Oh that is fab,so that is your next milestone, am I absolutely loving the positivity and the donning of normal pants, you go girl xxxxx
Sorry I have only just noticed that you replied.
All this waiting is hard and it really affects us, we try to keep busy and forget but it is always there in the background but it will soon be 7th feb xx
You are entitled to have down days, we all need to cry to be able to release the built up emotions, and always remember we are here to help and support, you can rant and cry on here in complete safety and we will get you through it
It is great to see that today you are feeling so much better, yep and you will get through whatever it is because even though you don't think it you are strong and you will be the other side of this in the not too distant future.
As ann said, radiotherapy does involve an initial appointment with the oncologist after which about two weeks later you have a planning appointment and then rads will start about two weeks after that.
Lots of love and hugs
Hi Ang - not at all, I just want to get my life back as normal as it possibly can be. After my second op (had one two weeks after to clear margins), I went back to the Gym in 4 days - I figured even if I just lower the intensity I am doing what I usually do - it works for me - my family were a bit alarmed, but like I said, I just didn't over do it. All the best. xxx
Hi Ang, wishing you all the best for Monday, hope it goes smoothly.
I am a bit of a gym fanatic too, I also cycle everyday, I asked the hospital when I had my first lumpectomy and she said 2.weeks, I frowned at that, and said "how about I go back when II feel ready", and she said yes sure that was sensible. So I went back after one week. However I laid off any upper body weights for about 4,weeks and just did cardio, and reduced my routine in intensity for about 3 weeks. I laid off cycling for a week, more cos I was scared about risks of falling off. So, obviously it depends on where your excision is and as long as you don't have any infection etc, of course if your surgeon nurse says anything else then you should obey the rules!
All the very best. Xxx
Isn't it amazing what we find out by just being on here and talking to each other, probably more than we would know elsewhere. I have never heard of a fish test either, but now I do
I am echoing what ann and Susan are saying. Remember you want ROLF completely out of your body so this is to make sure that happens.
Sending you loads of hugs
They do want to get it right before they commence surgery. You don't want to be recovering from one surgery and then have to go for another. When they did my SNB, if they had found node involvement, I would have had to have surgery again, just after having my mx.
This waiting is horrible and I know you just want to get it sorted. Sending you a big hug - you will get there in the end. EM67 was diagnosed back in October and she has only just had her surgery yesterday, it was awful for her as we all had our surgerys while she was still having scans and waiting for results.
Loads of hugs
P.s. We are all in the coffee lounge under hope and inspiration, come for a chat.
Yes, that's so right, for us it is unique & horrible, for the team they're dealing with this day in, day out.
So inevitable the anxiety can lead us to imagine the worst, when often the explanation is quite mundane.
It will resolve.
And that is the way to think about it, that is your next big milestone. I called mine Mr Blobby xx
The same thing happened to me. I had an MRI scan 2 days before surgery & was told the results would be rushed through beforehand & that I would be contacted to confirm if the surgery was to go ahead.
Anyway, a call didn't come through, so I carried on as normal with the wire localisation just before surgery, everything went ahead as planned, then the surgeon told me, the MRI was clear, but that he did not ring as he was seeing me that day!
So try not to read too much into it, however, I do remember the feelings you describe, the anxiety is horrible.
I was so relieved everything was going ahead as planned, I almost enjoyed the experience & my bp went down!
Oohh sending you a big Helena huggle.
This is anxiety that is causing you to feel the way you do and quite normal. You are expressing your fears which is good as they are better out than in, and you know you are in a safe place here. Your anxious voice is telling you that there is something they are keeping from you but then, which is great, your rational voice is telling you that actually the results are only reviewed at the MDT which is held on a Friday so actually you would not expect them to make any decisions until then, bear in mind depending on what time they have the meeting and how long it goes on for that is possibly why it might not be until Monday that you find out the results of your MRI.
You are also on your own at the moment and have no distraction from thinking about your diagnosis that you would have if your hubby was there I am sure. One thing you are not though is on your own, not with us lot behind you xxx
Oh Alex that's exactly what happened to me with the MRI. I so wished I'd said to you to keep your eyes open when you go in when I saw you were worried about having one. It didn't occur to me to open my eyes the first time and did the same as you panicked and screamed at them to let me out! I felt such an idiot. Then realised if I kept my eyes open I could see the end. I did the whole thing with my head sort of stretched round so I could see enough of the outside! I have decided if I have another one I'll take some sort of tranquilliser first! Glad you got through it anyway and hope that things don't change too much as a result. I am also waiting for surge (mines on Friday) and it is a horrible wait.have you got plenty of things planned for this week? I'm trying to fill my days and keep occupied then get completely knackered!! Take care Emma xx
Well that is that one over, you have got through it, I have never had one myself but Colin has and he told me what it was like, I must admit I think it would freak me out.
Presumably they will let you know in the next week or so?
Relax now xxxx
I know just how petrified you feel....I had to have a CT scan with contrast looking for metastasis as I had DCIS with invasive tumour on top. We already knew from the biopsy results that I had some positive nodes so it was a real possibility even though the oncologists were convinced it hadn't spread.
It was a difficult few days but thank fully it came back negative.
They don't always rush with the results. I called my BCN after a week and she said they would tell me at admission for my mx - another 10 days and I would be on my own in the hospital!! I told her I would go mad by then!! What a star, she checked on the system and rang me back 10 minutes later to say it was clear.....I guess she could not have done that if it was a positive result but in my case it saved me 10 days of angst about my prognosis.
Good luck. Nothing will completely quell your fears but here's hoping for the best news. 🍀💕
I went through the same terror. My lymph nodes were clear but I still had to have a CT scan to make sure it hadn't spread. I was petrified, my heart hurt, I couldn't breathe - I felt like I wanted to scream.
The scan came back clear - just as they thought it would, my consultant said afterwards!
All this waiting for results is horrible, but they do want to check that they are giving you the right treatment.
Sending you huge big hugs.
Like most things when going through this, the prospect is worse than the reality. I remember feeling very anxious about the MRI, but it is to get the all the information required to get you the best treatment plan.
Like you, my nodes were clear on US & so it remained.
It's normally done if you are younger, have dense breasts &/or if you have a lobular bc diagnosis.
It's quite straightforward, I actually found it quite interesting once, I had got over the anxiety.
Subsequently, I felt reassured it had been done as I then understood they were only being thorough.
good luck with your radiotherapy I finished mine in September and it was ok I promise. Just wanted to say I too had thyroid cancer in 2000, you think you have had your lot don't you and then we went and got another one, My breast cancer was found last April IDC 14mm grade 3 no nodes and Oncotype 20 so no chemo. I had a CT scan last week which found something on my liver so I am having a MRI on Monday which I am really scared about. It is a rollercoaster for sure.