I just wanted to add my best wishes to all of you for a happier and healthier 2017. What a journey we went on last year!
I finished radiotherapy on 22nd December and really haven't had many problems with it, although my skin is getting a bit itchy now and I have to keep exercising my arm to relieve stiffness in the armpit.
What I am experiencing is chronic insomnia, which I think must have something to do with taking Anastrozole, as that's when it started. Has anyone else had this problem?
Hi OnceWild and all others on the July thread,
It is fabulous to hear that you are now nearing the end or have reached the end of your active treatment.
My last rads were on Oct 26.
I am amazed at OnceWild already being on a phased return to work! You must be one strong and fit lady!
Unfortunately I was truly hit by the sometimes delayed side effects of fatigue and 'chemo brain' - mild cognitive disorder - once all was over. Thankfully our new Macmillan centre has now opened and I am getting help with addressing some of the challenges. Seems weird - having worked most of the time through chemo and rads - that I am currently not able to work anymore....
I agree that the radiontherapy treatment is much easier than chemo, especially when one has the right cream to avoid burns, etc.
Just be aware - often the burn comes out in the two weeks AFTER the rads have finished - so keepp moisturising!
Wishing all of you a most Merry Christmas and a brilliant New Year!
just checking in - can't believe it is six weeks since I finished chemo and four week since I started phased return to work! The time has flown. I have my final radio on Monday so the end of hospital visits is in sight. Yay!!
Radiotherapy is a breeze compared to chemo. I have been lucky and had 8.15 slots each day so easy to park and in and out in a flash. Skin is doing really well too. Onward - withdaily Letrozole tablets, three weekly Herceptin jabs and six monthly Zometa infusions - to a brilliant 2017 for all of us! XX
Alex, am now on day. 17 from last session of chemo! My taste buds are almost back to normal, but certain foods still do not taste as they should! I also look forward to being able to taste Xmas lunch and to enjoy!!! I was admitted to hospital on day 10 with high temp! Thought I had got away with it! Am only just beginning to feel normal (ish!!). Totally agree with your view on exhaustion - even now I get very tired after I have been out - cant walk too far before I feel tired! Still, at least we have got the chemo and side effects over with!
We on the same wavelength! i have a facial and massage booked for just after xmas, I am so looking forward to the treatments. All the bery best to you for xmas and the New Year - Hugs x
Hi Everyone, it's a very quiet board! Hope you're all doing ok. For those of you who have started rads, how's it going? I hope that you're finding it manageable and not too exhausting.
I had my final chemotherapy yesterday, after so many delays I expect I'm the last one on this board to have finished, I think even some on the August board finished before me! But on the plus side, if I do have radiotherapy (consultation in a couple of weeks) at least it'll be after Christmas and when the kids are back at school. I was dreading having to go in every day during the holidays. So there's always a silver lining : ))
I'm sending lots of love to everyone here, we've had a horrendous few months, but we did it!
Hi Alex, I had my last chemo yesterday as mine was put back a week on the previous session. I have meds ready again to hopefully minimise side effects, particularly bone pain! How are you doing for SE's? I have had Radiotherapy consultation and go for scan on 25 Nov ready to start same on 12 December. Did think it would be done and dusted before xmas but as I have had some delays with chemo, I finish Rad on 4 Jan. I knew nothing about holding breath either!! That should be interesting, guess I will have to start practising! To you Alex, and all the other ladies who have recently completed Chemo, we have done it!!! To all those ladies still going through chemo, good luck and you can do it too!! One step at a time. Hugs to you all.
I have a rash on my lower legs but my elbows are OK. I also had the most horrendous water retention and my legs, hands, middle and face made me look like the Michelin Tyre man. I am assured that all will be well in due course and my swelling has gone down plus the rash is not as bad.
Onto the next for all of us! I saw Rad cosultant on Tues and have planning appt on 21st prior to 15 treatments. Starting Letrozole soon too. Ongoing Herceptin and Zometa too. It's certainly not over but am sure the worst is - SO pleased to be finished chemo, especially today as for the past nine weeks I have lost every Friday through the weekly treatment, then felt out of sorts for four or five days. Best of all is having my Hickman line out. It was a godsend for treatment but a hassle to live with. A little trio of scars to join the large red brute that crosses my chest. Hope they all fade with the memories!
I am am troubled by an itchy rash on the outer elbows and each calf. It flares up every now and then but has persisted for three weeks. Asked pharmacist for advice and was told to treat the symptoms as it is probably chemo related but I'm not convinced. Minor niggle in the great scheme of things. Anyone else had the same?
I started last Monday and I have 15 regular plus 8 boosts so 23 weekdays in all. They position you then draw on you, next they say "deep breath in............ breath out" a couple of times. After that it's "in your own time a deep breath in and hold it" then they count down from 22. They do that about 4 or 5 times and then it's over, often they get to 12 and tell you to breath out but the longest is 22.
I found this video for you:
Have a couple of old bras because the ink comes off on them. I take my cream with me and use it in the changing room before I get dressed then again at about 3pm and once more before bed. I don't use it before I go because my appointment is at 9 am.
Alex did they take you through breath holding? On your left breast you have to move your heart out of the way by breathing the way they tell you and be able to hold your breath for 22 seconds. If you can't do that they give you a shield, they told me about that ages ago so I have been practising but my doctor does both rads and chemo.
So heartening to hear so many of us are nearing the end of chemotherapy. Well done everyone. What an achievement. On my last chemotherapy they also gave me my first 6 monthly zometa infusion. Have been struggling with bone pain since - particularly at night. Hope this wears off!! I've got a ct scan next week to map me out for RT and then radiotherapy to take me up til Christmas so I still feel very much on the BC conveyor belt. Getting fed up of the no hair/eyebrows/eyelashes situation but need to be patient I know! Good luck everyone xxxx
I had my last chemo today! SO pleased to have two treatments ticked off, and the two big ones too - MX and chemo. Just four more treatments to go - radiotherapy, 6 more Herceptin jabs, 5 more Zometa infusions and Letrozole for ages. Who knows what lies ahead but for now I am just happy to be here.
hope you are all managing the SEs ok and enjoying your weekends.
Final chemo today! Hope yours went well Bookworm. Luckily they found a vein first time today. Last time they had to have three tries! Today I walked two miles to the hospital with gloves and a heat pad on, then asked them to get the canula in while the veins were still plump. Bingo! Obviously I've still got this cycle's SEs to go through, but it feels so good to know that I won't have to do it again.
Best wishes to all those who haven't quite finished yet. The end - as you say Alex - is in sight.
I have washed my wig a couple of times. The advice Blueash gave was spot on and I've found that it really doesn't take that long to dry. If you can do it on a day that you're not going out, or, go out and do chores first thing in the morning then wash as soon as you get back in, you should find that it has dried in time for the following day. Blot as much as you can with a towel, gently, and then leave in a room pref with some central heating in it! I've found that the curl has loosend a tiny bit, but it still looks great. Don't be alarmed if it feels really heavy when rinsing, you wont harm the lace, it's pretty tough.
If I could figure out how to post photos, we could both do it and have a laugh : )))
Glad you've only got one more treatment to go and that you're feeling a bit better now. Almost there! I have to say that although the weekly side effects aren't nearly as dramatic, I do feel just slightly under the weather all the time and despite being able to be up and about, I don't feel like I ever have enough time to recover before I get zapped with the next lot! Aah well, swings and roundabouts.
Take care xxx
I suppose you could put it in the airing cupboard. I have got a couple of baseball caps with hair and they are fabulous. So comfortable. I put a photo on here somewhere.
Found it! look on page 22 of the September thread. The post below it says where to get them.
Also get some of these:
and you do not need to wash it as often and it will keep better. I have some and they are very good. I still have lots of hair thanks to cold cap and am using toppers now. They are just wide extentions.
Alex I tried to find a video for you -there are loads on youtube but the best one I have see says:
fill a bowl of tepid water add about 2 ml of special wig shampoo and swirl it around in the water.
add your wig and just let it soak for about 10 mins NO RUBBING all sweat and dirt will come away.
lift you wig out and put in another bowl of tepid water for a minute or so. Do that 3 or 4 times.
lift wig out and blot with a towel NO RUBBING.
Arrange on a wig stand (head shape) and lighly conb with a wig comb/brush.
leave to air dry for a couple of days.
Happy to be reading that we're all coming to the end of things and have managed to get through it! Alex (and a few other I'm sure) only one more to go now!
I've still got 5 weekly taxol to go (possibly 6 if they tack the one I missed on to the end) but even I can see the end in sight. I've had problems with low neut count and am back on the gcsf injections, joy, two injection a day again as I'm still having to do the anticoagulant ones as well. Buuuut, I'm starting to get excited for the end.
The good thing about the weekly dose is that so far, I've only had one slightly rough day each time. I do get the joint and bone pain a bit, but none of the horrible SEs of FEC, like the nausea, the taste and the just not being able to move bit!
My thoughts are now turning to radiotherapy and reconstruction. Nobody has really spoken to me about this yet and Google has thrown up some conflicting info. I've read somewhere that you can't have a reconstruction after radiotherapy but that can't be true, right? Does anyone have any knowledge about this? Truthfully, I'm not even sure if I want to have a reconstruction anyway ( I was never blessed in the boob department, so I'm not really missing much and am not even too lopsided!), but I'd quite like to know the options.
Thanks girls and good luck for all remaining infusions! Xxxxx
Hi Alex, just wondered how you are doing after your treatment? I did not have mine on Wednesday, it was delayed for one week. I had to have a mole removed from my leg which was totally out of the blue and my Oncologist's opinion was that it would be better for me to let wound heal before have next session. Was disappointed but understand and accept his opinion. I will post how it goes next week. Hope you doing ok - thinking of you, and all going through treatment.
Hi Alex, just wondered how you are doing after your treatment? I did not have mine on Wednesday, it was delayed for one week. I had to have a mole removed from my leg which was totally out of the blue and my Oncologist's opinion was that it would be better for me to let wound heal before have next session. Was disappointed but understand and accept his opinion. I will post how it goes next week. Hope you doing ok - thinking of you.
hope you are all doing ok. I have just three more weekly doses to go and suddenly the end feels very near. I can't wait to finish chemo but am not yet in the right mindset to go back to work in five weeks time. Hoping this will change over the next few weeks. Hoping also to fit radiotherapy and Herceptin injections around work but suspect this might be too big an ask. I have had such long waits for both bloods and treatment over the last few weeks I can't imagine anything going to plan.
I have been pondering the concept of getting back to normal and wondering if it is ever possible. Ideally I'd like to make a big life change and make the most of every minute but, with children in critical years at school/college, we have to bide our time and stay put for now. So instead I am drooling over exciting holiday ideas, sadly most of which are unaffordable. Ah well, I can dream!
How are you going to mark the end of treatment?
Best of luck for tomorrow Alex, hope your SE's are not as bad this time! I am going to be proactive this time around as I dont want to have the same bone pain as the first one! Will be thinking of you .
Glad to hear your second Docetaxol was not too bad Suze - will post on here how mine goes after Wednesday. Hope yours goes ok Alex - I think you maybe are a day ahead of me?
I thought I'd let people know, particularly Madhatter and Alex who are due this week, that my second Docetaxol wasn't as bad as the first. I still stayed in bed a lot this weekend and felt pretty woozy and useless for anything, but I didn't have the bad heartburn or pain around the kidneys. I took the 'Sainsbury's own' version of Clarityn. Not sure if that helped or whether it was just better this time anyway.
I hope it goes well for both of you.
I'm not sure if anyone knows why clarityn helps, just that it does. As my pharmacist said when I finally convinced him to give me some: "at least it won't do any harm?!?!" so it's certainly worth trying. Good luck, I feel like I'm crawling out of the joint/bone pain of the last one! Looking forward to not feeling like this anymore, that's for sure.
Hi Julia - have read your post with interest and it certainly was very informative. It was interesting to read about Clarityn - would never have thought of taking anti-histamine tablets. I am due to have my second Docataxel next week - will ask for Nystatin as I had oral thrush and had to get tablets from hospital to treat it. The worse side effect for me was bone pain, the hospital gave me Naproxen I aim to be proactive before my next treatment, and start meds asap after treatment.
Thanks Julia. I'm just about to have my second Docetaxol, so hope that - as in your case - it's not as bad as the first time.
I've hopped over from the June 2016 starters discussion since I figured lots of you would be going through the joys of Docetaxel right around now. Just going to share three tips:
1. Clarityn for the joint pain. Get it over the counter, start taking it 2 days or so after chemo. It really helped for me (and lots of others).
2. If you're taking codeine or cocodamol for the joint pain, remember to take laxatives as well. Codeine-induced constipation is no joke, as I learned after my mastectomy.
3. Mouth problems: the steroids all by themselves cause oral thrush, so can ask for Nystan or similar. For my last chemo they actually just gave it to me then and there, didn't wait for it to get worse. I got thrush every single time on docetaxel, but the nystan made it go away within a few days.
The first docetaxel round was by far the worst for pain for me, which is not uncommon. The thing that gets worse is fatigue, though. Good luck to all of you,
Hi Everyone - it is very interesting reading everyones comments on the Doxacetol (cant spell!) drug as this one has really wiped me out! As well as horrific bone pain, thrush I have been so tired this time! Dint feel that I have had a good day so far! It seems we are all suffering much the same with this one, I just would like to feel ok before next dose! My Oncologist reduced the drug by 20% wonder if he will reduce any more? I know it all in a good cause and we have to go through all this to get out the other end, but I feel this one drug is more potent than the FEC! Hugs to you all - Madhatter67 x
Thanks Alex2016, the peanuts were scrummy. At least I could begin to taste them, I'm back to everything tasting of nothing since I had my second docetaxel yesterday. No side effects yet. Still full of steroids. One of the nurses recommended that I take co-codamol from day three to combat the bone pain and the loose stools, and get piriton for the itchy hands and to help me sleep.
Oncewild, Go girl! I hope you enjoy the party tonight. X