Hi Clair. Pleased to hear that your op has gone well. I was lucky enough not to have the trapped wind after the op but I remember the nurse saying it could be felt as far up as your shoulders! It also took me ages to go to the loo I think its because they empty your bladder so you need to give it time to fill back up. Hope you are starting to feel much better. Big hugs....xx
oh I get that reaction to hospital dressings too - pink and itchy. Hope the antibiotics do their stuff quickly so you can finish healing. I had an infection after my abdominal surgery, two different lots of antibiotics then when I finally thought it was healed one of the internal stitches decided to work its way to the surface rather than just quietly dissolving! Anyway, hope you soon start feeling much better, have you got plenty of time off work? x
glad to hear all went well and you're back home but oooh I can empathise with the trapped wind etc. I find any of the opiate based pain killers make me really constipated (as well as giving me a headache) so the tramadol may not be helping. I have found a microwave hotpack really helpful, either on my belly or draped over my back when I get abdominal pain. Hope things get moving soon xx
Hi Clair, also sending support and a hug. I think its really difficult, having been through what you've been through recently, not to let this affect you - it all kind of gets jumbled up together and taps back into previous emotions etc as well as worry about the coming op so no wonder you're finding it hard to be all upbeat and normal! I had my first annual mammo last week - even though I'm not expecting it to show anything too worrying it still sent me into a spin which I haven't fully come out of yet. Hopefully, once the op is over and you've had a bit of time to heal you'll be pain free and feeling much more like yourself again xx
Hi Clair. I can understand how you are feeling. It really does feel like it's never ending. I am a bit like you and tend to rather be by myself, but that gives you more thinking time! I wasn't in too much pain afterwards, just a bit uncomfortable. A bit like an ache. I took normal paracetamol for a few days then I didn't need anything. With key hole surgery recovery seems to be much quicker. I had a lazy few days and then was up and about. The hardest part is yet again waiting for the results which take 2/3 weeks. I will be thinking of you on Thursday and you know I am here if you have any questions or need any support. Sending you bits hugs..xx
Tough pants with you for the next few days now, we will all be there holding your hand and looking forward to you being the other side of the op and sorted my lovely friend. It is very natural to want to just have your family round you at this time, they know you and you can be totally yourself with them.
Sending you a gentle hug
Hi Clair I am on Arimidex and am experiencing bone pain. I have arthritis in few places but the pain is increasing at the moment. I have also noticed that my right hip gets uncomfortable if I sleep on it too long. Also I have noticed that I have had some headaches but it seems that these are intermittent. Normally my arthritis can be triggered by tomato based sauces, some people are affected by dairy products. Maybe you are affected by something in your diet? Perhaps make a note of what you have eaten prior to the pain increasing and you may find a trigger. I hope this helps.
Hi Clair. Sorry to hear you are having a rough time. I think everyone who reads this can relate to your post. Every time you have a lump, bump ache or pain it takes you back to when you are first diagnosed. You then have to tell yourself to stop jumping to conclusions!! The other thing I have noticed is if you change brands of tamoxifen the side effects are different. The pharmacy does tend the stock the brand that is the cheapest at the time ( that's what I was told) which could mean a different one every month. Our bodies are confused enough! If you find a brand that suits you try and stick to the same one. Usually if you explain they will order in the one you need. Not sure if that helps but we are here for you. Sending big hugs..xxx
Oh absolutely it has. I had quite a bad spell last week, very low anxious and I really did not know what was the matter with me, had a similar sort of thing happen a couple of weeks ago as well. It has got to be the tamoxifen because that is not like me at all. I have managed to get outside in the garden the past few days and I have really felt it lift from me.
Always there for you mate whenever you need us
I dont know how much help this will be but I have had a pain in my hip on and off regularly, some days are worse than others with it. I am sure it is the tamoxifen, I also have days when I just have a constant headache during the day, usually then I am up and down every couple of hours during the night, again I am sure it is the tamoxifen that is causing it. Why dont you make an apt with your GP on Tuesday to get the cough checked out, there are a lot of viruses going round at the moment and perhaps you have picked one up.
May be you need to not try so hard to put on a smiley face all the time and just let the folks around you know that you are not ok xx
Sending you a lovely squidgy hug mate
Hi Clair. Pleased you have a date. Being as I had the same op, if I can help in anyway just let me know. I am still waiting for my results. It has been 3 weeks, surely they should have them by now? I think I will give them a call tomorrow. I've gone back to work this week. It's been OK just tired at the end of the day. I am hoping that will get easier with time. Sending big hugs. Xx
Hi Clair. That's good that they acting so quickly. It's also good to have someone to listen to your needs and discuss it with you. Sounds like you are having the same op as me. Hopefully you wont have to wait too long for your appointment. I never really had a breast care nurse. I only needed tamoxifen and after that appointment I never had any contact with them. I am lucky that I have a very supportive manager. Spoke to him yesterday and he has already said I can work hours to suit me till I fully recover. The problem with me if I need to leave early or have a day wfh I feel that I am letting people/myself down. It's hard to give in and rest. You just want to do what you did before bc and its hard to realise you can't. Do you have times when you are still shocked that this has happened to you? I feel like I am in a bubble sometimes and life just carries on around you. Anyway if I keep talking like that I will get all emotional! I blame the hormones!! Keep in touch Lots of love..xx
I'm feeling more positive , I've just got back from the hospital where I met a lovely consultant who told me his wife has just finished treatment for breast cancer too how weird is that we had a good old chat anyway I've also had a blood test to rule out ovarian cancer !!!! After a lengthy discussion and a very firm I'm not allowed to stop the tamoxifen he said I need a op to remove the cyst and ovary in a few weeks not sure of the date yet. A bit more waiting but a least it'll be gone.
Have you got any access to occupational health they were really helpful for me and gave me advice on returning to work etc your dr or work place should be able to get you access to them .
My breast care nurse is really good at advice can you still access yours if not try the gyne team they should be able to support you. I've heard about sage helping and my friend swears by the magnet things . I went back to work to soon as I just wanted to move on and forget everything ! it didn't work though I'm now back on a 4 day week .
I really hope you get your answers quickly waiting and worry is awful and nothing anyone says helps , hold on in there my lovely and listen to your body xxxxxxx
Hi Clair. How did your appointment go. I really hope you got some answers. Mine did drag on for a year but I wasn't in any pain so hopefully they will act quicker for you. I have just come back from the doctors. My op was two weeks today to remove cysts/ovaries and tubes. I wanted to make sure everything was OK. When I had bc (2014) i think i went back to work too soon. Having learnt from that, was trying to get some advice. Bit of a waste of time, should be OK to drive, should be OK to go back to work, didn't know when I could start jogging and didn't know if I could take sage with tamoxifen. Like you find myself being menopausal and my friend mentioned that sage helps with hot flushes. Not the answers I wanted as it seems it all down to how I feel. I'm not very good at deciding how I feel and need someone to tell me! I am also still waiting for the results from my op which is difficult. So back to work I go tomorrow, am I ready...who knows!! Hope you are ok?..xx
I'm so sorry to read about your situation and yep sadly it never goes away I wish I could just go back to the way it was. I try to just get in with things but my body likes to remind me that not only am I now in the throes of an induced menopause but also now I've got the gyne problems.
I've got my gyne appointment tomorrow re my cyst and thickening womb lining I really hope they do something as I'm in constant pain.
If I could turn back time I think I would have made a few changes and not taken the blooming tamoxifen in fact I might talk to the bcn team about stopping it . Sorry I'm going on a bit 🙁
I think once you go back to work that's it you are back to normal! It's not like you want any special treatment or people asking you every five mins if you are ok. I know I would just say "I'm fine" every time! Ha ha. I think we should all be very proud of how we deal with cancer. It does get easier I just think it never really goes away. II its not yourself,its something on tv, in the paper, charity bag landing on your doormat. It is all a reminder.
t's tiring going back to work, but it's good to have something else to focus on. Hope it is going well for you. X
Hi Ladies. Wasn't really sure where to add what I wanted to say but I liked this heading. I had BC in 2014 with mastectomy and then a recon 6 months later.Although I can be an emotional wreck at times I was getting my life back. Then Jan 2016 I was told I had two cysts on my ovaries and they would monitor them. Waiting for appointments results was traumatic. Now get to 2017 and they have decided to take them out. I was totally shocked when I went to my appointment, they told me because of BC history and the results my C125 they had decided to take my tubes and ovaries. I had the op on 22nd March and I'm now waiting for the results of that. It seems like you get over one op and start to think you will be OK and then something else tests you. It is all very exhausting. I also get fed up of comments like "glad you're ok" "it will be fine" we are not fine, we are just very good at coping and hiding our feelings. No one on the outside really understands. Sorry starting to moan now! I love this site for just being able to say what you want and most of the time someone will have been in the same place and can support you. I could also do with some new friends but that's another story!! Thanks for listening.. xx
Really pleased to hear this Clair. My doc has just started me on amitriptyline - just 10g at night. Unbelieveably I am getting better sleep (even though still have to haul myself out to the loo, but do go back to sleep). I don't sit staring at the ceiling or waking in the middle of the night with the back pain and not getting back to sleep. Hope it is as good for you. She warned that I might be dozy in the morning (nothing new there), but have been ok. Not going to up it to 2 tablets yet as I feel ok on just one. She sounds a good Doc to have gone through it all with you, although still horrible having to wait for your gyne appointment, at least you now know that it will be done as quickly as possible. Lots and lots of love - I'm resting on your behalf as well & hope the tabs stop the pain (actually can't be arsed to do much - got some good books to read!) xxx
Clair, sending you love and hugs. So sorry that you're having to wait so long - you really shouldn't have to. Glad you can get to the Docs - don't hold back and like others have said, tell exactly how difficult and painful this wait is. Thinking of you. xxx
So sorry to hear the pain is still a problem, good luck with the dr tomorrow & roll on the gynaecologist appointment.
There really should be no link between your sisters treatment & yourself, also having treatment for pre-cancerous cells on the cervix is very common & usually does not go onto cause a problem.
Hi Clair, sorry to hear you've been having more medical things going on - it does get exhausting, wondering what's the next thing your body's going to come up with doesn't it?! Hope they manage to sort things soon and its nothing too worrying. I had a vaginal ultrasound a few months ago and the follow up letter mentioned a 3.5 cm cyst on one ovary which apparently is 'nothing to be concerned about'. Ha ha, like its that easy when you're just getting over a major health scare. Know what you mean about the 'work face' too - its exhausting trying to just be normal when you don't feel like that inside.
Glad you did come here and vent - its the perfect place to do just that xx