Thanks for bumping this thread to one of the top 10, I despaired of ever seeing it again! Also had a couple of texts from Clare, but Twinks has already passed on the gist so I won't repeat. And as I didn't know you'd all been sending good wishes I admit I didn't pass any of them on!
Hope everyone's ticking along nicely (that's about the best we can hope for, depending on stages of treatment) and that you're getting a bit more sleep than I am. And I don't even have the darling Dex to hold to blame!
Clare, in case you manage to find your own thread,
Yes much kinder today as the sun shone here on the coast and I found a new cleaner who had had M.E. herself so that should be a good omen for when she helps me....
Do hope you're coping ok too.
How's the treatment package going for you at present?
Not too many side effects I hope.... Do hope life at home is good too.
It's just so lovely to find you again and actually talk to you even though it's through Clare's thread! I'm sure she'd be happy for us to reconnect in this way. Are you still in touch with Steris?
We did say we'd make contact when the summer comes...maybe the three of us could plan a point of contact??? That would be just fabulous. If you can still speak to her do send her my very best wishes.
Not sure yet how I find out whether I can find your message of friendship????I'm not too good at navigating this forum yet! Feels really quite alien but maybe through Clare we can keep an eye on each other's progress.
Do take good care Julie. So lovely to hear from you again.
Hope treatment goes well this week Twinky, enjoy yourself before hand but keep some spoons in reserve.
Great to hear Clare should be out tomorrow - welcome home hugs Clare xx
Welshgirl,glad you are managing to find some posts,still not easy is it. Thanks for your hello, I have requested you as friend again but don't know if that is working or not! Anyway,glad to see you around and hope life is being kinder xx
Thanks Twinky for your news report of Clare. It's so helpful of you....
Do hope your Friday treatment is not too awful and that your lunchdate goes well tomorrow.
Take good care!
Heaps of love to Clare and her Claredrops. Hope you're all coping ok.....
Welsh girl x
So delighted I could find you all again!
Lovely to read of people I know of.... special hello to Lulu and Sadie L and Julie D.
Not too sure how to contact you individually and do want to send you my very best hugs!
Some good news, Clare is escaping home tomorrow! She's been drained so is a lot more comfortable. I bet she can't wait to be back in her own bed!
I'm just bracing myself for chemo no.5 on Friday. Got lunch with my boss & his tomorrow. First time I've seen them since I went off back in Jan...no comment! I'm actually quite nervous about seeing them. Be glad when it's over I think.
Clare, just a wee note to say that I am thinkin of you and wishing you a speedy return to your own home and family. Twinky, thanks for keeping us so well informed over the last few weeks and I hope you are doing okay yourself. Had to catch up with a lot of the posts as I only managed to find this thread again. Sending Clare and everybody a gentle hug Alanaa and Fat Cat xxx
Echoing Lulu's comment. Big hugs to Clare, hoping she gets a 'get out of hospital quick' card and also big hugs to all the Claredrops, especially those having treatment or receiving bad news at the moment.
I've found Clare's thread at last!
However, very sorry to read that she's in hospital at present. Do hope it's a good form of recuperation for our Clare and she'll benefit from the treatment received.
I will try and find this thread again and read any updates.
Hello to everyone else on here too who is managing to relocate the site. Good to read some names I recognise...Take good care everyone especially anyone not feeling so good at present. This is a tricky time.
Tight hugs from Welsh girl to Clare and all her Claredrops
Hi All, so sorry to hear Clare is going through such a hard time, my thoughts are with her and her lovely family and hoping she will be home soon xxxx Hope everyone else on this thread is doing well xx
I received a text from Clare today, she is still in hospital and having a tough time as far as I could understand .
Thinking about loads. Big hugs Clare.
I hope everyone here is well. Twinky if I got my facts correct it is Tax week. Good luck with that.
Sorry to hear this Twinky, but thanks ever so for letting us know. Pass all my best on to Clare, please.
I'll be thinking of her and willing her a speedy return home.
Wishing everyone a good weekend.
I spoke to Clare this afternoon whilst she was having her blood transfusion. She's not been feeling so great & is very tired but hopefully the new blood will perk her up. Unfortunately she's just been in touch to say the men in the white coats have claimed her again and she's back in hospital with high calcium levels again so she's a bit miffed to say the least!
What a lot I've missed! I went on hol for 10 days and came back to find the forums in chaos - only just starting to find my way around again.
Glad you are back home, hope you continue to improve.
Very glad you are home Clare, I have not been on the forums for a couple of days so missed your return. Hospital is so dire isn't it? But hopefully you have done with them for the foreseeable! As the others say, rest up and be waited on! Lots of love, Mo xx
Hi, like Laurie, I have only just found this thread again. I'm sorry you have been having such a rough time Clare and I will read back over the previous posts to find out more. Glad you are back home though and wishing you a speedy recovery from your hospital stay
Hi to the other Droppers - how annoying is this website, grrrr.
Yaaay - found Clare and the Claredrops thread again!
Sounds like there has been lots going on in your life Clare and not all of it good, but home and bed sound like just the right place to be.
Hoping you get a boost with the blood. Is there a Mac or District nurse who can help out with some decent pads?
Hugs to all
I just had to look in here before going to hit the pillow. I'm flipping shattered after my 3rd rads booster, but hey there's an end in sight - Thursday, yeah, yeah, yippee. So off to bed for me now.
Clare, I'm thinking about you and hoping you have your sensible head on ..........don't overdo it girl, yes. I know sensible is boring, but, hmm..........be careful, and do only what YOU want to do. x
Lulu, great to see you, hope you are doing well? x
Love to all who visit here.
I hope you have a good chat with your brother, I recall you felt let down by him earlier. Being open and honest with him; I am sure your relationship will get back to where it was.
This weather is weird, I was sitting in my office, with views on beautiful blue skies when I heard a roll of thunder, next minutes my lawn was white with hailstone. (the word lawn is to be taken lightly, let's use the word grass instead).
I hope everyone is doing well.
Rest rest & rest....lol....this is Clare we're talking about...she never does what she's told!
I'm trying to rest now that both hubby & my parents have departed but...my brother is driving up tonight, I get the first look at a short film that I've agreed to score by Monday tonight & a singer is coming to visit me Thurs afternoon as she wants some original songs written for her in the style of Kelly Clarkson.
Suppose I ought to get out of bed....lol....although the big hail storm going on outside makes me want to pull the duvet up over my head!
Clare - I found the best way to stop the endless phone calls AND to keep in touch and receive the love & support out there was to set up a Caring Bridge web page - everso easy to do (v. user-friendly!!) It's a bit like this, but with a wider audience. You (or yours) post an update with as much detail as you want/don't want as often as you want. Those you have invited to be part of your journey can leave you messages of support, which you can read when you have time/feel up to it. It saved me a whole load of hassle, and meant people could keep in touch without feeling they were intruding. There are different levels of privacy...
Sounds like an exciting week! The sleep is DEFINITELY important .. go for it!
I am so happy to be home Phone never stopped ringing, In the end I turned it off as I was up and down like a yoyo........... I can't take it easy, so far as I have my massage at 9.30am then my sister is coming over to play and before that Diane is popping into see the patient.....for an hour. My stomach is leaking big time, I think it started just before I left the hospital so will try and scrounge some dressings from the hospice if thats a possiblility. At the moment I am using my daughters pads that absorb some liquid but not like tenna lady!!!! Then Wedsenday I have nothing but sleep, Thursday I am hoping my veins have recovered sufficiantly to donate at least 5 mil of blood to cross match my bloods ready for a transfusion on Friday, so all sorted for this week. Hope you are all fine and it pans out to the way you want it too. Love Clare xxx
Wooo hoooo!!! So pleased you're back home! Have a good rest,take it easy and allow yourself to be pampered.
Twinky thanks for updates, hope you and Clare catch up later in the week. Take care of yourself too xx