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Horrible side effects - help anyone!!!!!

12 REPLIES 12

Re: Horrible side effects - help anyone!!!!!

I had my first Fec on Thursday 27th August. Today is day 7 and I feel the same as I did before the chemotherapy, not sure whether I have come out the other side or there is worse to come.!!!. Days 1 to 6 I experienced nausea but taking my Ondansetron morning and evening helped a lot. Apart from the nausea I havn't had any other side effects at the moment . My heart goes out to you all who are suffering with these awful side effects. I have not and will not become complacent.

Re: Horrible side effects - help anyone!!!!!

Thank you again folks am taking all the advice on board, so praying next lot will be easier!! I think different regions etc do do things differently.  I'm in West Sussex which is Worthing Hospital they all been fantastic up until my recent down below problem then nobody seems to be coming up with a solution! but feel will get on top of it now with all the advice given, many thanks again XXX

Re: Horrible side effects - help anyone!!!!!

I have picc line and did ask for anti sickness as iv but they said  as long as you take the Emend an hour before treatment (it's a three day dose thing and you take a biggy first day and then two smaller other days) it is as effective as iv.

I think it depends what region you are in and personal circumstances etc but I have several other friends on FEC that swear by the domperidone. 

Basically I have 1x  Emend for three days, Ondansetron 1 x twice a day for two days and can supplement domperidone 1x 3 a day as needed so if you are clever you can space them out so you are well covered! 

Like I said earlier I didn't get it at all right the first time but this second cycle it was better. 

 

Re: Horrible side effects - help anyone!!!!!

Hi bleachbabe - at next treatment ask what they are giving you and what it is for. I didn't last time but am much more aware of it being my body and I need to know what is going into it. I think we are so shocked by dx that we just go along with the flow. Ginger and lemon tea is good for nausea or ginger beer/cordial - you can prob find a sugar free one.   Marli xx

Re: Horrible side effects - help anyone!!!!!

Hi Purpleclare, thanks for replying.  They basically gave me the anti-sickness via my portacath (have had a double masectomy) half hour before chemo ( presumed everybody had that) but not sure what that is, then sent me home with Metoclopramide Hydrocholoride tablets which i did take but still didnt help.  I have written down the two you have suggested and will mention to my oncologist, he should be phoning tomorrow re seeing him before Thursday. Unfortunately im diabetic as well, yey!! so lucozade things out of the question for me but thanks for the suggestion. Have added crackers to my shopping list, thanks again and lots of positivity sent your way xx

Re: Horrible side effects - help anyone!!!!!

Hi,

what anti sickness meds do they give you? I know everyone is different but I find the domperidone really good but the best is the Emend. I didn't listen to the advice on my first FEC to take the tablets routinely and waited until I felt sick and that is the wrong way. Set alarms if you have to and ask for Emend if you don't get it already. I still get the nausea which seems to be helped by freezing lucozade before hand and sucking on a lucozade cube when the nausea strikes. I go straight to bed after the session and stay there for about 36 hours. Keep all your mess next to you and a good supply of water. Also I've heard that nibbling dry crackers keeps a bit of the diarrhoea at bay as well.

Keep in contact with the nurses and if you need to see your GP wave your chemo book if you have one at the receptionist and they should help you get an emergency appointment.

 

Clare

Re: Horrible side effects - help anyone!!!!!

Hi Marli, golly just seen your post and I know I am an emotional wreck but it bought tears to my eyes, I am sending you a virtual hug as its such a relief to hear someone else experiencing same and thank you for the advice re cream invaluable! Am so sorry this is your second time around what aload of crap it all is!! these forums certainly seem to give strength and hope to everybody so am sure you will find that again too.  I have actually kept a dairy and am so glad I did as realised need to be prepared for each round.  Wishing you all the luck in the world too. Much love X

Re: Horrible side effects - help anyone!!!!!

Oh I forgot to say am also diabetic, insulin dependant just wondered if anyone else out there diabetic but actually thankfully managed diabetes ok except for first three days on steriods so had very high readings but managed it!! XX

Re: Horrible side effects - help anyone!!!!!

Hi there, thank you so much for your replies.  Lisa53 am sorry you too having been suffering these horrible side effects.  Can I ask were you on FEC100 to begin with? Mines FEC100 x 3 followed by Tax x 3 also if you dont mind me asking what was your diagnosis?  I have spoken to chemo nurse and she has emailed my oncologist all my side effects and she has said they will probably reduce it but definately give me extra anti-sickness tablets so am relieved there. My only fear is will it get worse at each session but I guess if they reduce it hopefully not.  My only worry is one of my lumps was triple negative and I know only treatment is chemo (the other lump was oestrogen positive) so a little bit different i'm afraid!! But I guess they will leave the decision ultimately to me so will have to way it up.  Feeling quite good today and can't believe 2nd round is only a couple of days away!!  I went out today with my wig on for the first time aargh felt so vunerable!! Popped into Boots to speak to pharmacist about down below and suddenly felt ok, you can do this, so another hurdle ticked off the list, there really is too many in this flippin club lol!!!  Thanks again both of you XX

Re: Horrible side effects - help anyone!!!!!

Hi bleachbabe - sorry to hear that you are having a bad time.

First of all there is no need for you to suffer the sickness as there are very good anti-sickness meds available.

I suggest that you keep a side-effects diary , noting every symptom and how long it lasts  and what you did to help.(I used a £1 shop diary) My BC is a recurrence and I did not keep one last time but have this time as suggested by someone on the Forums. This is then very useful when you see the Onc before your next treatment and means that you can ask for the correct meds to help.

I had 6 x taxotere (no FEC) and finished in May. I too had diarrhoea and sometimes am not able to get to loo in time! A few weeks ago developed a urinary infection that needed strong anti-biotics and since then I have been very sore and itchy which also kept me a wake. I have tried loads of creams as did not really want to have to go to GP, then remembered that I had this 5 years ago on initial dx. I was taken into menopause as a result of chemo and had the usual type of symptoms including soreness. I eventually used ReplensMD a cream to remoisturise the vagina and all that area and seem to remember that after a few weeks this cured the problem. Have just bought some more in an attempt to cure the problem this time.

It is quite expensive at £12 a tube and the pharmastist told me she had never sold a tube as it was usually given on prescription. So perhaps you should go back to the doctor and see if she can help.

Like you I consult the internet and that was where I found the information about menopausal symptoms etc.

Hope you get sorted soon because it is a miserable side-effect. Good luck.  Marli x

Re: Horrible side effects - help anyone!!!!!

Sorry you are having tough time. Please call chemo unit though! My oncologist keeps telling me too if any concerns! Not just temp related they should help. I got an emergency care sheet on first round and told by nurses even just worried to call. Plus as Lisa says if they have full info they may adjust dose. Take care x

Re: Horrible side effects - help anyone!!!!!

Hiya, my first dose of FEC caused me to have quite severe side effects and I was admitted to hospital as neurapenic, they then reduced my dose by 15% and after that the effects were less severe.. May not be the case with yourself but if side effects are bad you could ask the question..I guess you have been given anti sickness tablets as nausea was something I didn't suffer with as I had the tablets...but severe indigestion so couldnt eat/ drink, headaches, dehydration and thrush in throat.. Given anti fungal tablets so didn't get thrush again.. There are so many side effects but your chemo unit should help you, I never went to my doctors once...not sure if this is helpful or not....but all I can say is that I am glad they adjusted my dose as I couldn't have coped with 6 of those! Good luck, it is gruelling but there is light ....just got to wait for it..x

Horrible side effects - help anyone!!!!!

Hi everyone, have only recently joined the breast cancer care forum as really could do with some advice if anyone has had similar experiences.  Im on day 16 of first round of FEC-T100 yuk, dont even like typing the word.  Ive had one thing after another, feeling very sick without a breather for about 7 hours initially which then continued for the next three days, followed by bowel cramp and diarheao (I do suffer with IBS, so understandly i guess could be that) then closely followed by what the doctor diagnosed as cystitus, so had sachets over counter and painkillers, also gave me cannistan cream and pessary incase of thrush, didn't work, went back said Urine infection now on antibiotics finish tomorrow and STILL have burning feeling down below, keeping me awake at night!! I am one to look on internet (rightly or wrongly) for help or just hope really and have come across chemo causing vaginal sores!! neither doctor or chemo nurses have mentioned this, so just wondered has anyone out there had anything similar and any advice would be a huge relief/help!  Im reluctant to call the chemo unit as they said last time phone your doctor (as didnt have a temperture) and last time doctor said speak to the chemo unit!! great i'll just go round in circles then shall I!!! Once again we are told to be strong, positive and all that but push you too your limits ah!! any advice greatly received, much love to all xx