Support, not emotionally. But do have personal assistants/carers and just interviewed new one today.
i get funds from social servicies to pay PA/Carers.
I have three,but not at night.
I will be so releived once process starts but am scared about coping, so much to organise re help.
Six weeks just seems endless but now its 10 days left 🙂
I was diagnosed 28th Feb, op planned for 12th April so six weeks.
I did ask why waiting was more then NICE guidelines and was sharply told the NICE guidelines 61days!
So thats me told. 🙂
Its been awlful and still got just under two weeks to go.
I am a wheelchair user and am finding they are not adressing how I will manage after op or with treatments.
Makes me wonder if the BCn's receive any training on helping disabled patients, already poorly, reeive social care.
I too would rather have mastectomy then have readiation and hormone drugs.
I hooe your op goes really well though.
I went to breast clinic on 22 February where they did biopsies. Returned on 9 March where cancer confirmed and new areas found. Numerous more biopsies. Saw breast consultant on 29 March with news of lots of stuff going on all around my breast but hoping not in lymphs. I've opted for mastectomy, but they wanted me too consider reconstruction options. So now I'm seeing BCN on Monday and have to wait until Friday 7 April to talk to surgeon who can do reconstruction.
Then I'll have to see when he can do op. I'm thinking this is all taking too long with all this cancer growing in my boob and want surgery ASAP. I'm therefore going to ask on Monday how much it will delay surgery by asking for immediate reconstruction. Don't know whether to just tell them to do MX ASAP and worry about reconstruction later. I only want a simple silicone implant.
My biopsy showed what type it was but then had to have hormone blood test afterwards. They also can grade and stage it although this sometimes changed after surgery when then whole lump is analysed.
Hi Karen when you go back what have you been told this is for? More tests or imaging? Or the treatment plan? I'm sure your BCN will be able to help. The waiting is torture. I feel like I was told months ago but in fact it's a matter of weeks. X
I think Alex I would feel similar to you actually. Was he quite open to that or much persuasion? X
Thanks Ann. Think I'm just having a mad panic as it seems a lifetime ago that I was diagnosed (in reality a couple of weeks!) x
Thanks Alex- please don't worry about rambling! You should meet me in real life! Ok thank you. I'm hoping mine is no longer x
I was diagnosed on 11th March 2015 and had my op on 27th March, I was told the guidelines were 3 weeks from diagnosis , mine was all pretty straight forward so didn't ask anything more but I was really surprised at the speed of things Xx
Hi it is 31 days from diagnosis/decision to treat. It is very clear, and I measure this on a regular basis. Xx
Hi I was diagnosed 13th Feb after being referred to breast clinic with a lump, had mammogram and biopsy. Also had Mri at later date to check size of lump and check if left boob was clear (it was). Then had to go back to see Consultant for Mri results and agree surgery on 6th March. Got cancellation at 2 days notice and had mx 17th March. The 31 days guideline for treatment starts from when you agree type of surgery and not from the date diagnosed.
Hugs to everyone waiting, it is a very stressful time.
Hi. Nixons, most areas have their own guidelines, and as a minimum they will follow NICE guidelines. If you are in London they are easily accessible via the net. Broadly the standard is 31 days from diagnosis to first line treatment, and then a further 31 days for second line, however, clinicians can obviate that standard on "clinical" grounds, i.e. Need for further investigation. There is a lot more detail and worthwhile reading. Hope that helps. Xxxx
These early days of diagnosis are the pits, inevitably, everything seems to take an age & time takes on a different meaning.
It sounds like you have the necessary appointments in place to get the diagnosis finally completed, so it will progress, although it does not help the anxiety.
When at this stage, my investigations were on a similar timescale.
As you say, hopefully your BCN will be able reassure you.
Hi Sarah , it can certainly feel like it's endless when you are first diagnosed and I'm afraid to say that a good BCN is like rocking horse poo! Mine was ok when I saw her but I didn't have the need to call her so I can't really comment on her use afterwards! Don't be put off getting answers though, keep badgering the hospital as you are entitled to know exactly what is going to happen and when , I'm sure if the " professionals" had to go through what we do then the way things are done who dramatically change! Xx Jo