I was happy to read about what you are going thru, because I am also feeling like I am 100 when I wake up in the morning. My hands are swollen and hurt, my elbows and the muscles in my arms and shoulders and neck feel stiff. My large toe nails are falling off but I thought that was due to the chemo. I start my 6 1/2
weeks of radiation next week. and then they start me on tamoxifen for ten years. WOW. Its funny when I told
my doctor about the puffiness I feel and the swollen hands they did not know what was causing it. So I was very happy when I came upon your blog. If anyone can tell me how long I can expect this to last I would really
I am about to have dose number 17 and have been ok but am now very very tired and a bit shak yand weak-feel kind of post viral symptoms. Also twitching eyelids for last 4 months. Anyone else get this?
Sorry to hear you're feeling this way, if you need a good listening ear, then the helpline team are just that free phone call away to give you some much needed support - give them a call. 0808 800 6000
Welcome to the BCC discussion forums, I'm sure our forum users will be along soon to support you and put your mind at rest about your concerns. You are also more than welcome to call our helpline, which is free to call, and have a chat with our staff, 0808 800 6000, lines open Mon-Fri 9-5 and Sat 10-2.
i was dx fom the start sept 2010 with ibe, had all the standard treatment, chemo first, then mx and reconsruction which i dont have now due to local reccurances, but now i have lung mets, dx seven weeks ago i am having taxol weekly and eeling well so far+ herceptin which i had last time with taxotere and fec had all the side affects you can think of lost loads of weight due to diarroeoa it was horrendus, plus i could not finish my last three cycles of herceptin because of heart issues heceptin was stopped for four months and was given heart tablets betablokers i think and i am now fine with it all, plus putting loads of weight back on i feel great so far, having ct next thurs to see if its all working.
hugs to you ladies x
I have herceptin at home too and found the second nurse so in tune with my needs/fears/etc that I rang and asked if I could have her every time, which they said was fine (bar holidays, etc). Fantastic. She adminsters the dose over 2 hours which seems to lessen the palpitations and other SEs but I still get bad palps at various times over the 3 weeks.
I've also now got sciatica (bone scan next week to check for nasties - more stress with the waiting game) and have been lent a TENS machine for the pain. However, it also gives me palpitations. Anyone else had this? Big shame as it was quite effective.
My onc told me this week that "We always say that H has no SEs as they are so rare." Are we that unusual?
Vecors - Ditto I am on herceptin for life or for as long as it works which thankfully it seems too be at the moment, I was dx with both primary and secondarys all at the same time and have been on herceptin since the beginning back in March last year, god knows how many I've had must be around the 19 - 20 mark, I have herceptin administered at home and every time a new nurse comes along they always ask the same question 'how many more have you too go"? ummm forever!! Although having said that one nurse told me she'd been giving herceptin to a lady for 9 years I found that information very encouraging.
SE are few but mainly very stuffy nose like sinus are blocked, I do get headaches but had the same migraine/sickness headache before I was dx with BC and think its to do with hormones and not herceptin, usually lasts a day and I spend that in bed not moving otherwise I am violently sick. Heart palpatations come and go but my heart scans are good. Tight chest and breathlessness again comes and goes not all the time.
Love and light to all
I was told that Infusion through MX side is a big no. Some onc are allowing blood to be taken through mx side.
I am on herceptin for as long as it works for me. I had 6 so far but had 18 back in 2008-2009. My veins are knackered and consider having a portacath fitted. I will discuss it with my onc in June.
I had a hickman line inserted so i didnt have to have over 12 months of cannulas!
My friend struggled for about 9 months on chemo/herceptin and then she opted for a line too, for the final 5 months of her treatment.
I really admire you ladies that can cope with the cannulas, I'm such a baby!
Just a question for you ladies who have finished Herecptin or nearly finished.I have had my 4th Herceptin,just wondering how your veins held out and if any of you had to have iv in mx side.Is it ok to have in mx side or not?