Hiya V Yes I'm having chemo first. FEC-T with herceptin and perjeta (?) I think it's relatively new to use it in our circumstances. Just approved by NICE I think. Another weapon in the armoury! I'm 45. Felt a lump in the shower but honestly thought it would just be a cyst. How wrong I was!! 50mm and under arm pit. We'll have to see how much it shrinks in terms of surgery but that seems a long way off at the mo. But look at you finished chemo! Here's to a happy and healthy 2017 x
Hiya. I know this post is old but it sounds as if you're a long way down the roas I am starting out on. Also er- and her+. Wish I'd read your advice about goggle sooner. Boy did I scare the bejesus out of myself! Waiting for treatment to start next week. If you're still around would be good to keep in touch. Emma x
Vintage, I'm also a Her 2+ve. I'm just finished my active treatment and am on Herceptin for the rest of the year. I had a complete response to the chemo and the rads. It is a hard treatment but you will get through it. Take it one day at a time and listen to your body. Spend time with friends and enjoy the time spent with friends and family. It can be very tiring in every way so take any help that is offered and don't feel guilty. Do not google as the articles are a little out of date.
I have just started back to work and it is wonderful to get back some normality. There is an end to it all and you will get there. xx
Vintage you are definitely in the worst place right now & you will feel better once you have your dates & know the treatment plan. Then it'll be a case of just getting through it, day by day, week by week & then you'll be out the other end, feeling a bit battered & bruised mentally & physically, but on the way to recovery. I wish you strength to get through it all xx
Hi vintage, i was diagnosed april 2014 with ER - HER 2+ , felt like you to begin with, couldn't eat, sleep or concentrate on anything, G.P gave me citalopran for anxiety and mild sleeping pills which really helped. I had chemo first, then a mammoplasty and a year of herceptin given at home by lovely nurses, as others have said, dont google! You will feel better when treatment is underway. I have a friend diagnosed 15 years ago with HER +, herceptin not available at that time, she just had chemo and rads as well as surgery, she is fit and well now! Good luck with your treatment! X
Hi vintage, This is the worst stage & is not surprising you feel the way you do when waiting for investigations & treatment dates. It does get better once you have your treatment plan & it starts. I remember feeling much better once dates were in place & treatment started.
You really shouldn't worry about being HER2+. It used to be bad news, but since herceptin it's no worse that HER2-. I was diagnosed in 2007, had herceptin throughout 2008, and I'm fine. An aquaintance was diagnosed two years before me, she was one of the earliest to get herceptin for primary BC, and she is fine too. A lot of the research and statistics out there were done before herceptin was widely available.
Googling is fine, as long as you understand what you are looking at. When I was first diagnosed the CRUK statistics were very out of date. They said I had a 10 year survival chance of 22-40%. Truly terrifying! But I googled a lot, read a lot of research and realised how out of date it was. My chemo regime gave me nearly an 80% chance, and I also realised that didn't include the effects of herceptin.
By its very nature, these statistics are always out of date, because to be meaningful they have to follow people up for several years. Then the data has to be analysed, research papers have to be written up, peer reviewed, and published. All this takes time. By the time we are reading about it, years have passed.
Good to hear you are doing well after your op JenJen.
Vintage I am HER2+ & saw a nursing friend wince when I told. Hit on Dr Goigle & scared my pants off until I came across a speech made in Oct 14 entitled "it can now be said that the era of worst outcomes for ladies with HER2+ BC is well & truly over". It made me feel SO much better.it was obviously talking about the impact of Herceptin. Then I realised all the scary articles were a few years old & were totally out of date. The first trials of Herceptin were only 5-10 years ago in the uk & it was licensed only a couple of years ago. Hence there us no real info on long term outcomes except the stuff relating to the pre Herceptin era. Take heart Vintage, the outlook is brighter than you think. Good luck with your treatment. xxx