Warning - long post!
Hi all. Since my LD diagnosis 6 weeks ago, I’ve been doing a lot of research online into the condition and must say I’ve been pretty disappointed with what I’ve learned. I’m classed as having mild LD and have only been offered the most basic help eg DVD and compression sleeve.There is no specialist at my hospital.
In another thread I’ve posted that I appear to have reduced it from 15% to 9% by using the sleeve and performing SLD. However, my next appointment won’t be for another 3 months (although I don’t have a date yet). I’m simply not prepared to take it on trust that it will continue to improve.
At the very least I’d like to know how badly damaged my lymphatic system is, so on Tuesday I’m going to Oxford where I’ll hopefully undergo something called ICG lymphography. This test is not available on the NHS and so I’m going privately.
After that, there may be the possibility of pioneering bypass surgery, but this is also not available on the NHS. I’m keeping an open mind about that.
If you want to find out more, just type Oxford ICG lymphography into a search engine and you should be able to find a link.
I should stress that I have no links to the clinic and am only going there because there’s very little choice out there.
Fingers crossed something positive will come out of my visit but in any event I’ll let you know how I get on. xx