Hi laine24, your situation is similar to mine. Started my FEC-T just before Christmas! Had my mastectomy on 14 November too and full axillary clearance because 2 nodes were positive. Took 5 visits to nurse to drain my seroma, it will go eventually. I'm 49 with two children, 8 and 16. I'm on the FB page 'January Newbies', please join! Debbie X
Hi all new year newbies. I know you are all getting ready to start treatment and are probably feeling very anxious and scared. I wanted to wish each and every one if you the very best for 2014. You are all in the best place for support and advice. I am having cycle 2 of ec in Friday.
Keep strong, take it one small step, day, cycle at a time.
Love and warm hugs to you all
Oh Laine I do feel for you. I have a 7 year old and also had to tell him about my diagnosis when he knew his nanna died of cancer 2 years ago. I was given the book Mummys Lump by my nurse which really helped and he seems to be dealing with it well so far. Sorry to hear that you feel isolated after your move. But we're all here to support you and if you like you can join our private facebook group - just message Jolou71 with your name. We tend to post more on there now. Best of luck with your first chemo today - not the best new year's present is it? Lots of love, Nicky xx
Glad you found us. Most of us are waiting to start chemo and all feeling a bit anxious about it! But we will get through it together. We have a group on Facebook if you are on it. Happy New Year let's hope it it a good one for all of us
Hi everyone just found this forum which is bril tho still working out how to use it. I start my first chemo fec t x6 tomorrow and dreading it! then i'll have radiotherapy then because one of 2 lymph nodes were infected i'll have remainder removed ( I think) I was diagnosed end of oct, had a mastectomy 14 nov and having to go to the seroma clinic every week. Hardest part after getting over the initial shock, as picked up through an early mammogram was telling my 8 year old, especially as he knew both his grandmothers and an aunt died
of cancer. Having moved house back in august away from friends and brilliant neighbours feel quite isolated. Feeling very shell shocked 😞 . Although 48 wish my mum was here to give me a cuddle and tell me it'll all be ok!
Hi Minig - I am having 6 Fec as well. I am triple negative, (metaplastic) didn't even ask why they had chosen that. There is isn't any specific treatment for my kind of cancer, it seems like zap it with something and hope for the best!
I am waiting for my dates too. Just clearing up after Christmas, my daughter, grandson and two kittens came to stay, they have gone now, but left their mess behind. It's great they are behaving like normal! Hopefully I will have a few days before treatment of feeling physically fine which I do now, a month off work, healthy eating and getting back into exercise have done wonders for my physical well being, if only I could do the same with my head! Ah well perhaps the cold cap will numb my brain!
Hello everyone, I've been away for a week over Christmas with limited wifi so couldnt access the forum. Back home now and seen we have lots of new peeps on board. Welcome everyone! Just a reminder that if you'd like to join our private facebook page just private message Jolou71 with your real name and she will add you to the group.
I've been told I'm starting chemo first week of Jan but not had an appointment date through yet so getting a bit frustrated as I want to get cracking now. I hate all this hanging around not knowing, and its so hard to plan when you have small children to arrange childcare for and a business to run. Grrr!
I've also been worrying that I'm only having 6 x FEC when most people seem to be having FEC-T. I have grade 3 IDC with vascular invasion & micromets in 2 out of 4 nodes, so I want to make sure they throw everything at it! Its all very well talking about 10 yr survival rates but my youngest is only 2, so I need a few more years than that!
Left a few messages on answerphones at the hospital today but think everyone is away until the new year. So now channeling my energies into soucing the perfect wig LOL! 🙂
Hope everyone is doing ok under the circumstances? I know it can feel a bit low after the excitement of Christmas when you're waiting to start chemo in the new year.
hi rainbow welcome to the forum ..i had masectomy was told i need 6 treatment chemo which starts on 10th jan ..not looking forward..im 59 yr now because her2 positive been told beed herceptin for a year and radiotherapy .. just dont feel happy about it all xx hopefully you got over shock info on phone xx
Thanks Jane. I may try to have a chat with the physio I was seeing before I was diagnosed, to get some advice. When I last saw him he wouldn't give any treatment and he recommended that I take up any hospital physio post-op, as he won't have access to my full medical records whereas they will; which makes sense.
Thanks for the pm info, I have done that now.
Hi Rainbow. Sorry to hear your appointment was messed up and you had to hear the results over the phone. I had a similar experience expecting only radiotherapy but then being told told I had to have chemo. It knocks you for six doesn't it. I have to have chemo because I am triple negative. I would be asking your GP to refer you for physio it can't help having that to worry about when you are trying to deal with the bc.
To pm Joanne find a message from her and click on her name you can pm her from that page (I think!)
Welcome to the BCC discussion forums, you've come to the right place for some good, honest support from the many informed users of this site. Because it's the Christmas/New Year period the forums are a bit quieter than normal but I am sure someone will be along soon to offer you some much needed support.
In the meantime if you need to talk to someone in confidence then please do give our helpline team a ring. Calls are free, the opening hours over the next few days are below. The number to call is 0808 800 6000
Monday 30 December 9am–5pm,
Tuesday 31 December 2013 9am–2pm
Normal opening hours resume on Thursday 2 January 2014 (Monday–Friday 9am–5pm and Saturday 10am–2pm.)
Hi. This is my first post. I have been reading the December Newbie's and this thread and I'd like to join your group, please.
My BC was not detectable manually (no lumps/discharge etc); I was 51 (have just turned 52) and had pressed my GP for a referral to a BC screening/team, on the advice of my physio , who was treating me for a perceived trapped nerve after I presented (again!) to my GP complaining (again) of muscle/joint aches and pains, which included neck/shoulder discomfort/limitation of movement (had difficulty getting some clothes on/off ; much to the amusement of a dressing room assistant when I got stuck with a dress half-on/half-off in a changing room & had to ask for help), and I also had bothersome and worrying (to me) aching in my left armpit/breast. GP did his own examination and found nothing, but reluctantly agreed to refer me to a BC Unit. I totally expected the BC checks to be negative and was then going to ask for further investigation on my neck/shoulder as I had suspicions of a rotor cuff tear. Questions to GP about the muscle/joint pain seemed to fall on deaf ears and I felt like I was seen as a neurotic middle aged woman.
However. mammo/ultrasound and biopsies were done 2/11/13 & results 12/11/13 indicated a 2cm invasive ductal cancer in my left breast. Lymph results were clear. I had a WLE/SNB 6/12/13 and was anticipating/preparing mentally for radiotherapy as follow up.
Doing the recommended exercises, I had managed to regain my pre-op mobility level in my left arm/shoulder - up until Xmas eve, since when I feel that I have a lump under my arm, it is sore/painful/stinging and more than uncomfortable to do the exercises and mobility has reduced 😞
A hospital visit Friday tells me there is a slight swelling in the armpit area but no fluid to drain and the wounds look to be healing well, albeit a little pink in the SNB area. BCN advice is to take pain-killers and continue with the exercises. GP has prescribed antibiotics as a precaution and has advised to rest...I am still trying to do exercises without overdoing it. Neck discomfort is getting worse. BCN says I will automatically get a physio letter at some stage.
When I left hospital after surgery. I was told that my follow up appointment would be 24/12, I phoned 16/12 as I hadn't had a letter to confirm and was apologetically informed on 19/12 that appointments for ladies who had surgery 6/12 had not been made; they had messed up. However, I was given some results info by phone (!!!) . Having anticipated surgery followed by radio, I was shellshocked, panic stricken and despondent to be told that the good news is " we won't need to recall you for any further surgery; lymph nodes/margins clear". (Yay!) "However, HER2 is positive ( I am triple positive)... So you will need herceptin & therefore chemo. As well as hormone treatment and radio."
A lot to take in by 'phone, and my voice deserted me to a squeak, but at least the wait was (sort of) over. Fortunately, two of my daughters ( 19 & 22) were at home when I took that call and were brilliant in consoling me, but I still feel awful guilt at having burdened them with my reaction to the news at the time. My 2 year old granddaughter reduced me to floods when she looked me in the eye and asked "OK Nanny?" that day.
Anyway, we have had a lovely family Xmas despite the "elephant in the corner".
My appointment to see the surgeon has now come through for 7/1/14, and my oncology appointment is the day before - 6/1/14 (!?}. BCN I saw Friday says Onc will discuss/explain my results and treatment plan; I have asked for a copy of the report to be sent to me before then. I am not confident this will happen, but we will see. Surgeon 7/1 will check wounds and go through results too.
I'm having many mini-wobbles, at the slightest thing (certain songs/TV ads etc) and so fed up with smiling and nodding when people tell me to keep positive grrr. I know it (chemo etc) needs to be done, but certainly don't feel happy about it.
I'm also told that the neck/shoulder,muscle/joint aches and pains are unrelated to the BC; I still have them.
Sorry to sound so down and for writing war & peace!
I do have better days and admire the strength, determination and positivity of all of you ladies.
Have been doing a few exercises, in between typing, to try and reduce the armpit/neck/shoulder discomfort which has caused to me to be up at this early hour in the first place and now also feeling better for having got all that off my chest.
Can you please also tell me how to pm you Joanne to join the fb group.
welcome mags i start chemo 10th january then herceptin . the forum is great for information. not looking forward to chemo xx
Welcome Mags... Sorry you have to join us, I think most of us are trying to concentrate on Christmas and put thoughts about chemo aside till January, unsuccessfully in my case, it keeps coming to mind. I don't have a date yet, but have seen the oncologist and am expecting a letter shortly.
Welcome to the forum. It's very quiet at the moment but I'm sure other New Year Newbies will soon be along to welcome you as well.
Very best wishes
Hi, could I please join your group I was diagnosed with BC on the 7/11/13 after finding a lump in my right breast myself. I had a lumpectomy on the 29/11/13 and I'm due to start chemo on the 16/01/14, I had a invasive ductal grade 3 tumour, lymph nodes were clear, radiotherapy to start after chemo and hormone therapy too. I'm a 49 year old mum and grandma, feeling nervous about chemo, however I find the top tips to help you through chemo interesting to read. Its nice to know we're not alone and have the support of each other. Lv M x
Thanks for the messages of support, I will be on here more often and also the facebook group from now on. We are trying to get away for a week's holiday before I start treatment but cant find anything or its too expensive over new year. xxxxxx
hi to all newbies if it wasnt for the forums i would have gone mad this is a lonely time even though we have family and friends it feels we are more of a team as going through the same stuff. had masectomy in october start chemo in jan 10th sick to my stomach with the thought but trying remain positive im 59 cant believe this is happening also feel sorry for family im usually the strong upbeat person ..its hard ..hugs xx
Hi Nicky, your story sounds so similar to me. Grade 3 idc, WLE and snb with further excision to clear margins, lymph node s clear and triple neg. (And I'm 40). I know it's scary. I'm a bit ahead of you, I'm having 3 cycles of EC and then 3 of docetaxel (no line....yet!) I had my first dose on 13th Dec, a bit rough with nausea and vomiting that hadn't been well controlled by hospital, but 9 days later and I'm back to normal pretty much, still feel a bit tired but doing my normal everyday stuff and looking forward to Christmas
Believe me Nicky, you can do this. You'll have good and bad days but my advice to you and everyone is to take this one step at a time, don't think too far ahead, deal with your next step before you think beyond.
Welcome to the newbies, am sure you'll be warmly welcomed, any questions don't hesitate 🙂
Sending you a warm hug
Hello everyone. Iam starting chemo 6 x TAC on 17th January and am absolutely terrified. Will also have a port fitted which means further surgery and GA. I was grade 2 IDC after biopsy but now grade 3 after WLE & SNB in December. Had to have a further re-exision on 11 December. Have clear margins and nodes clear but am triple negative hence the strong chemo stuff. I feel like I receive further bad news each time I meet my consultant or oncologist. Im a young 52 and otherwise in good health but this has knocked me sideways and I cant stop feeling anxious. Would be good to join the January thread and keep in touch with others that are going through a similar challenge. Nicky x
Hi ladies, can I join please? Am really a December Angel but think I feel better over here if that's ok with everyone?
Basically, grade 3 IDC, two lumpectomies, lymph nodes clear. Had my first dose of EC on Friday 13th (good job I'm not THAT superstitious!!). Chemo was fine, but didn't have maximum antisickness meds so had one night in hospital to be rehydrated! But 6 days post and I'm back to normal just about. Just feel like I have a bit of an ongoing hangover. Next dose due 3rd Jan, so with everything crossed and keeping away from people and their nasty bugs, I should be ok for Christmas. I'm 40 with two young daughters 12 and 10 (imminently to turn 11!)
I'm sending all you ladies lots of love and warm wishes. It is a scary journey we are all on but with a bit of love and support from the forum we can get each other through. So I send a big gentle hug to each and everyone of you. Be kind to yourself,
Hi GrannyJacks. The waiting is on of the worse things. There is just something about feeling quite well and knowing that you need treatment that is going to make you feel a little bit (or a lot) unwell that is quite unsettling. Sleep l am trying to cut down on the coffee, get some exercise everyday, doing breathing eexercises and not doing too much. Not easy around Christmas.
good news mandi...just found out i start chemo 10th jan then radiotherapy then herceptin ..i said to the oncologist i wish i didnt need treatment and she said you dont its all preventative ..now im thinking i would rather it sounded a bit more like yes better you get it and get rid of the cancer ????
thats really good ..so pleased for you.It is also good to hear that sometimes we can be given good news.I do believe our confidence has been shattered and this helps us all to be restored.Hope that doesnt sound too corny .Whatever it is meant to reassure us all .Sleep well