Well re your course i have signed up for the 6 weeks of 2 hrs per week mac millan course starts in May.
I did enquire from the same lady about your course and she said she would enquire and phone details today.
I find my hair is so course looking yet feels soft.
Tiredness like yourself .i pace myself each day ..plenty of rests ,but also doing most other things.
Flushes occasionally .I do hope they will soon sort the flushes for you.I had the same experiences but back around Christmastime.They were awful at night and sleep impossible..some lasted an hour.I do sympathise.
I am now waiting to see oncologist appt due any time...5 weeks since radiotherapy.
Well we are it seems gradually returning to what we can only think normal life is...after our battering mentally and physically.I has not been easy in so many varying ways.
Fortunately my skin has been fine.
I do however like you have the odd flush...i am taking tamoxifen as i have osteoporosis so it is better suited for that.
The tiredness too such a nuisance but again i have to pace myself
Enjoying doing some hand sewing...patchwork that i started 20 yrs ago.
The weather improving too and the spring flowers so lovely
We must all chat on hear occasionally as it maybe that someone will need encouragement
I signed up for the workshop very early on and was told I would be allotted a space in November 13. But having not heard any more I phoned again in January and they are now saying June this year! But hopefully it will happen and I'm glad you got something out of it.
My skin too is healing and looking less like a car crash - are you using Polymem dressings? They are really good. The fatigue I agree is not great and when you add in the joint pain which is also affecting the muscles of my chest it isn't great. I am assuming that is the anastrazole but plan to keep going with it until I see my oncologist in early April and if it is really intolerable I shall ask what the alternatives are. I have a few 'warm' sessions through the day but not really sweats so I sympathise with you on that - so uncomfortable especially when the weather finally warms up.
Glad you are looking forward to a return to work and hope everyone else on this thread is coping and moving forward. Be good to hear from some of you.
well done Gill.It is a long haul this journey.I am pleased to hear you now recovered from the tiredness and feel normal again.
I finished Rads 16 days ago so still have the tiredness but you have made me realise that worn out feeling does pass eventually.
Hi I have had 15 rads which finished 4 weeks ago. I was very sore underneath the breast and had broken skin in the end i didnt use any creams and just bathed the skin in warm water and all healed well . Energy levels have increased no longer feeling tired and am shopping cooking cleaning again without problems joy !!
I never thought i would write a reply like this as I have had afew complications re chemo it was always 1 step forward and 4 back but am glad to say normality is beginning to reign you will get there believe me love Gill x
hi all - have had 15 full breast rads and now had 3 of 8 boosts. my nipple is very tender and sore. does anyone have any good ideas about looking after it? i am worried that by the time i have the final 5 boosts its going to be very painful indeed.
also - im beginning to feel tired now for the first time since the rads began - and i notice people writing that the become more tired after the sessions finish? what can i expect
thanks to everyone here on the forum
So pleased you now have your life back.It must seem very strange your journey of treatment has been longer than mine and mine seems to have been long.I do hope you will be able to pick up where you/we left off before our nightmare time.
Hope you will continue updating on here how life is going
So thats it for me, 8 chemo, 2 operations, 23 radiotherapy sessions. Don't have to see my oncologist for 5 months so I guess I am better 🙂
All feels a bit surreal at the moment, can hardly believe that something that has completely filled my world is over but I think I can get used to it.
Thank you to everyone who has read my posts and replied, I really appreciate the support.
Hello everyone. I'm just starting on this journey as I was diagnosed last Thursday. I will be having WLE with sentinel node removal next Monday, with radiotherapy at some point later.
Just wanted to say thank you for sharing your experiences in such frank and honest ways. I feel that difficult times are easier to cope with if you know what to expect - and have found it frustrating not to be able to get a clear answer about possible effects (must stop googling!) From reading your posts, I feel much more prepared for what is to come.
Wishing you all the best, whatever stage you are at. Love and cyber hugs xx
Quick update on me at the end of RADS in case it helps anyone else.
I am so grateful that I've been given the chance to receive treatment but was consistently unimpressed with my radiotherapy department. At the final session on Friday last week my skin had started to break down on the collarbone having had 15 blasts to that area as well as the breast. I had no access to skin care nurse/team and no-one particularly had time to study my skin reaction during treatment.
I was given a single PolyMem dressing which is non adhesive and told to apply that and get some more supplies from my GP. Fair enough but one dressing has hardly been acceptable for the entire weekend. After applying the PolyMem the moist oozing from the area became much worse and felt uncomfortable. I did entirely the wrong thing then - bathed the area with luke warm salt water. This was very soothing and the oozing stopped immediately but that is not good. I have spoken to the hospital this morning and they tell me that there is an ingredient in the dressing which actively draws out the moisture and that enables the healing process from inside - out as the good cells start to renew. The process can take 2 weeks or more and you can expect it to become worse before it gets better.
Most important - discontinue any moisturising creams to the broken skin area and only bathe with luke warm water.
Hope this helps anyone out there experiencing the same. If only they could have given me the information at the time!
Thinking of you all
Hope you're all doing well!
My appointment for the plastic surgeon hadn't been made! If I hadn't have chased it on Wednesday, goodness knows how long I'd have been left for? Anyway, luckily I did chase and they have now booked me in for Friday 14th - what a lovely valentine's day I'll be having!
I'll definitely keep you all posted with the developments.
I'm keeping myself going by thinking of the lovely expensive dress I'm going to get myself after my lypo! I'm trying to fool myself into thinking that I'm a celeb - sounds so glam "I'm off to see my plastic surgeon" - but then I get a wake up call when I remember why!
I may still have to have rads after the surgery, they can't tell me at this stage (am so getting used to that).
Take care all.
Had my last treatment today - fairly uneventful and I have a 'leaving present' of a bad burn on my collarbone which is now oozing Small price to pay for the rest of my life though!
Mand I hope your soreness eases soon, sounds a really nasty experience. Did they give you dressings or do you have to pick them up from the GP? The hospital gave me a single dressing and I had to rush back home to my surgery so they could order me some more for Monday.
Kipper hope your BP improves quickly its a vicious circle though isn't it? The more you stress and worry the worse it becomes. I've had high BP for years with little success of control. Ironically through the whole BC experience - surgery, chemo and rads it's been really good. Keep positive love if you can and hope all goes well on Monday if the surgery goes ahead.
Magical Moon, haven't heard of the shoulder problem before and truly sorry for the horrible pain. Just when we think we know where we're going with this journey it throws something else crappy for us to deal with. Hope your pain improves very soon.
HFK that is really tough having to have mastectomy when you thought surgery was behind you. Can't imagine how disappointed and upset you must feel. Please let us know how you get on.
Well done to all of you on the RADS experience - yes easier than chemo but not a pleasant experience at all. Electronic hugs to you all, hang in there we now have to recover and try to be ourselves again instead of a 'patient.'
So I am really all done!
Last meeting with oncologist today and he doesn't want to see me for 6 months! He also said he has no plans for more tests in the future unless I have any symptoms. I said a nice goodbye to the radtio therapy team after being so stressed the other day.
My blood pressure is still sky high and worrying about its not helping but I am hoping that my reduction surgery on Monday goes ahead.
Thank you to everyone for the support over the last few weeks. I have been a bit of a loner during my treatment and my chats on here have shown me that I should maybe have been more open to meeting/talking to people over the last year.
Mand sorry to hear your skin is getting even worse. HFK sorry too that you're needing a further op. Kipper good luck with lowering the BP, hope your op can go ahead on Monday.
I've just had my last zap this morning, Hurray!!! just the "standing time" to get through now. Boob is now sore and also the armpit, it has been hard to get comfy in bed. Feel too tired to go out to celebrate but have got a nice bottle of wine lined up for later. Like Nally and Ashby I felt strange walking out of the hospital after my last one and saying goodbye to the radiographers. I bet next week I'll still be thinking I need to plan my day around going for my appointment!!
Well done to all of us January Jems who have got through to the other side of treatment and very best wishes for those of you who still have a bit of a way to go.
That sounds really really painful, are they helping with dressings etc? The booster thing caused me most pain but luckily no broken skin, I have been slapping copious amounts of e45 on, often 2 or 3 times in the middle of the night because I just can't sleep at the moment. Not sure if it has impacted others but not sleeping has been one of my most annoying symptoms but strangely enough I seem to have got used to only a few hours a night.
Have spent today trying unsuccesfully not to get to stressed about work in an effort to bring my BP down.
Feeling a bit better today. The other nightmare yesterday was my private health care wanting £1000 co-pay for my surgery but today they have backed down and will cover it all. My blood pressure is still high but hopefully will be sorted.
I am taking it easy for the next few days - no gym for me 😞
I actually feel a bit strange that I don't have to go to the hospital today.
Thank you so much, in the end I went to a friends and we did drink the champagne and I celebrated what has been a long long journey. I am hoping my blood pressure will reduce and my surgery can go ahead on Monday as planned. I was just so disappointed that today did not feel the way I thought it would. I am going to take it easy for the next few days and try and remember how far I have come.
So that will teach me! Had my last treatment today but have to say I was so stressed I barely noticed it.
I have had a really awful day at work plus i then had my pre-op assessment before my last session. Unfortunately the stress of work plus an awful drive to the hospital plus my white coat syndrome meant my blood pressure was sky high. They are now having to refer me to the anaesthetist to see if I am well enough for surgery on Monday.
Quite frankly I am devastated, I rang my gp and got an emergency appointment and they have increased my medication and I have to go back on Friday. I am feeling so disappointed, my bright shiny day seems to have disintegrated. Not sure I feel up to champagne now 😞
Pleased to hear that you now on last day of treatment.Have you been told to continue for the next few weeks with the daily moisturising etc.
I felt odd when i left after my last session
Hope all goes well for you