Ahhh including travelling, OK, I thought what on earth could you be doing there for that long? That's majorly over radiated, you'd be a total crisp lol
Why 4.5 hours today? As it the planning ct scan etc.? No it can't be, it was your first one today!
Gosh that IS harsh!!! I only have one really early at 7.50 am and the rest are throughout the day from 10 am.
All my appointments are early morning - mostly 8:30 which means leaving home at 7:30, which is a huge shock to the system after months of lying in!! I guess it gets me back into the swing of things inpreparationof going back to work...
It was just from Boots. It's called 'passion for nature 100 percent organic aloe Vera gel'. It comes in a black 200 ml squeezy stand up tube. I'm sure there are similar things elsewhere though. It absorbs so quickly and easily that you can slap it on in the changing room before getting dressed right after the session. It says you can place it in the fridge before use for an extra cooling effect. However, and somebody may correct me here, it says contains 92.6 percent aloe Vera, and I seem recall the unit saying that the percentage of aloe Vera had to be higher than that, without so much 'carrier agent'. I find information so conflicting, the pharmacist advised this one, but I think maybe it would be better looking for another higher percentage one if you can find it. I know that some others have mentioned a Holland And Barrat version that might be better?
The aqueous cream is literally like axel grease isn't it, look at the ingredients lolol
Hey Pat, good stuff, I'm really pleased that you are moving onto this next stage! 😊
Congrats for getting the all clear it is such a weight of your shoulders after months of worry the next step will be easy as you know it has all gone and the rads are just preventative good luck I am at the Marsden they are lovely got number 4 later today x
Hi all, I think I'm in for June rads, just waiting for my dates. Had lumpectomy on 20th May...lymph nodes were clear & clear margins.
Having 20 sessions at Royal Free in London. Will let you know when I have dates but want to say hi & send my best wishes to all.
....to add....the radiographer said that a beam gets set across access to the room so that if the beam isn't activated or if the beam is broken the machine stops.
I STILL can't believe I didn't clock the red flashing light and alarm .....😆🙃😜😆😜
you are 100 percent right, for some totally bizarre reason I didn't notice the red light and loud alarm on day one?!?! I mentioned it to them today, and they said it would have happened on the first day as the unit couldn't work if not activated and that because I was probably stressed on day one I didn't notice it. How on earth did I miss that on the first session ?? Lol nuts.
All the best jky, after day 3 I am now feeling I am 'relaxing' into it....very impressed with the pure aloe gel stuff. Mind, I have been using aloe gel and overnight the aqueous cream, so it could be either that is impressive. Lol
Charys the red light and loud noise happen each time for me. I think it's just the warning that radiation is being given but I could be wrong. My radiography had to come in and reset a switch the other day as the gate wasn't closed properly and so the radiation could not be started. She said the gate acts as a safety device just in case someone walks in the room accidentally. Xx
19 in total.....4 of them being localised boosters not whole breast.
I tell you want scared living daylights out of me yesterday, which didn't happen the day before, there was a massive red light flashing and a very loud alarm going off during the whole treatment. This really terrified me as didn't happen the day before.
how many are you having? Are you nearly halfway through?
You are doing really well skin wise by the sound of it.
I think the non bra wearing thing for a while is a good idea.......thanks.
I have a massive tub of Aqueous cream here jky, not that the unit gave it, I had to buy it myself. It's quite a greasy affair lol
Hows everyone else doing ?
Just got back from 3rd seemed really quick two zaps both sides not sore at the moment hope the swelling goes down for you I am moisturising three times a day not wearing bra at home and got some non wire bras for work which feel weird take care x
Ahhhh Hospital......ok......local dialect 😅
Im not holding up hope for a good radiotherapy series of treatments without skin problems here, already quite pink and starting to feel swollen on day two. Hey ho. Such is life.
What is given lotions 'at the Ossie'?
so, number two done, it was quicker as none of the rushing in to put probes on to check the proper dose was being given today. It also sounded different too, the machine, I don't know what I'm sure that yesterday there wasn't a red light on and a siren sound whilst the machine was working. I didn't seem to hear the machine buzzing today, which was odd.
Thanks for the welcome,
Least first one down Charys,.....will follow your experiences with interest,...guess will be given lotions at the Ossie too but those using Aveeno..which one are you using?...ive been looking at the wheatgerm based one.
My appts are between 12-1330 in first week, havent got any more times yet. Its a 56mile round trip daily but my hubbies gonna help out if im tired. Im on a career break at present...enforced due to prolonged sick time due to wound so atleast thats one less worry. Those working through this have my utmost admiration.
That's what I was wondering if you were working , which I'm not at the moment, how would it work....I guess they'd just have to try and give the more convenient ones to those who need them. How bizarre that a boss can be lacking such sympathy for something like this.......unbelievable !!!!!
I am lucky as I am back at work managed to get appointments after 4pm my boss has been a bit funny over the whole thing no sympathy at all in fact it is an inconvenience to him never mind what I have been though I would say he is a man but my husband has been my rock so they are not all the same x
Yes, it does feel quite an achievement....for some reason....even though we just lie there and they do all the work. My actual scar site feels a bit jippy, but that could be from rubbing the lotion in. My timings are all over the place, from early am to late pm....are yours ?
Feels so good doesn't it to get first one out the way hope you are not to sore I am using E45 lotion nurses said it is ok to use was recommended I had 2nd today wasn't stressed at all had a good night's sleep for a change only 13 rads to go just need to get rid of the night sweats now must be the letrozole x
Done, number one, scribbled off the list.
well, that was a strange experience. My shoulder is hurting but I doubt anything to do with the treatment, more to do with the position we lie in for a while whilst they get ready.....and probably being tense at the same time so tensing muscles!!
i was surprised at home quick the actual machine buzzing, zapping thing was.
ohhh yes, please Do join us !!!! You are more than welcome, though has been said many times before, it's the forum and threads where nobody wants to be lol I can't stop to make a long reply now, as am literally leaving for my first zappity do dah. People have sung high praises for Aveeno, but I currently have here diprobase, aqueous cream and 100 percent aloe Vera gel. I'll see how I get on with those first I think.
Just nipping in from May rads thread to wish you ladies starting this month all the best. It's an apprehensive time (fear of the Unknown) but once those first couple are out the way that fear will go and I am more than sure you will breeze through the treatment.
Kerry x x
Hi Guys, we are certainly representing every day in stages here aren't we...day one, day 6 for the two of you.I will check in tomorrow shortly afterwards no doubt x
Had first rad session today I was so worried it was a bit scary with all the machinery I have loads of pen marks told not to scrub them off a bit red and hot when I got out but moistened as soon as I got home and it has calmed down now only 14 to go and I got free parking for rest of treatment xx
You are about on number 5 now aren't you Kim? I was listening to Sian Williams on radio two today, she had BC diagnosed in 2014. Apparently she has written a book on positive mindsets following trauma, and how people come to terms with and positively move on from traumatic events. I can't recall the name of it though, it's out this week, might take a look at it.Ok it's called.....'surviving and thriving after trauma'. She apparently wrote an MSc thesis on something similar, so seems quite qualified in both BC and psychology of trauma.
Thanks Louann, don't know if anybody else or just me for tomorrow? Feeling a bit jittery today, silly things like 'what if it goes too deep and zaps my internal organs? Lol yeah.....I know.......lol
Good luck to everyone starting their rads tomorrow xx
We all found ourselves much more tired after Herceptin whilst on rads & the one after. Well worth scheduling less that week. It seems to be the double whammy if the two treatments together. The next one was perfectly OK again. My chemo nurses said they had never heard of it, but everyone was affected so it's definitely reasonably common at least. xx
I start my radiation therapy June 20th (20 sessions) and have had CT scan plus tattoos - it's as if someone aimed a permanent marker & fired it at me! I'm just pleased the chemo is finished and looking forward to 3 weeks "off" from hospital visits (if I ignore the Herceptin injections). Has anyone here experienced any problems with rads & Herceptin?
Look after yourselves, love Mary xx
Ladies someone said a foam one is good during rads x