I started reading this thread, but did and have enjoyed it so much. I am just outside the younger women age group (50) but was diagnosed first at 38 with IDC (9.9mm), grade 1 no lymph involvement - had mx and tamox and this community didn't exist then - I think it would have changed everything for me. My kids were then 11 and 9 and the issues we went through then coloured their whole upbringing. I wanted them to know me as a person and not just 'mam', just in case, and was also conscious that I had to know them as people.
anyway, here I am at 50, they're 23 and 21, bigger and dafter than ever (and still at home with us - sort of). Diagnosed with a local recurrence after 12 well years, this one is a different monster, but will have to be dealt with.
I was a bit jealous when I heard you are mainly in the NW - I'm in the NE otherwise I would have gatecrashed your get together - sounds like it will be great!
hope you all take care of yourselves. I would assure you that my scenario is the exception to the rule, and also, that I have been very well in the intervening years and have moved on in all ways since '97.
when you meet up , have a pint for me!
love, monica xx

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Re: Hello!

Hi special K
I've got a second seroma under my armpit but they don't fancy draining it at the mo cos of the chemo - its not that big i have to say, but can be a little uncomfy - i also panic unduely about anything lumpy and bumpy in this particular area. They said it may go of its own accord but still a little worried that i'll be stuck with it for ever then wont be able to tell if there is anything more sinister lurking underneath at a later date!
Anyway, i'll see how it goes in the next couple of weeks. The nurse who drained the first one said they can go hard over time but when i mentioned my concerns to BCN she said they didn't - dunno who to believe and really don't fancy being stuck with a bulbous armit! Did they say anything to you about the potential of it turning hard if left?
hope evryone is doing ok too!
xx

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Re: Hello!

Heh pixie! I must admit it's not out of character for me either :0).

I've seen the BCN today and had a large seroma drained. It looked like a blancmange growing under my armpit. She drew off 250 mls, it felt better straight away but now I'm sore as hell. I think I might have to bite the bullet and go back onto the bowel busting painkillers. But not before my visitors come tonight in case they bring alcohol. I've also wrestled myself into a sports bra to see if that helps. I might have to wear it for the rest of my life as I don't think I'll ever get it off again. Unless I cut it off.

Hey ho.

Hope everyone else is doing ok!

Kerry
xxx

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Re: Hello!

special k - sounds like my idea of heaven!!! Gotta say though the boredom is getting to me too now...4 months into not being at work and although i don't want to go back (cant deal with kids beating eachother up and robbing old ladies at the mo!)definitely need something to allieviate the soul! Already done the spending loadsa of money on the internet but now i'm down to half pay gotta put the brakes on that!
Good luck with the results in a couple of weeks.
in the meantime keep up the exercise and kings of leon tuneage!
xx

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Re: Hello!

I feel suddenly like I'm hitting the wall. At 100mph. With a Bacardi Black and coke in one hand and an emergency cig in the other. And all to a Kings of Leon soundtrack.

Hell.

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Re: Hello!

Hello ladies,

I'm also in the North West. Just had my Mx and ANC a week ago and am bored already. It wasn't bad at all, though I am a bit sore now. I was hellish glad to get rid of those drains. I ended up being in hospital for 5 days post op as one of the drains was rather juicy. Won't get my results for a couple of weeks as my Consultant is away for a bit, although I'm hoping to get in to see his Reg just for the results bit. I'm trying to do my exercises religiously as the sooner I can get out and about and driving the better. Otherwise I'm going to spend huge amounts of money on internet shopping sites.

Good luck to everyone who's having surgery/chemo. I sent for a ton of leaflets from BCC (under the health professionals bit) which were really helpful.

Kerry x

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Re: Hello!

Hi Dancingqueen

I'm 34, single (well kind of its complicated won't bore you with the details) have no kids and sometimes still feel like I'm trapped in a bizarre version of my own life. However taking each day as it comes and have started to meet some fantastic, strong, positive women on here whom are fast becoming brilliant friends.
I too am attending the Young Womens Forum in Warrington in a a few weeks (this will be just be before cycle 2 for me...may have some kind of head shaving ceremony if necessary when there-hoping the cold cap may work thou for me)looking forward to meeting all who attend.
Rest assured you're not alone when it comes to this cr*p hand we've been dealt, we all have bad days but knowing that advice/help is on hand at the touch of a keyboard or at the end of a phone makes me feel a whole lot better.

x x

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Re: Hello!

Hi Ladies.

Its sounds like all you lovely ladies are in the North West wierd really as I am originally a northern lass from Macclesfield but now residding down south in Bedfordshire.

Thanks all for your feedback on mastectomy as it gets closer its becoming more real.

Glad your feeling okay Caro hope you continue to do so.

Makes me realise how lucky I am to have my hubby and kids at home as day time TV is a nightmare although C beebies isnt much better....

Had a real wobble today about the double mastectomy on the 7th, think its beacuse it my last day at work tommorow and dreading saying goodbye knowing next time I see them it will all be over and chemo will have started.

Hope you all have a lovely bank holiday

Nicki XXX

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Re: Hello!

hiya dancing queen,
I'm a single manchester gal too. Split up with boyfriend during all this - just before dx. Having issues with this at the mo too, though i do have loads of support from friends and family. I'm also booked on the warrington forum - i believe there are still spaces available. I attend a support group at christies too - tho currently i think there are only about 4 or 5 members!
xx

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Re: Hello!

Hi Dancing Queen

I was diagnosed last Sept, I was 34 and single, no kids.
I too find days boring and a drag, can't wait till this is all finished and get back to normal, maybe a nice man will come along some day.

Hope everything goes well for you

Sharon xx

Lulu34
Member

Re: Hello!

caro glad your feeling ok after getting FECed.

dancing queen i got BC at 37 i was diagnosed the day i qualified as midwife.... iv since had a new primary diagnosed.

i was single the first time but since then have met my partner and got engaged and plan to get married in about 18 months.... i felt there would be no hope for me finding a partner as a single mum of two and a past Hx of cancer... but i was wrong.

as for nursing i run the student nurse website the links in my profile... so why not join when you are ready to go back to uni and you will get loads of support from us.

good luck with your treatment

love Lulu

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Re: Hello!

Welcome Dancingqueen. I too am 36 and childless. Married to a lovely bloke though. Can totally empathise with you being stuck at home alone all day bored; I'm feeling totally the same. Spent most of today slobbed out on the sofa watching cr*p daytime tv! Unfortunately I'm stuck down in Plymouth, where there doesn't seem to be many of us young(ish) ones 😞 I think you'll find there's quite a few young ladies in your area, apart from AM there's also Pixielox and Poppet.

Hey AM, had first FECing yesterday. So far not too bad; fingers crossed! Just been feeling quite nauseous on and off today and a bit out of it; bit like a mild hangover really! How're things with you?

Caro xxx

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Re: Hello!

Hi Dancing Queen

Welcome to the forums, sorry you've had to join us.

I've had three rounds of FEC so far, and will be onto my 4th lot next week.

I'm a Manchester lass too. There are a few of us young 'uns on here from the Manchester Area I think. Are you being treated at Christies?

BCC are hosting a younger women's forum in Warrington in Sept, which may be of interest to you.

How are all you other girlies getting on? Hope everyone is getting through their treatments ok?

Caro, how was your 1st FEC-ing this week.

Take care All

Love AM x

dancingqueen
Member

Re: Hello!

Hi ladies
i am also single having finished with my long term boyfriend over a year ago.Im 36 and was just starting my nursing degree in Manchester when i discovered a lump and then had it checked out. I have IDC too 6cm. I have already had 3 rounds of chemo and will have 5 more and then some kind of surgery depending on how the lump has shrunk.Its hard being single as i know that during treatment it is unlikely i will meet someone and im not even sure i would be ready too. I have no kids either and so im at home alone alot of the time trying to keep busy.My studies have been put off till Sept 2010.

Anyone else in the North west?Near Manchester/Wigan?

mx

elinda45
Member

Re: Hello!

Hi Nicki

I was in for 7 days following double mastectomy but I did have a full axillary clearance on one side and I'd had chemo first which probably slowed my healing a bit. The main reason though why I was in so long was becuase of the amount of fluid coming out in my drains both sides and they wanted it to reduce before I went home. Once it reduced down to a much smaller amount I was able to go home with two drains left in and district nurse visiting. Sounds bad but it was actually okay and I was glad to get home. Had drains out a week later and that was completely painless for me.

Everyone is different, I had a lot of pain on one side post op and this lasted for about 10 days and then settled. Had plenty of painkillers though to ease things.

Not saying any of that to put you off but just to say some people sail through and for others it can take a bit longer.

I have to say having a double mastectomy was the best decision I have made. I had no cancer in the right side but I feel much happier not having to keep worrying about that particularly as the cancer in the left side had been so difficult to spot until it got very large.

I looked at my wound as soon as I got back to the ward and it was as I had expected. You do get used it, I'm now about 8 weeks post op. Also showed my husband straight away and he's got used to it now too. I think it's very unlikely that I'll have a reconstruction.

Good luck with it all.

Caro - hope the FEC goes well.

Elinda x

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Re: Hello!

PS. I'm starting chemo, 6 x FEC, this coming Monday. Wish me luck! x

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Re: Hello!

Hey Nicki

Glad to hear you've made your decision and are happy with it. I felt the same way once I'd decided; I just knew it was the right choice for me. The op wasn't nearly as bad as I thought it'd be. I am the world's biggest whimp and was absolutely cr*pping the surgery! Was convinced I was going to die on the table, lol. I actually lost quite a bit of blood during the op, which worried me a bit. Luckily I avoided a transfusion though and was just put on a course of iron tablets. Despite all that, I went home the day after surgery! Not sure why they're telling you you may be in for a week... do you have any underlying health conditions? I was told 2 nights max. I didn't have much pain with it and just took a few paracetemol for a couple of days. The worst part for me was having the drains removed, but it was over in a few seconds. That might delay your return home, as some hospitals don't like sending you home with drains in; luckily I had my drains removed a few hours before going home.

As for the psychological impact; I was hesitant to look for a couple of days, and when I first did it wasn't exactly a pretty sight! However, I soon got used to the change in my appearance and now don't mind one bit. I didn't have recon and not sure that I ever will.

I hope you have a wonderful holiday with your family. Try not to think about the bc bullsh*t while you're away. I'll be thinking of you on the 7th, let us know how you get on.

Love and hugs,
Caro xx

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Re: Hello!

Hi Caro,

I have met with the oncologist and they have now told me they have found more DCIS and grade 2 areas so I am going with the double mastectomy. I really dont trust the mamogram and ultrasound saying the other sides clear when it might not be
Since I have made my mind up I feel so much more settled and know its the right decsison.
Not going in untill 7th Sept as going to have a few days away with the kids and my hubby and then it will all start.
I am going to start chemo 2/3 weeks later so it will be all systems go.
Mum was 52 when she had it but also my paternal grandma had it and we dont know about my maternal grandma as she died at 60 of throat cancer.
I just feel its the right decision and can get reconstruction next year.
How quick did you recover after the Op as they have said I may be in up to a week, Did you have reconstruction?
Thanks for your advice and support its such a minefield!!
Hows things going with your treatment??

Nicki XXX

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Re: Hello!

Hi Nicki

So sorry to hear you're having a cr*ppy time and have to have further surgery. I opted for a bilateral mastectomy, as my mother died of bc at the age of 41 so it's probably genetic. Unfortunately, it doesn't give you a 100% guarantee that the bc won't return, but it significantly reduces the risk (I think it's less than 5%). How old was your mum when she had bc? Has anyone mentioned the possibility of it being genetic? If your bc isn't genetic then I don't think I'd opt for a bilateral mastectomy, because the chance of a new primary tumour developing in the other breast is very small. However, if it is genetic, then there could be a 50% chance of a new bc developing, so a bilateral mastectomy would probably be worthwhile. Speak to your oncologist and ask their advice.

Good luck with your decision, keep us posted.
Caro x

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Re: Hello!

Ladies,

After somne advice, Had my consultation last night and every time I go the news seems to get worse, now after three ops already I am now told there is a lot of pre cancerous cells in the margins of the margin and would be advised to have a mastectomy. Which of course I am going to have. The question in my head now is do I have both of them removed???? My mum had BC 6 years ago and had one mastectomy and regrets not having this done at the time.
DOes anyone know if this is done is there then no chance whatsoever of BC returning??? I know its a big step but I cannot face the thought of going through this rubbish again in 10 years in the other side???

Help any advice would be greatly appreciated

I am meeting the oncologist on Monday to discuss before I make any decisions

Thanks

A very very fed up Nicki

Lulu34
Member

Re: Hello!

hi special K

i was diagnosed at 37 with a 1.3cm grade 1 IDC and DCIS, node neg, ER pos in right breast... had WLE may 2006 and then rads and tamoxifen but no chemo.

then new primary diagnosed at 40 with a 1.9cm grade 3 IDC and DCIS, node neg, triple negative in left breast... had WLE may 2009 and just had chemo no 3 of 8 and due for rads afterwards.

my mum was diagnosed with BC 18 months before i got it the first time at age 57 but otherwise have no family hx.

it must be so hard for your family with both you and your mum going through treatment at the same time.

Pixie and i are on the same chemo regime... epi-cmf which is always 4 x epi and 4 x cmf... not sure how they work out who get what but the cancerbackup site is really informative about different regimens and what is involved.

i was told i would get chemo the first time because of my age because its unusual for somebody under 40 to get a grade 1 ca but as it wasnt so aggressive i didnt need it.

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Re: Hello!

Thanks for all the messages ladies. Enjoying the sunshine this weekend and have a CT scan and MRI both tomorrow. Feeling quite upbeat about everything at the moment. Hope you are all making the most of the sunshine to.
Alison
x

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Re: Hello!

Hello girlies

Hope everyone is ok and getting through their individual stages of this BC crapness!!

Pixie, I'm booked in for the Warrington Forum too, posted off the registration forms the other day. It falls on my "good" week which is a bonus! Look forward to meeting you! I'm on my next swamp juice next week, is this the same for you?

Special K - have a brill holiday! You have yourself a good chill, and a good few bevvies! I know that the pending Mx must be really daunting for you. I remember how anxious I was 3 months ago but things do move quickly and you do find your strength to deal with it.

Nicki 6, glad to hear your arm is settling down a bit. In terms of the armpit issue... I got fed up after a few weeks and got the old razor on it! I was just super duper careful. Good luck with the consultation next week.

HurdyGurdy, Hope everything is ok with you. I definitely found/find the worst thing is the waiting, and agree with Pix, that the waiting can be worse than getting through the treatments and surgery. Good luck with everything.

Poppet, how you doing hun? I know you're starting your chemo in a couple of weeks, hope you are ok. Look forward to meeting up for a brew soon!

Caro, how's things with you? Hope you are recovering well from your op. Do you know your treatment plan as yet?

Big hello to Poddle and Jayney - how are you both getting on?

Have a good weekend and take care all

AM x

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Re: Hello!

hi all,
just wondered if anyone had booked onto any of the younger womens forums coming up in the next few months? I'm in the North so have booked onto the warrington one on 18th september - looking forward to meeting people in the flesh!
Special K hope you have a fantastic holiday!
xx

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Re: Hello!

Hiya all,
It's true everyone seems to have different Tx in a different order. I had surgery first because they thought the lump was benign. Having Mx in 2 weeks - having a week off cancer this next week while I go on holiday and am not planning on thinking about the C word, just eating and drinking lots and getting a bit of a tan - then who knows what's next. Grand to hear from you all on this thread and if anyone who's recently diagnosed wants to 'buddy up' and share horror stories that would be smashing. Just send me a PM :).
Have started a blog to see if it helps to write things down as I'm thinking about them. Good way to keep friends updated without me keep having to repeat myself. Sometimes I just can't be arsed talking about it.
caro111 I have mentioned the genetic link to the BCNs and they said I'll be referred for testing at some point. My mum has ovarian ca (she's having a staging scan next week, my poor dad is going to be in the middle of 2 of his girls and their respective cancers!) and her cousin had breast ca so there is a possible genetic link.
Can I ask about people's experiences of mastectomy? Not been given a whole lot of info, think that because I work in radiology they think I know what to expect. But I don't.
Good luck and thoughts to everyone, you all seem lovely!
See you in a week or so...
K xxx

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Re: Hello!

Hello all,

Thanks for all your posts, my arm is starting to settle a bit, I dont think its cording as its just burning and sensitive, better if i wear a vest t-shirt. Am getting conflicting advice as to whether I can shave under my arem my consultant said yes but all info im reading says i shouldnt. Any advice??

Had a CT scan on wed which was a very wierd experience and got a bone scan on Monday, sounds like everyone does have things done in a slightly different way.

I have yesterday looked after my kids on my own for the first time since my ops and felt so much better for having a 'normal day' although totally exhauseted last night.

I am wishing the week away in the hope that when I see the consultant next week he has got it all and I can move onto the next stage and dont need any furtehr surgery.

Hi Hurdygurdy, sounds like you also have your hands full with the kids ect, its is hard seeing your husband go through it too as there is nothing they can do. I feel lucky my girls are only 2 and 4 and are not old enough to fully understand. Your right about the waiting
just wishing the days away.

Good luck everyone.

XXXX

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Re: Hello!

hello nicky 6 - have you got cording in your arm? Mine has eased over the weeks - i found the execises they give you a bit of a bore, but started doing tai-chi which seems to have really helped this problem for me. As for things sinking in, i'm on my 2nd chemo and think i'm still in denial, but with each treatment its getting more apparant!
AM - glad to hear your chemo is going ok. Not had a bad run so far myself - the main problem i'm having at the mo is being on my period at the same time as my 'low week'...so i'm doubly moody, depressed and fatigued days 7-14!!! Had to go on antibiotics this week for an infection....my own stoopid fault for getting hammered at the weekend!! I tend to forget i'm supposed to be ill after a couple of ciders and carry on like before!
Caro - i never asked why i was having 8 cycles...i just assumed that was standard practice for EPI-CMF!!
hello hurdygurdy, i think Chemo is usually given first to reduce the size of the tumor, so i imagine it will be surgery first for you. The waiting is the worst...but once you are on the chemo-train its full speed ahead!! in fact i would go as far as saying waiting for results has been more traumatic than the treatment so far...once you have a treatment plan, mentally you know what you are doing is making you better, even if it makes you feel worse physically.
Good luck
pix
xx

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Re: Hello!

Hi all,
have just posted on another thread, but thought I'd say hello here as well. I was only diagnosed yesterday with a stage two IDC - 14mm. Booked in for an MRI on Monday and then a CT followed by lumpectomy. Bit worried as all the posts I've read seem to do things in different orders, personally I'd like the lump gone first, but hopefully that will happen within two weeks.

Definitely the worst thing is the waiting. I feel like I can't concentrate or do anything else, yet when we do do things its a wonderful distraction. I have a fab husband and three children (13, 10 and 5). I'm petrified for them, I can see the look of fear in my husband's eyes and it rips me to shreds.

I'm also in the middle of an IVF cycle and am having my eggs collected tomorrow - an extra kick in the teeth or amazing luck? I keep flitting between the two. Feel very scared as all the drugs I am on for IVF are sending my Estrogen levels through the roof and I don't know yet if it the lump has estrogen receptors, but feel sick knowing that I am probably feeding the disease.

Postive vibes to all.
Alison

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Re: Hello!

Hi there special K and all

Same boat really, I'm 37, no history of BC, had lumpectomy on 29th May, 1.7mm tumour removed clear margins, 4 out of 5 nodes involved (gutted at this) and just had 3rd cycle of chemo yesterday. I have to have 8 cycles like you pixie. All going to plan as the ONC says! You will find some really good support on here. I could'nt have coped over the last 2 months. It certainly helps me to talk to people who are experiencing what I am!
My diagnosis also a shock as there was no lump just a small indentation which was the size of half a finger nail!

Nicki I had the burning sensation too around the scars - drove me nuts. Still getting twinges and stabbing pains too some 2 months on. Apparently it all takes time to settle down.
Take care all
xx

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Re: Hello!

Hi there Special K and all!

I'm in the same boat too... I'm 28 and a single gal, was dx late april, had my mx Mid May. Grade 3, 2cm. Started chemo on 1st July, and I'm currently 2 weeks into my 2nd cycle..... so Pixie and I are at the same stage (how are you doing by the way pixie?)

All of this is such a slap in the face especially around diagnosis and surgery time, but things progress really quickly.

My aunt (on maternal side) had BC, but haven't looked into any connection yet.

Nicki 6, I had that burning sensation too - it's a pain in the arse isn't it!!!! I just persevered with the exercising and massage and it did go away.

Take care everyone and good luck

AM xx

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Hello Hello,
Hope you dont mind me linkin into your messages.
Reading all of your comments makes me realise lots of people in the same boat biggest shock has been my age
I am 33 with two girls aged nearly 2 and nearly 4 and fortunately a very supportive husband.
My mum had breat cancer 6 years ago at 52 so know a bit about it. IWas diagnoised with breast cancer at begin of July aftyer finding a lump and since have had segmental matectomy senital node biopsy and 5 removed than further op last week to remove more of the margins around the 20mm tumour.
One thing that is driving me mad is the burning senstaion in my arm it is so sensitive any ideas on ways to improve, I am massaging and exercising it but its driving me crackers.
Have got to go back next friday to see consultant fingers toes crossed that have got it this time and dont need further surgery then onto the chemo.
Would love any tips hints on how to deal with things.
Still hasnt sunk in yet
Nicki X

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Welcome K. I'm 36, 11mm grade 3 IDC, no node involvement. Had bilateral mastectomy 2.5 weeks ago, which I opted for as suspect my bc's genetic (mother died of it at 41). Has anyone mentioned the possibility of yours being genetic, what with your mother having ovarian cancer? I'm awaiting an oncology appointment to discuss chemo plan, and guess I'll be starting it in about 2 weeks.

Poppet it sounds like we'll probably be starting chemo around the same time. I'm really dreading it (obviously!), so it would be good to be in touch with someone who's at the same stage as I am in terms of treatment!

Pix, how come you're having 8 cycles of chemo? What regime are you on?

Caro xx

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welcome back poppet! Glad to hear you are recovering well after the op.
xx

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Thanks for the replies ladies :). You're damn fast, I'm impressed. poddle, I was told I could have immediate reconstruction but 'advised' not to, as I don't know what kind of treament I'll be having post op. I haven't got an appointment to see the oncologist yet, suppose they'll sort that after MX. I think I've scared myself by reading too much around the subject; I work in health but have no experience of boobs (so to speak) but lots of experience of cancer. My mum has ovarian cancer, my cousin malignant melanoma, and the majority of the patients I see have cancer and are having staging scans (I work in radiology.) So it's good to hear from other gals going through the same thing and getting through it.

pixielox - how did you find the chemo? My colleague reckons that as I'm 'young' (bless her) they're likely to offer me chemo as the younger you are the more aggressive the Tx. My lump was removed without clear margins so I've opted for the MX and then any other treatment offered.

poppet75 - is this your first bash at chemo? Good luck with it.

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Hiya - I was in a very similar position to you - much to everyone's surprise my first biopsy came back clear despite the tumour being 3cm. It made the whole experience feel very Alton Towers - after my diagnosis I thought that I had thought through all the possible scenarios (some of them very gloomy) but that one hadn't occurred to me.

It was hinted to me that the clear biopsy was 'an encouraging sign' and I hope the same is true for you as well - my nodes were clear and I didn't have to have chemotherapy although am on hormone therapy. Have you been told that you aren't suitable for immediate reconstruction? The pre-operation period was by far the worst bit for me - after the tumour was removed I felt almost euphoric.

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Were all in the same boat, I too had a WLE and node clearance followed by MX approx 14 days ago, had a post op check up today which involved some drainage (fortunately painless due to being still numb from surgery) meeting with onc this Friday which will be followed by start date of chemo next step into the unknown!! Advice and support is invaluable on here, been a great help to me and I'm sure all of the other strong women on here.