71.9K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

January Gemstones 2015 (January starters not on Facebook)

Shennar
Member

Re: January Gemstones 2015 (January starters not on Facebook)

What a wonderful son you have crystalbella, his words say it all really 🙂 x
keepmumsane
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Thats mighty fine parenting. Xxx what a wonderful boy. 

Happy hair hunting.  I googled our local specialist...was fun looking. Might be very glam in some of those styles 😉

Thanks for sharing . Hugs to you

Sandie

crystalbella
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi ladies, thinking of you all and those of you starting chemo this week. Off to meet the wig lady on monday not sure how I feel about that. Had a chat with my 13yr old son, explained the poss side effects and that the hair loss was fast approaching to which he replied 'mum it doesnt matter if you end up with no hair - you will still be the same person inside' Thought id share his words of wisdom with you all as it put a smile on my face x x x
Shennar
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Evening Su, I could not sleep last night, very windy where I am hence the very early message posting! 🙂
Shennar
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hello Lou,
The ECG went fine, they just put a load of electrodes on your chest then they scan you with the jelly and probe on your chest, takes about ten minutes and all good, you can hear your heart rate too which I always find comforting!! Nothing to worry about at all x
MrMunch1
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Blimey Sarah! 

 

Are you a late sleeper or early riser?

 

Woman Happy

 

XX

Shennar
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hello! We have a lot in common as I also start my chemo on the 16th and Fec-T. I had a double mastectomy on December 2nd and 36 lymph nodes removed as well. Had my chat with chemo nurse yesterday and have to have a BICC line put in my arm for the chemo drugs as my veins are rubbish. So much info they give you I am reeling! Had a Pep scan as well and have what is referred to as a hot spot on my thyroid gland, have been told not to worry and it's common but need another scan because of this, seem to spend more time at hospital than at home right now! Hope you are feeling strong and positive, this forum is helping me already and I have only been on here a week, bless these wonderful, strong and courageous ladies! Good luck on Friday, would love to swop experiences? Stay Strong! Sarah x
Codiesue
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Su, thanks for message, still not feeling to bad with se's see what tomorrow brings. Hospital rang this afternoon they have decided to do more surgery. Another WLE to remove some pre cancer found in the margin after last one. So confusing I was expecting the chemo to of sorted it and then rads to finish it off but not to be. Will have to discuss it properly when I see surgeon on 4th Feb.

Love to all Sue xx

MrMunch1
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi all,

 

Hope you are all well today.

 

Hi Sue,  I'm glad you are finding a way around the mouth thing, I am worried about losing more weight, although I understand that some women gain weight during chemo.  I am glad that T is being kinder to you than some women.  I will defo ask about the slow release thing, as the thought of 8 injections per cycle is not 'floating my boat' at the moment.  Hope the weekend is more of the same and you don't experience the tiredness you are expecting.  Regarding the night sweats, I have read about them on here, but my 'oh so lovely' chemo nurse did not mention them, I will wait and see, thanks for the heads up.

 

Hi Lou,  the money issue is such a pain the the preverbials when you are trying to cope with everything, at least you have the working at home - long may it continue and the SE stay minimal for you.  Thank you for your kind comments about my anger issues Woman Wink , I think I am over it, but I have learned that my mood remains unpredicable on this rollercoaster.

 

Hi Crystalbella, welcome to the thread, sorry to hear about your recent diagnosis and surgery.  It sounds like you are going in to treatment quite quickly, which is no bad thing.  My diagnosis was 25 Sept and everything has just seemed to drag and drag, but at lease feel things will be moving soon.  Good luck with it all my love.

 

Hi Lovewine (LOVE your user ID!), we are all amazing on this forum, but I am slightly in awe of women that work through treatment.  Thank you also for the wonderful message that other ladies have mentioned about chemo going by quickly - I hope so, but thanks for reiterating.  Thank you so much for popping on and wishing us luck.

 

Love to all.

 

Su

 

XX

 

 

Lovewine
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi ladies, i am from April 2014 thread and had Fec-t followed by surgery afterwards, i worked through all my treatment as wanted to keep my life normal if possible- i had chemo on thursdays, took friday off and following monday and managed ok, everyone is different and its personal choice, but it helped me!
Good luck everyone, it does go by very quickly believe it or not!
crystalbella
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi everyone 😊 i start my chemo on the 16th. Had a mastectomy 5 dec with node clearance. Have grade 3 and i am having FEC-T. Thought it would be a good idea to join this thread x
Codiesue
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Morning Lou, yes not too bad at mo thanks but waiting on doc to call.......got a blister on top of little toe which has gone black??  Did ring chemo nurse but she said to ring doc! Only side effect so far are waking soaking wet in night........nightie and bed soaking so quick change and move to other side and sorted back to sleep! Have slept quite well past couple of nights which is a bonus. Good luck to all facing treatment and hope you can all stay positive...not easy all the time but will help I am sure.

 

Love to all Sue xx

womblemum
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi all 

 

Hope you are all feeling well today...

 

Su, sorry to read you had such a horrible time at the hospital (but fab news on the biopsy results Smiley Happy).  We are all entitled to black moods and I think it is harder when you have prepared yourself for all the different appointments only for them to be changed and/or cancelled.  But one thing is for sure don't beat yourself up about being angry.

 

Sarah, good luck with your appointments today.. let me know about the ECG as I have still got that to come and never had one before.

 

Sue, sounds as though you are doing so well after your first Tax, I hope this is still the case and you don't suffer too much when you come down from the steroids.

 

Thanks to kittysoftpaw for the lovely message - it really does help to have support and encouragment from ladies who have been through this and have come out stonger on the other side.  Reminds me that it is all worth it and won't last forever.

 

Sending much love and positive thoughts to you all

Lou xx

womblemum
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Sarah, I am going to try and carry on working through chemo but going to play it by ear.  My onc told me to try having chemo on a Thursday and then I may feel up to working again on Mon/Tue the following week. I am fortunate though in that I work from home so I don't have to put on a brave face and see other people, all my communication is over the telephone or via e-mail (I am a sales and service manager in the commercial catering/laundry equipment industry).  As I have been feeling quite well I decided to keep working as normal (subject to appointments) and then see how I go when treatment starts.  Unfortunately I don't get paid when off sick, just Stat Sick Pay so whilst everyone including hubby is telling me not to worry about money it's just not that easy.  But I do know that once the treatment starts we all have to listen to our bodies, be kind to ourselves and put ourselves first for once.

Love Lou x

Codiesue
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Su, sorry to hear you are having a bad day but don't worry we are entitled with what we are going through. I mentioned to my nurse yesterday about these daily jabs and she said she didn't think they used them anymore. Apparently mine is a slow release??? maybe worth asking! I suppose different areas have their own procedures, I am in the North West.

So far I am not feeling too bad, tastebuds a bit off but eaten spag bol with loads of garlic so I could taste it, bit tired but not more than normal. Sure there is worse to come by Saturday....can't wait ha.

Hope you have a better day tomorrow, take care. Sue xx

MrMunch1
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Sarah, Lou, Sue,

 

I hope you are well today.

 

My numerous hospital appointments today did not go so well - apart from the biopsy results - which were clear! YAY!

 

My pre chemo assesment was not very good (partly down to my black and angry mood), my wig fitting was cancelled as the lady who does them called in sick, my PICC line fitting was unsuccessful due to my veins being 'extraordinarily narrow'.  My chemo has been delayed until Friday 16th Jan as I will be having a Groshong Line fitted in Cardiac Theatre on Thursday under sedation and local.  

 

I can't explain why I was so angry today, the chemo nurse was trying to be nice but I just kept picking up on his mistakes such as - calling me Mrs not Miss etc, patronising me and telling me that he wants me to go out with my friends and have a 'normal life' but then immediately counteracting that my telling me that I am expected to return to the hospital tomorrow to have my PICC line checked (which obviously didn't happen anyway) - so as a patient, I am not allowed to have plans?  Or if I do, I have to change them because you never bothered to tell me that I had an appointment the next day?

 

Sarah, I hope all goes well with your appointments tomorrow, also worth mentioning that having had an ECG before, I thought I knew the procedure, but was surprised that at the pre-chemo one I had to get undressed and take my bra off as the sticky things go all over your body, including legs.

 

Lou - wow, how amazing are you working through this, I think I just feel sorry for myself and stay off - I was finding work so stressful before all of this anyway.  I hope everything goes smoothly next week.  Let us know how you get on with cold cap, some women tolerate it really well with good results.

 

Hi Sue, I am glad the first Tax went well, long may it continue - it's good that you still have an appetite.  I was told that I will be having eight days of those injections on each cycle, I think I will do it myself so as not to offend others with my flabby belly!  Woman Wink  Totally agree with the positive thoughts sentiment.

 

Thank you Kittysoftpaw for your kindness and encouragement, it is very appreciated and I'm sure all of in this thread fully intend to 'kick cancer's butt'!

 

Hugs and good wishes to all.

 

Su

 

XX

 

 

Codiesue
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Morning Sarah, I am amazed at some of the ladies who have worked through chemo I could not of even thought of it for the first 2 weeks after a session and maybe managed a bit during 3rd week. As I work in a children's centre doing family support and I also lead on domestic violence it is quite a stressful job emotionally so not something you can do if not at your best yourself. I was also advised to steer clear of babies and children due to risk of infection. I have been off since first diagnosed in September and don't plan to eturn until all treatments have finished. Having said that I had some full pay and some half pay but will be down to sick pay before I return so the financial side can be  big problem for some. I would say listen to your body and go with that, coping with the treatment and all the appointments is hard but if you feel up to working why not? We all have different reactions to the chemo and hopefully you will be one of the luck ones.

Shennar
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Good Morning Lou, are you planning on staying working whilst having your chemo? Has anyone else reading this managed to do this? I have taken time off but would have worked through if I thought it could be done. Best of luck with your chemo Lou, keep thinking positive thoughts, much love Sarah 🙂
Kittysoftpaw
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi, lovely ladies in the January Gemstones. I was a member of the 2014 January Newbies. I just wanted to give you my love and to wish you all the luck in he world. Go kick cancers butt xXx
Codiesue
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Evening ladies and welcome Shenner but sorry you are facing this joiurney. I had my first Tax today....so far so good feel ok just bit tired but that is quite normal at mo anyway. Came home and made liver, onions and veg for tea, just fancied it and enjoyed it. Got one neulasa jab tomorrow from DN and will have it in my flabby belly as usual and have not previously had any problems. Nurse at chemo centre said to expect some aches and pains around 4th day and aslo a low mood as I come down from steroids....lovely will have to spend the day in bed.

Love to all keep positive thoughts it really will make a difference to outcomes xx

womblemum
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi all,

 

Had my meeting with chemo nurse today, bloods etc all done and 1st chemo planned for 15th, portacath is being fitted on the 14th and just waiting for a date for echo.... all feeling very real now, but the sooner I start the sooner it will be over.  

I have decided to give the cold cap a try... if I hate it then i won't bother again but thought I would at least try and see how I get on... hear such mixed reports on how bad it is, some reports say it is ok others say unbearable so I guess like all treatment it is a very individual thing.  I have tried to mentally prepare for the hair loss though and if needed it will be hats, scarves and a smile for me too.

 

I hope you ladies are all doing well in the run up to treatment starting, I must admit I am finding it hard to stay focussed on work at the moment although I am trying to use it as a distraction. 

 

Su - good luck for tomorrow, hope all goes well 🙂

 

Love Lou xx

Shennar
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Su, Thankyou so much for the reply! I have the echocardiogram this Friday and my chat with the chemo nurse after that, awaiting results of the Pep scan I had yesterday, have been told chemo should start on Monday so hopefully will get confirmation of that on Friday. I just want to start it as then I am closer to ending it! I am currently sat at home watching sky news and doing candy crush! I should be ashamed but rather feel spoilt, have never had so much time off work! Good luck for Tuesday Su, keep strong and be kind to yourself, this is our time to put our feet up and be selfish! I can even watch Broadchurch without having to put it on the planner for later! 🙂 x
MrMunch1
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Sarah (and your dog too),

 

So sorry you are going through this horrible 'C' journey, good on you for not giving it the satisfaction!

 

I start next Tuesday, all going well, I get the results of a recent nipple biopsy tomorrow to see if I need further surgery.  I will have pre chemo assessment tomorrow along with PICC line fitting and I am good to go.  I'm not cold capping either, I know it is important for some women to try, but for me, reducing the amount of time spent at the hospital is mega important to me.  So like you Sarah, stare if you like, but I will just smile sweetly.  I had semi permanent makeup eyebrows done in November, because I had a good idea what was coming, glad I did.

 

What day does it kick off for you?  

 

Love and hugs to you, and catch up regularly on the way.  

 

Su

 

XX  Heart

Shennar
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hello Su, I am another new person to this group, I had a double mastectomy on December 2nd and 36 lymph nodes removed as well, half turned out to be C. I can't say the word, I won't give it the honour of a name so just say C! Start chemo next week and truly terrified! It's me and my dog going through this and any support of this page will be so much appreciated! I have offered the cold cap and said no, I'm going for the colourful hat option and if people stare then I smile back! Love to everyone on this page, Sarah x
Codiesue
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Thanks so much for your kind words, I know we all react differently and well done for getting through it. Hope you are well now and getting over it all. I have been speaaking to a lady who sailed through both FEC and T with minimal se's so that's what I plan to do with T ( well fingers crossed anyway) Sue x

MrMunch1
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Thank you for your encouraging post Wildpurl - it is very appreciated.

 

Su

 

XX

 

p.s. I have seen quite a few women on the forum say that the treatment goes quickly - here's hoping!

 

 

Wildpurl
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hello, just popping in from the April 2014 thread to say hi. I had FEC-T last year, April to end of July, it seems a long journey but it does go quickly. Codiesue, I was very nervous about starting T but it wasn't so bad. You will all get through it, it isn't nice but it is doable, especially when you are supporting each other, I don't know what I would have done without my chemo friends.
Good luck!
MrMunch1
Member

Re: January Gemstones 2015 (January starters not on Facebook)

So sorry Sue,

 

I didn't realise you were at the halfway point!  The T part does seem a bit scarier for some women, but I hope it's kind to you.

 

Not sure what meds I will be getting, guess I will have to wait and see.

 

Su

 

XX

Codiesue
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Thanks Su, yes first T on Wednesday and whole new load of se's to think about but fingers crossed I am not too bad. Are you getting Amend anti sickness, I was only given it for 2nd FEC as was really sick after 1st. I think it is very expensive so they see how you are with first and only prescribe it if necessary. Lots of people only suffer mild nausea but if you are not one of the lucky ones ask for it.

Good luck hope it goes well!

Sue x 

MrMunch1
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Sue,

 

Wow, I can see how scary that must have been.

 

I hope your phone chat with your BCN is useful and you get some answers.

 

You having your T first?  I am having FEC first.

 

Su

 

XX

MrMunch1
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi DianeO

 

Welcome to the thread, but again, sorry you have to join.  I am having FEC-T chemo, which a lot of ladies do with breast cancer, I am not familiar with what you are having, but I hope others can help.

 

You start a day after me and mine is for 18 weeks.

 

We can all go through this together.

 

Su

 

XX

Codiesue
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Good morning Lou and Su, thanks so much for your replies, these forums have certainly raised some more questions for me to ask. It does seem that treatments vary depending on where we live, my medics are saying mine was an early breast cancer Grade 2 IDC and I know I didn't have it Sept 2013 as I have annual mammograms due to family history. So to grow to 3.8cms and have positive sentinel node in a year is quite worrying. I am going to phone my BCN today and get some answers then see Onc for review Wednesday followed by first T!!!

 

Love to all and keep fighting Sue x

DianeO
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi all

Like you I am not on FB and would love to join this group. 

My story so far diagnosed in August  ( after being referred for a mamogram by genitist following my sister's diagnosis in 2013 no lump felt) Stage 3 invasive in L breast 9mm lump. No nodes involved - due to family History bi lateral mastectomy with a an immediate diep reconstruction. Chemo to begin 14th January e-cmf for 26 weeks . is anyone else on this type of chemotherapy? 

 

A journey we are on but definitely do not want to take!

 

 

MrMunch1
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Lou,

 

The 'days off' are from BC - not housework or chores, they never seem to end!

 

Sue, I had WLE first, then when sentinel node came back positive with marcromet, I had node clearance 5 weeks later.  Results were total of 3/16 positive.  I'm wondering if your sentinel node had isolated cancer cells rather than an established cancer like mine?  I understand that they don't do complete node clearance unless they really have to.  It is a yuck operation Sue, so I hope this was the case for you. Also, welcome to the thread.

 

Susan8574, the FB group is joined by posting in the Post Xmas starters thread, which can be found further down the monthly Chemotherapy threads - good luck and obviously feel free to share and get support from this thread too.

 

Welcome Pauline, sorry you too have to join this thread too.  I hope the treatment today was not too bad or overwhelming - I am dreading the start, but at the moment I am dreading the PICC line being fitted more, which is a welcome distraction from the actual treatment.  The FB group can be joined by posting in the tread I mention above to Susan 8574.  I set up this thread only because I am not on FB, but would still like to share/support and hopefully get support on this forum.

 

Love Su.

 

 

Katherine62
Member

Re: January Gemstones 2015 (January starters not on Facebook)

 
Peepee
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hello all, first posting and new to all this, I have been doing an ostrich and avoiding anything beforehand to do with chemo, but I had my first FEC today and now I'm home and looking at bags of drugs and leaflets and think I might need some questions answered, not now but when some weird things start happening !!
Can I join the January Chemo FB page please !!!
Many thanks all, Pauline
Susan8574
Member

Re: January Gemstones 2015 (January starters not on Facebook)

How do I find the Facebook page please so I can join my chemo starts 15 jan, thanks
womblemum
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Sue

 

I had sentinal node biopsy at same time as WLE, but thankfully it came back clear.

Sorry to hear yours didn't and I hope that having chemo, radio and hormone therapy reduces the need for further surgery for you.

I'm sure there are others on this forum who can help you further and let you know what their doc's are saying.

 

Lou x

womblemum
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Su,

 

Yes you're right its great to have supportive family and friends... we all need that, but sometimes support from those who are going/have been through the same helps us realise our feelings and thoughts are completely normal!

 

According to my oncology letter it is FEC, so yep maybe the T is for positive nodes (which obvoiusly I am very lucky not to have).  I'm certainly no expert and learning as I go along... but it is strange how this new language is starting to seem normal in everyday life now.

 

Enjoy your few "days off" Smiley Happy

 

Lou xx

Codiesue
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Lou just read your post and wanted to ask you about having positive nodes? Are you having further surgery after your FEC T or have you already had full clearance? I was diagnosed in Sept and had a 3.8cm tumour removed on 3rd Oct by WLE and positive sentinal node taken at same time. My surgeon advised Chemo followed by Radiotherapy then hormone therapy but said we could discuss further surgery after chemo.

Wouild be interested to see what you medics are saying? It seems to be different opinions between Oncs.

 

Sue x

MrMunch1
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Lou,

 

Welcome and sorry you have to be here.  I'm glad for you that you have supportive family and friends - it really helps.  But it is good to have this place for getting support from people going/having been through the same thing

 

I am having PICC line fitted on 8th Jan and start FEC-T on 13th Jan. Are you only having FEC? Maybe the T is given to node positive women?

 

My GP also didn't refer me, but I had been going to them since 2011! That's a story for a different day.

 

I now have a few 'days off' and intend to fully enjoy them - I hope you get to do the same Lou.

 

Su.

 

XX

 

p.s. I love your last sentence Lou, and totally agree with your sentiments. Woman Happy

Lucy_BCC
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Lou and welcome to the BCC forums

Along with the support you will find here our helpliners are on hand for you, please feel free to call for further practical and emotional support on 0808 800 6000 weekdays 9-5 and Sat 10-2

Here's a link to the treatments area of the site where you will find lots of information and further support ideas such as our 'Live chat' and 'Someone like you' which I hope you will find helpful :

https://www.breastcancercare.org.uk/treatment

Take care
Lucy BCC

womblemum
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Lovely January Gemstone Ladies 

 

Please can I join you on here?  I do have an FB account, but would prefer to keep using the information on here as I have found it helpful so far.

 

My background- I am 42 no kids of my own, two stepchildren (17 and 20 so hardly children!), wonderful husband, family and friends who are all so supportive.  I was referred by GP - eventually - early November then had mammogram, ultrasound and biopsy on 24/11... results on 27/11 showed BC so WLE and SN removal followed on 5/12.  Results of surgery on 12/12 were really good... clear margins and clear nodes but tumour was 21mm and grade 3 so decision was made for chemo (6 x FEC), radio and as I am ER+ Tamoxifen for 10 years after that.

 

I am having portacath fitted on 14/01 then chemo due to start straight after that (just waiting for exact date).

 

What a journey we all have in the next few months... but lets stay positive... support each other...share experiences... and most importantly win this battle 

 

Lou xx

MrMunch1
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Sandie,

 

You are a better woman than me!  I am not planning or worrying about any meals, just leaving it to the OH.

 

Your story sounds like it was complicated along the way, but you will get there in the end as will we all.

 

Hi Alice, thanks for popping in and showing your support, nice to hear from somebody further along - I hope all continues to go well for you (and that the grumpy shoulder starts behaving!).

 

I try to use my arm as normally as possible and then do additional stretches - the thing I find most annoying is the feeling that I get that makes feels like a wire coat hanger has been shoved in my armpit - it makes me feel sick if I think about it too much Man Tongue It's is very unpleasant!

 

Happy new year to all of you reading this thread.

 

Su X

alice45
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Greetings, ladies – just dropping in from Feb’14 to wish you well. I do agree about people disappearing to Facebook; we’re down to just a few stalwarts on our thread!

 

Just wanted to comment on the lymph node surgery: I had a complete clearance on the left side 12 months ago (21 Dec’13) along with the lumpectomy, and while the tumour site has healed beautifully, the shoulder has continued to be very grumpy. I’m still doing the exercises every day (and some extra ones when I’m at the gym) and the shoulder really complains if I miss a day! I’m a bit older than you, so you may heal more quickly, but I’ve been told that the stiffness and numb patches could continue for a couple of years (!), so be kind to yourselves and as patient as you can be in the circumstances. And keep doing the stretches – you’ll really need it if you have radiotherapy as well…

 

Best wishes to you all.

keepmumsane
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi, 🙂 I had 2 sentinel nodes removed. Was supposed to have chemo first, but they biopsied one side of my lump,  which was mostly pre cancerous with tiny dots of cancer, so didnt discover till pathology that the other 4 cms was what they had expected from the ultrasound. 

I feel lucky it didnt get out of the corral, but still a bit numbed by the whole thing. Its just one step at a time,.

Im trying to figure out simple meals for myself and my family I can feeeze now while I still have some energy. 

It seems to be a lottery on side effects so just chugging along. 🙂

 

Mmmm that wall walking stretch is a doozie! 

Xx 

MrMunch1
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi Sandie,

 

Welcome!

 

My journey started in September, feels like a lifetime ago, but on the other hand feels like yesterday.

 

Did you have axillary node clearance too?  That is the one I am struggling to get over, it's not too bad, but beginning to wonder if it will ever feel 'the same'.  Keep doing your exercises, they definately help, for me that one where you creep your fingers up the wall was mose useful - but now I just go in to a full stretch and hold for 30 seconds, It feels like you everything is 'loosening' up as you do it.

 

Like you Sandie, I find everybody gorgeous and supportive, but I want to spare them some of the detail and also feel they don't really get how I feel.

 

Big hugs to you too.

 

XX

 

keepmumsane
Member

Re: January Gemstones 2015 (January starters not on Facebook)

Hi, im joining the fb page,  but like you have found so much information and support here am still hanging out here too.

Had my surgery 12thdec, so im not due to see the Onc till mid january.  The head nurse rang on christmas eve to let me know I was on their list and gave me a phone number to call if I felt panicky.

At the moment im at the doing my stretches wishing I could swim stage . 

Im 45 , 2 girls, very supportive partner and whole community really, but here we know how it feels on the inside. 

Mine came back as grade 3 her2 +,  5cm tumour. No spread. Looking at herceptin as its aggressive, so it goes with chemo.

 

Going to be quite a year for us.

Xxx stretchy post op hugs. 

Sandie

MrMunch1
Member

Re: January Gemstones 2014 (January starters not on Facebook)

Hi Honey D,

 

Thank you so much for taking the time to reply, you made my day. Smiley Happy

 

Also thank you so much for sharing with me and making me also feel that I am not alone in this miserable journey.   I fully intent to be here for the long haul, grit my teeth and get through anything that is thrown at me. BUT am aware of how tough this will be and just a bit daunted by the whole thing.

 

Happy Christmas Honey.

 

Su.

 

XX

 

 

Honey10
Member

Re: January Gemstones 2014 (January starters not on Facebook)

Hi Su,
Just thought I would reply as I am going through chemo at the mo, half way through and the other half in Jan / Feb and like you am not a Facebook person and don't have any intention off 😄😄 .

I am 54 diagnosed July - mastectomy in August, returned 5 wks later for lymph nodes removal (sentinel and 1 infected) and now going through Chemo Fec T -so if you have any questions please fire away and I will do my best.
Loneliness is not good especially on bad day's and bad weather and you're message helped me to say I am not all alone in these feelings😄

Have a lovely Christmas Eve

Honey d