Hope the above link works and is helpful. x
Yeah, they're like a "tube" i.e. open at the end so you could tie them. Not sure how thick these ones will be at that price although you can get more expensive ones which may be thicker. Obviously they are designed to be worn under a headscarf but I was thinking of wearing them around the house. I looked at some wigs yesterday and they're going to order some more styles in for me which should arrive next week.
My intention is to wear a wig when out as much as possible but it might be too hot, uncomfortable etc. I ordered some cotton jersey sleep caps and "ready made" head scarfs (elasticated at back so no faffing around tying them) from Annabandana, they're pretty reasonable and delivery is quick.
I'm going to try and post a link from this website as there is a page about headwear that had some discount codes for websites.
The losing my hair bit doesn't bother me so much, although that might change once it actually happens, I'm looking forward to losing my bikini line, leg and underarm hair. Lol!
Good luck. xx
Just had a quick look at your threads, it's been a busy couple of days for me. Went to look at wigs yesterday in town. I had my Muga?? Nuclear Ventricular function heart scan today, I will be having 4 xTC and Herceptin at my first chemo. Went well, no problems. Had my id bracelet on but still felt I had to say about not having BP, cannula in right arm, I'd not convinced people actually "read" what is on your id bracelet but better than nothing I suppose in case I forget to mention it. Was at another hospital on the other side of the city, it's huge and really busy. I'm so glad I'll be having all my others treatments at my smaller local hospital, I say small, it's actually quite a big campus which has a psychiatric hospital and specified Cancer Centre on campus. It's only a ten minute drive away.
Re: Headwear, I've been reading a lot of old threads on here about people receiving the same chemo regime as me (TCx4). I picked up a good tip about Hijab underscarves, tie hats from ebay. They're really cheap!! Starting from £1. I've ordered some but cannot comment on the quality as I've not received. Just type Hijab underscarf/head tie into ebay's search.
Sorry to hear that some of you are suffering bad side effects at the moment. 😞 I hope you feel better very soon.
If the indigestion persists, make sure you let the chemo team know because they'll prescribe you lanzoprazole or omeprazole or something similar which will work a treat. And don't leave it till the weekend - much easier to sort out in the week!
Hi T & welcome,
Have a browse through the thread if you get chance a there's lots of advice throughout. Sue's list is reaslly helpful and take a look at the July thread too as they're all about preparation at the moment and lots of lists are being posted. I posted a list of what I packed for chemo 1 earlier and to save you scrolling back I'll cut & paste it:
I took a bag of bits with me including the following:
In the run up I spent a lot of time filling the freezer with meals for when I wasn't feeling up to cooking. I made soups, main meals, ice lollies, snacks. I basically ran around like a blue ars*d fly as I didn't want to have time to stop and think. When it came to chemo I was knackered! So I would advise trying to sleep too!
Hope that helps,
all sounds normal for the moment. the tiredness is because your body has less ogygen, but should get better towards the middle of next week. The shakyness might be your sterodis, so should stop, when you stop taking them. Take as many naps as you can, whe you feel you need them. Unfortunately sleeping will not stop you from feeling tired at the moment. YOur sleeping pattern may also be disrupted. If you wake up in the middle of the night - try not too hard to fall asleep again. If you cannot - mooch around the house and do something - and when you feel tired again - off to bed. You will sleep again.
Senna tablets required now to get everything moving again! Prune juice?
The next few days : the refllux may become more troubling, but over the counter stuff should help. If not something to discuss with your treatment team - there are tablets they can prescribe. Watch our for a sore throat. Otherwise, unless you catch an infection you should in theory be fine!
Bit quiet at my end here, mainly because my youngest turns out to have Hand Foot And Mouth.... JUST when I'm at my most vulnerable.. typical. Not much we can do though. I phoned the cancer helpline, and I need to monitor myself, but with kids in the house it's totally unavoidable that virusses and germs come in.. 😞
He's been so poorly that he's been screaming for the past 2 nights, so no sleep whatsoever...again.. just when you need sleep to recover! So feeling pretty exhausted to say the least. And constipated! Ha. And some sore bits in my mouth. Other than that, I cant complain.
Emma, I was sick quite a few times in the night and morning after chemo. Maybe about 5 times? Gradually got better, still a bit nauseous by Sunday, but then all fine. The oncologist said he wants to give me stronger tablets next time.
so sorry to have to find you here, but it is a great, lively and supportive thread.
As to your questions - and others may add to it - here is a list, which may be of help
The list is long - just think about what you personally may need, rather than getting everything. Judge as you go through the first cycle, what is essential for you.
the most common items, which one really should consider are
Some will have no appetite - some, like me eat like a horse, lol - we are all so different
This is has also turned out to be a really goo thread for those of us, who like to know more about looking and feeling good whilst going through chemo
I am a newbie to the forum and so glad i found you x I start my Chemo on Mon, just wondered if you have any tips on things to help prepare you - mind and body;-/ ?? feeling quite sick just at the thought of next week so I'm trying to keep busy and be pro-active in gettiing myself ready.
Also, if anyone can suggest good headwear for a forty something year-old?
Big hugs T x
Congratulations! I can just imagine how you felt before and now. I have been there too - and also all clear.
One worry gone - yay.
Have a great day relaxing!
Well done all you girls who started this week, you are right, the fear of the unknown is the worst part. I woke up this morning (day 7) finally feeling a bit more like me, the sun is shining so all feels a bit better. I have the most fabulous BNP? (can't think of the initials at the mo, but the specialist nurse...) - she phoned me at 9.30pm last night to tell me all the results from bone,liver and lung tests were good and to wish me a good nights sleep...never heard of that happening before - it was her day off too! I don't want to be on this journey, just like all of you, but have met such fabulous people already.
Have a good day all
I posted something re wigs on
And Ali-B started a thread re how whe might be feeling and understanding better
Hope they are of help.
Sorry you're feeling down, Bottyboo 😞
It's probably the drugs - they can cause you to feel depressed. It's drug induced and thankfully temporary. Hope it lifts quickly for you.
Thanks for that C. I dont know anyone that has done it to the end, Its about 50% thinner already and thought that was it, I am going for a wig on Friday and with my hair being thinner it will probably sit right, I wont rush into stopping the cold cap now and will wait and see what happens over the next couple of weeks.
Yikes - I take 4 x 2mg for 3 days - no wonder I am 'flying' for a few days, lol.
I have absolutely no side effects from the G csf injections, no bone aching, no flue like symptoms - so it appears it is a very individual thing - as all seems to be with chemo.
Huge thunderstorm on the way - so signing off - do not want mylaptop to blow up!
I had 6mg steroids (3 x 2mg tablets) during the day. My understanding was you get less if you're on Emend (which I am) because Emend increases the levels of Dexamethasone in the body. I'm sure you'll be fine.
Hi Tinky and welcome,
My first FEC was the 9th so just a few days ahead of you. I drank loads as well and only had faintly rosé wee once! I was really nauseous and am hoping that my anti-sickness cocktails gets juggled for the next round. Totally relate to the hoping they got the wrong person feelings. Sometimes wonder if it'll ever go?!
Julie - I'm really sorry to hear you're even sicker this time 😞 Can you ring your hot line and ask about more anti-sickness tablets?
2nd treatment down, definately feeling more sickly then I did after the first one but then I havent really eaten much, going to nibble on some crackers, cant face ginger biscuits at the minute.
Belle, you are right about the personal touch, my unit is only small but busy and I know that if the drugs were through a machine I wouldnt always see the staff much, and today there were only 2 nurses in so its nice to see them. (they were quiet today for a change as there had been a few cancellations).
Glad it went OK Emma. Fingers crossed you dont suffer from many side effects, and as everyone else says, you are not a wimp. you are a strong woman haveing a little glitch. Keeping positive is not always easy.
Bubbles, if you see this, I cold capped again today but dont think it is beng very successful. I spoke to the nurse about the hair loss and she says I will probably lose a lot more and suggested I booked in for a wig fitting just in case. I have booked an appointment for Friday so will see how it goes. I will admit to haveing a little melt down when I came home and washed my hair and lost a large handful again. Few tears upstairs when hubby was in the garden. Stupid really, its only hair but I just couldnt stop myself.
I would speak to your nurse on your next session and see what she says, mine did still stay it was worth trying again.
Hope everyone else is OK. Take care xxx