So glad you're home again Clare. Rest up now, you don't want to see that hospital again for a VERY long time.
Twinky, thank you so much for keeping us up to date. Hope the Tax is not proving too taxing.
So happy to hear that you are at home in your own bed Clare- Lots of love and a big gentle hug. xx
Twinky -Queen of Watership Down - thank you very much for keeping us all up to date with Clare- I know I'm not alone in appreciating it. Love and hugs to you too. All the best for the next "dosing". xx
A VERY VERY VERY BIG THANK YOU
I have just been reading through all the threads and so appriciate them and the luv and kindness which are behind each one of them..................................I'M FREEEEEEEEEEEEEEEEEEEE
Just got home a while back and had to look as Tinky ( the biggest star) has been wonderful and I'm so sorry to her for making her so worried, I think that was my sobbing day.............lol
My calcium is lowering nicely and at first the consultant said I should see the last bag through (8 hours) ***********grrrrrrrrrrrr...... then he popped back, said he felt mean as it was so painful and leaking that I could stop it and go immediately, I could had kissed him!!!
I moved wards and beds 4 times over my stay in hospital which added to my distress, always picked me as I was the youngest. I had just got settled next to a lovely raised bed garden, small fork had come from home and I had planned to do some weeding to while away the time. So that was the last straw lol.
I am so very tired now and will sign off, happy to be home, seding my love and best wishes to all
Thanks Twinky, I have had that swollen had problem many years ago and I can remember just how sore it can be. I was crying and so was the Sister who had put the canulla into my hand after 3 nurses had failed. I am sure Clare wil do much better and home with her family. Hope she comes on leaps and bounds when she does. Give her a gentle hug from me and tell her I send my love and how much we have missed her. Love Val
Twinky, you are a little darling keeping us all informed re Clare, thanks so much.
Poor Clare having to suffer canula problems AND delays with her bloods, it isn't good enough, is it? She must feel like bl**dy screaming, I would! I have fingers, toes and eyes crossed for good results from Clare's blood tests; she will be desperate to be out of hospital and back home.
Enjoy your week of fewer tax side effects, but do look after yourself - don't try to do too much, you need your strength for the next dose.
Thanks Twinky, for keeping us in touch/informed. This afternoon, I went to see a friend, and passed a couple of rabbits on one of the verges... and instantly thought of Twinky!!!! I always will think of you now when I see rabbits... just like I think of Clare when I see Claredrops...
Oh it was so good to hear from Clare today. She's understandably grumpy after trying to tell them that there were problems with her cannula she ended up waking with a wet bed & a water filled hand. She also has had lots of delays in having bloods taken. She is waiting on those results to find out if she can go home or not. I will keep you all updated. Am hoping to see her tomorrow if she's still at the hospital.
Looking forward to my bed now. Tired after entertaining my parents & reassuring them I'm ok after a rough week last week.
Hi Twinky, thank you so much for letting us know how Claire is, not being able to get onto the site has been daunting, I have been thinking and wondering about Claire and not being able to get on has been really frustrating. Give her my love and thinking about her. love to all junieliz x
Hi Twinky, sending my gratitude to you for keeping us informed re Clare. It was a huge relief to hear Clare has contacted you today.
I hope your day was enjoyable and relaxing with your parents and OH............you deserve it. You poor thing, you must have been feeling very worried, but can now breathe easier.
Let's hope you find Clare feeling more comfortable tomorrow. Please give her my love, and tell her she's in my thoughts.
Thanks Twinky. I know quite a few Extras are keeping in touch via other fora (FB being the obvious one) and rooting for Clare.
Hope you had a yummy roast, and thinking of you as you prepare for Tax-ing this week.
Have got behiond with the thread with the new siteso only just seen Clares news. Please pass on my love with everyone elses next time you're in touch.Hope they manage to sort things out and at least make Clare comfy whilst she's there - huge but gentle hugs xx
Glad to hear you arwe feeling better yourself today and hope you have a lovely day with your parents.
Hello to the newer ladies, hello and best wishes to all on this thread xx
Thanks for the update. When you are visiting Clare tomorrow, can you try to get a feel to see if she wants visitors. I would love to visit her during the week but don't want to intrude. Can you pm me the hospital name. Enjoy your Sunday roast.
Having a lazy afternoon after another stretch on the Thames. I walked from Windsor to Maidenhead with my brother in law. Lovely sunny day. It was georgeous.
Love to all.
Trumpets.....lol....I have had a text from Clare. She's having a rotten time in hospital ( fun & games with the cannula etc) but I'm so glad to hear from her! Phew....can relax a bit. I was really fretting. I will probably go see her tomorrow afternoon at the hospital. Will keep all you ladies updated.
Hi Twinky, I am a Extra but would like to thank you for keeping the thread up to date with Clairs progress, please give her my love and best wishes and hope she is feeling more comfortable soon, this disease is awful and yes things can change so quickley. Hi Julie nice to hear rom you, I have been reading up on what has been going on and am pleased you are ok, Feelinf Low was a lovely thread, as is this, but as Twinky says things change to quickly. All my love Roz xxx
I do hope Clare's ok. Keep checking my phone for texts from her but nothing so far. I was going to pop into the hospital & see her but now that she's not in touch I don't like to intrude so I'll just have to wait until I hear something.
I'm over the worst of my first Tax experience & starting to build up my strength again. My parents are coming up to visit today so need a nice roast to greet them when they arrive. They were worried about me last week & want to check I'm ok before they go on holiday for a couple of weeks. It's a gorgeous day here. Got an early morning wake up call from one of the bunnies bouncing up onto the bed to say it's breakfast time. Will have a quick snooze though before I tackle the big clear up with hubby. He had a week off to look after me through my worst bits & I feel reassured knowing he'll do the same for the last two treatments.
I have been a lurker (extra) on this site for about four weeks since WLE and SNB and stumbled across this thread by accident last night. It took me over five hours to read it all and I was humbled,moved and inspired by Clare (her poetry was remarkable) and all of you other wonderful ladies.
At times I cried, at times I laughed and was always amazed and touched at the love and support that is out there.
I decided to post and then learned that Clare is in hospital.
I do not have Clare's way with words but her courage has shone through her posts,as has that of you other ladies.
I send my very best wishes to Clare and her family.
Thanks for all your wishes for Clare. I have been passing them on to her but I haven't heard from her at all today. Last text swap was talking about the Great British Menu comp last night ( Clare & I have been following this & I was updating her with the Friday results). Obviously I am worried by her silence but I will just have to be patient & wait. I have my fingers crossed that she is ok but given her situation things can change very quickly.
Hugs to you all. Promise I will post as soon as I have any contact.
Thanks for letting us know Twinky. Sending my love and hugs too.
Also a big thank you for her recipe for what I call "Fish Pie a la Clare". I don't like fish but always think I should eat more of it because everyone says "it's good for you". I made it according to Clare's recipe last night and really enjoyed it so finished my meal feeling very virtuous.
Yet something else to thank Clare for and making her "famous" in my house.
Love Diana x
I have popped in from the March chemo 2012 thread and wanted you to know how inspiring i have found Claires posts. I feel really humbled by her messages and particularly her poems. Can you please pass on my best wishes to her.
Clare, hope you get your bed and feel better soon, lots of smiley faces and fingers crossed !!!
Just having a quiet day today, it's pouring with rain and very chilly, can't believe I was basking in sunshine last week but back to reality with a thump!! First tan I have ever had will fade fast in this weather, I usually go red then freckly, not sure if my freckles are all joining together so it looks like I'm tanned!!! Perhaps???
Started to feel a bit yucky coming home on the plane, (didn't tell anyone) another first never felt bad before and when we landed a customs guy stopped me and said to follow him, I went to the head of the queue, just so kind, on a bad note must have looked really sh**!!!! hahaha, have bone scan on Mon, getting a bit nervous!
Hope everyone has a great day, Clare, drops and extras xx
Clare, get you thanking us for putting up with your whinging! You are NOT a whinger. You are merely telling it how it is for you, and we, all of us feel for you. As others have remaked: I haven't a flipping clue how I'd cope in your situation; I'd like to believe I'd be as positive and bouyant as you, but ............hmmmm I dunno! What I do know is: if I am faced with your circumstances at any time - you will be my guide, my inspiration, I'll never forget you, or your strength of character and desire to embrace life within its constraints. You must give yourself a huge pat on the back for the path you've chosen, a path which you've made us all understand is the way to deal with any cr*p thrown our way. It would be all too easy to internalise and adopt the 'woe is me' attitude, but you didn't, and for that I admire you so much; I feel certain you have enriched not only your own life but your loved ones lives too. Wow! what a wonderful mentor and example you are to Ash and Jamie, and what an inspirational legacy you will leave them.
I know the above is a bit a deep, but I just HAD to say it! Now, moving on...........I hope the hospital have a bed for you pretty dam*ed quick; ignore other folks tantrums - they don't know your situation - I'm sure if they did their reaction would have been different. Do you know this blooming illness has taught me so much........tolerance of others....to always think 'maybe he/she overreacted as they are carrying a burden', to ditch the thought 'what will people think'.........who cares - I intend to be the lady who wears purple, a true British eccentric! Underneath I was always rather eccentric (like my dad) but learned over time to sort of hide it........but, no more, from now on I intend to be ME, the person I was born to be, and you Clare have helped me see that that's the way forward, self truth. Thank you.
I'm having rads, hence why I've not visited here in a while, today was number fourteen of twenty, my last one is 17th May the day before my birthday, yeah!!! So far my skin is holding well, but I am feeling exhausted, looking forward to the last one.
Isn't the weather dreary? My hubby rings his folkks in Italy and is told 'it's a beautiful day 25%...............pah! They live in Puglia in the deep south where winter weather only lasts a few weeks. Sometimes I think 'ooh should we retire there', but then sensibility strikes and I realise why we've not already retired there - the grass is always (or sometimes) greener on the other side, but actually our country here has many qualities, qualities which both me and my husband would miss..........pubs, pub quizzes, our wonderful NHS....things available to do in bad weather, hobby classes, wonderful parks, pleasant walks.........the list is endless, but the biggest pull which keeps us here is our two wonderful daughters. I do love the south of Italy (not enamoured with the north) however, there's little social life outside of family, beach, or restaurants .....which are amazing, but when you are used to Britain,it's quirkiness and sense of humour, other countries can seem dull.........unless you are a sun worshiper - which I'm not.....that said I always look forward to my holidays in Italy and France, but look forward to coming home too. Who knows, one day when I'm old and grey I may retire to Italy's sunny climes.... we'll see, time will tell, if I was to retire abroad Italy would definitely be my choice.
OMG, haven't I waffled? Sorry. Hope I've not bored you! Good to hear you are enjoying tracing your ancestry, it's a very addictive interest, I've been tracing my lot for ten years and have now got meat on the bones .........found a felon transported to Tasmania, my ggggrandfather who evaded me for ages turned up in Maryland and I'm now in touch with one of his descendants there, a ggrandfather accused of not sending his children to school, a few other's mentioned in newspaper articles, some for good deeds, others for not so good. It's all very fascinating!
Must go hit my pillow now ..........a lovely silk one which my dau gave me for mothers day to help my hair grow silky smooth....hope it works...hair too short yet to tell.