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I am in a really surreal place.........

ChoccieMuffin
Member

Re: I am in a really surreal place.........

Thanks for bumping this thread to one of the top 10, I despaired of ever seeing it again! Also had a couple of texts from Clare, but Twinks has already passed on the gist so I won't repeat. And as I didn't know you'd all been sending good wishes I admit I didn't pass any of them on!

Hope everyone's ticking along nicely (that's about the best we can hope for, depending on stages of treatment) and that you're getting a bit more sleep than I am. And I don't even have the darling Dex to hold to blame!

Clare, in case you manage to find your own thread,

W E L C O M E H O M E ! ! ! ! ! !

Welsh_girl
Member

Re: I am in a really surreal place.........

Yes much kinder today as the sun shone here on the coast and I found a new cleaner who had had M.E. herself so that should be a good omen for when she helps me....
Do hope you're coping ok too.
How's the treatment package going for you at present?
Not too many side effects I hope.... Do hope life at home is good too.
It's just so lovely to find you again and actually talk to you even though it's through Clare's thread! I'm sure she'd be happy for us to reconnect in this way. Are you still in touch with Steris?
We did say we'd make contact when the summer comes...maybe the three of us could plan a point of contact??? That would be just fabulous. If you can still speak to her do send her my very best wishes.
Not sure yet how I find out whether I can find your message of friendship????I'm not too good at navigating this forum yet! Feels really quite alien but maybe through Clare we can keep an eye on each other's progress.
Do take good care Julie. So lovely to hear from you again.

Wxx

JulieD
Community Champion

Re: I am in a really surreal place.........

Hope treatment goes well this week Twinky, enjoy yourself before hand but keep some spoons in reserve.
Great to hear Clare should be out tomorrow - welcome home hugs Clare xx
Welshgirl,glad you are managing to find some posts,still not easy is it. Thanks for your hello, I have requested you as friend again but don't know if that is working or not! Anyway,glad to see you around and hope life is being kinder xx
Welsh_girl
Member

Re: I am in a really surreal place.........

Thanks Twinky for your news report of Clare. It's so helpful of you....
Do hope your Friday treatment is not too awful and that your lunchdate goes well tomorrow.
Take good care!
Heaps of love to Clare and her Claredrops. Hope you're all coping ok.....

Welsh girl x
So delighted I could find you all again!
Lovely to read of people I know of.... special hello to Lulu and Sadie L and Julie D.
Not too sure how to contact you individually and do want to send you my very best hugs!

Lulu34
Member

Re: I am in a really surreal place.........

So glad Clare's getting home Twinky thanks for keeping us up to date and good luck with chemo on friday xxx
libsue
Member

Re: I am in a really surreal place.........

Twinky, you're a star, thanks for keeping us updated. Great news, Clare must be eager to be back home. I'm pleased to hear she's feeling more comfortable.

Stay calm tomorrow, I'm sure it will go well......I certainly hope so, cos it should.

Good luck for number five, make the most of your time before S/E set in.

Love to all who visit here, take care everyone.

Libby x

AnnieK68
Member

Re: I am in a really surreal place.........

That's good news Twinky!

Good luck tomorrow - hope they don't say what a colleague said to me "you've really changed since I last saw you!" Hope Tax is good for you too x

Axx

Twinky68
Member

Re: I am in a really surreal place.........

Hi Ladies

Some good news, Clare is escaping home tomorrow! She's been drained so is a lot more comfortable. I bet she can't wait to be back in her own bed!

I'm just bracing myself for chemo no.5 on Friday. Got lunch with my boss & his tomorrow. First time I've seen them since I went off back in Jan...no comment! I'm actually quite nervous about seeing them. Be glad when it's over I think.

Hugs to you all

Twinky x

alanaa
Member

Re: I am in a really surreal place.........

Clare,
just a wee note to say that I am thinkin of you and wishing you a speedy return to your own home and family.
Twinky, thanks for keeping us so well informed over the last few weeks and I hope you are doing okay yourself. Had to catch up with a lot of the posts as I only managed to find this thread again. Sending Clare and everybody a gentle hug
Alanaa and Fat Cat xxx

nicky08
Community Champion

Re: I am in a really surreal place.........

Hi
Echoing Lulu's comment. Big hugs to Clare, hoping she gets a 'get out of hospital quick' card and also big hugs to all the Claredrops, especially those having treatment or receiving bad news at the moment.
Nicky xx

Lulu34
Member

Re: I am in a really surreal place.........

Please let claire know im thinking of her xxx

And sending hugs to all the clairedrops xxxx
Welsh_girl
Member

Re: I am in a really surreal place.........

Whhhhhhhhhhhhhhhhhhoooooooooooooooooooooooaaaaaaaaaaaaaaa!!!
I've found Clare's thread at last!
However, very sorry to read that she's in hospital at present. Do hope it's a good form of recuperation for our Clare and she'll benefit from the treatment received.
I will try and find this thread again and read any updates.
Hello to everyone else on here too who is managing to relocate the site. Good to read some names I recognise...Take good care everyone especially anyone not feeling so good at present. This is a tricky time.
Tight hugs from Welsh girl to Clare and all her Claredrops

AnnieK68
Member

Re: I am in a really surreal place.........

Thanks Vercors, pass on my best wishes to Clare - I hope she is feeling better soon.

Hope Twinky & anyone else having chemo this week has small SE's.

Love to all

Axx

laura64
Member

Re: I am in a really surreal place.........

Gd luck Clare hurry home Laura x

moser
Member

Re: I am in a really surreal place.........

So sorry Clare is in hospital again anyone who is in contact with her please send lots of love and gentle hugs to her! All the best to anyone due to have chemo this week .
Lots of love
Mo xx

katytc
Member

Re: I am in a really surreal place.........

Sending lots and lots of hugs to Clare, thank you vercors for keeping us up to date, love to the drops and extras xx

rozvi
Member

Re: I am in a really surreal place.........

Hi All, so sorry to hear Clare is going through such a hard time, my thoughts are with her and her lovely family and hoping she will be home soon xxxx Hope everyone else on this thread is doing well xx

vercors
Member

Re: I am in a really surreal place.........

I received a text from Clare today, she is still in hospital and having a tough time as far as I could understand .
Thinking about loads. Big hugs Clare.
I hope everyone here is well. Twinky if I got my facts correct it is Tax week. Good luck with that.

Lulu34
Member

Re: I am in a really surreal place.........

Clare sorry your still in hosp but glad the transfusion has made you feel better.

Hugs to all the claredrops xxx
Crabbit
Member

Re: I am in a really surreal place.........

Hugs going out to Clare, been out of radio contact for a week! xxx

AnnieK68
Member

Re: I am in a really surreal place.........

I blooming hope so - first time camping since chemo aches and taking tamoxifen!! I just hope I can get up in the morning!! Ho hum - no pain, no gain!

Ax

Twinky68
Member

Re: I am in a really surreal place.........

Ooh Annie.....I remember you mentioning that a while back. Have a fantastic time x think the weather is getting better this week.

Twinky x

AnnieK68
Member

Re: I am in a really surreal place.........

Thanks Twinky - it's good to hear Clare is brighter!

We're off to The Acoustic Festival next weekend - it would be good if you & Mr Twinky could join us next year!

Ax

Twinky68
Member

Re: I am in a really surreal place.........

Hi Ladies

Clare's blood transfusion yesterday has perked her up which is good news. She's still in hospital whilst they sort out her calcium levels. She claims tbe only weirdo on the ward this time is her!

I decided to stay home tonight & rest for a change. Been a bit naughty & out lots lately. Got The Voice on whilst snuggled up on the sofa.

Hugs to you all

Twinky x x

GIJaneH
Member

Re: I am in a really surreal place.........

nothing much to add except "ditto".... love to Clare and thanks toyou Twinky (& rabbits)
Jane xx

libsue
Member

Re: I am in a really surreal place.........

Sorry to hear this Twinky, but thanks ever so for letting us know. Pass all my best on to Clare, please.
I'll be thinking of her and willing her a speedy return home.
Wishing everyone a good weekend.
Libby x

katytc
Member

Re: I am in a really surreal place.........

Thank you once again Twinky, please send Clare all our love xx

JulieD
Community Champion

Re: I am in a really surreal place.........

Thanks Twinky, when you next contact Clare please pass on love and best wishes, hope she escapes soon! xx
Lavenderlassie
Member

Re: I am in a really surreal place.........

Thank you, Twinky, love to Clare and all the Clare Drops and Extras
Lavender
xx

AnnieK68
Member

Re: I am in a really surreal place.........

Poor Clare, I hope they let her out on good behaviour soon!

Thanks for letting us know Twinky - hope all is good for you on tax.

Axx

scottishlass
Member

Re: I am in a really surreal place.........

Thanks yet again Twinky for keeping us up to date with Clare's progress. Pass on our best wishes and hope the men in white coats alow her to return home ASSP. Love Val

vercors
Member

Re: I am in a really surreal place.........

I was just about to text you Twinky to ask if you had seen Clare this week.
I hope she gets home soon.
Tomorrow Maidenhaed to Marlow and hoping for better weather...
Take care everyone.

Twinky68
Member

Re: I am in a really surreal place.........

Hi Ladies

I spoke to Clare this afternoon whilst she was having her blood transfusion. She's not been feeling so great & is very tired but hopefully the new blood will perk her up. Unfortunately she's just been in touch to say the men in the white coats have claimed her again and she's back in hospital with high calcium levels again so she's a bit miffed to say the least!

I shall keep you updated with her progress.

Twinky x

DJ007
Member

Re: I am in a really surreal place.........

Hi Clare
What a lot I've missed! I went on hol for 10 days and came back to find the forums in chaos - only just starting to find my way around again.
Glad you are back home, hope you continue to improve.
Dx

moser
Member

Re: I am in a really surreal place.........

Very glad you are home Clare, I have not been on the forums for a couple of days so missed your return. Hospital is so dire isn't it? But hopefully you have done with them for the foreseeable! As the others say, rest up and be waited on! Lots of love, Mo xx

nicky08
Community Champion

Re: I am in a really surreal place.........

Hi, like Laurie, I have only just found this thread again. I'm sorry you have been having such a rough time Clare and I will read back over the previous posts to find out more. Glad you are back home though and wishing you a speedy recovery from your hospital stay
Hi to the other Droppers - how annoying is this website, grrrr.
Nicky xx

alesta29
Member

Re: I am in a really surreal place.........

Yaaay - found Clare and the Claredrops thread again!
Sounds like there has been lots going on in your life Clare and not all of it good, but home and bed sound like just the right place to be.
Hoping you get a boost with the blood. Is there a Mac or District nurse who can help out with some decent pads?
Hugs to all
Laurie x

libsue
Member

Re: I am in a really surreal place.........

I just had to look in here before going to hit the pillow. I'm flipping shattered after my 3rd rads booster, but hey there's an end in sight - Thursday, yeah, yeah, yippee. So off to bed for me now.
Clare, I'm thinking about you and hoping you have your sensible head on ..........don't overdo it girl, yes. I know sensible is boring, but, hmm..........be careful, and do only what YOU want to do. x
Lulu, great to see you, hope you are doing well? x
Love to all who visit here.
Libby xxx

Lulu34
Member

Re: I am in a really surreal place.........

I lost this thread and only found it thanks to a link from revcat so this is my first post since we moved on to the new site.

Clare i was so sorry to hear that you had been having a grotty time in hosp but so glad your home. hope you dont get disturbed too much and get plenty opporunities to relax.

Lxxx
katytc
Member

Re: I am in a really surreal place.........

Clare lovely to have you posting again, keep losing this thread so will have to bookmark!
What's going on with the weather, we have sunshine but it's freezing cold today! Oh for some hot sunny days xx

vercors
Member

Re: I am in a really surreal place.........

HiTwinky,
I hope you have a good chat with your brother, I recall you felt let down by him earlier. Being open and honest with him; I am sure your relationship will get back to where it was.
This weather is weird, I was sitting in my office, with views on beautiful blue skies when I heard a roll of thunder, next minutes my lawn was white with hailstone. (the word lawn is to be taken lightly, let's use the word grass instead).
I hope everyone is doing well.

Twinky68
Member

Re: I am in a really surreal place.........

Rest rest & rest....lol....this is Clare we're talking about...she never does what she's told!

I'm trying to rest now that both hubby & my parents have departed but...my brother is driving up tonight, I get the first look at a short film that I've agreed to score by Monday tonight & a singer is coming to visit me Thurs afternoon as she wants some original songs written for her in the style of Kelly Clarkson.

Suppose I ought to get out of bed....lol....although the big hail storm going on outside makes me want to pull the duvet up over my head!

Hugs to all

Twinky x

scottishlass
Member

Re: I am in a really surreal place.........

Glad you are glad!
Hope the Blood Transfusion gives you the boost you need.
Rest, Rest and more Rest for you, doctor's orders.
Thinking about you. Val

Lavenderlassie
Member

Re: I am in a really surreal place.........

Love and best wishes to you, Clare, as well as taking the phone off the hook, could your sister make you a Do Not Disturb sign for the door?
Lavender
xx

rozvi
Member

Re: I am in a really surreal place.........

HI Claire, So pleased you are at home and sleeping in you own bed, nothing feels the same. Plenty of rest and pampering should be on the cards. Love Roz

GIJaneH
Member

Re: I am in a really surreal place.........

Clare - I found the best way to stop the endless phone calls AND to keep in touch and receive the love & support out there was to set up a Caring Bridge web page - everso easy to do (v. user-friendly!!) It's a bit like this, but with a wider audience. You (or yours) post an update with as much detail as you want/don't want as often as you want. Those you have invited to be part of your journey can leave you messages of support, which you can read when you have time/feel up to it. It saved me a whole load of hassle, and meant people could keep in touch without feeling they were intruding. There are different levels of privacy...

Sounds like an exciting week! The sleep is DEFINITELY important .. go for it!
Jane

potmaid
Member

Re: I am in a really surreal place.........

I am so happy to be home
Phone never stopped ringing, In the end I turned it off as I was up and down like a yoyo........... I can't take it easy, so far as I have my massage at 9.30am then my sister is coming over to play and before that Diane is popping into see the patient.....for an hour.
My stomach is leaking big time, I think it started just before I left the hospital so will try and scrounge some dressings from the hospice if thats a possiblility. At the moment I am using my daughters pads that absorb some liquid but not like tenna lady!!!!
Then Wedsenday I have nothing but sleep, Thursday I am hoping my veins have recovered sufficiantly to donate at least 5 mil of blood to cross match my bloods ready for a transfusion on Friday, so all sorted for this week.
Hope you are all fine and it pans out to the way you want it too.
Love Clare xxx

JulieD
Community Champion

Re: I am in a really surreal place.........

Wooo hoooo!!! So pleased you're back home! Have a good rest,take it easy and allow yourself to be pampered.
Twinky thanks for updates, hope you and Clare catch up later in the week. Take care of yourself too xx
scottishlass
Member

Re: I am in a really surreal place.........

So good to have you back Clare. Try not to overdo things. Take it easy for once! Soak up any pampering that is offered. Great to know you are home again, LOve Val

junieliz
Member

Re: I am in a really surreal place.........

Welcome home Claire, take care now, rest and rest lovely to hear from you, love junieliz x