Poor you! sounds very neglectful.. you have every right to feel like you do. I am interested to know where you are too? You need to complain (if you hve the strength or inclination!)
I hope things improve, it's hard enough with good care!
sending love x
I hope you are feeling a bit better now. It does sound like your hospital are a bit lacking in communication skills!
I had my Mx in May. I just had an overnight stay (I was told it might be possible to go home same day, but I was last on the list and didn't get back to the ward until after 5pm - and my husband wasn't too keen to have me back in a groggy state). I didn't see my surgeon at all until after the op - in fact I didn't see the anaesthetist or one of the medical team until I was waiting to go into theatre.
I didn't have any drains but had 2 follow up appointments - one a week after the op when I saw a nurse and a physiotherapist and then my results with the surgeon and BCN where they also checked my wound (they all seemed very impressed with the result, but I couldn't really share their enthusiasm!). Both these appointments were scheduled before the operation.
Tiredness was the main problem I had too - I had afternoon naps for a couple of weeks and I still get pretty tired if I do too much.
Hope your recovery goes smoothly - sending very gentle hugs xx
Jojo - I had my r/h mastectomy on 29th June, just over 3 weeks ago. I was booked in for a day surgery but elected for an overnight stay on the day ward because of a slight problem re heart due to Herceptin.
I saw my surgeon at 7.30 in the morning, had op at 8am and she came to see me at 6.30pm at evening. Staff on day ward short stay unit were fab.
Surgeon came again next morning at 8am on her way to clinic in another hospital. Was also seen by the ward nurse who checked wound and fitted me with a softee.
Came home with drain in and ward nurse came to my home to check it almost everyday until it was removed on day 7. Nurses then came every day bar 2 to check wound and remove dressings. BCN,s telephoned twice during the week. Saw surgeon again on 16th in clinic for results and on the Friday before by BCN to check on fluid retention.
So think it is fair to say that I was well looked after and that perhaps your care was lacking.
Hope you are doing well and would suggest any problems or questions you contact your named BCN as it is a long time before you see the surgeon.
Good luck. Marli x
Hi, just home from right sided mastectomy. Feel ok apart from overwhelmingly tired and nauseous. I have to say I have felt quite neglected by the medical profession since deciding on the mastectomy. I am just wandering if my experience is normal......
Had mastectomy on Thursday morning - Saw my surgeon just as the anaesthetic was put in and that was that. No visit after the op. I was in hospital for 4 days and in that time I have not seen anyone from the breast care team. Actually thats not strictly true on the Sat I asked why I hadnt seen anyone and the nurse in charge got a BCN to come and see me. She apologised and said that she did not know I was there? I saw the hospital dr on Sat and asked if I could go home - he looked at my notes and said that he was not aware that I had had a mastectomy!! and no I couldnt go home before blood tests had been done. Sunday the ward nurse took out my drain and let me go home. Other patients on my ward were there for hip replacements etc.
I have phoned the BCN and I am not expected to go back to the hospital til the 29th so no one is going to be looking at my healing process etc.
From your experience is this how the process goes? I just felt there was alittle more care and attention out there. Psychologically and physically its a hard thing to go through.
Hi Valerie - good to hear that your op is over and you are home. Lot of surgery you have had! Remember to take it easy and give yourself time to recover. Lots of rest.
Had my single mastectomy (had nodes removed 6 years ago) 2 weeks tomorrow and thought I was superwoman, cleaning bathroom etc. I trouble with nurses. Nerves are now starting to heal and am a bit sore now so slowing down.
Sending lots of positive and healing vibes to you. Marli xx
Hello ladies - had to share my news on this postive post.
Had a bi-lateral mx at 1.30 pm yesterday (Saturday 11 July) with full lymph node removal under one arm and sentinel under the other. No drains and pain minimal responding to paracetamol. Home at lunch time today and moving around gently and fairly wiped out by it.
I know this is the start of a tricky journey with chemo and radiotherapy to follow but I feel that I have at last started treating the diagnosis.
Sending strength and positively to everyone. (I might just be a little high with relief!)
Mags - hope the dressings are off soon and not itching too much. Last time round I turned out to be allergic to dressings, so they didn't use them this time. And the wounds were super-glued together! I suppose as I stayed in hospital 5 nights, they could keep a closer eye on me. Once the last drain was removed on day 6, I was able to come home and take it easy. I was a bit worried about pulling it apart as I moved, but by being careful it was fine!
Now nearly 3 months on, the scars are doing really well - lots of massage with bio-oil - and the swelling has gone down. Just a bit of tiredness if I overdo it. But the aches and twinges do go soon enough and I was able to stop taking pain killers within a couple of weeks.
Hope everyone is doing well.
Bazookas - hope you are continuing to make a good recovery.
Had my mastectomy 11 days ago and have just had my dressings off this morning. The scar is better than I had imagined but is still sore and a wee bit painful but nothing that a couple of paracetamol can't cure!
Drain was in 7 days in the end and was a real pain in the bum but once out such a relief.
Mags - how are you recovering (with feet up watching the tennis I seem to think).
Hope all well. x Marli
Sorry for delay in replying - my life has been taken over by watching tennis - one bonus of being on sick leave at the moment. I hope your mx went well. I haven't taken any hormone medication either time. I do wonder if I should have taken something after my first encounter, then it might not have come back, but the hospital were very dismissive in my case. Isn't hindsight a wonderful thing? Best wishes x
Had my R/H mastectomy on Monday and all went well. Unfortunately had to come home with drain in and it is still there. District nurse hopes it will be out tomorrow so finger crossed.
No pain in wound at all although discomfort with drain.Once drain gone I will be more like me and hopefully be able to have a bath. Only needed paracetamol or ibuprofen as normal. Able to care for my self if need be cooking and washing etc. Ironing not possible at moment but not missing that. lol
I know we all have different experiences but I am so surprised at how "easy" it has been. Certainly not doom and gloom.
Hope you are keeping well Mags2. Marli xx
What a great post and I wholeheartedly agree. Everyone's experience is different, but for newbies on the forums, I think it is helpful for them to know that some of us have a reasonably good experience.
I am on my second diagnosis of DCIS. 6 years ago, it was an immense shock as I thought I had a healthy lifestyle and didn't have any symptoms. I had 2 WLEs to clear the margins, followed by 3 weeks of radiotherapy.
This time round, there was no choice but mastectomy. I chose the DIEP procedure with an immediate reconstuction. Although I fell into a small minority (one percent apparently!) who needed a vein taken from the arm, and this made the operation much longer at 11 hours, I have made a good recovery. I have taken it really easy and listened to my body. Still having some days of tiredness, but no problems with any of my 4 scars!
Thankfully, the path and lymph node analysis was negative, so I don't need any more treatment.
I cannot quite believe it has all happened to me. Second diagnosis was in February, I had the single Mx on 13 April. So it's been a very quick process. I am sure various factors contribute to a good recovery - postiive attitude probably does help, though I am a glass half empty person! - and living alone might also contribute as I think it makes you get on with life. And I am sure the summer sunshine and early mornings help too.
Good luck to everyone out there and I hope your experience is similar to mine! xxx
What a great post. Fully agree regarding positivity it really helps keep you well. This was told to me by the Sister on the chemo ward 6 years ago, she said ladies with a positive attitude coped better with chemo.Recurrence dx in November and still having targeted treatment for HER2+.
Finished chemo 11 weeks ago and am having surgery on 29th June (mastectomy) and pleased to here how well you are doing.
Keep well. Marli xx