Hello. A decent wig should not blow off in the wind! I have one although I don't wear it very often as I like the baldy look. It has little adjusters inside a bit like bra straps so that you can loosen/tighten it to suit your head. It started off pretty tight but now I've "worn it in" and it's pretty comfortable. I wore it on the sea front in a pretty strong wind and I had no worries about it blowing off.
I hope you don't mind me joining you as a late June 2017 starter.
This is my first post but I've been reading around the forum for a few weeks before finally taking the plunge.
I will be starting chemo on 27 June doing 3 x FEC and 3 x FEC-T (same as fionamaunder so we will be making the journey alongside each other).
This website has been such a support and I wanted to say thank you to everyone for your honesty, advice and kindness. You are all truly amazing.
Hiya fellow fighters. I had first FEC-T on Thursday & don't feel too bad so far thankfully. Tried cool cap and was bearable, even took my mind off the injection end of the business. Was meant to do the 1st self inject today but wimped out & went for my daughter to do it lol. Will try and do better tomorrow.
Good to see positive messages on here. good luck and well done all of you.
Hi everyone. Day 5 post first ec. Feeling much better. Second injection self administered. Will see how the next week goes. Constipation so eating prunes and liquorice.
Wow didn't realise wigs could come off so easily! 😳
I wasn't going to but tried cold cap and it wasn't pleasant but manageable. Same as you did it mainly for kids and not to regret not trying really. Not sure if I'll manage the whole lot but will see. Hate not washing my hair though!! X
Afternoon ladies! Currently lying in the back garden sunning myself viol! About to start chemo on 27 June so a late June starter. Doing 3 x FEC and 3 x FEC-T. Have the choice of using cold cap, so I'm gonna try it for my daughters sake as she is distraught at the fact I will lose my hair. Also have chemo pre counselling on Monday then MUGA scan the following day.
Hi, just jumping in here to try to help. I'm from May thread, so a month ahead.
Re nausea, my hospital put me on Emend which is wonderful. I've had no symptoms to speak of. I've also been given buckets of Metaclopramide Hydrochloride to take if feel sickly . Dont know what you've been prescribed , but ginger biccies and ginger tea are definitely good.
Re wig and wind, I can tell you from experience that it doesn't stay on in the wind! Even worse when you put a little hat over it!! Mine acted like a propeller on a helicopter and took off, wig and all!😱. Now wearing cute Fairtrade head squares from the Macmillan shop. They showed me how to tie them so you get sweet little bunches, or braids over top. Very cool in this heat, very inexpensive and can coordinate with outfits. 😄
Hope this helps, ladies.
Hi, I'm a month ahead of you, Ali. I on EC-T which is quite harsh on the body, BUT, no mouth ulcers. I take one teaspoon of Manuka honey 25+ every day. Get it from Holland and Barrett in the half price sale as it is expensive. I also use Aloe Vera toothpaste and the mouthwash from the Onco. So far so good and Im halfway now. Hope this helps. Good luck. 🍀X
Yes, my daughter is concerned about me losing my hair too so I might consider it for her sake. We'll see.
Glad you all seem to be on top of things at the moment but, if things get difficult, don't be afraid to tell us. That's what we're here for!
Good tip tip about the prescriptions, by the way!
Hi all. Everyone seems to be doing well. I am day 4 post chemo and not feeling too bad. Had to administer my first injection today. Not too difficult. So far, coping.
Best of luck to all starters.
Morning ladies and welcome to Nixon. I hope your first treatment goes well today. We'll all be thinking about you. I've got my first chemo Amazon package arriving today - have ordered shampoo, mouthwash and head scarves. I'm going to have to start stepping away from the computer soon as this situation is starting to cost me a fortune!
Been chatting to the the ladies on the May thread about wigs. Curious to know what you have all done so far (if anything). I was going to try and manage with hats and scarves but now I'm not so sure. Have strong suspicion I'll look ridiculous in a wig xx
Hi Is it possible to join please? I am due to start my chemo tomorrow 4 x EC then 4 x Tax. Had my Port fitted yesterday and feels a little uncomfortable. Thanks 😊
Just jumping in from May thread. You will feel tired after each treatment as you have nothing in your blood so everything is an extra effort. I can't believe you are still working there is no way I could work through the treatment and for your work colleagues to not wish you well is not nice at all, I had only been in my temping job for 2 months and they were so concerned before I went off work and have been in contact with me constantly to check I am ok. I would seriously consider going on the sick from work until your treatment finishes and you can concentrate on getting yourself well. Plus you have to be so careful of infection
Sending big hugs to you. xxx
Sounds like you're all doing really well so far! You all have a lot to be proud of so as you go on this journey so try and remember that when you feel exhausted.
Skells, you're trying to do this and carry on working?! I can't imagine how tough that must be. Can't work give you a break, even for the first week or so? I'm still struggling to get myself dressed before 12 and I haven't had treatment yet! You must be a warrior!
They haven't told me about a picc line. Perhaps I need to enquire....
Thanks for the tips on mouth wash too. Will get some ordered, I think.
Really undecided about the cold cap but have had lots of advice from the lovely ladies on the May monthly starters group so will give it some more thought.
Daughter has has returned from school with an apology and a sheepish look and a few tears. Guess this is hard on us all x
Hi Tripletmum, I start on June 26th. Have my pre assessment thingy on 23rd. Told key people at work yesterday that I was going to be off for many more months to come and now feel as if at least I've got a chance to get organised before it all kicks off.
Ilovemarsbars, welcome to the thread! I'm sure you'll find the support on here very helpful. I know I do.
To the rest of you who have already started, your posts are so useful. I know it's not going to be plain sailing for any of us but to know that it's manageable is a big help to those of us who haven't got going yet.
So my update is that I went to the GP yesterday to tell her I'm really struggling with anxiety. As predicted she said, I'm not surprised and didn't prescribe me anything. She did, however, give me the name of a charity in the centre of my city that provides cancer support which is not attached to the hospital. I've got an appointment to see them next week which I'm hoping will help. I then spent the afternoon internet shopping for Paxman shampoo, conditioner, alchohol free deodorant and head scarves. It all made it feel a bit too real for words but I went out with the dog and calmed down again. This morning I had a major meltdown before my daughter went off to school and spent the next 30 minutes blubbing. I guess it's the fear of the unknown that's proving to be a bit destabilising at the moment.
Anyway, sorry for the long post but wanted to touch base with you all.
Quick question: sore mouth, ulcers etc. Has that happened to any of you yet and do the hospital give you anything for it? Just wondering if I should buy something in beforehand.
Hi Ilovemarsbars (great name by he way)
I am starting FEC-T tomorrow aswell. Yes it is a bit scary but we'll get through it just like many others on here. I find the info and support is good. This time tomorrow you and I will be able to tell others it wasn't as bad as we expected.
Most centres offer relaxation classes. Bloods taken before each treatment. My appointment lasted over 4 hours but as the first treatment, I had to answer questions, have the cannula inserted and the cold cap adds 2hours over and above. The administration of the drugs took about 30 minutes. Allow plenty of time but relax as everyone is experienced. I am getting my PICC line inserted the day before my next treatment.
Big hugs. We are all in this together. x
That's great news. I'm glad you're feeling a bit better now the meds have kicked in.
I went to to see my GP today as the anxiety is starting to really get to me. She didn't give me anything for it though which is probably best. I need to try and sort my head out and get some more exercise before treatment starts. Good weather, please stay around! X
Cold cap only bad for a few minutes. Got used to it quite quickly. Nausea started during the night. Quite a bit better after meds now. Sun is shining. Pleased to have first treatment done.
Well done, Daffodil54. That must feel like a huge relief to get the first one out of the way. Interested to hear your experiences of the cold cap. I'm going to try it but I really suffer with the cold and also with headaches so I'll probably wimp out straight away. Good luck with the next few days. Hope the sun is shining where you are x