Hi Petal88 I am taking one day at a time and make sure I have something to look forward to in between chemo treatments. We live in Cyprus so these forums are my greatest support. We came here to retire early and ended up opening a school!!! I am not involved with the teaching since my diagnosis in March.
My first time posting.... but wanted to share my experience and hopefully help some that are going through this at this time.
I was diagnosed triple negative, between stages 2 and 3 with my lymph nodes significantly enlarged 8 years ago. I read about a small study that was done with flaxseed, where one group had flaxseed muffins daily and the other test group had none. What was found was the ones having the flaxseed, the tumors reduced in size, while the other group's tumors didn't.
My Oncologist recommended to treat me with Taxol, at the same time I took 16 -1200mg. of flaxseed oil caps 4 -4 times a day throughout my chemo treatments and stopped just shortly before my surgery. My surgeon was utterly amazed that the tumor had shrunk to 2 millimeters and after all my lymph nodes were removed on my right side they all tested clear! I didn't have to go through any radiation nor any other medications. I still take 4 caps of flaxseed daily as a preventive. I'm still keeping my fingers X'd that it doesn't reoccur. I wish you all the best.
I too was diagnosed HER2 positive, oestrogen positive and progesterone positive breast cancer the first week in November.
I simply noticed my left breast felt a bit odd on a Tuesday evening. I was seen that Thursday and had mammogram rapidly followed by ultrasound and biopsies. The consultant then told me I had an 80% likelihood it was breast cancer. I had gone on my own and was rather shell-shocked.
I had a mastectomy and axillary clearance on the 3rd of December. Unbelievably the tumour was 8cm and 11 out of 15 nodes were positive. My CT scan showed a blip in my right lung and I have already had another scan that is highly encouraging that it is nothing to worry about.
I completed my 6 FEC-T on 24th April so I am still in the recovery phase from that. I found the FEC OK. I managed to work through it and kept going to the gym. The T is rather different! It is manageable though. I was glad to have met someone who warned me about the following though so I was prepared:
1. About 7 days post dose my finger tips feel like they have been trapped in a car door
2. Joint pain kicks in about day 5 - paracetamol has been enough for round 3
3. Your nails will lift and may fall off - I wear uniform for work so can't wear dark nail varnish. First one is falling off today in my case.
4. You may well get tingling in finger tips - the peripheral neuropathy they warn you about. Mine didn't start until 2 weeks after the 2nd dose of T.
I start radiotherapy on 19th May. I was really anxious about having to have tattoos but they really are tiny - almost can't see them. I have had 3 herceptin and am having them subcutaneously into my thighs. A bit stingy but absolutely ok. I start tamoxifen in a couple of weeks.
Just to add to the stress of treatment, my husband is working 4,500 miles away and our 16 year old starts his GSCEs on Tuesday!
I have not really posted on here before but have just been lurking. I don't know what made me post tonight but there we go.
The chemo is manageable! Just take each day at a time. I will let you know how the radiotherapy goes
p.s I def have chemo brain,excuse mistakes etc.Just wanted to add that i think its my hormone treatment im on for 10yrs. It used to be standard to be on it for 5 but some hospitals have found benefits in keeping it going for longer.
Sorry you find yourself on here. I also like the other ladies am her2 pos. Im 40yrs old and went to dr with a slight thickening. Turned out i had 3tumours and spread through breast tissue and 13 out of 22lymh nodes and surrounding tissue there was cancerous too!! I was given heads up at my first mammogram on 23rd dec 2013 and then met my oncologist 6th Jan 2014.Had my mastectomy of left breast 3weeks after that and started fec1 just 7wks after operation.I just had my fec3 yesterday and start tax and heceptin in 3weeks time followed by rads and hormone treatment and will be on someting else for a further 10yrs. The heceptin im on for a year like most of us who are her2pos.
I personally had a rough start with chemo(but i never do things by halfs lol)..My fec 3 is treating me well as couldnt of even typed this early on for last two.
Take one day at a time,and time scales on her vary with dif patients but even a week feels like forever when your waiting for results,appointments etc. All the best x