Firstly, welcome to the discussion forums, I'm sure you'll find them to be a supportive place for you.
Whilst you're waiting for others to share their experiences, I just thought I'd let you know about a couple of our services which you might find helpful.
Our Helpline are available to talk through any concerns or issues you might have, they're on 0808 800 6000, weekdays 9-5 and Saturday 10-2.
We also have an 'ask the nurse' service which is available by email. Here's the link to the information about both services:
Hope this is useful