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IBC

2 REPLIES 2
Kess
Member

Re: IBC

Hi janesi. If she has no secondaries, then her team will be treating her with the aim of curing. How well this goes will mainly depend on her response to chemo, which is very individual. Although if she isn't triple negative like you she will also have other treatment options. I know a number of ladies who are many years past treatment ending who are currently well (I am only a year past finishing treatment myself, but hoping for many more NED). Most of them aren't active on this forum though. Some of them are active in the Facebook group. Others are probably just getting on with their lives. It is a scary time for your friend, but I hope as she starts treatment she will see a good response.
jinny2611
Member

Re: IBC

Hi janesi I tried to message you but says your enable now hope your ok x

Janesi
Member

IBC

I have been advised to post on here by KES. I have a friend via our little support group, who has been diagnosed with IBC, she finished her initial treatment (chemo, mastectomy, radiation) last November. She has now been told (as she had a rash appear on her chest) that they did not get rid of all the cancer the 1st time round. She has had scans etc and has been told that the cancer has not spread - than goodness. She is quite a young lady with 2 samll boys and she is running scared right now as she say all she wants to be able to do, is look after her children and grow with them. I have had BC myself (TNEG) and am 4 yrs down the line this month. I would like to be able to give her some hope and wondered if there is anyone here who has been in remission for quite a number of years, that could maybe talk to her and give her some hope.

 

Thank you for reading.

 

ps: I have been told to tell her about the helpline number and facebook groups.