Hi lovely ladies
I'm new to the forum, my first post. It has been such a help to read all your advice & encouragements. I had my first FEC on 13th July. It was not too bad, the waiting is worse. Even though I didn't get home until 6.30, I drank loads that day - never even saw any pink wee! Also kept up with anti nausea tablets even if it needed a biscuit to get them down sometimes. So first week for me was pretty good; everybody is different. My worst day was day 8 - totally zonked out on sofa all day, everything was too much effort, very sorry for myself. But felt better by next day (found eating definitely helped) & OK now except not sleeping very well.
Now wishing next one would come sooner, just to get it over with. I am for FEC-T then surgery, also herceptin & now no prospect that they have got the wrong person & it's not really me! Which I guess everybody experiences, when you feel perfectly well before treatment starts!
That's quite normal 🙂 The steroids can give you a real buzz. That's why the advice is don't take them later than 1pm. I found mine made me jittery and a bit shaky. I didn't feel particularly energetic but I didn't have trouble sleeping at night, thankfully.
they are very unlikely to - the first week is the worst as your blood count will plummet. Risk of infection and stuff going on in your body because of the chemo.
After day 7ish.. your body will be making new cells again ad your immune system will strengthen again. That is my experience anyway - and after second chemo - I was less tired after treatment and the steroids sent me into overdrive, lol - the only thing that got worse, was the fatigue/tiredness, once the steroids wore off. That is likely to increase with each treatment - at least on FEC, do not know about T - as the body cannot remake the same number of blood cells, which we have lost in the time it has before the next one.
Keep on waiting, lol - if you have not felt sick by tomorrow - you might likely not going to feel that way.
Lots of nibbling and small meals - ginger biscuits if you have them - will help.
Other side effects - they may - or may not appear during week 1.
Fingers crossed for you.
so great to hear it went well for you - it will make it so much easier the next time.
Look after yourself, won't you. At the moment you probaly feel quite strong - that is the steroid, lol - and be ready for the pink wee - drink, drink, drink - the sooner it is its normal colour again the better!
I was tired when I came back from Chemo 1, but ok.
Day 1,2,3 a little tired, hot flushes and lots of naps required, but fit enough on day 1 to go out for lunch. Day 4-7 tired but very managable - day 8 nearly back ti normal and on upwards curve.
Are you struggling?
I've been mulling things over in the night, as you do, and it occurs to me that we have a lot of young women in our month. At 50, I am constantly being told at the hospital that I am young but many of you are much younger than me. So I have been doing some reading and ferreting and rummaging around the t'interweb. You may well have all this information, but in case not, this is what I've come up with:
Hope that's useful. Meanwhile, I am so delighted you are all here and hope you (and everyone!) continue to feel welcome.
In other news, I'm delighted to see you back Bottyboo! Hope you're feeling better?
Rosie, I had the first one at Velindre but am at Nantgarw for the next dose. They had wanted my first one to be in Merthyr which would have been a £100+ cab trip in total as my other half doesn't drive. Luckily they were able to change the location.
Emma, as everyone else has said you are not a wimp! How we react is how we need to in order to deal with such horrible stuff. There's no rule book. I hope your first time goes as smoothly as it can.
I hope everyone else is well.
WELL DONE you new starters this week!
I'm right behind you - start on Friday 24th.
I went for my intro and assess today - I actually had a nice afternoon.
Had my stats done and a talk about my chemo and then all the classes on offer.
I was able to chat to patients about having a PICC, chemo and wigs - one lady I didn't realise was wearing a wig - it was fab!!
I had my wig talk and tried one on - it actually looked great. Got my voucher!
Staff were lovely.
I came away feeling encouraged and "I can do this"
Wednesday - underarm drained (again) - I have rocks in my boob, too! Dentist in the aft as recommended.
Thursday - PICC at Clatterbridge
Friday - OFF WE GO!!!!
Glad to help, Marije. Just make sure you discuss it with your chemo team or oncologist first. It's really quite a big thing and you should let them know if you're planning to do it.
Right, not one of us is a wimp! You cannot be a wimp and go through chemo. I don't care if you have to be dragged in screaming, faint at sight of the first syringe and then wet the floor in terror just to finish off. Even if all that happens, you are still not a wimp! We may not have a choice about this experience, we may feel utterly disempowered by it but it takes guts to walk through those doors and we do that again and again. So well done us! And well done to those doing it tomorrow and to those who did it today.
And Julie, I think lots of units give the drugs manually. There are pros and cons to both methods. The upside of the pumps are that they rate of infusion is set and therefore the drugs are given at a steady rate with the same rate of dilution every time. It took 2 1/2 hours for mine to work their way through. With a nurse administering them there is always going to be variation. However, with a nurse you get a lot more personal contact. I really only spoke to my nurse each time she changed the syringes and I never got to know her name. I'm been treated at a huge unit so I'm sure it means they get through more patients but missing out on the personal touch is a shame.
Charisse. I had the injections from day 3 for 7 days, I think my unit is trialing it to stop people becoming to run down between cycles, I hadn't heard of them before I went for my first treatment. They are easy to do, you pinch a bit of skin on your stomach or thigh and inject into that, the needle is on a spring so once you have injected it, it clicks and the needle springs back up inside the barrel so it is safe. I just put them in a plastic container and took them back to the unit when I had my mid way check up with the nurse.
Its definatley worth it, my bloods were only slightly down when I had my mid way check and the nurse was really pleased.
Emma111. Good luck tomorrow, the thought is definitely worse that the doing and you will be fine. The staff are lovely, and will put you at your ease. Im going in for my 2nd dose tomorrow so will be thinking about you.
Belle, I started reading your blog last night, you have a fancy machine to do your chemo, I have a nurse sitting injecting the drugs into the cannula. My unit is obviously behind the times.
Well done to those who started today, thats one down and then end is closer than it was this morning.