I have started a new thread for those ladies who are continuing into July with their radiotherapy and for the new ladies who will be starting their rads in July.
Hope you are all well.
That is really spooky I was only thinking about you yesterday and wondering how you both were.
Thank goodness for that, it all sounds positive. If it is colitis what is the treatment for that?
I am sure she will understand, there is only so much you can take at one time and with everything that was happening to you, how much of it was really actually staying in your system I wonder?
I saw my oncologist on Tuesday and he was pleased. He did not seem concerned at all about the lumpiness in my scars and that he would see me in April next year, I should have had my first mammo by then but if I had not heard by mid March to call them.
Colin is ok, he has ok days and some not ok days, he is not going to get any better but hopefully he will not get any worse for a good long while. It is hard to watch him sometimes struggling to get around.
How is Roy doing?
Know what you mean I did the same last year and things have been so much better on the whole this year
Back in the land of the living again after colonoscopy, waiting for follow up appt, but the consultant seemed pretty sure it is microscopic colitis . It has improved & I am eating more, but very careful !
going to see my oncologist tomorrow, don't suppose she will be happy I stopped taking Aromasin , while I was ill & Roy had problems, will probably go back when my problem is better.
hHow are you now & your husband?
Think we are just going to write this year off, next year will be great!
Thanks Helena, funnily I hadn't worried about cancer, but may have been sub cosciously, so feel relieved, will feel better when I can take the medication to stop inflammation & diarrhoea & eat proper food!
Roy has problems with his stress cortisone now, it goes on & on, but must end sometime!
OMG thank god you got someone who actually knew what they were doing and recognised it straight away, okay you have to go the colonoscopy but it is treatable. Darling you have been through so much thank goodness something is going right for you.
We are always here for you
How is Roy doing?
Just thought I would let you know, paid to see a consultant on Wednesday & he knew immediately what was wrong. It is the result of radiation & he has seen it lots of times before in ladies with breast cancer! i had wondered, but when I mentioned it at the surgery, they more or less said no! It has been really bad & I am going in to have a colonoscopy today to look at the inflammation in the colon & they can give you medication for it ! Which I would have liked to have 3/4 weeks ago.
It is obviously not that common, so no one need to be worried, but if it does you will have to be very firm with your doctor.
Hopefully feeling better soon & friends on here & outside, I would like to say a big thank you.
love Diane xxxx
Thanks very much AnnieJ, I feel everything that could, has gone wrong this year! We have also had to buy a new fridge freezer, dishwasher & breadmaker, which is going back tomorrow, as that also is faulty!
I think Roy & I could do with replacements too!
I have now got an appt with a consultant on Wednesday, so will see.
hope your life is going smoothly xx
Crikey, Fuertelover, sending big, gentle, hugs to you and hubby. Whoever let in your first foot needs sacking!! Best wishes for a healthier, easier, time. X. X
Oh flippin heck Mrs, through the mill and back since you finished mate.
Sending you a hug and hope that it sorts itself out really soon and that you and hubby are on the mend.
Just what I had in mind when we booked to go down to our caravan, not meant to be!
My husband had his hormone injection for his prostate cancer the day before we went & after one day, he became ill with bad nausea & he started having double vision, so I spent the rest of the week driving him to doctors & hospitals & then driving home, Think the stress was too much, since then had bad diarhoea for the past three weeks , been to doctors, spoken, but still with me, so making another appointment, now husband having to have a mass removed from pituitary gland. So absolutely no rest since rads! We will hopefully have a better year next year!!
not feeling my best. But good to get it off my chest! Love Dianexxx
Hello 🙂 lovely to hear from you.
Oh excellent what a lovely way to spend your time recovering from rads. There will be plenty of time to swim and sunbathe on another holiday I am sure.
Make sure you keep on moisturising and take in plenty of fluid especially if it is hot there to counter the dehydration.
Very envious, we actually have sunshine here in Birmingham today but it has been sooo wet this past week think we will need webbed feet soon
I think you finish your rads today, got you down as 18 August, not sure what time your apt is at and I am going to be out this afternoon playing in a bowls semi final so I am ringing the bells for you my dear
Congratulations on finishing your radiotherapy today, time to sit back relax and have you time, make sure that you carry on moisturising, keep your fluid intake up and rest.
Ringing the bells for you today xxxx
well thats the first week done 🙂 they do advise that you take in plenty of fluid, recommend 2 litres a day at least as this will help to counter the dehydrating effects of rads which can lead to fatigue. I used E45 throughout my treatment, I was using alo vera as well but they asked me just to use the E45, moisturise 2/3 times a day to help keep the area hydrated, and above all be kind to yourself, if you feel fatigued, and you will know if you are, then just rest.
There is an August 2017 rads thread on now so you might want to go on there going forward as there will be lots of ladies who can give help and support to you and you will be able to do the same for those ladies starting after you.
Hope she releases her emotions soon, maybe she will at the funeral , I am sure she is appreciating your support , even if she doesn't show it.
Hugs to you
Oh my dear I just wanted to send my love and thoughts to you all, thank goodness she has got you but please be careful as you need to look after yourself too xxxx
Hi Fuertelover yes its so sad im here for her but she has shown barely ant emotion its as if it never happened I think on friday the day of the funeral it will hit her,she wants to go back to her house but she keeps getting flash backs im so worried about her x
Fee I know what you mean my tummy felt like that it would be worse about two hours after treatment, under the breast is healing well but my scar under my arm keeps peeling and bleeding have had more antibiotics, sorry havent been on But its been so emotional this week my daughters boyfriend took his life and my daughter found him and im so worried about her as she is acting as if nothing has happened im sure she is in shock. so trying to look after her and trying to keep strong for her and everyone else is taking its toll im so exhausted I am sleeping but wake up totally shattered I hope allof you are doing well with your radiotherapy I will still keep popping in to see how your all doing but going to be tied up for the next week x
Hi Fuertelover I have fibromyalgia and get fatigue and lethargy with that so having the rads and the tamoxifen as well has wiped me out finding I need to nap in the afternoon and sometimes find it hard to motivate myself to get up, being in pain with the fibro and arthritis doesnt help and now they have upped my pain relief to help , getting there slowly but the doctor says because of my other health issues its going to take me a long time to get back to some sort of normality, or near enough to how I was before cancer x
Hi Welshlady, poor you, sounds nasty. I was using Acticool pads at first & they were okay for a while, but found not putting any dressings on at night & bearing to the air seemed more helpful. Now 11 days after rads & very little problem at all. Although still got the rash & feels a little warm, much, much better !
Hope your weekend goes well & they can help at the wound clinic on Monday. How is the tiredness & fatigue?
Day 4 post rads and been awake all night with burning sensation it has been quite mild till now, I have really sensative skin and cant have most dressings as I am allergic, the dressing they gave me at the hospital mepilex and when I put them on under the breast it would burn for about half an hour, well this morning try to remove the dressing which adheres to the skin and the dry skin came off leaving raw skin and it bled the burning sensation was quite bad, rang doctor and she said to go down straight away,she told me not to put anything on it apart from gauze as it needs to breath and the doctor has given me antibiotics as she is worried cellulitus is coming back, got to go to wound clinic on monday to have it checked but relief since taking the dressing off the burning has subsided so looks like my skin dont like most dressings bar gauze lol, so hopefully now I will heal onwards and upwards hope everyone going through their rads are coping okay.
Mine are black! Keep applying E45 3/4 times a day, I survived until 13/15 before I had any problems at all, then & since then have a red boob with a rash, I did have the Acticool that I was given, but hopefully now it is beginning to subside, still moisturising, but only 2/3 times now, seems to burn up more at night, am now RT + 10 days!
Thank you ladies 🙂 Today went fine and i took the boys to the park when i got home. It was a lovely day here in Glasgow so they had a nice time running about the play area.
Ive to have 19 in total, 15 to the whole area and 4 Booster sessions at the end, i need to go to a different treatment room for that as its slightly different and i dont need to hold my breath etc.
I hope everyone else is doing well?
Thank you so much Ladybowler and a big Thank you to whoever created this forum, without it, it would have been a very frightening and lonely journey. You are all amazing,
Lots and lots of Love and Hugs to everyone.
Christine 👩❤️👩👩❤️👩👩❤️👩👩❤️👩👩❤️👩. XXXXX
Woo hoo, you did well done and massive congratulations to you mate, I am so pleased and here are the bells for you, I was hoping I would get home in time to send them before I had to go bowling xxx
Yep the next couple of weeks now carry on with the regime and make sure you get plenty of rest as you need it, your body will tell you when you need to rest.
These bells are ringing very loud for you
Congratulations Saphire on compleating your rads mine finished yesterday, have had to stop using the dressings as I was having a really bad burning sensation I am now back on the Aloevera gel and its easing the pain all the best x
Fuertelover, yes you are right we do expect to much from ourselves.
I am going to relax for a few days in the caravan so I dont have to think about all the housework that needs doing. When I see doc tomorrow I will find out if I will be staying on the Anastrozol, the nurse thinks it shoukd be stopped as its not agreeing with me. I need to know all the risks of not taking it before I decide whether to stop it.