Tat4tit..it must be even more difficult to cope with when its such a rare cancer and not much info out there. I had a lumpectomy on the 4th Nov and its only been the last couple of weeks I can really rub my scar. Up until then it was so tight and tender, I though it would never feel the same again.
Madcowzy, im sure we will have lots to ask!!! got my appointment on Wed to see someone about lymphodema, not sure what it is all about.
i have only been given my first time slot for the 29th, I asked about the others as I want to work through most of it ( booked the last week off ) and need to sort out cover but was told they couldn't as it could change daily... not much good if you need to plan anything. 😞 Might know more on Wednesday.
Thanks, Ele, I'm doing pretty well physically 🙂 So well, in fact, I have all my usual household chores back. Not very smart on my part!
MadCowzy, did you have any side effects? My scar is very tight and I'm nervous of any skin problems. I have just reached the point where I can moisturise my scar. I'd like to say I'm massaging it, but that would be overstating it as I'm still very bruised around my ribs with new ones appearing daily as the swelling subsides. I was advised to use Epaderm by my GP and it has a lovely 'cushiony' effect on sore bits, but not sure how good it is for massage as it's quite waxy. I use coconut oil to moisturise as I have very dry skin, but I'm not sure how suitable this is during rads? So many questions!!
Hi Tat4tit, sorry to hear your story. Hard enough to have cancer at all but when it's a rare type it's so much harder to get info or know what to expect. Good luck with your onco appointment...let us know the outcome. Hope you're feeling ok after your mx and get to enjoy Christmas! X
I'm awaiting an appointment with the Oncologist to discuss rads with a view to starting in January.
I had a radical mx on the 26th Nov for primary angiosarcoma of the breast which is very rare. Not bc, but a cancer that happened to be in my breast, although I still get to join in with surgery and other treatments! The surgeon got good margins on my chest by taking all of my pectoral muscle, but under my arm there was only 0.5mm clear margin. Normally, he would operate again to take more tissue, but there's nothing left bar ribs, so they'll save that as a last resort. Giving rads for angiosarcoma is a weird one as most cases of AS are caused by previous rads for bc.... I have no idea how many sessions to expect as there are so few primary AS patients out there it's hard to find info and what is out there is pretty scary, so I force myself to limit Googling stuff!
Val, I was lucky as I didn't need Chemo, just surgery then radiotherapy. Hopefully someone else will be able to answer your question. xx
All you ladies that have had your planning dates have you finished chemo. I ask because I have received my planning date for the 7 Jan and do not finished chemo until 28 Jan.so will have my PICC line in. Is this a problem. I was orinigally told 6 taxol so would have finished before the planning date but it's been increased to 9. Just wondered if I should ring them but want to get it all over with as soon as possible. Hope anyone having any sort of treatment this week is not suffering too many side effects and can finalise their Christmas arrangements. Best wishes to all. Val
Hi Didi, all being well you will be one of the first of us starting rads then...hope your wound continues to heal well, and enjoy the log cabin, sounds lovely! X
After having my op on 28th Sept Ive had a bit of a mixed bag.. I was supposed to have finished my Rads yesterday but because of a Seroma build up & then skin break down i will now be starting Rads on the 29th also with 15 normal and 5 boosters.. still dressing the wound but it is a lot better so keeping my fingers crossed it will be healed enough to withstand Rads!!
but on the plus side Im going to Scotland tomorrow for christmas in a log cabin 🙂 so least ill be feeling well for that
I thought I would start earlier as my planning appointment was yesterday. My op was 5th Nov. Im going to enjoy the next 3 weeks and get fit and well ready for my rads so I can hopefully get through them ok.