Thanks for all the kind words, it means a lot. I used all these forums to help make my decision regarding recon (or lack of it!) and it was a massive help, so time to join in I guess!
Feeling a bit more festive today 🙂
Take care of yourselves,
Sorry you are in this club. I know what you mean about hiding it well. I can even joke about it, but sometimes especially late at night I am in bits. I have found that people who have been through it, and are going through it, get it. I guess this is one place where we don't have to be bright and brave, and tell each other how we really feel.
Hey, its starting to look a lot like chemo, January 2014...
Utterly terrified and hiding it exceptionally well. I was diagnosed with high grade DCIS in September and agreed to a SLNB (clear) and a month later a simple mastectomy. I refused any sort of reconstruction out of personal choice and was told this would be treatment enough. After six weeks waiting post-surgery and being told everything was looking really rather good, we finally got the histopathology results in and I came out positive for hormone receptors and highly for the HER2 protein. Chemotherapy and Herceptin was recommended and my world just fell apart. I am hopefully meeting with the oncologist this Wednesday to get the details and a planned schedule? In the meantime I am working with the fertility team at St Bart's to get preservation of embryos underway. I got engaged in July and was supposed to be planning a 2014 wedding. Sometimes the anger and bitterness at possibly losing the future I have waited so long for is so big I can't breathe. I feel awful saying such a pitiful thing. Everyone I know thinks I am the bravest, most capable person breezing through all of this.
I have never used a forum in my life, but really need to know that this sort of situation and the associated problems are being played out in a lot of lives and a lot of homes right now. I am very interested in the Facebook group as I am more au fait with the site , if you'll have me.
My name is Jess and I'm 35 xx
hi everyone would love to join this forum. i was diagnosed in august had a masectomy in october took a hematoma and infection in wound so delayed chemo to january ..dont have a date yet im grade 3 her2 positive. its like this is becoming an epidemic the amount of people wi bc. im scared of chemo so hopefully i can get some tips and support from you all xx take care
Thanks Yankee. We need to keep hearing that we can do this. It's late and I am wide awake not a good sign. Dealing with the prospect of chemo is one thing, trying to keep my head under control is something else
Dear New Year Newbies
-- just had a look at all your comments. You are where I was last year! Had my second surgery on 27th December 2012 -- 22 mm, grade 2, lobular tumour, 7 lymph nodes affected, ER+.
--Started chemo in February, radiotherapy in June. I won't kid you, 2013 was not a pleasant year! I was unlucky in that I felt rotten all the way through; but lucky in that all my treatment was able to take place on time and at full strength.
--what I really wanted to say was, as scary and totally devastating as things seem now, it will all come to an end. And, unbelievably, some good things will come out of it. For me they have included -- finding out that some of my "friends" were really good friends! -- making some very important new friends through this site (28 of us who have gone through this together correspond nearly daily on facebook have met up for lunches etc., and are having a major meet-up in Birmingham in February) -- I didn't have to shave my legs for 6 months -- I have still not had to start using deordorant again -- my eye lashes have grown back better than they were for years -- when my fingernails grew back, one that had been split for years was miraculously whole again -- my osteoarthistis didn't hurt for the whole time I was on chemo (unfortunately it does now!) -- and my hair has grown back much thicker than it has been in years and having it short has helped me get over the difficult bit that all older ladies who have had long hair (I am 69) have about whether they should keep it long or cut it short!
-- I know that each of us is different in the way that we deal with this horrible disease; but my own personal advice to you would be -- go with the flow about being "sick" when you are in treatment. Don't try to be superwoman -- take advantage of every little bit of support that is offered to you, whether it be from family, friends, charities or the NHS. There is a whole new wonderful life waiting for you out there once the bad times are over!!!!!
Much love to every one of you -- we are definitely sisters now!!!!!!
With love, Yankee
Hi everyone i had a masectomy in october. took infection in wound think i be starting chemo january really scared ...
I was a newbie last Jan and feeling much the same as many of you.
Had my surgery 21st November followed by Chemo and Herceptin will complete in March.
You will have good days and bad but it is doable and one year on feeling hopefull for the future.
Good luck Girls and be gentle with yourselves.
Good luck Debbie for Friday - you've sneaked ahead of us! I have an appointment with the oncologist on 23rd I have found lots of support from Ladies on these forums already. So looking forward to hearing from you all soon. If we have to do this we might as well do it together. Anyone from the north east? I have one grown up daughter and one grandson
Well, it looks as though I'm going to be the first to receive chemo, mine's next Friday 20th, so hopefully I will be able to report back to all you lovely ladies on my first treatment and yes, I'm feeling very apprehensive! Not what I had planned for Christmas but it has to be done. Love to you all, Debbie X
Hi Dilly, Welcome! I'm having mine at Kingston too so maybe see you there. I'm hoping to meet my onc next week to get more info about my treatment plan. I also have a 2 yr old son. And I will be working through treatment as I have my own business but luckily I have a fantastic business partner who will bear the brunt when I'm not feeling up to it. Will have to play it by ear I think! xx
Hi, just popping in from the February Valentines (2013) to wish you all very good luck. These monthly groups are worth their weight in gold. We Vals now have our own private fb page and stay in touch every day. Most of us have met up for lunch and there will be a big reunion in February 2014 to look back on our year. We are now at the point where we are either having - or had - our first annual mammogram. You will make great friends, share all your fears and any side effects you may have, but at the end of your treatment you will feel all the richer for this experience you are about to embark on. Again, good luck, hugs and love.
Nicky, sorry to throw you on name - I'm not Carla but Debbie. I 'm just going to do a little intro so that we can all compare our diagnoses! I'm 49 with two children. Have Grade 3 invasive DCIS, 2 nodes affected and ER+. Started with a WLE and SNB and ended up with mastectomy and full axillary clearance. I will be starting on TAC X 6 which is a less common treatment but apparently 'gold standard' and very agressive (and seems to be favoured by my onc here in Worcestershire)! To my fellow 'sisters', let's kick -ass! Debbie X
Hi Carla, Sorry to hear your onc isnt being very helpful. I know nothing about chemo except that you lose your hair. But I'm sure in a few weeks time we'll all have the dubious honour of being chemo experts! xxx
Hi Janie and Joanna, Thanks for joining me! Yes sadly I think there will be a few more ladies along before too long. I was diagnosed with grade 2 IDC ER/PR+ end of Oct after finding a small lump which the GP thought was a cyst. I had lumpectomy & SLNB 29th Nov and found out this week it's actually grade 3 so will start chemo in Jan. I'm hoping to get appointment with the oncologist for next week to find out more. I've been treated at The Marsden in Chelsea but will have my chemo at their unit at Kingston hospital as its closer to home & I dont have to faff with getting the tube etc. I am 42 and married with two little boys age 7 and 2. Well that's me anyway! Looking forward to sharing this journey with you. Nicky xxx
Hi Nicky, thanks for your reply - starting my chemo 20 December (lovely christmas present!) so I'm going to join your Jan 2014 newbies. The more support I can get/offer on this forum, the better. Chemo pre-assessment tomorrow when I should get all my questions re my treatment, answered. Zilch info from onc, all she could say was ask the chemo nurse! Feeling very apprehensive!
Hi Me too. I will be starting my chemo in January. Had my surgery on 20th November with results on 3rd December. I had been expecting just radiotherapy but I am triple negative so its chemo. At least we will have Christmas feeling relatively well, I hope. I am lucky in that the cancer centre is in walking distance from my house. I know, 'lucky' is the wrong word, but at least I don't have far to travel.
What are your biggest worries?
Hi, I've been told I will be starting chemo in Jan 2014. There doesnt seem to be a January thread yet, so anyone who wants to join me on this jolly adventure, hop on here!
ming (Nicky) xxx