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Joining the group

13 REPLIES 13
Guest user
Not applicable

Re: Joining the group

Thank you Lucy, I'll go and have a look. x

Lucy_BCC
Member

Re: Joining the group

Hi Kate

I thought you may find this publication helpful to read as it contains some information about fertility preservation, you can read it via this link:

http://www.breastcancercare.org.uk/upload/pdf/BCC28_fertility_issues_09_web_pdf.pdf

Best wishes
Lucy

Guest user
Not applicable

Re: Joining the group

Hi Midge
Bed sounds like a good option! Thank you for your reply, I think now I have found this forum I will be on here a lot for support. Already this morning, I have been on here for about an hour! And my husband has just gone to make me coffee and breakfast - bless him. I hope you're treatment goes well and that you're up and about again soon.

I wondered, has anyone gone through a cycle for egg collection in between their lumpectomy and starting chemo? We don't have children but have been trying and were considering IVF before this bombshell. Now I wonder if this was the reason we hadn't conceived?!

If anyone has any experiences to report back, I would love to hear them. We have so many things to think about at the moment.

K x

Lucy_BCC
Member

Re: Joining the group

Hi Kate and welcome to the BCC forums.

In addition to the valuable support you will receive here, I have posted a link below to our new resource pack which you may find helpful, it has been designed for those newly diagnosed, just click on the link to access the order form:

http://www.breastcancercare.org.uk/healthcare-professionals/publications/quick-order-list/*/changeTe...

For further help please do call our helpline on 0808 800 6000, the line is open weekdays 9-5 and Sat 9-2, our team of specialist nurses and trained helpliners can offer you further support and information. Hope this helps.

Take care
Lucy

Midge
Member

Re: Joining the group

Morning Kate and Av

Sorry you are joining us. It is very hard when you are waiting for all of your results and trying to make sense of it all. Try not to look too far ahead, don't read too much on the internet as it may well never apply to you. Statistics are out of date the moment they are written. I am 38 dx in march and am currently lying in bed recovering from my second chemo cycle while OH is dealing with the kids. Take care of your selves and ask as many questions as you want. We have all been where you are and it is headspining. Dx

Guest user
Not applicable

Re: Joining the group

Hi Karen
Apart from being in my late fifties with grown up children, your case sounds like mine. My tumor is high in my armpit and also in my lymphnodes I was diagnosed in May and had a CT and bone scan to see if it was anywhere else and luckily for me it wasn't.
I found the CT very uncomfortable, I'm not used to lying still and if you have an I-pod (I think you're allowed) I'd definitely take it in with you, they do pipe music in through earphones, you need to remove jewellry and stuff, it's also a bit claustrophobic, but bearable. The bone scan wasn't too bad, you need to have a blue dye injection and go away for an hour or so for it to go through and then you go back for your bone scan, this also means laying still, but isn't too bad. I had mine on the same day so it was over and done with. I was worth it to know that it's confined to one area and they can treat it!
Keep your chin up, I hope you have lots of offers of help with your children.
I'm thinking of you and sending good vibes and positive thoughts.
Love Av xxx

Guest user
Not applicable

Re: Joining the group

Hello there! I can't believe I'm sitting here joining this group and crying as I type this! My name is Kate and I'm 39 and have just been diagnosed with triple negative breast cancer. I had my first op on wednesday and am waiting for the results of that. I had the lump removed and a sentinel node biopsy and now will wait to see what else I have to face.
I don't have any children, just a gorgeous husband who has been fantastic.
x

elaine_r
Member

Re: Joining the group

i take one day at a time you get bombarded with to much information and sometimes you cant hear what they saying as your mind is elsewhere take someone with you if you can let them be your ears aswell you will be ok im still doing chemo as well not had my opp yet another 2 sessions to do had to have 8 started in feb u take care of yourself speak soon elaine

Guest user
Not applicable

Re: Joining the group

Debbie,

Did you have clear bone and CT scans after your op?

Dotty2xx

Guest user
Not applicable

Re: Joining the group

Hi Karen, sorry you have had to join us - the worst bit is the waiting. I am sure you will feel happier once treatment starts. I am 18 months on from diagnosis and wanted you to know - although it aint easy, chemo and treatment is very doable. I had my op first then 6 lots of chemo. I had lymph involvement and later found out I had secondaries in 5 hot spots in the bones - you can imagine I thought my number was up but its not the case these days. My bc and secondaries are all under control and I take 2 pills per day for each condition and feel really really well. I worked throughout chemo because I wanted normal as much as poss but just listen to your own body as to how much you do or dont want to do. I have one son age 11 now and I was upfront with him from the start and he coped fine as well. I wish you all the luck in the world for your future journey and you will get loads of support on here take care Debbie xx

cass141
Member

Re: Joining the group

Hi Angelica,

So sorry you've had to join us, but you'll find lots of great advice, info etc to help you through. The ladies here are so, so supportive, make use of the forum and the experiences shared on here I found invaluable. Knowing someone else knows exactly how it is really does help. I'm sure others will be along to say hello.

Like you, I had lymph node involvement (10/18)so had scans to check for spread. Luckily they came back clear and I have regular scans to keep an eye on things. From my own experience, after the dx once I had been advised of treatment plan I felt a little better. Chemo or the thought of it, really frightened me but it was doable.

As you have young children, take advantage of any help you're offered. Most days I felt ok but when I didn't I just let someone else take over for a while (obviously not an option for someone having to cope alone).

And when you have really low days, or need a rant, this is the place to do it! Also, when you're happy, someone good has hppened share that too. Lots of luck with tests, sending big cyber hug to you, x

Midge
Member

Re: Joining the group

Hi
Just a quick post to say hello and bump you up. I am 38 mam to 2 ( 3 and 5). Was dx in march . Had my op first now on day 2 of my second chemo. Am lying in bed posting this on my iPhone.

So sorry you have had to join us. The worst part is waiting for tests and results. As soon as you know what you are facing and how they are going to treat it things do get better. I wish you all the very best. You will find there are a lot more younger women on here than you imagine reading their experiences help you to realise you are not alone. Goodluck debx

Lucy_BCC
Member

Re: Joining the group

Hi Karen and welcome to the BCC forums.

I have posted a link below to our new resource pack which you may find helpful, it has been designed for those newly diagnosed, just click on the link to access the order form:

http://www.breastcancercare.org.uk/healthcare-professionals/publications/quick-order-list/*/changeTe...

I have also posted a link to our booklet, 'Talking with your children about breast cancer' which you can order, as you have younger children too you may also want to order the 'Mummys lump' book, you can check them both out here:

http://www.breastcancercare.org.uk/healthcare-professionals/publications/quick-order-list/*/changeTe...

http://www.breastcancercare.org.uk/healthcare-professionals/publications/quick-order-list/*/changeTe...

If you feel it would help to talk to someone in confidence please do call our helpline on 0808 800 6000, the line is open weekdays 9-5 and Sat 9-2, our team of specialist nurses and trained helpliners can offer you further support and information. Hope this helps.

Take care
Lucy

angellica
Member

Joining the group

Hi,

I'm Karen, I am a 37 year old mum of 4 (12 yo, 10 yo, 6 yo and 1yo) and I today had my dx confirmed 😞 I don't know how I feel or think. I have been referred to an oncologist first to have chemo to reduce the tumour then told to expect surgery later.

As it appears to have spread to my lymph nodes under my arm, I need to have a CT scan and a bone scan to see if it is anywhere else.

Karen