Sorry i should add that I saw the top consultant in our county 2 years ago, she treated my mother who had lobular bc and she's good. She examined me so thoroughly (a lot of studying me intently as I moved my arms around), physical exam, and said no, not ibc. U/S and mammo were clear. No biopsy (I'm not sure how they'd biopsy anyway as there isnt a thickened bit to stick the needle in?).
I've tried evening primrose but it makes no difference, and the pain is not cyclical, more random flare ups.
2 years on from my initial post and I'm still the same. Pain flares up and then abates, breast feels heavier when these flare ups occur. I also think one area next to the nipple is slightly pink/discoloured but pretty sure this wouldnt be noticeable to anyone else. Still no lump, cant feel any unusual bits just the overall heaviness.
Presumably if it was the very start of IBC it would have progressed in 2 years?? I went back to GP in November and she couldnt find or see any changes either.
But what else could it be? I am going back to a different GP at the end of July and wondered what else i could ask/ask for?