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Is trying the cold cap worth it?

25 REPLIES 25
TomTS_BCC
Member

Re: Is trying the cold cap worth it?

Hi Emi

 

Hope you don't mind me replying, I am sure others will be a long soon.

 

I work for Breast Cancer Care and l know lots of people feel the same way when they notice changes to their hair. I wonder, would it help to speak to someone that has used the cold cap? Through our Someone Like Me service we could arrange this for you. I know lots of our volunteers have used it. 

 

You can contact us on 0114 263 6490 or someonelikeme@breastcancercare.org.uk 

Thanks

Tom

 

The
Member

Re: Is trying the cold cap worth it?

Hi Emi
Sorry haven't been on for along time just seen your message. 
I would say it was worth doing it but alot depends on what treatment you will be having as some chemo it will not work with. I had FEC and it worked well for me. I was very careful  with how they prepared you for the cold cap as i wet my hair and put conditioner on. I made sure the cap was tight to my head and no gap on top. It is not pleasant it made me feel sick but my results were worth it. I had fine hair but alot of it and had it cut to shoulder length and layered before i started to help make sure the cold could get through. I was very gentle it my hair only washing once a week and avoided brushing so had a shaggy look most of the time.   You will still loose loads of hair and when you was do ot really gently i combed theough with simple conditioner really gently once a week and left it to dry. Luckily my hair fell out evenly and no bald patches so for me it was great as no one would of known i was going through chemo and after treatment my hair was there and just thickened up quit quickly. I wish you all the best and hope you have success all round good luck hun and if you need to ask me anything just messsge xxx
Emi
Member

Re: Is trying the cold cap worth it?

Hi,

I'm not sure,if you are still around,I dont wanna loose my hair,can you advice me? Please.

X Emi

Emi
Member

Re: Is trying the cold cap worth it?

Hi,

You didnt loose your hair completely by using the cold cap?

 

X Emi

Emi
Member

Re: Is trying the cold cap worth it?

Hi,

I'm new to this site,I just started my first session of chemo.I have a question about the cold cap.Does it really work to prevent hair from falling? Since you have used it,did your hair stays? It's only 14 day since I had my first Chemo,I have thick long hair,and the amount of hair falling is terrifying made me cry in the shower 😥

Jill1998
Community Champion

Re: Is trying the cold cap worth it?

Hello ladies ,welcome to the forum .There is quite a lot of information about cold capping on the thread "cold cap did if help you keep your hair" .If you would like some ongoing advice and support from ladies going through chemo at the same time join the May starters chemo monthly thread .All the best with your treatment .Jill.
Poppypoopants
Member

Re: Is trying the cold cap worth it?

Hi guys.
My chemotherapy starts on 4 May. I also have had my hair cut short. I am in 2 minds still about the cold cap. In preparation I have had my eyebrows tattooed, bought a very convincing wig, and got a couple of hats. I feel
So anxious now as the 1st cycle of either fec or t approaches. I just feel sick and really scared. I have triple negative bc
Jumborolfy
Member

Re: Is trying the cold cap worth it?

Hi just wondering if u could help me I am really worried about loosing my hair and I start my treatment. Ext week but wanted to no more about the cold cap 
Kess
Member

Re: Is trying the cold cap worth it?

hi I have had 3 EC and turned down the cold cap. Have lost my hair as expected but so far have kept all my eyebrows and eyelashes.

I have a wig I wear just for work and a selection of hats from suburban turban that I really like.
msmcann
Member

Re: Is trying the cold cap worth it?

Hi London1

 

Check out www.heathershair.co.uk although you will be wearing a hat/scarf it does give the impression of having hair. I wore mine the whole time I had lost my hair and wearing my Heather Hair weave kept me sane. A wig was just too much hair for me. All the best. 

Flowergirl14
Member

Re: Is trying the cold cap worth it?

Hi I had my first chemo on weds and used the cold cap. The first 3 mins in I thought I wouldn't be able to stand and had a bit of a cry . I looked at the time and saw that I'd got to 5 mins and then geed myself on with the thought of keeping my long hair. It was hard till I got to 15 mins but then my head went numb and I managed the full time. It was more like severe burning at first but a few times I thought the machine had stopped as it felt as if it had gone off but it hadn't - I'd just got used to it. I've nit washed my hair yet , will be doing it tomorrow morning and fingers crossed this works for me. If it doesn't and I lose significant amounts then mill have it cut off and donate to the children's princess charity to make wigs for children. Got a wig on standby which I hope not to have to use. I think it depends how important your hair is to you but if you can get through the first 15 mins then you will be able to do it. Also take painkillers before you start. They do help. X
2013yw
Member

Re: Is trying the cold cap worth it?

Hi i used the paxman cold cap and it was a great sucess. I had 6xfec starting last may till september I used to have long blond hair down to my waist and had it all cut off into a short bob with a fringe it broke my heart but i did this because i knew i had to handle it as less as possible no hairdryer or straigtners or any hair products i bought a wig as a back up i never wore it untill i went out at christmas. i brushed my hair in a morning and kept it tied back every day i had a big loss on my 2nd chemo most of that was on the top so i pinned my fringe bk to cover it and when the summer came and everyone was complaining about how hot the wigs were to wear i was so glad i stuck with it. i took pain killers an hour befor hand and i got no headache's at all .The tighter the cap the better the result the strap under neath my chin was pressing on my throut so i pulled it forward and rested it on my chin and now all my new hair has grown bk it is really thick and feels great plus because i kept most of my hair people who met me for the first time couldnt belive how well i looked on chemo sorry i gone on a bit but i would defoe advise any body to give it a go   Good luck with your treatment. Yvonne

Ellie47
Member

Re: Is trying the cold cap worth it?

Hi London1.....I watched a video on uTube about applying makeup after hair loss/chemo....it's very good. I start chemo next week, hopefully. I say hopeful because I've had an infection after surgery so it's already been delayed by one week :-/. I went to the Body Shop last week and bought all Parabens free makeup. May I suggest some eye shadow lipstick and an eye pencil....that'll get you started. Btw I threw out nearly all my shampoos conditioners, makeup and toiletries when I read up,about them and saw they contained carcinogenic stuff...appalled! I've decided not to have the cold cap after much research, have had my hair cut really short, and will get a wig. I already have one or two scarves and will buy online something called a buff in a light colour(similar to my hair) to wear underneath, plus a type of night cap....you lose 1/5th body heat thro your head apparently. Sorry it's a bit long my answer...hope it helps :-)). Keep smiling and I 'll try to as well!
Peanut89
Member

Re: Is trying the cold cap worth it?

I used the cold cap through fec 1 2 and 3 and then gave up for the remaining x3 of dexetaxel due to looking like gollam from lord of the rings! It was a horrible experience for me but I put up with it to save my hair which I ended up having to get my bf to shave it off chemo number 4 and ive never felt better! I honestly felt more rotten going bald with strands of hair than I do with no hair it was getting me down everyday watching more and more come out! I say try everything once as I know it has worked out not bad for other woman but just be prepared for it maybe not thinning out even make sure you have the right size on and taking two paracetamol before hand helps the sore head a weeee bit lolAfter every session I could literally pick ice off my hair! ! All the best!!

The
Member

Re: Is trying the cold cap worth it?

Hi I didn't loose my eye brows or lashes on FEC even my hairs on my legs and arms continued to grow and with useing cold cap I have 2/3 inch regrowth xxx tracy
Joeyv
Member

Re: Is trying the cold cap worth it?

Hi London

Not sure what regime you are on but I was on fec- t and did not start to loose my brows and lashes until after my first tax ie chemo 4. I still had about a 3rd of my brows and lashes by last chemo and now less than 3 weeks after my last chemo they are growing back. I have found pencilling them in works well.

Obviously the cold cap is a personal choice so good luck with your decision

Joey
London1
Member

Re: Is trying the cold cap worth it?

Thanks all. I decided that having hair but potentially no eyebrows/eyelashes was not for me so accepted I have to brave it or learn to like wearing hats. I have unusual natural hair colour so a wig would not work for me either. Am 52 and it is slowly going grey so my next concern is that it will grow back fully grey, but I have kept my hair colour for longer than a lot of people so can't be too upset.
Joeyv
Member

Re: Is trying the cold cap worth it?

HI London

 

I have just finished my 6 fec-t with the cold cap and although I did not have as good results as The I was really pleased to have kept nearly a full covering of hair apart from a bald spot on the top o fmy head which is already growing back at day 15 after last chemo.

 

I won't lie it is not my most pleasant of experiences but it was fine and I would do it again like a shot however I know a lot of women that have decided to embrace the hair loss have felt good about it.  It really is personal preference.

 

I also used the paxman and my hospital have said they have seen great results.

 

Good luck with your decision

 

Joey

The
Member

Re: Is trying the cold cap worth it?

Hi London I have just finished my last FEC I had 6 in total and used the cold cap with great success I still have a full head of hair and no one would know I've been through chemo. I uses the paxman . I had long hair and was very reluctant to get it cut short so had it cut just below shoulders and layered. My hair did shed but evenly my hair has grown about 2-3 inches during chemo. I'd recommend if you don't want to loose your hair as it can work but for others it's not so effective . I just knew I didn't want to loose my hair so would give anything a shot at keeping it. It is horrible having the cold cap but it's once every three weeks and I had it on for half hour before e drug is put in then 2 hours after so about 3hours. It is personal choice if loosing your hair is not a big deal then don't go for it but if it is then I would say give it a go. You do need to make sure they get a really good fit with the cap otherwise you will loose your hair . If you do want to give it a go private message me and I'll give you all the info what I did to keep my hair . Good luck with whatever you decide xxx
Jo_BCC
Member

Re: Is trying the cold cap worth it?

Hi London1

 

Here's the link to the Look Good Feel Better website, lots of ladies who use these forums find this service excellent.  http://www.lookgoodfeelbetter.co.uk/

 

Take care,

Jo, Moderator

Mariecay
Member

Re: Is trying the cold cap worth it?

Hi again London, why not book yourself on the look good feel better workshop, they show you how to go about doing these things and at the end of it give you a goody bag full of £250 worth of make up and beauty products! I've booked and it's a 10 week waiting list where I am so don't leave it too long x
SJB
Member

Re: Is trying the cold cap worth it?

I would also like to say that I think the cold cap causes more stress and discomfort than it is worth. I know ladies who are using it, but it adds a couple of hours to the ordeal, and it gives you brainfreeze and headaches...only to basically delay the inevitable.

 

My hair was shoulder length when I was diagnosed in December, and I immediately had it cut short (about 1 inch long round the sides and about 2-3 inches on top). Then, about 2 weeks after my first chemo session (at the beginning of January), my hair started shedding, so I got my husband to shave it off. Trust me, that's the best thing to do. 

 

I am now bald, but I have a lovely wig, supplied through the NHS, and a lovely selection of bandanas and headscarves. I enjoy colour co-ordinating the bandanas with my clothes, and everyone loves them and my wigs.

 

We really do have enough to contend with without worrying about our hair - it'll grow back!

 

I've now had 3 sessions of FEC chemo, and my lashes have gone, and my brows are thinning. Arms, underarms, legs and down below are all bare (no shaving!!!)

 

You can still use eye make up - not sure how you would use false lashes, but you can find out about that if you want to. Also most hospitals offer leaflets at the chemo ward for pamper events where you are shown how to make up after hair loss, and you get a bag of free top brand make up. Ask about it. I didn't bother because I don't worry about make up. I'm 48 and only make up for weddings etc these days.

 

I hope that helps. Feel free to ask any other questions you may have.

poemsgalore
Member

Re: Is trying the cold cap worth it?

Hi London, I believe it is possible to have your eyebrows tattood. 

 

http://cancer.about.com/od/chemotherapysideeffects/a/eyebrow.htm

 

I understand that some chemo patients have this done.

London1
Member

Re: Is trying the cold cap worth it?

Thanks, that confirms it, I used to have very short hair so will go that route. It's my eyelashes and eyebrows that cause me more concern than the hair anyway. Any advice on those?
Mariecay
Member

Re: Is trying the cold cap worth it?

Hi London, it's really down to personal preference but I can offer you a little advice to maybe help your decision. I'm a hairdresser who has come across lots of ladies that have been through chemo and I've seen some take control immediately of the hair and others just leave it to shed till it's gone and some use the cold cap (which on the evidence I see only serves to delay the inevitable) in my experience the ladies that took control ie preparing themselves by gradually going shorter till the day comes when they shave it off....this way you get slowly used to having less and less hair and looking different (this is the option I have choice) the ladies using the other methods all found it very distressing especially the ones that used the cold cap as the were obviously hoping for better results.
I had my first chemo yesterday and sat with me were 3 other ladies all using the cold cap, each one were at least on their 2n and 3rd round..1 lady was bald underneath at the back with the crown hair covering it, her shoulders and chest were covered in hair! The other had a head full of fluff and the 3rd one had a whispy fringe and a few whisps around about, the rest was bald. What was really obvious was how distressed they were about it.
I can't help thinking to myself, especially now that I've found myself in this awful position that surely we have enough to contend with....again in my experience once the initial shock has gone and the tears have stopped it can be put at the back to enable us to cope with recovering from the treatment.
Lengthy I know but I hope it helps....you have to do what feels right for you...best of luck x
London1
Member

Is trying the cold cap worth it?

EC chemo starting on Monday. Is it easier to accept full hair loss rather than trying to keep it with the cold cap?