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JAN RADS

Ele J
Member

Re: JAN RADS

That's a pain Nicki, I've been given all times for the 4 weeks. They are all slightly different but all very early (between 8 and 9 am!) which would be great if I wanted to work, but not so great if you haven't got out of bed before about 10 for the last few months, like l'il ol' me! But hopefully will mean they're less likely to be running later and should be quick in and out.

Tat4tit, I found Bio-oil great for my scar once it had healed over, daily or twice a day. It's apparently absorbed better than most oils/creams. BUT the radiographer did say not to use it during rads as it can cause the rays to be too concentrated on the scar.

If you're still bruised might also be worth asking whether you can take arnica or use arnica cream? I'm a bit sceptical of homeopathy generally but have always found arnica to be really effective at reducing bruising.

Xxx
nickif
Member

Re: JAN RADS

Tat4tit..it must be even more difficult to cope with when its such a rare cancer and not much info out there. I had a lumpectomy on the 4th Nov and its only been the last couple of weeks I can really rub my scar. Up until then it was so tight and tender, I though it would never feel the same again.

 

Madcowzy, im sure we will have lots to ask!!! got my appointment on Wed to see someone about lymphodema, not sure what it is all about. 

 

i have only been given my first time slot for the 29th, I asked about the others as I want to work through most of it ( booked the last week off ) and need to sort out cover but was told they couldn't as it could change daily... not much good if you need to plan anything. 😞 Might know more on Wednesday. 

tat4tit
Member

Re: JAN RADS

Thanks, Ele, I'm doing pretty well physically 🙂  So well, in fact, I have all my usual household chores back.  Not very smart on my part!

 

MadCowzy, did you have any side effects?  My scar is very tight and I'm nervous of any skin problems.  I have just reached the point where I can moisturise my scar.  I'd like to say I'm massaging it, but that would be overstating it as I'm still very bruised around my ribs with new ones appearing daily as the swelling subsides.  I was advised to use Epaderm by my GP and it has a lovely 'cushiony' effect on sore bits, but not sure how good it is for massage as it's quite waxy.  I use coconut oil to moisturise as I have very dry skin, but I'm not sure how suitable this is during rads?  So many questions!!

MadCowzy
Member

Re: JAN RADS

Just finishing mine as you start 😁. Will be here if u have any questions. 

Ele J
Member

Re: JAN RADS

Hi Tat4tit, sorry to hear your story.  Hard enough to have cancer at all but when it's a rare type it's so much harder to get info or know what to expect.  Good luck with your onco appointment...let us know the outcome.  Hope you're feeling ok after your mx and get to enjoy Christmas! X

tat4tit
Member

Re: JAN RADS

I'm awaiting an appointment with the Oncologist to discuss rads with a view to starting in January.

 

I had a radical mx on the 26th Nov for primary angiosarcoma of the breast which is very rare.  Not bc, but a cancer that happened to be in my breast, although I still get to join in with surgery and other treatments! The surgeon got good margins on my chest by taking all of my pectoral muscle, but under my arm there was only 0.5mm clear margin.  Normally, he would operate again to take more tissue, but there's nothing left bar ribs, so they'll save that as a last resort.   Giving rads for angiosarcoma is a weird one as most cases of AS are caused by previous rads for bc....  I have no idea how many sessions to expect as there are so few primary AS patients out there it's hard to find info and what is out there is pretty scary, so I force myself to limit Googling stuff!

Ele J
Member

Re: JAN RADS

P.s sorry Nicki I forgot you were also starting on 29th! X
Ele J
Member

Re: JAN RADS

Hi Val, yes I had my last chemo on 2 Dec, rads planning on 10 Dec and start rads 7 Jan.

I thought that they liked you to have a little time to recover from chemo before starting rads BUT I think that very much depends what chemo as some are tougher than others. I do also know someone who is having chemo and rads at the same time at the mo, though not for BC but uterine cancer so I'm wondering whether she doesn't have the risks of skin/scar probs.

I completely understand you just want to get it over with now, but it probably is worth phoning to check there hasn't been a miscommunication between depts about your extra sessions...if it turns out they know and are fine with it, then you'll feel confident. And if it doesn't, at least you won't risk conplications which might delay completion anyway?

Good luck! Let us know what they say if you phone xxx
nickif
Member

Re: JAN RADS

Val, I was lucky as I didn't need Chemo, just surgery then radiotherapy. Hopefully someone else will be able to answer your question. xx

Val235
Member

Re: JAN RADS

All you ladies that have had your planning dates have you finished chemo. I ask because I have received my planning date for the 7 Jan and do not finished chemo until 28 Jan.so will have my PICC line in. Is this a problem. I was orinigally told 6 taxol so would have finished before the planning date but it's been increased to 9. Just wondered if I should ring them but want to get it all over with as soon as possible. Hope anyone having any sort of treatment this week is not suffering too many side effects and can finalise their Christmas arrangements. Best wishes to all. Val

nickif
Member

Re: JAN RADS

Looks like we are starting together Di... heres to a good Christmas and a very quick and easy January xxx
Ele J
Member

Re: JAN RADS

Hi Didi, all being well you will be one of the first of us starting rads then...hope your wound continues to heal well, and enjoy the log cabin, sounds lovely! X

didi
Member

Re: JAN RADS

hi guys

After having my op on 28th Sept Ive had a bit of a mixed bag.. I was supposed to have finished my Rads yesterday but because of a Seroma build up & then skin break down i will now be starting Rads on the 29th also with 15 normal and 5 boosters.. still dressing the wound but it is a lot better so keeping my fingers crossed it will be healed enough to withstand Rads!!

but on the plus side Im going to Scotland tomorrow for christmas in a log cabin 🙂 so least ill be feeling well for that

Di xx

Ele J
Member

Re: JAN RADS

Hi Sarah, welcome! Hope your last chemo doesn't hit you too hard. I had my last one on 2 Dec and have been feeling ill ever since but finally a little better today so hopefully will start to get back to normal now...well, not quite normal as no hair, obvs, but you know what I mean! X
Sarahd-1
Member

Re: JAN RADS

Hi ladies glad I found you I thought I was in my own until ele very kindly invited me over. I have just finished FECT x 6 on the 10th of December. I'm feeling wiped out at the moment but not too bad it will probably hit tomorrow 😞 I have planning on the 30th of December and start 3 weeks of rads on the 11th of jan and then onto tamoxifen and zoledex injections. I agree we need to enjoy Christmas after everything we have gone through this year. I'm relieved that the chemo is over xxxxx
Ele J
Member

Re: JAN RADS

Yup...3 weeks whole breast and then final week of boost to the specific area where the tumours were (because it was grade 3 and because I'm relatively 'young' I think). Will also be starting Tamoxifen in Jan. X
nickif
Member

Re: JAN RADS

Yes, we need to enjoy Christmas and chill before we get started. Are you stil having the 4 weeks Ele?

Ele J
Member

Re: JAN RADS

Hi all, had my planning session today so got my dates...first one 7 Jan. Like you Nicki I'm going to make the most of the next few weeks before I get back on the treatment train! X
Ele J
Member

Re: JAN RADS

Hi, I have rads planning session on 10th Dec and am expecting to start rads in the new year. My op was in Aug but then had 4 cycles of chemo (last one was Weds just gone).

I was expecting to have 3 weeks of rads but the oncologist just told me I will have an extra week at the end directly to the area where the tumours were removed...so four weeks, great!

Look forward to hearing how we all get on. Ele x
nickif
Member

Re: JAN RADS

I thought I would start earlier as my planning appointment was yesterday. My op was 5th Nov. Im going to enjoy the next 3 weeks and get fit and well ready for my rads so I can hopefully get through them ok.

Woofer
Member

Re: JAN RADS

I'm due for planning on 8 Dec. told could be 2 weeks after for rad to start. I'm worried because I think my treatment will be compromised due to the bank holidays when they are closed for 4 days and 3 days. It puts me in with a likely start date of 22nd Dec.
nickif
Member

JAN RADS

I have my dates for the starts of my rads..really its December but the 29th so will be mainly in January. Anyone else joining me...