I know we're exactly in sync and I'm still knackered too! I'm prone to shaking, making far too frequent trips to the toilet (tmi, I know!), get nauseous if I'm not really careful and generally feel 'off'. My scalp is also feeling weird - tingly, buzzy so I guess the shedding is only days away. I had hoped to be feeling better by now *sigh*
Sorry to hear this Buster, you're having a really rough time with this line, aren't you 😞 I do hope they manage to get you sorted with reliable access soon.
hi there everyone another update; I feel good today but was only home for a couple of hours Monday.ended up calling 999 with severe chest pain. Still in but they are convinced it is not cardiac but more likely to be this Hickman that has been nothing but trouble since going in. Trying hard not to lose ithe line though. Feel well other than that. Wishing you all comfy days and sending love xx
Hi Rosie and welcome,
There must have been something in the air last night because I wasn't sleeping either - should've logged on and we could have had a virtual cup of tea! If there's anything we can help with, do share. There are still several waiting to start but probably equal numbers of us who are part way through our first cycle now. I found the waiting to begin bit awful - I'm much better once I'm 'doing'.
You ladies are wonderful!!!
Yes we went into this well, and what a ride it's been so far...
But most of you must be starting treatment with sore boobs, wounds and swellings ...
I had med lump out 24th May (3 weeks) and nodes removed, 2/8 positive. I am having a lot of swelling underarm which makes it so sore - absolutely dreadful over weekend, so 200ml was drained today (10x with small syringe). It's tender and sore and up a bit already. 2nd time to be drained.
So really you are starting your chemo already feeling rough - a double whammy! I start on the 24th.
On on a lighter note - where do I go to turn my lovely profile picture (with hair, for now) the correct way - I look stupid!
Delighted you've been set free Buster1 🙂 Sincerely hope you've managed to eat a decent meal since too! Don't worry about the private message malarky, just glad you're ok. The only thing I could suggest if you want to get it sorted is to contact the moderators and ask them to look into your private messaging for you?
I've not come across skin sparing mastectomy increasing your chance of recurrence - I've done a quick bit of research and still can't find anything on the subject. Where did you get this info from? I would have thought your throbbing is down to phantom type pain rather than anything being left behind. You mentioned you had clear margins, which couldn't have happened if some had been left. I wasn't aware of my tumour so don't have any pain there at all but have had weird sort of phantom pains when other bits of me have been removed in past surgeries. Does that make sense?
Hope you're now able to rest and recupperate, ready for cycle 2!
Hi Buster, glad to hear you are finally home, hope you are feeling better, and at least you will get some decent food.
Take care xx
Hi lovelies, I'm back home after a nightmare of a week in hospital !!! I have tried many times Belle to reply to your lovely message but I cannot send them. I thought it was because I was in hospital but I've just sent another and it still won't go.
Im not going to enlighten you all about my total trauma, as you have enough to contend with. But I will send you all a big hug and start afresh tomorrow. Thank God I'm out.
sorry to hear M,smummy your news. I agree though with Charisse that you will get more peace of mind. I had a skin sparing mastectomy in March with immediate recon and although I love the results, I have now found out that leaving the skin even though the margin was good increases your chance if recurrence, this wasn't mentioned to me before. Also, I do have weird throbbing sometimes in the area where the tumour was and do worry that there is some left behind.
Love and hugs to you all Buster1
Big hugs, Millasmummy, what a crappy thing to have to deal with on your birthday 😞 I think you're allowed to feel stressed today, don't beat yourself up. You're bound to feel scared, I think we all would be or have been. I certainly was when I was told I needed a mastectomy - I was expecting a lumpectomy & 6 weeks rads and instead got a mastectomy and chemo. All I can say by way of encouragement is that the shock and the terror do pass. You will begin to get your head around it all and meanwhile, we're all here rooting for you.
Are you up to birthday cake or a glass of something later?
Really glad you've found us! It's a great way to get support along this somewhat turbulent path we're all treading. If there's any questions we can help with, ask away. The hive mind here is great.
I'm day 5 from my first dose of FEC and feeling much much better this morning. I had a rough few days but all was manageable.
Keep us posted and good luck 🙂
Don't worry, you won't be alone, we're not half way through the month yet. It's nice having people at different stages within that first cycle because we all learn from each other. And when some of us are up, others are down so we can support each other along the way. It's fascinating how everyone reacts so differently and there's bound to be someone who can relate to where we're at. For example, I nearly cried last night when I read Millasmummy's post - she described exactly how I'd been feeling and I thought it was just me! So helpful to know I wasn't alone.
Keep your questions coming, we'll do our best to answer them.
I'm a newbie! Starting chemo in 4 days - yikes! Diagnosed 8 weeks ago and post op from a double mastectomy and axillary clearance! Recovered really well from that - but anxious about Friday. Finding all the support and tips on here really great, and good luck to all
Have you not had your 1st treatment yet, then you and I are late starters - I start on 24th. I really didn't know the wigs were free - that's a question I've asked .... somewhere.
I've also made loads of soups..
Isn't it a lot to take in - especially when we started this fit and well, or so we thought!
Oh you sound so positive , Sue and thank you for your encouragement! I too am usually upbeat - all this will be a good test. Yes, I like the pirate look, too - you look fab in your photo and I think it's quite a statement - especially with the shades, lol! But I am short and with an older face - so watch this space....
Hope you are all doing OK and coping with the SE's. Its 12 days since my first treatment and I feel OK, just a bit of tiredness and some headaches lingering on.
Just curious if any other June starter is trying the cold cap or am I the only one?
Oh my goodness! I thought it was just me, Millasmummy!!! I've been all over the place today - miserable, fine, tearful, relaxed, foul mouthed trollop, dozy old mare - you name it, I've been it!
Have you got any white flecks or spots? I've just spent the morning being diagnosed with oral thrush based on similar symptoms (day 4 for me). No ulcers, just two white spots that are not huge (need the torch light on my phone to see them), sore mouth & tongue and a general feeling of sliminess. I rang my oncall number, was referred to my GP/out of hours service, who saw me in the local Urgent Care Centre with a timed appointment. The whole thing took about 2 hours from start to finish - amazing treatment.
I was given Nystatin mouth drops to treat the thrush and advised to increase using my Difflam mouthwash to 4 or 5 times a day. I already clean my teeth after each meal, and I'm now sterilising my toothbrush using milton solution so as not to re-infect myself.
I would call your team and ask their advice because the last thing you need is an untreated infection.
Hope that helps,
Hi Ange and welcome,
I'm not cold capping either. I went from bob to short crop to very short crop and will shave once it starts to go. Wigs are free, at least mine was. I was given a voucher from the chemo unit when I had my pre-chemo chat to take to a recommended wig retailer who were brilliant. I tried on loads and inevitably ended up with the first one which is very like my original bob hair cut. I've also got some scarves handy too.
Hope all goes well for you.
Just popped in from the May 9 thread - you are on a brilliant thread here with oodles of support.
Sorry to see you here - but the support is invaluable, encouraging and sometimes so uplifting.
We are all in the same boat - I am just a little ahead of you - just having my second FEC last Thursday. I also decided not to cold cap - a decision I have certainly not regretted.
Thankfully I suit a super short crop - and it made it easier for me to lose my hair (80% gone now) - looked as if I had mange for a few days - thank goodness for funky scarves - I love the Pirate look, lol!
Looking at myself in the mirrow - I do not feel distress - but am rediscovering my face!
My biggest annoyance was having to clear up constantly after bits of hair floating about EVERYWHERE - despite wearing A beanie constructed from a motorcycle buff.
Keeping my fingers crossed for you that your chemo journey will be as trouble free as possible.
I have not cried yet - from Mammogram to now....
Felt near to it on Friday when I was being told what was ahead - it was a bit brutal...
But reading some of your posts now - I am choked up...
Thank you, brave Ladies!
I'm a newby ....
I had surgery on May 24th for a med lump in left breast and 8 nodes removed - 2/8 proved positive.
This is all from a routine mammogram in March... Thank God for Mammograms,
I'm still recovering from visiting the Oncologist on Friday and being told what's ahead....
I knew I was seeing him, but only on the way did it dawn I was going to the Chemotherapy Clinic!
A relative who has gone before, has been so helpful and told me about this Group on here...
I'm not sure if I'm posting correctly yet...
My treatment should start this next week, but next weekend I am off to see Lionel Ritchie in North Wales on my (68th) Birthday weekend.
My lovely Professor has postponed a week, and offered me anti-sickness for going to watch Lionel - haha!
I have my Assess and chat at Halton (Runcorn) on the 21st.
PICC on 23rd at Clatterbridge (Wirrell) (Had never heard of this before!)
1sr treatment on the 24th.....
Like you Belle, I have rammed the freezer with soups. My nails are pathetic already, but am putting similar protection on. On Thursday, my lovely bob will get a funky 'Chemo Cut' .....
Best wishes to you all..