Aww thank you so much everyone. I've had a really awful weekend because everything has just been going round and round in my head. I am hoping that when I go back to the hospital this week I will be told exactly what type of cancer it is and what the treatment plan will be. I think that once I have some concrete facts to hand it will make the reality of it all a bit easier to deal with. I have been making lists of the questions that I want to ask and I am going to phone my nurse tomorrow to see whether some of them can be answered before I go back to see the doctor.
It's just such a strange place to be in right now, although I have to say that actually *knowing* does really help because all the weeks of waiting were just horrible. At least now I know what the score is and that something is going to be done about it!
aww, so sorry that youve hadf to join us here!
Ive had my surgery a year ago (wide local excision), done the chemo (fec), and rads. On tamox now.
All the best for your visit with your onc. You'll find that everyone is lovely - from breast care nurse, onc team etc. The website and phone line have been a real bonus too.
will be thinking of you tomorrow,
sorry to hear you have joined us all.
i was diagnosed 3 weeks ago, after 3 weeks of tests and biops.
some times i actualy forget its happening then wack,, it comes to me like a baseball bat.
i have been using the forum for 2 weeks and am really pleased i have. everyone is so kind and it makes you see that your emotions are normal, and we are just all on the same pink road to help each other.
i see my onc tommorow and will know my treatment plan, its scary but also like prev posts say it lets you know where you are and also a route to follow.
good luck, and hugs xxx
I'm just numb about it all at the moment. I didn't sleep well last night because it all just went round and round in my head. Plus it doesn't help that all my family is 200+ miles away - phoning them all last night was so hard.
This morning I have been reading through the information pack that my BC nurse gave me and I have to say that the BCC one is excellent. It gave me lots of ideas about the sort of questions I need to ask, most of which I didn't think about once I knew it was cancer. The nurse advised me to make a list of things that I need to ask and either to ring her or come here for information. In fact one of the first things she suggested was coming here! 🙂
I have stuff to do at the moment which is a welcome distraction but I'm relieved that at this stage anyway, I've managed not to go to pieces over it - I don't think I've reached that stage yet. However I do feel really peed off because I already have a serious health condition so I can't help but feel 'I don't need this as well.'
I will keep you up to date with what happens but if I disappear for a while don't worry because right when I need it most our broadband service has been awful!
Again, thank you all for your support!
i am so sorry to hear your news. i have not used the forum before, i have been too upset, i was diagnosed in april , after a routine mammogram, i had no symptoms at all , and to be recalled shook me to the core. i also had to have a second lot of core biopseys done , to be honest after the doctor said the word cancer i did not hear anything else. i was as you are totally devistated. i spent the first week sobbing . my results came back as invasive breast cancer grade 2 . i underwent 2 operations to remove the tumor but luckily i kept my breast i also had a sentinal node biopsy, and 3 lymph glnds removed.. all the nodes were clear.. thank god... and i did not need chemotherapy, i had 17 sessions of radiotherpy. and im taking tamoxifen for the next 5 yrs...its so devistating... but you are in excellent hands .. keep strong..
So sorry you have had to join the forums following your diagnosis.
I was diagnosed in June and have found lots of support here.
Don't let the questions go round and round in your head, post them on the forums or contact the BCC team, they are brilliant.
You should also have your own BCC nurse at your hospital, ring her if you start to panic.
It is the most aweful feeling, like you have been hit by a truck and are completely out of control but it sounds like your husband is being very supportive.
Since June I have had breast conserving surgery (lumpectomy) for DCIS, re-excision as didn't quite get it all and now radiotherapy (4 left to go out of 15); it is certainly a rollercoaster ride but with the benefit of hindesight I would definitely have gone for the mastectomy. I too am small breasted and the surgeries have left a sizeable dent not to mention the memories of the surgeries/time out of work, it is very difficult but try and stay positive and get as much rest as you can. It is very difficult to sleep and things always seem 100% worse at night, but you will be very well looked after by your team and take as much support from your family and friends as you can, we are all thinking of you xxx
p.s. I love your picture of the clematis, my favourite garden climber xxx
All the brave wonderful ladies on here all remember vividly those first dark days after diagnosis when all this information you are being told seems all too much to take in and your life seems as if its been turned upside down,but as the others have said dont try to think too far ahead get youre'head round having the surgery 1st and then they will know exactly what they are dealing with and then when you have your treatment plan you can take that in baby steps at a time. You will find the strength to get through and dont read too much and scare yourself because everyones diagnosis and treatment is different and how we react to it just concentrate on keeping positive eating healthy to stay strong for whatever you have to face next and we are all here for help and advice it is sometimes better to chat to friends on here other than air your thoughts with family although my loving family and friends have also played their vital role aswell take care and keep in touch xx Julie
Once you have some sort of treatment plan in place you will feel more positive. The diagnosis of cancer sends you spinning out of control and those of us who've been there know how you're feeling. When you start treatment you also start to get back some control over your life. You have come to the right place - keep posting and tell us how you are getting on - ask questions... have a 'moan' and there will be someone here to listen to your problems.
I'm sorry to read of your diagnosis, the first few days and weeks are always difficult when coming to terms with things and getting to grips with your treatment plans, etc.
I've given here the link to the Resources Pack which is has been designed specifically for those people newly diagnosed. The pack is filled with information to help you better understand your diagnosis, test results and the various treatments available.
http://www.breastcancercare.org.uk/heal ... tionId/82/
Also, do give the helpline a ring if you need any further support or information. They're on 0808 800 6000. Open 9-5 Monday to Friday and 9-2 Saturday.
Best wishes Sam, BCC Facilitator
So sorry to hear that - the first weeks are the worst, slow everything down, take one thing at a time, and know we're all here for you.
hi there nymeria
it is such a shock when you are diagnosed, i was 2 and half years ago. but you do find the strength to get through,especially with help from this site, you will need support and people on here, have felt every emotion you are going through, so dont be afraid to share. its so much easier than sharing it with your loved ones sometimes.
i found not looking too far ahead helped me, one step at a time. you have a few weeks till your surgery so try and have some time, doing the things you enjoy and dont feel guilty.
anyway take care and i will be thinking of you.
Sorry to hear your news. It will take while to sink in. Be gentle with yourself. Dx
Sorry it wasn't the best of news but as Vickie has said we are all here to help you through. You will feel better when you have details of your actual treatment and get started. Best wishes. P x
Am really sorry to hear your news, remember we are all here to help you through, be kind to yourself
The hospital called this morning and asked if I would go to the clinic this afternoon. I was pretty sure it would be bad news because they asked me to bring someone with me.
At the moment I haven't been given the exact details, just that the tests I had on the 1st Oct confirmed cancer and I've had a further biopsy today to determine the final dx.
I will be having a meeting next week when it will be decided whether I will have a full mx or not and surgery is likely to be at the start of November.
I'm just so numb at the moment. I don't think it has really properly sunk in yet, but I guess this is the start of a journey. . .