Emma111 this is exactly how I felt what is going to happen to me. I on day 4 of first FEC and can't say I have been feeling that good. But Im hoping I'll figure out what is the best way for me to look after myself during this based on what is happening to me. I was very sick the first 2 days, had to have injection on the bum for anti sickness but apart from nausea and low energy I'm doing "better" today. I think the hardest thing is normally when we are not feeling well we know it will be over in a couple of days and I find myself wondering when will I feel"great again". Stay stong and listen to you body.
Hi Char & welcome,
Lovely to have you here even if the reason for us being here is a bit crap! I'm day 12 first FEC today and celebrating the fact that I feel brilliant!! I'm so excited 🙂 So I promise it does get better. My mouth is still a bit peculiar but only occasional things taste 'off' now.
I had my first FEC course on 16/06 and I'm really happy to have found this thread. It's reassured me that some of the things happening to me are sort of normal, or at least 'to be expected' as none of this is 'normal' is it??
I had a local wide excision plus anciliary node clearence in April. 5 nodes affected, plus microscopic cells in 2 more and cells in the vascular system. I had to have a CT scan (probably the most stressful experience of this whole thing because I had to drink so much water and they couldn't find a vein for the dye and i was convinced that i was going to wet myself in the scanner! The staff were v lovely while i sobbed at them for a few minutes). There seems to be no spread at this point.
I'm due another 2 x FEC plus 3 x T then radiotherapy then Tamoxifen.
A few days into chemo and I've felt sicky, drained, lightheaded and my sense of taste has become a bit peculiar. Salt tastes have disappeared and today it seems like the sweet is on it's way out too.
I did the cold cap. I found the cold fine but the tightness and heaviness of the cap was really uncomfortable. The first strands of hair have started to fall today. I think I'll try the cap again and see how it goes. I have already stockpiled an abundance of scarves to use if it doesn't work!
Anyway, I hope everyone's Monday goes OK.
below may help - go to your Profile settings - may be different if you are on a mobile device...
Hi Anon16 - it would be great if you could enable your Privat Message settings, so I can give you more details as to colleagues, bossed and work.
here is the interloper from the May 9th thread........again, lol
Belle you look absolutely fabulous - you really rock that look!
As to work - it is a very individual decision and it will also very much depend on your side effects.
Belle is absolutely right, you do not have to - but unfortunately, like me - some of us simply have to.
I am now day 11 past 2nd FEC. Generally slim, fit and healthy lady, I am very lucky as not to suffer much from side effects - as long as I keep taking the tablets.....BUT......
The day of treatment - it may be best to take this off. I have my treatment at 14.00 on a Thursday, so have the afernoon off - I leave the treatment with a slightly buzzy head, which lasts for about 2hrs. Currently still able to drive home. Friday and Saturday - absolutely fine - thank you steroids!
Then, even after first cycle - it may get more challenging, as the blood counts start to drop and fatigue sets in. Sleep disturbance, need to nap when you can and possibly dizzyness from time to time.
During my first cycle I managed by mixing working from home and going out to see clients, even in the first week. week 2 and 3 were nearly as normal. However after the 2nd cycle - day 3-8 were much more challenging, as I was more dizzy than before and there were times I really could not drive, because of it. As these specific symptoms are cululative over the complete treatment cycle - I now understand why my oncologist said I should take the week after cycle 4 off...
We are now covered under the DDA (Disability Discrimination Act) for the rest of our lives. Your employer HAS TO accommodate your challenges.You might find info very helpful - which can be found via this link
Huge hugs to all
I'm delighted you enjoyed my blog (https://gettingabreastofthesituation.wordpress.com if anyone else fancies it) - it's helped keep me sane. If I can get it out of my head and onto the 'paper' then it usually stops it going round and round tormenting me. Doesn't always work of course. As for keeping it together while the house fell apart, not entirely sure I did, you should have seen the meltdowns 😉 !!!
I craved cheese at one point too - how bizarre is that?!
Hope all goes well this afternoon, keep us posted and we'll be here for you whatever.
Belle you look amazing! I don't think I'll be brave enough to post that sort of photo when my time arrives. I trundled my way through your blog yesterday, you are a very talented writer and had me in stitches several times. How you kept it all together with house renovations too!! Keep it up!
I've got through the first weekend with very little difficulty....had a mad craving for a cheese sandwich at 4am on Sunday, bit odd but easy to sort out! Appt this afternoon to get results of sentinal node, bit nervous, but hoping for good news. Will also ask about the white cell injections...
Have a good day everyone.
Hi Julie g I am also cold capping and shedding has started in earnest today, day 17. Now I am in a dilemma whether or not to cold cap again on Friday (Fec 2) . What have you decided to do this week ?
Hi Belle, you look beautiful. I think you are very brave to do that but I know what you mean about being in control again as I am a fellow "control freak". Are you planning to wear your wig out and about soon?
Big hugs and good luck with the hair coverings Bubbles x
Belle I was writing my message whilst you were posting yours so only just seen it. You look amazing, I hope I rock it like you!! 👍🏻👍🏻👍🏻
You are all lovely, I don't think I'm brave at all. It's just my way of taking control and I'll admit to being a control freak. Again, it may be a postcode lottery thing, but I didn't have to pay anything for my wig. I got a voucher from the hospital to take to a particular wig supplier and that was that. I tried on all sorts of varying lengths but payment was never mentioned.
Anyway, here you go, the Slaphead Look as promised:
Tomorrow I shall be experimenting with head coverings!
I was given a wig voucher for £90 when I had my first chemo session and a list of local stores that can provide them, I dont know how much wigs are but guessing you will have to put money towards, depending on the wig you choose.
Belle, you are brave, I am cold capping but have found today when I washed my hair a few handfulls came out and my scalp has gone from being itchy to tender in places. 2nd session on Wednesday so will see what happens after that. If it keeps coming out I will have to bite the bullet and go and buy a wig.
Good luck to all those starting this week and hope your SE's are few and go quickly xxx
Tonight my house is beginning to resemble the floor of a hair salon so on Day 11 of my first FEC the Great Shedding has begun in earnest. My scalp is tingling, sore and almost electrified in sensitivity and I have had a dull headache for two days now. It is time to take action. So my friend is coming tonight with her clippers and shaving the lot off. From now until chemo is over, I will be rocking the slap head look. At least that's what I'm telling myself. Slightly concerned I'm about to morph into my bald Dad which isn't such a good look on a 50 year old woman. Also slightly concerned that my head will turn out to be a really weird shape. But pretty soon, all shall be revealed.
Wish me luck!
Hi Rosie (Anon16),
It'll be good to get it under your belt. At least then you'll be on the way. And you may be one of those that gets very few side effects.
Are you all sorted?
Hi Anon16 & welcome,
Have you already started chemo or are you about to? Lot of support here, sorry your in this situation but glad to have you here.
I think the injections are a bit postcode lottery as well. My area only seems to give them if you need them which I guess means unless you're admitted with crashing sepsis you're not likely to get them ... hey ho. Glad I've not ended up with sepsis, but wouldn't mind something to boost the old white blood cells. But I do agree, priority should be given to those of you with children - mine were NEVER able to stay out infection's way!
May your immune systems bounce back rapidly 🙂
How has your first day gone? Hope it was as good as mine...
Don't know anything about whiteblood cell injections? It hasn't been mentioned - is it something that is cocktail specific? Any ideas anyone?
Lol, it was acually me, who wrote that on one of my posts - So glad I can make people laugh and remind them, that laugher is very good medicine, especially when in reality there is not much to laugh about. Little things, hey?
As to eyebrows and lashes - none gone yet, and my chemo nurse said, if might just be that I might keep them, perhaps thinner, but..... Time will tell.
Day 8 after 2nd FEC - energy returning, feeling really well and am on a See food - Eat diet