After RADS session cancelled by hospital on Friday because of broken machine, they phoned this morning to say cancelled again and I've just had a further call to say don't come until Wednesday. Really disappointed because it just pushes forward the attendance days into another full week. Wonder how detrimental it is too? They couldn't answer that one
Still must be even more frustrating for the staff having to re-arrange everyone!!
Jacqui I think you may have been asking about this link which I posted earlier in the thread?
Hope it helps.
Hollykins - really interesting what you said about E45. Can't believe the differences across regions can be so different. I really get encouraged to use it all the time. Although at the moment luckily I haven't serious problems and I have 9 treatments to go.
Mands I truly hope you feel loads better soon.
Take care everyone and have a good week with treatments.
Glad treatment going well.Mine going ok too.Day 9 tomorrow so more than half way point.
Hope you have a good week
Interested to know which part of the country you are as our area are planning to start a treatment bus too..very early stages yet
Hi everybody hope you are all doing well in your treatment. I am on day 6 tommorrow . Found that the last week went very quick. So after tommorrow another 9. So far have been okay as the hospital gave me diprobase to put on. But was very tired yesterday. I am lucky though that I dont have to make my own way to the hospital about a 40 mile round trip.
We have a cancer support vehicle so takes all the stress away.
love and best wishes to everybody xxx
Hi can you please tell me the link re when treatment is complete?
I can relate to the body and soul being worn out after a long time receiving treatment and I'm not unique but psychologically it is very very lowering. They have cancelled my treatment again today as the machine has broken - not their fault I know but realistically I would have had my 13th today and now I have to go in on a Saturday instead
We will look back on this life saving exercise and count our blessings I am sure - I've counted mine loads since they said they could help me but sometimes ... it does get to me. Feeling low - but ashamed at feeling that way. What's that all about?
Just a quick update. 13 down, 2 to go. Rather itchy, but on and off. Usually itchy whilst at work when I have to be careful about having a scratch. The girls can cope, they just sort of say 'oh, she's off again lol', but I try and keep from doing it when boys are about
Am now itching and typing. Another multi tasking skill?
Hope the rest of you are getting through your treatments in whatever way you can.
Hi, Thankyou for the welcome and advice.
I've had my first two now and am pleased to say the thought of it was worse than the reality. Was pleased to find that my hospital provide gowns with poppers to wear so I don't feel too exposed and the radiographer was able to pull gently on that to move me so I wasn't manhandled so to speak!. So far so good, I've been moisturising religiously and had no side effects other than being a bit tearfull after the first one. On reflection that's probably because I'd been so aprehensive. I am feeling stronger again now. Bring on the remaining sessions and then getting back to the (new and different) normal.
Best wishes to the rest of you January Jems
Meant to mention below that yesterday I was prescribed a waterproof barrier spray called Cavilon because my rads team believe I have a problem as my breast is quite pink although it has been pretty much since surgery. Doesn't feel painful or sore at the moment and the Cavilon seems highly complex as you have to spray accurately and allow to air dry and it is highly flammable! Has anyone else been prescribed this and how have you coped with it?
I haven't used it yet as the E45 lotion seems to be soothing enough and if you use Cavilon you can't use any kind of cream or lotion at all.
Nice to see your post from yesterday. When I posted about the nausea I'd had a bad couple of days but luckily it's not really bad. The rads team don't seem to think nausea is part of the equation although that isn't what the factsheet said that they handed me before I started! That definitely quoted nausea as a possibility. Don't they read what is dished out to patients?
My theory is that the chest is beginning to ache a little bit like a chest infection might make it feel tight and perhaps that is making me feel sick. Anyway all in all I'm doing ok and tomorrow is halfway mark for the rads.
Hope you are keeping well. Wasn't it this week you were phasing your return to work? Hope it's going well for you although must feel strange.
Look after yourself
Day 12 for me today and so far not too bad, just a few red spots. I had a mammoplasty that included a lift so my boob is extremely perky so not sure if that is helping not get too sore underneath. I am wearing some soft bras from Rigby and Peller (soooo expensive but the only thing I could get in my size!) they appear to be giving me the support i need without rubbing so I will have had my moneys worth by the time this is done. I am using E45 lotion at the moment and slap it on 3 or 4 times a day. Where possible I am going bra free and working from home (not sure my office could deal with the whole no bra thing!!)
I had an email chat with my surgeon yesterday about my reduction op - I am a G on the left and a D on the right so very lop sided. I don;t have a prosthetic has have never been offered one (one of the joys of private health care is lack of consistent BCN) and I just want this operation done so I can move on
He casually mentioned i needed to be off Tamoxfen for 6 weeks before surgery, its so frustrating that they appear to expect you to ask the right questions!!!
I am tired but still not sleeping well at all despite doing a daily 3 mile walk on the treadmill:(
At least when I get done today I am more than half way through!!
Wow day 11..not much longer.
I am day5 today and thick fog to battle with.Over 70 miles return trip by car...hubby drives but not easy route.
Lots of strange feelings boob wise.Stabbing,hot,uncomfortable but all doable
Sorry about your sore.what /when did that start,is it since radiotherapy?
I am using aqueus cream to moisturise.
Must say sleep improving .Thats a relief.
Sorry to hear you are nauseous with the Rads. Hope that you are taking it easy this evening and manage to get there tomorrow..
Do you have a check with rads staff / Clinical Nurse Specialist part way through rads or is there anybody you can speak to there.
Take Care Gilly x
I too have felt nauseous these last couple of days. After my 8th blast today I had to trek across the hospital to the pharmacy and felt quite unsteady, dizzy and weak. Has anyone else experienced a heavy ache in the chest?
i also had a funny taste similar to chemo on my 10th rads now and the taste is now subsiding Gill x
Just wondering if anyone has experienced a change of taste since they started rads?
I seem to be going back to the sour/bitter taste that I had during chemo?
Hi Oaktreesea and Max38
Best of luck for Monday and 28th respectively. I've had 7 sessions and 13 to go and so far compared with Chemo it's a doddle. Nothing to worry about just keep caring for your skin, similar to if you've been sunbathing too much. Keep moisturising and wash/shower carefully. Apparently it only stays in your system for around 2-3 weeks after the last session. I have fair sized boobs but am tending to leave the bra at home, preferring a stretchy vest top under a loose jumper (good job it's Winter). I'm using a Simple all in one baby wash instead of the bar soap with no ill effects so far.
Please don't worry - the only down side is a lack of dignity when the rads team undo your gown and crack on very quickly. But they have tons of people to treat and I daresay when you've seen all the bare flesh that they get to see, both genders, you are pretty much unidentifiable as male or female!
Enjoy your weekend and try to take it in your stride once you start.
Welcome to the forums, you've come to the right place for support as the users of this site have a wealth of experience and knowledge between them.
If you would like to talk to someone in confidence you may like to phone our helpline where you can talk to a member of staff. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
I've also attached a link to our publication on Radiotherapy which you may find useful
woo hoo 10 down and only 13 left! Good news is so far not too many side effects (hot and sore) bad news is apparently they don't kick in until after 10 sessions. As so many others have said the main annoyance is having to go to the hospital daily but otherwise it has been pretty smooth.
My advice 10 sessions in is don't worry too much, it is easier than the other crap they put us thrrough. Be prepared to feel a bit isolated when they leave you but its only for a couple of minutes.
Practical info - in my hospital you get undressed in the room with the machine, no gown but they give you a piece of paper (!) to put over you. Most of the time I have had women but there has been one male radiographer. To be honest I am past caring who sees my boobs now 🙂
I accidently saw my oncologist today but apparently I will only need to see him once more before the end of the treatment.
I was extremely worried about the radiotherapy but its been ok honest!
Hi everyone, i start 23 sessions of radio on january 28th so any tips for preparing for it would be great.
I am having the breath holding radio as it is left breast. can anyone recommend the best soft bras to get and also which creams to use? also what can i expect when the sessions are finished? does it take a few weeks to get back to normal?
many thanks - this forum is so supportive to read
Hi everyone, can I join all you fellow January Jems?.
I start my radiotherapy on Monday so thought i'd check the forum out to get a better idea of what goes on and try to pick up some tips to help me get through it. I had a WLE and SNB back in November and after getting the results of the op i've been trying to keep my mind off having the dreaded "C" and this next stage in the treatment. I've been doing quite well, but am starting to wobble a bit now its so close and worried about possible side effects.
Thankyou for the tips i've found on this thread and good luck to all of you currently having rads and those like me about to start.
HI Fimbo, I had a reduction when my lump was removed and have had soreness with bra band rubbing the scars at the bottom. It eased off then got bad with rads and is now easing off again. With the genie type bras I turned them inside out so the seams don't rub. Not sure if your softie will work that way round though. I can't go without a bra as I get other pains, so at one point I was wearing a belvia with a sports bra over the top to give some cushioning. Radiographer suggested a well washed cotton hanky (but I didn't have any). Maybe a vest under your belvia? Some where on here I saw a discussion about stick-on softies, but would probably irritate skin during rads. Hope you find a solution soon.
As always, thank you for your kind words.
I feel better today. I went for coffee with a friend and had a good natter about non-cancer related things! I've realised that I have to get back to work or I will go batty. Work keeps me sane really.
I feel stronger physically too, which helps as I'm now not taking so many pain killers, just a couple before bed so I can sleep, that's when the wounds hurt the most really. The pain killers were making me very drousy and foggy headed, making me feel slightly out of control.
Sounds like you are doing really well - good for you doing all that walking. In between rain clouds, the sun has been really bright, so it must be a really lovely thing to do, albeit for a horrible reason. Or on the flip side, a good reason as it's helping to combat this horrible thing.
I'm dreading the tamoxifen, if I have to take it (it's looking quite likely). I've always battled with mood swings anyway, so it's going to be yuk - mainly for everyone around me!
I've got another appointment next Wednesday, but if the consultant gets the results in before then, he is going to call me.
Take care everyone!