Hi Ladies wanted to ask if anyone is on Herceptin forever like myself? (been on it for nearly 4 years so far) and if so are you noticing any of these side effects. The main one is mega migraine's which are very severe and include throbbing head and neck which immediate nausea I take a sumatriptan and if that doesn't work I take 2 co codamol with an anti sickness tablet it completely knocks me out they seem to appear a week before my next shot also I tend to bloat out like I'm 8 months pregnant and have difficulty walking around or I should say waddling around it also makes me quite breathless so I seem to be housebound and sometimes bed ridden for the week prior. I know we all react differently to these treatments but was wondering if anyone else is suffering the same. xxxx
I have been on Herceptin for 3 years, apart from my heart being affected, I have no side effect. You want to let your onc know about those side effects.
I'm sorry you haven't had any replies to your post yet.
It might help to talk this over with one of our Helpliners. The opening times are 9-5 on weekdays and 10-2 on Saturdays. The number is 0808 800 6000
Very best wishes