I was diagnosed last June with Grade 2 IDC (though path report after lumpectomy said a mix of ductal and lobular) and had WLE, SNB and re-excision followed by radiotherapy and Tamoxifen (started in September.)
A few weeks ago I had a little unusual bleeding so GP made an urgent referral to gynaecology clinic and I had ultrasound, trans-vaginal ultrasound and hysteroscopy (very painful!) which found the womb lining to be thickened and also a polyp. The biopsy taken showed no sign of malignancy.
I got an oncolgy appointment the week after the hysteroscopy (mine had been cancelled in April) and the new oncologist I saw knew about the hysteroscopy and told me to come off Tamoxifen immediately and put me on anastrozole. I wasn’t sorry to stop the Tamoxifen as I had bad side effects. She liaised with the gynaecology department and now I have an appointment to see an oncological gynaecologist next week. I had a thickened womb lining last year and had a hysteroscopy under GA along with a D&C, polyp removal and removal of my mirena coil.
I read on RevCat’s thread about Tamoxifen-induced hyperplasia that the mirena coil is used as treatment for hyperplasia so I’m rather surprised that I got it when the mirena coil had been in situ for more than 3 years. I’m also surprised that my womb lining has thickened again so quickly.
Does anyone who’s had hyperplasia have any idea what the gynaecologist might suggest? I know that a total hysterectomy is quite major surgery but should I be asking about it in my case? (I also had an abnormal smear test a few years ago.) What other treatment has anyone had?
Sorry for all the questions, I’m just wondering what to expect.