My apologies. I typed you a message last night, but when it came to "send", my internet had gone down, so it got lost in the ether.
I'm soooo glad your chest is getting better. You'll have to forgive me, but I got somewhat confused in a past post when you said you had special needs kids. Were you meaning Grandkids? I'm sooo glad to hear your son has stayed with you, that you have some good immediate support. I agree with Ann, you need to make it known to your family, how scared, frightened, worried you are. If you were my Mum. I'd want and need to know, so that I could support you in whatever way I could. I'd WANT to, so please do let them know.
I sooo understand/get you wanting to hang on to as much of your breast as possible. NO, it isn't stupid, at all. With my first, it was hanging onto my nipple, but when I pinched in the amount of flesh to be removed with a lumpectomy, the morning of my op, it was a done deal - mastectomy and no rads. But . . there's always the option of recon, if not immediate (I would always push for it ), then delayed.
You, my dear woman, have had such a hard a hard time, with your Dystonia, losing your job because of, and what you're going through now. I had to give up my profession of 22 yrs, because of health reasons. Not BC either. I don't blame you for screaming "I've got BC - and I don't want it". You keep screaming on here or elsewhere, because all the time you're SCREAMING - you're FIGHTING, and that's what "we" and your family want, you FIGHTING!!!!
I'm hoping like mad, that you're doing okay on the Letrozole?? sweetheart, are you so far??
Sending you mountain loads of love, far bigger than me, but not bigger than my heart. Delly xxxxxxxxxxxxxxx
Keep us up with how you're doing, Have loads of rants.
Thanks Ann m & Delly. (I've edited past posts)
I have had a phone call today from my new breast care nurse Niki.
My blood results came back postmenopausal so I HAVE to start taking the LETROZOLE surgeon prescribed on Friday.
I am very apprehensive as funny enough i actually like breathing (now im not suicidal)
I am down to 30mg steroids daily & havent needed my nebuliser as breathing ok with my 3 pumps.
IF surgeon does book a theatre for 8th Feb the anesthatist wouldn't touch me with barge pole with limited lung capacity BUT surgery may/probably won't happen till March.
MGM - Hello flower. I forgot to mention not to use your surgeons name. It's been edited out by Anna, the Moderator, in your previous post. It's part of the Forum policy. Suggest you edit it out of your this mornings post lovey.
I've been checking where Brigend is, just for interest. I don't know S. Wales at all. Know the N. and then the Pembrokeshire coast quite well from walking almost all of it. Whereabouts are you? and do you have family/friends nearby who can stay with you? If not and you make it known, they may allow you to stay in longer. But you've got your children to think about too, haven't you. Incidentally, how old are they and do they live at home with you, or in care? Are you still working with all this going on as well? Sorry for all the questions.
Crikey. I hope like mad that you'll be on the 8th.
Sending you a ginormous warm hug, my friend. xxxxxx
Thanks Delly xx all I can do is sit back worry & wait.
Surgeon told me off for not taking Tamoxifen. Told her I was drowning & CAN'T take it. She only new abt it last week when I phoned. Susan didn't pass on info b4 & apparently surgeon didn't get Drs letter 're Tamoxifen.
Anesthatist still happy do me in Neath portalbot so no need go Bridgend. B/S thought she had time to plan wires/magnets & surgery as I was on meds. No point doing ok if don't take hormone meds. Find one that doesn't **bleep** up my chest. Had bloods done to see which meds I need. She may be able to use a colleagues theatre slot on 8th Feb but no promises. Otherwise it will be MARCH.
Cos doing partial removal & all lymph nodes I HAVE to have radiotherapy EVERY DAY for 3 wks & MIGHT need chemo. I need someone stay with me when home & out next day after op
Flippin 'eck MGM !!!!
I'm sooo sorry to hear of your chest reaction. Well listen girl, I'm still here after no Tamox for 10 yrs, though prescribed it. Gave me such a dive in my mental state after 2 weeks, to the extent that I took myself off it and decided to take my chances. I don't advise anyone else to, but it was my own personal decision.
Oh darlin, I can't believe your lady bits too ! What's going on? I'm not surprised you're having a good rant. Are you planning on having a more gentle one to the surgeon? Not so gentle, you get your grievance across.
You keep ranting on here girl. You certainly deserve it, in my books, chummy.
Much love to you xxxxxxx
Hi all, happy New year & I hope it all still fighting xx
well after having my op cancelled on 7th Dec the consultant gave me tamoxifen.
My breathing got really bad and was almost admitted to hospital. Bloody stuff irritated my asthma badly. You could here me rattling from 30 paces.
Anyway I have not had tamoxifen since new year & have been on 40mg steroids & nebulizer every 4 hrs . I'm not rattling any more but breathing is still laboured And guess what ~ ~ STILL no operation date. I will be riddled with it by time they get me into theatre.
I have had an abnormal smear test & mild/moderate biopsy. Im having treatment for cervical changes next Thurs 1st Feb. Having the full works.
After lots of phone calls to Miss secretary I am meeting with her this Fri to discuss a treatment plan. THIRTEEN wks yesterday since diagnosis & those 3 cancerous lumps & lymph node are still growing inside me ~ spreading ??
Sorry to hear that you are not having a good time at the moment, I am sending you good wishes for things to improve for you going forward.
Sending you hugs for Christmas and 2018
Sorry for your disappointment Mumgonemad. Try and keep your head off it/distracted over the hols.
I'm wishing you all a good Xmas too.
Much love to everyone
MGM just read your post....I’m so so so sorry you poor thing. I’m speechless. The problem is even if you waste precious energy screaming,shouting and complaining there is so little you can do.
huge hug on its way to you xxx
Mumgonemad - Errrr WHAT !!!! My mouth has dropped open in disbelief, Oh My God. What a fffffflippin mess up, to say the least. And this bloomin BMI business cropped up again???! And right at the last minute. You must be wondering, if the original anaesthetist had turned up, whether HE would have gone ahead ?!! Because, as you say, they had all your information. Plus, of course, it's a bad time of the year now, with the hols holding up anything.
Awwwww, my darlin girl, I feel sooooo disappointed and frustrated for you. Heck. Think you probably needed a punch bag when you got back home. Jeez.
Me, no, it's not "their" fault that it took me so long to get on the recon horse, just a series of unfortunate happenings that meant I kept putting it off. But just a shame the recon wasn't dealt with at the actual time of mastectomy. Just one of those things.
Well, I hope you're finding some way to calm down from all this, and at the same time muster up some strength to keep battling on. I hope you're getting lots of support from friends and family to help keep you bolstered up.
Sending a warm, hopefully soothing hug back flower,
Catching up on a load of posts as I was out all day yesterday.
Thank goodness for that, now you can start planning, bit of a pain that it is on your birthday but at least it will be done and dusted before Christmas
Sending you loads of hugs. Let us know if you can how you got on after Thursday.
Mumgonemad -YEH - on your date, next week !! Eek. But at least you can now ORGANISE things/your life around !! Now I know the more of the reason of your name, in your having to face this withOUT a significant and normally supportive partner - I had my feelings. Jeez, that's so not what I wanted to hear for you, darlin girl. What utter s**t some people have to go through. I'm so sorry.
Me/mine - just under a year apart.2006 and 2007. Seperate primaries. Sooo wanted and asked for recon at the same time as masts, but change of surgeon, due to his retirement and new up to date technique surgeon on the block + miscommunication meant it didn't happen. Had to wait till 2014 !! till a good time in my life for me to then "begin" delayed recon procedures. Still only part way done.Would have been all finished and sorted back at 2007, so bear all that in mind and take/ask for what you can have done NOW. Don't delay ANYthing, unless it's necessary, due to radiotherapy effects on skin. I was a single woman and knew what a drastic effect it would have on me, personally and confidence wise. Massive major influence on me not pursuing a partner for 10 years, wasn't happy looking at myself, never mind someone else looking at me, in the bedroom department. Still not finished, because I keep falling off the recon horse to finally get it finished due to major depression from "that" and other unknown factors in life that have cropped up..
Don't know how old you are MgM, but don't put anything off that you can have done immediately. Get it done and out of the way NOW, because it can be soooo much more difficult later with what else can crop up in your life. You can probably sense how frustrated I have been by all of it.
Sooo - Hope all goes well for you next Thursday. Sounds like you have a couple of kids to have to sort/think about, let alone dogs!!! Please let us know how you are/go on, when you can.
Loadsa love to you and everyone else
Mamadeacs - Glad to hear you've a good support system of people around you to help get you through and give you some extra strength if ever yours is flailing. Hope all your appointments go well this week, especially Thursdays. I'll be thinking of you.
MgM - Yeh, difficult not knowing, when you've your son to consider and dogs to organise. Is there a husband or partner in your life??
Yeh, ref the L.A. It was with the first mastectomy, so was interesting to have it to compare with the second less than a year later. The strong painkillers they give in hospital tend to seriously bung me up, so won't take unless absolutely necessary and keep to just Para's. Tho' I have to say, in comparison, I didn't find the second mast particularly uncomfortable anyway. Hope you hear soon.
Loadsa Love, Dellywellydingdong xxxxxx
Yeh MgM, your surg sounds a good 'en. Took my very lovely, handsome and delicately skilfull fingered surgeon and the loveliest lady anaesthetist, each a bouquet of flowers in "apres" surgery. My own GP, remarked on how incredibly neat my mastectomy scars were, soon after my ops. Many other forms of medics, I've had to take my top off for, have also remarked on. And I was part of a trial for use of a special post op feed of local anaesthetic through a fine perforated tube, inserted under and near the post op scarring. L.A. was injected every couple of hours - basically to numb and help post mastectomy pain, as oppo painkillers. Was fantastic. A few points of interest, but I'm digressing away, as often do, sorry. Got to butter 'em up before, naa, but not irritate - yes. So you can appreciate after - yehhhh!
Mamadeacs - you're a mischievous tease. Had me on the vicars wife. Ha ha - naughty. Yey, am likeing your attitude for Thursday! But don't be surprised if you feel emotionally wobbly before, but especially after. Don't expect too much of yourself, and don't feel weak or a wuzz if you do get emotional. It's all part of the healing process really, and the huge shock to your body's system, let alone your head, mind wise.
Nitey nite gals xxxxxxxx
Ps Light snow here this morning - Macclesfield, Cheshire/Derbyshire borders and approx 20 miles S of Manchester. V nippy (ha, very apt for this Forum!) x
Good luck for Thursday, there is such a feeling of relief once you get started on treatment, as you say it is the first step to being at the end of it all
Dont you just love it when they say things like that, I wonder how they would feel if it was them!!
It has been a lovely crisp morning here, just as long as the snow stays away I will be happy
Have a lovely weekend
If you do not get a call from any of them by lunchtime on Monday, I would suggest that you contact the hospital PALS team (Patient Liaison and Support) team. Explain to them what has happened and how you have been trying to get some answers, they will contact your breast team, investigate it for you and come back to let you know what is happening.
You can contact them through the main hospital number just ask for the PALS team.
Sending you hugs
Ooo-err Nicki, don't be like that about prayers. You'll be struck down by a bolt of lightening. No, I'm not religious, but I do believe the unity of spirit and thought can possibly achieve/create things in the ether or "Universe".
Awwww flower, death and that s++tty 'C' word, or other serious illnesses, do have the habit of bringing up some anger, along with the pain. Good for you to let it out, preferably without upsetting anyone too much, but that ain't always gonna be easy. Those who know and love you will understand, if not, you just have to apologise, explain, and then hope they do. Yeh, I agree with Mgm, with the upset of sorting the personal stuff.
And Heck, you've got your chemo No 1 on Thursday. Imagine you're getting the eeebiegeebies. Hope that goes better for you than you think it'll be. You're in good hands on the chemo threads - incredibly supportive. Use it. You'll have some laughs too, as I'm sure you will at hospital. Even make some good friends. Hope so.
Mumgonemad - Hope you hear soon. know you have your "scatty" doggies to think about. What are they?? Is there no-one else who could look after them for a few days, if necessary. You'll have to try and get through again next week, if you don't receive anything tomorrow or Monday. Hope you do, so you know what's what then.
Love to you both and everyone else on here
Mamadeacs and Mumgonemad,
You both have the added benefits on here, of the rather lovely Ladybowler or LadyHelena, as I affectionately call her, because as well as bowling, she sits in her tower doing tapestries as well as giving her attention, advice and love to all of youhoo!!
Mumgonemad - have you heard anything yet???? Yeh, can understand you going a bit mad with waiting.
Mamadeacs - Nicki. Awwww, my heart really does go out to you. It's the most horrible thing to have to do, organise your Mum/Dads funeral, and home and belongings. It's lovely to hear you say "My Dad would have been proud of my brother and me". I felt the same, ref my Mum, Dads and bruvs funerals. I shouldn't worry too much about Xmas, people will understand. BTW - Your hair looks absobloominlutely fabuously gorrgeous, dahrrrling!! I feel a bit weird asking you - how is your boob today??
Much love to all of yers
Good to hear from you and that the funeral what went.
Honestly you will eventually get round the fear at night, I had it happen many years ago and it does go
Sending you hugs and good luck for next Thursday
Good luck to you too Mamadeac. Hope all goes well for you, speedy healing and recovery xxx
Mumgonemad - Hope you've now heard? or maybe have now even had your surgery. Good luck to you too. Keep us in touch with how you are and where you're up to.
Hi to everyone else - Hope you're all all right too xxxx
Hello, I am so glad to hear that the house has been sorted and what a lovely thing for your hubby to do to take you away for a few days. Sounds a beautifully restful place and it does sound like you have found a bit of inner peace with what has happened
I will be thinking of you over the next week and sending you lots of hugs. We are all allowed wallow days it helps us to appreciate the good days much more.
Morning Lovely Ladies
Mumgonemad - Well, what a difference a visit and chat with the surgeon makes. So all that talk of BMI from the nurse was totally unfounded. Would have saved you a loada worry and upset. Anyway, you've passed through all that now. Guess you're waiting on the surgeons check of your mammo then before your given a date? Did she mention or give any idea how long you'd have to wait?
Mamadeacs/Nikki - sorry your on here too, but a very warm welcome. Glad you're pleased with your results. Sooo sorry to hear about your Dad - my sympathy to you and a double whammy for you. Horrible things are often never considerate in their timing, are they. Hope all goes well with your appointment on Tuesday.
Love to everyone on here
So good to hear from you, Mumgonemad & that you feel so much more positive after seeing this surgeon, you will be well looked after.
Although they have nothing to do with each other, it’s just appalling bad luck that you have had 2 traumas together & it can sometimes be hard to separate the two when dealing with all of it.