Conorchloe- like you there was a possibility that I might have needed further treatment. The pathologist had to do extra tests and I was lucky that the results were negative and no further treatment was needed only letrozole. I truly hope that you will be the same, but if not remember you are strong and can defeat the little !!!!!!!! Waiting is the hardest, my appointment was postponed due to the snow. Sending you lots and lots of hugs. It’s lovely to engage with ladies who know exactly what we’re going through. Xx
Conorchloe, sorry to hear that you'll need more treatment, you just need to do what's right for you.
Chemo and herceptin is what my mum had eventhough the ornocologist was reluctant at first because of her age (68).
Have you looked at any other threads? Whatever you decide there's lots of support for you here 💓
Thanks so much everyone for your support. I slept very well last night. It has made a big difference to me on my journey. Sending Lots of love and hugs xx
Miffy, that is good news 😆
Looking after those grandkids will keep you young, that's what my Mum always says and she's a BC survivor too. She's in her eighties so you've got many years ahead of you. 💓.
I’m fortunate that I am retired. I’m 61. I usually look after my grand children, with my husband, 3days a week, but haven’t been able to recently. I have found that very hard. But in April, we are gradually, going to start looking after them again. XX
We went to porthcawl for a lovely walk and then on to The hospital this afternoon. I had very good news, no follow up treatment only letrozole for 5 years. My nurse inserted some saline into my reconstructed breast, it was fine. I go back in 2 Weeks for some more. I will have to decide what to do about a nipple for the reconstruction. All the very best to you all, fingers and toes crossed for your progress. Lots of hugs Xx
Best of luck for today Miffy
Ali, so pleased for you, what great news,
best wishes all, girly x
Thanks a lot whales. My husband and I are going out and about today. Keeping busy as my appointment isn’t until 3.00. We’re going for a meal lunch time tomorrow, the place looks amazing,
loads on what they call a “picnic table.”. Then staying the night in a B and B. All the very best to you. Xx
That is very good news Ali xx
Great news Ali. My results are tomorrow. Xx
Oh mate that is fantastic news and the best I have had today, got a big smile on my face for you.
Sending you loads of happy hugs xxxx
Thank you Roxanne. I haven’t driven yet. I hope to start mid March. I will need to make myself then or I feel I will loose confidence and will give up driving. All the best to you all xx
Ali and Miffy got all my bits crossed for both tomorrow.
sharp twinges are nerve pain
i drove to the supermarket on Monday, its about a mile away. My op was on th right side, i had a thick scarf across my breast and shoulder. It was ok. I went in the middles of the day so there was very little traffic. My main problem is speed bumps.LOL
Got everything crossed for you for tomorrow
Sending you loads of hugs
Good thanks Ali. No more weeping but 1 stitch is still determined to stay!! Results on Thursday, I’m eagerly to know the way forward. Xx
Had a bit of a weep from my reconstruction side yesterday and there is still 1 stitch left, but overnight it seems to have settled. I rang my breast nurse for a chat , as I have no other symptoms she wasn’t too concerned. They’ll have a look on Thursday. All the best to you all. X
Hi CC, you're so right, if you've got your health etc, sorry I can't remember much, should've kept a diary then again maybe its better to forget - like childbirth.....
Hope you enjoy the shop, I had half a valium once (pinched it off my mum) and went on the bus high as a kite!
speak soon, girly x
Hi Conorchloe, well I had a lot of toing and froing with vac dressings for a few weeks because I didn't heal so well - was able to drive at seven weeks so that was when my arm felt ok although it was definitely weakened for months, went back to work ten weeks but was huffing and puffing when no-one could see me and stretching up was hard.
The stomach healed really well and I was running up and down stairs within weeks but still having to stop and have rests/naps for quite a long time.
Never had much pain although I did take arnica regularly after the op, managed on paracetomol and ibruprofen. I had more pain with the vac dressing, my skin didn't do well with it.
The stomach felt fuzzy wuzzy for a long time and still does sometimes - like a huge elastic band contracting.
The reconstruction area also feels a bit weird, like I have something bulky under my arm. but no pain.
Disturbed sleep for weeks - had to sleep with the radio on low, lots of itchy skin for a few weeks so took antihistamine at night and it helped with the sleep. Plus a yucky sweet taste in my mouth for a few weeks - probably the anaesthetic.
I think you are about a month on now? and are you having the symmetry op too later on?
(i dreamt about mine last night.....)
So sorry some of you have not had the results you were hoping for and Miffy you are still waiting too.
Whales, re feeling lopsided, don't know if your surgeon indicated your reconstruction may settle over time - this may lessen the imbalance. I felt very self conscious with a slanted cleavage for a while but after a couple of months the DIEP reconstruction had dropped and its not so noticeable.
Loose patterned tops, especially asymmetric, are good also layers and big scarves or pashminas round your neck distract the eye, The plastic surgery nurse put me forward for a prosthesis appointment which never materialised by which time I decided I didn't want to go down that route so just made do with those padded triangles and now hardly ever need them.
When are you having your reduction on the other side, I still have a few months to go but my choice.
Thanks Ali and Whales. I’ll do my best to keep busy xx
Hi everyone. My appointment was cancelled due to the weather today. My cancer nurse rang, so we had a chat. The results of the test weren’t back anyway. I’m a bit disappointed, but others had their operations cancelled so I’m lucky really. Another week to wait. All the very best to you all. Hope everyone is nice and warm. It’s really very snowy here. Xx
Hi had my first physio session today. I knew it would be uncomfortable but it was a lot better than i thought. She showed me how to massage the area around my scars, which will help with my movement. I also have mild cording in my arm on the inside of my elbow, and she's shown me what to do about that. The really interesting thing was that i need i different type of painkiller so i need to see my GP again. She says that i need something that covers nerve pain, has anyone else come across this?
Conorchloe - thinking of you and your results 💓
Miffy - got my bits crossed for you too (got the idea for symbols from the radiotherapy forum. Shi uses thrm to great effect) xx