Thanks. Can feel my fingers and toes again, took 3 days to get back to normal though. Plan is to go again next week at full dose and the reduce it in future if it happens again. Fingers crossed it doesn't.
At this rate it will be Christmas before radiotherapy is finished.
Think I'll be the last of us June girls to finish chemo at this rate.
Maybe a new year, new start meet up could be a plan? x
Well fingers are def feeling better today but toes are still feeling strange.
Seriously though trying to sleep in mittens to keep my hands warm while having hot flushes was not fun although my husband found it hilarious.
Have good weekend ladies.
I can feel the sofa and Strictly calling me x
Spoke too soon, peripheral neuropathy is building up, can't feel my fingers properly as I type this, so no chemo for me next week and dose reduction the week after.
On the plus side I get to spend my daughters third birthday with her rather than in the chemo unit, every cloud . . .
How you all getting on? Not been on for a while, was waiting to see how my chemo went as I seem to be the only one of us on weekly T.
Had my 4th T yesterday and am def getting off more lightly than the rest of you, the side effects seem to be a lot less than you describe and I'm even getting some hair growth, not just on my head though!
NMT hope things are looking up for you, and Jacqui what treatment plan did you decide on?
Vic, I feel your pain, have posted on your thread x
I had a mastectomy with 8 lypmh nodes removed and I was in disbelief how quickly I recovered.
the surgeon kept saying I would be out of hospital in 2 days and I didn't believe him.
But it was much better than I thought it would be.. just be careful not to raise your arm or do exercises too soon.
I'm not sure if you have had surgery before but I had a C-section last year and the mastectomy was a walk in the park because it's not muscle they are touching but tissue so it doesn't hurt as much afterwards.
The only annoying thing for me was the drain they had, but that's temporary.
Also, my mindset was so much better. It was done, the bad stuff was out and I felt so much more positive afterwards and was ready to take on chemo or whatever was thrown at me afterwards.
I hope this helps,
I really need a bit of support and advice - seeing the surgeon on Tuesday and I have never been so scared - to the extent the doctor had to prescripe dizapan over the weekend. If I have to have a mastectomy how would I cope and what is the likely recovery timescales. Any help greatly appreciated. Jacqui xx
Oh NMT, how frustrating about your blood sample. That's the bits that upset me - I'm a bit of a control freak and it's so hard to not be in control. Its so not wrong to be upset, but maybe you could plan something nice for the delay if you feel up to it? Something wee like afternoon tea at a posh hotel or even a last minute couple of days away. It could give you time to have a break and be better prepared for surgery. Sending you big hugs, xx
Hi NMT, I had a mastectomy and full axillary lymph node clearance before chemo so found things a bit harder, couldn't drive for about 3 weeks as it was on my left and had to be careful with lifting. My boys are 8 & 10 so they can do a lot for themselves and helped with lifting. But mentally, surgery is so much easier than chemo - yes, you're a bit tired but within a few days, you're back to yourself and finding ways round the problems.
Iknow it feels impossible, but try not to worry ahead and just take each day as it comes - incredibly hard as a mum. I found if I put contingency plans in place, I could then relax and make the most of the better bits - coffee out with friends once I was up to it, we had a few days away at a Wigwam week 4 after surgery.
take care and be good to yourself on this nightmare of a journey we find ourselves on. Xxxx
hi, what worked for me during the dreaded T was Coke or Pepsi, the full fat variety lol and I never drink it normally. The only food I could tolerate was cheese on toast,and KFC lol x
Viv might have been bravado from the birthday bubbles but last night was feeling the same - radiotherapy - bring it on - got to be a walk in the park after this!!! Fingers crossed it registers a lot lower on the grimness scale than chemo.
Barbara that sounds really uncomfortable, can they not at least give you something to help you sleep? If you can stop then at least maybe be able to ignore him and get some kip. Everything seems so much worse when you're sleeps being disturbed as well. Thinking of you x
Happy birthday to me, I'm currently sat on the chemo unit waiting for my Paclitaxel, not quite the present I had in mind but just glad I'm still here and well, lots of people aren't that lucky.
The weeklies don't seem too bad so far, a day and a half of nausea, muscle and joint pain and fatigue but think I'm getting off pretty lightly compared to some of you at the moment.
Hope you're all ok ladies, anyone else on countdown mode now? Seeing the number of cycles left go down is really helping me psychologically at the moment, not going to let this bloody thing beat me.
Think this will be a birthday to forget though. Chemo, sleep and birthday tea is the plan, not the most exciting day ever x
Hi. I had my first Doxcetaxol 9 days ago and my fingers have felt sore,bit like they've been squashed! Seem to be a bit easier this morning though so am hopeful the worst is over in terms of side effects. Certainly felt worse than when I had the 3 lots of FEC... No energy,aching all over but especially in back, knees, thighs, ribs. Not sure if it's the chemotherapy or the Filgrastim injections. Last one this morning, hooray!
Wishing you all well. Hugs, Dxx
Yes, just 1 to go before radiotherapy starts which will be a 45 miles round trip each day for 20 sessions. I have had double vision a couple of times for a short period during the T treatment. One of the best thing is that I have re-discovered Tesco home shopping - it's just been and I will definantly be using it long after this treatment is finished. x
Had my 2nd T yesterday and amzingly I had 7hrs sleep! All good so far although I'm not expecting the side effects not to kick in until late tomorrow. My oncologist suggeted starting my painkillers in the morning before it kicks in. I forgot to say another side effect I am getting is occasional double vision, I felt better when another person also posted this. x
After my 1st T I felt unwell for a little longer than on the FEC but 24hrs after my last injection I felt better over night, just in time for my family wedding. I have also found that during the 2nd & 3rd week of T my sleep has returned almost to normal for the first time since I started my treatments the end of May. I am having my 2nd T tomorrow and since I have had to start taking the steroids again today the sleepless nights are back. it's 2.30am and still no sleep in me. X