Hi Samntha and everyone else ... I had my 5th cycle today and went for the FEC75 ... they gave me extra recovery time after what they called a severe toxic reaction to the Docetaxel ... I haven't felt ill for the past few weeks but my energy levels, stamina and mood are still really low ... I also managed to hang on to my eyelashes until the Docetaxel and losing them has been difficult as I don't feel I can paint on my mask like I could before ... I went to a Look Good Feel Better workshop last week but I just don;t like myself without eyelashes and I know that sounds selfish and shallow but it's making me not want to go out and see people which is not good ... I was happily going out with my bald head and lop sided chest no problem but I've turned into a right hermit this past month or so. I just feel like I've had a complete personality change since the Docetaxel and wonder when I will start to feel like the old me again.
I have to say how much I admire all of you who have persevered with the Docetaxel in spite of the pains etc ... I truly and sincerely wish you all the very best in your recovery
Hi everyone. I can reasure you that it will get better and the pain will subside after a couple of weeks after the chemo finishes. I found the tiredness lasted a bit longer and found that the surgery after chemo quite tough but then I had a few problems. Eight weeks on from surgery I am going for my radiotherapy planning tomorrow so by Christmas I will have conpleted my treatment. Good luck to you all x
Thanks so much for your reply Maryland ... I saw oncologist today who has cancelled next week's chemo and is reluctant to continue with docetaxel because of the extreme reaction in terms of severity and duration ... she is suggesting I either stop now after the four cycles or have another two FEC at reduced dose ... FEC75.
My temperature was still spiking last night and rose to 38.4 which means I should have gone back to A&E but I went to bed and it's back to normal this morning.
She said that full treatment gives me an 80% chance of surviving beyond ten years, and stopping now reduces that to 76% ... I reckon I can more than make up that 4% with lifestyle changes but if continuing with FEC75 gives me another 1 or 2% then I will probably go with that.
Hi there ... I had my 1st Docetaxel 13 days ago ... I would liken the pain to falling 100ft on to concrete if it was possible to survive it ... absolutely everything hurt and the pain was excruciating ... I was bedbound for five days and I've also had two trips to A&E with high temperature ... and right now I am blubbing like a baby as I type ... feeling so low and emotional.
The fatigue has been debilitating and I am petrified at the idea of sitting in that damned chair next week while the stuff is dripped into me again. This is the worst I have felt since my diagnosis in June having felt very positive throughout surgery and most of the FEC cycles.
I'm seeing my oncologist today and hope they will offer stronger painkillers and a reduced dose of Docetaxel next week ... everything about this is just so hard ... I really really hate self pity but feel I'm wallowing in it right now and struggling to snap out of it 😞 ... Lynda Bellingham's death hit me hard and I feel guilty that I'm not appreciating how fortunate I am ... which has been my mindset throughout until recently.
I do hope others are getting the help and support they need to deal with it .. it did help to read others are feeling floored by it too even though it saddens me that this treatment is so punishing on us.
Best wishes all.
I also had the joint pain and ended up in hospital. It was awful, i just couldnt do any thing with my self.I was given stronger painkillers and it helped. This time with the T its not been as bad. You need to make sure you rest and i also have Lucozade sport( Rasp) Because i just cant eat anything but soup for a week because of the cotton /sore mouth. I found this to give me a bit more energy.
Hope you feel a bit better soon.