hi su day 3 today and it`s been the worse day still nauseous and my mouth very sore.I`m drinking loads of water taking maxalon and using prescribed mouth wash hopefully will be feeling better tomorrow one day at a time hugs Sandra
Didin't you start yesterday? How did you get on? Are you ok?
You sound similar to me, I feel I got of lucky compared to Sarah amd Emma. I found it impossible to keep my eyes open yesterday afternoon and this afternoon, dog's didn't look to happy when I woke up and it was 30 minutes after 'walk o clock' - don't worry, I made it up to the little monkeys!
I did get quite bad heart burn this morning, I feel trembly, but nothing specific, shaking hands, trembly shoulders, but temp is fine.
I put some of mine down the the sedation on Thursday along with chemo yesterday Lou, so I'm sure your Wednesday general anasthetic would be having an impact.
Don't think I'm imagining it, but axillary clearance scar and whole area feels very sore, I rang the Breast Cancer Care helpline and they said that sometimes the E in FEC can flare up scar tissue - great!
Did my first jelly belly injection today, I did it! It smarted for a bit, but I can defo do it again and again and again!
Long may your minimal SE's continue Lou.
Hi Sarah and Emma,
So sorry to hear about how sick you have both been. Have you both taken advice and looking at alternative meds now?
I feel very lucky to have got away lightly, I feel nauseaus, but no vomiting , I did start on all of the sickness meds though, even though they told me only to take them all if I was feeling sick.
I'm find smells yucky, so have changed some of my products. I am so very incredibly tired, so much for the insomnia.
Sorry you two, I hope you both feel a lot more human soon.
Big long soothing hugs
I wasn't sure if your post was directed at me, but here goes . . . . Don't worry about the PICC line at all, the only reason it went wrong for me is because I have tiny veins, when the lovely nurse checked my viens with the ultrasound, she warned me that they looked very narrow, but we tried anway, the tube failed to go in to one vein at all, and then the second attempt (different vein) went in about 10 cm but refused to budge.
When i was waiting to go in, I watched the woman who had hers done before me, and she came out smiling with her husband, not holding her arm funny or anything.
Kes, you will be fine, most people are fine with it, just not people like me with freaky veins!
The makeup, I decided to go for it in November, as soon as I realised that Chemo was on the cards because of my age, then my decision was reaffirmed when I got my sentinel lymph node biosy results (positive). I had my eyebrows and upper and lower eyelashes done. I am very glad I had them done, In hindsight the eyeliner treatment is not for the faint hearted, not painful, but watching someone come at your eyeball with a needle is pretty daunting (even after BC diagnosis!). The eyebrow tatooing was so not painful I honestly fell asleep for some of it. The lady that did mine was such a perfectioninst she used all sort of weird tools and stuff to draw on my face for an hour before she started tatooing - they look great, she was great. I know that it is not for everybody and it was expensive, but I think of it as 'retaining an element of controll', some ladies cold cap so they can keep their hair, I chose semi permanent makeup to help me look what I think of as 'more me'.
The only thing is Kes, because I planned ahead, and had my two sessions long before chemo began, I didn't need Oncologist letter to confirm that it was ok to have the tatooing done, the minute you start treatment and you disclose your situation to the therapist they want a letter, I have heard of oncologist refusing a letter on the grounds of infection.
Nice to chat to you Kes, shame the circumstances are not better, but we all all together here.
Anything else, just ask, let me know how the PICC goes.
Shenner and Emu, I feel for you that is just how I was first time please ask for Amend next time it helped loads. You need to take it one hour before chemo and then you get 2 to take home for next 2 days, still had nausea but did not vomit every hour like I had done. You have done well to eat a weetabix I didn't eat or drink fro 3 days so hopefully yours has passed. Stay strong Sue xx
well done Emma first one done only 5 more to go.Now we now what happens it won`t be scary next time.hope you have a good sleep tonight and remember to take one day at a time hugs Sandra
Hi Sarah, feeling surprisingly well...nausea and sickness has been kept at bay by the tablets and the only thing has been indegestion! I was tired this afternoon but a couple if hours snoozing on the sofa and I felt much better. I have been a bit light headed but that could be a mixture of chemo yesterday on top of a general on wed afternoon. Really hope things continue like this.
Hope everyone who had treatment this week is doing well.
Love Lou xx
Yes it is the Paxman machine. Yesterday was the first one was the more modern one, yesterdays is older. It obviously works better than the replaceable one. Got lots of advice regarding care etc and found some brush on powder if you develop bald patches so hoping to hold out. Have got my wig from last time for emergencies although I can get a new one. Hope you have the same success. x
Good luck all of you starting chemo tomorrow and i hope you are all lucky with minimal side effects. Sue xx
Marli, I had local and sedation - it's ok, not awful at all. It is quite sore now though, but I think it is because I have a cold and am coughing and sneezing a lot - OUCH! I 'm glad you are doing well without one, long may it continue. XX
Lou - you must be so releived, well done.
Peta, thank you for popping in and giving us such useful information.
Good luck to those of us starting tomorrow.
Well done Womblemum. Hope you keep well, everyone reacts differently to the Wonder drugs.
I have used the cold cap twice now (2nd yesterday). Hair fairly intact shedding individually not clumps. I( too was surprised I tolerated it well.
Had chemo 5 years ago using the cap that had to be replaced from the freezer and it did not work and by this stage had lost all of my hair so am quite hopeful this time. Take care . Marli x
Well only 5 more to go...had my first FEC today and it went really well. I had Emend before we started and the mixture of wonderdrugs (as I have now decided this is what chemo is!) All in all about a litre a fluids went in...and yes I have got pink wee!!!
I have been left a mixture of anti sickness tablets and steroids for the next few days so all I can do now is wait and see.
The portacath is great, it was very sore yesterday, but the surgeon left the needle ready for today so that probably made it feel worse than it really was. Although the op took a lot longer than I expected (2 hours) and I was quite groggy this time.
Anyway onwards and upwards.... good luck to all of you who are starting chemo tomorrow - stay positive
Much love and hugs
Hi Su - glad your line insertion went well. Did you have a general anesthetic or local and sedation?
Think I am going to try to delay my Hickman, on advice of chemo sister. We got in ok yesterday so will try again next time. She is not sure if we can do it through to the end but will wait and see. She says I will prob be having Herceptin by injection although I want to discuss that with oncologist as do not know a lot about this method. Marli x
Hope you are all well. Good luck to all who start tomorrow, I'm sure we will be comparing notes after our first doses.
I had my Groshong Line fitted today, it took ages! Staff were lovely, aside from my hair being matted with blood and a bit sore, I feel ok.
Onwards, upwards and forwards!
Emma - will be thinking of you tomorrow. Remember my first on 5 years ago , came home and sat waiting for something to happen and nothing did. We each have different reactions so please try to make use of the good times and if the worst happens deal with it then. I had EC and was never sick, even halved anti-sickness because it caused awful constipation with knock on effects. Chewed crystallised ginger on the very odd occasion when felt nauseous. Know you will be sick of hearing this, but trying to stay positive really does help.
Shennar - hope your biopsy results turn out well. Sure tomorrow will go well.
Thinking of you all. x
Thanks Emma - fish and chips by the sea sounds so yummy. I live in the North East and only about 20 miles max.from the coast but weather been a bit cool and SE's meant need to be near a loo!
How are you feeling, when is next treatment? Marli x
Just been trying to arrange early appointments for next 2 sessions which takes me to the 4th session. Suddenly seems so do-able.Hope to havea short break in between so something to look forward to. All holiday plans for 2015 have had to be put on hold so short breaks in UK are the way I think.
Hope everyone is feeling well. xx
Hi all you amazing ladies.
Sorry your 8 hour marathon session Marli - means to an end I guess. Love the gold star idea - so gonna do that!
Every time I have a session I stick a Gold Star on my calendar.
Try to surround myself with things that make me smile - latest is a mug with a photo of my Pliates Friends "Girls on Tour " in Edinburgh received for my birthday.
Got to stay upbeat and positive. lol x
Hi Emma so glad that today went well and your are feeling so positive. Yes , the wards are much more cheerful than you expect.
Had I second session today (8 hours, quite a marathon but went well). Asked the oncologist about green tea and her reply made more sense - it is to do with free radicals which are supposed to help wipe out cancer making cells! She is also happy for me to take my hair, skin and nails supplements based on the same criteria. She is quite young and seems very up to date.
Chemo nurse is happy for me to keep trying to use veins and delay Hickman line if possible. also said Herceptin can be given by injection, but need to discuss that with oncologist.
All in all a productive day. xx