Hi nomadicnortherngirl, seems a few of us with MS on here...well 3 of us that I know of.
I googled about MS and breast cancer and it's interesting...cancer is generally lower in people with MS because we tend to have such hyperactive immune systems so it sort of gets killed off before it's a problem, except for breast cancer...which is higher in people with MS than general population.
Interesting but nobody seems to know why!
Hope your surgery goes well tomorrow. I'll be thinking of you...remember...rest, rest, rest. The only way to deal with MS fatigue is to give into it. Fight it, and it will fight back even harder.
All the best,
Hi snow leopard and bunny hop
just to let you know that I also have ms (RRMS) and had really bad fatigue the 2 weeks after mastectomy. I've been really really fatigued again last week (5 weeks post surgery) and my ms nurse said it's probably ms and cancer fatigue. Am having lymph node clearance tomorrow so feel like I'm starting from scratch with recovery so will probably have mega fatigue again after 2nd op.
On the positive side though am enjoying the sun today and making the most of it
Just wanted to say that good news can also come further a long the the line than just being diagnosed. I had my two year appointment and it is all,clear - I feel blessed. All you ladies that are just starting the journey I wanted you to know there is light at the end of the tunnel xxxx
Hi Pat, well done on the good results, it's a huge relief isn't it?
I was the same as you and felt a little bit uneasy about posting good results but ladies on here really do need to hear the new goods stories as it gives them a boost. Hope your continuing treatment goes well.
Hi Bunnyhop, sorry to hear you are going through same. Want you to know that I went through it ok even with MS. They kept me in the weekend in case of problems but I was fine. A week later & I'm still a bit weak and of course fatigue has kicked in (btw I have PPMS) but really am doing ok.
I was SO nervous about the surgery but honestly there was nothing to be nervous about. IF my margins aren't clear and I have to have surgery again I won't be nervous.
Do you go on the MS Society forum? Very friendly and supportive (like here).
All the best,
This is my first post on here. I have been lurking on and off since being diagnosed with invasive ducal carcinoma (4cm) at the end of April. I just wanted to say hi and that I have MS too! So felt I had to say hello. So pleased for your good news. I am awaiting surgery in June which will either be lumpectomy and rads or mastectomy-I can't decide which at the moment.
Kim, great news re: nodes 🙂 x
Great news Pat :). Good news is really important as it shows that many cases are straight forward and it's not all doom and gloom. Good luck with the rads x
Really pleased for you Kim & Pat xx
I had good news today that my lymph nodes were clear. After my grade increase to 3 yesterday I had another sleepless night . But got this result today and feel so much calmer . I too didn't want to say on here because others have had not such good news. The waiting for results is so hard, I couldn't concentrate on anything, I love Chelsea flower show but it passed me in a blur. I haven't been able to concentrate on anything just my fear. I haven't slept properly since diagnosis. I go off ok but then always wake up,at 2 and just lay there with my head in a spin. I will now have an appointment with the oncologist for a treatment plan . X
Pat don't ever feel guilty about posting your good news, it gives everyone a boost to hear it! Like you I had a good result and couldn't wait to share it then felt a pang as others I'd been talking too hadn't been so lucky but they were all lovely and said the same to me as I'm saying to you,all the very best with your treatment Xx Jo
Thanks ladies. Yes I did wonder about posting good news but then thought it is good for people to see that it can be straightforward...and cancer affects us all differently but at same time we are all in the same boat. Great that we can support each other on here.
I've been thinking of you. So glad to hear your results were good.
Yes, I agree with Charys and Sonya. I like to hear everyone's feedback, good or bad.
So pleased for you, you must be so relieved.
Hi Snow Leopard,
i I think it's always good to hear positive news on the forum. A few weeks ago when my lymph nodes were found clear I hesitated to post it, as felt so awful for those who had had more worrying news. However, thinking about it now, I should have done as it shows new and recently diagnosed people that there are some 'ups' as well as 'downs'. I think there is often a bias on help forums to the worst scenarios, understandably and rightly as those are the people who are most scared and need most support, so sometimes hearing the other side is good. I am pleased for you that you are pleased with your results.
It doesn't change matters that we are still 'all in it together' despite different types of BC, and we all shared the same fears underneath with different treatments being offered to deal with the BC.
when will you start rads? If it's June, I started a June rads thread.
Hi all, had my lumpectomy on Friday and stayed in hospital for weekend as I have MS.
Consultant came and saw me Saturday and said he removed 2 lymph nodes and they were both clear. Will have 4 weeks of Rads and then anastrozole for 5 years.
So it was good news for me and I'm so sorry to read that some of you haven't had such good results. Keep in mind how much the treatments have improved even over the last couple of years. So although you have to go through chemo & perhaps more surgery the outcomes are still extremely good.
Thinking of you all,