Hope you're all doing OK today. I found that blog by the breast surgeon very useful too. She goes through embracing the bald look which is what I think I'm going to do. The letter for a wig referral dropped through the door yesterday which gave me a little wobble and made it all feel very real but I just can't see me in a wig so think I'm not going to bother.
Abulafia, I'm sorry to hear about your recent diagnosis too. Sounds like you're being as positive as you can be though so well done for that. It's not always easy putting a brave face on things for others. I find it exhausting at times.
Had a friend come and visit me yesterday. At one point we laughed so hard I had tears running down my face. A few weeks ago I thought I'd probably never laugh again so it felt like a real milestone.
Off to to hospital for pre assessment this morning. Wish me luck!
Trip to the hairdressers went well. I didn't cry! Yay - go me!! I've known my hairdresser for years and I'd already told her on Facebook what was going on so she knew the score. I already have pretty short hair but I have now lost floppy fringe bit and gone for a crew cut type thing. I also had it dyed its usual bright red so I'm verging on an Annie Lennox circa 1982. I can live with that until it all falls out. I also had delivered a really nice hat from Suburban Turban yesterday - also red to replicate my hair! Not cheap but totally worth it.
Antibiotics seem to to be kicking in so I'm hopeful things will go ahead on Monday. I have pre assessment tomorrow so will find out more then.
Hope you're all doing ok today. It's a lot cooler today so hopefully a restful night for all.
Abulafia, I love that you punched the air for me! The buzz of the gig has kept me going all week! X
Oh...one more thing I did was buy a tubigrip for my picc line. Because of some weight loss the other wasn't providing the support. Best thing I have done...very, very gentle compression on arm.
Hope helps anyone else who has picc line. Happy with it now.
AliOG, I cheered and thumped the air. So glad you went.
I went to see the oncologist the other day and the biopsy on my other breast came back and revealed DCIS, so my boobs are truly f $##ed. Have to laugh. After all the trauma of diagnosis, they are now talking about the importance of reconstruction in some form...I just think...I am 56, I don't care, I just want to give myself the best chance of cure ifmat all possible.
Chemo sent up another nice little side effect. I thinkmI brought it on myself by eating spicy food. Diarrhoea. Took immodium and seems to have worked. Lesson learned....oops.
Off to the hairdresser today to get my wig cut. Day 13 and no sign of hair loss as yet. Dreading it, if truth be known...
All best for a good day to all you ladies. Xxxx
Morning all. AliOG, hope your new hair cut is great. Had very restless night last night. Not sure whether to blame heat or treatment. Eczema suddenly rearing its ugly head to add to everything else.
Hope you all have good, cooler day.
I hope you're all keeping cool. My emotional moods are all over the place! I teared up at my sons' schools Ofstead report earlier! Plus v.hungry!
Well, I'm happy to report that I went to the gig after all and it was the best decision I made. It was at an arena so the place was buzzing (and a little tense with armed police on the streets). My throat felt like it had a golf ball stuck in it but that didn't stop me singing every word to every song and waving my arms in the air like an idiot all night. I danced till my feet hurt and came home at 11 pm, exhausted but happy.
Funnily enough I went to another big gig when I'd just been diagnosed and was as miserable as sin all the way through even though I loved the music. I think the difference this time is that I've had a bit of a shift of gear. Going through treatment means the cancer is being dealt with - I'm dealing with it - and that's a positive. I know it's probably going to make me feel rubbish at times but it has a purpose and that purpose is so that I can go on singing and dancing and being daft with mates when I want to.
I hope I can keep this frame of mind going when I'm feeling low. Big hugs to you all today and here's hoping you're all doing ok. I'm off for my pre chemo haircut this morning. I will report back! Xx
Hello everyone. Good to see most feeling positive even in the heat!
Day 8 and feeling pretty good. A wig I ordered arrived but not sure I will want to wear it. Looks fake. Maybe with a scarf.... Only 2 more injections to administer this cycle.
Keep positive and sleep well.
Good for you Velvet.
I'm feeling very low tonight. Think the chemo blues have kicked in. Hope they don't last too long. Feel an awful detachment I can't explain,
hope you all stay cool and get some sleep xx
Sorry you're feeling poorly with tonsilitis, I hope it clears up in time for you to start on Monday.
I know exactly what you mean about becoming a bit of a recluse since being diagnosed because I've been very much the same. I've just been through 2 operations and will be starting chemo (6 cycles of FEC-T) a week today, I just wanted to hide away.
However, at the weekend, I looked at the link Jo_Carter posted further down on this thread regarding Liz O'Riordan and it changed the way I felt (particularly her TEDx talk). Today I've been out to buy some necessities ready to start chemo next week, and while I was out I also bought a bright red lipstick to help me face the world (I never wear red) because I've decided I don't want to hide away any more.
If you haven't looked at this link yet do see what she has to say.
I'm sure that once you get to the gig you'll have a great time and you'll be glad that you went.
Hope you have an amazing evening
I'm sorry to hear you got it too and on top of going through treatment! I'm hoping I'm going to feel better by the weekend now that I'm getting pumped full of antibiotics but I'll have to wait and see what they say on Friday. The waiting is seriously getting me down now. We're meant to be going to a gig tonight. The tickets were bought back in December but the thought of standing in a massive crowd of people isn't really appealing. I know my husband will be really disappointed if I don't go so I'm going to have to pull myself together, stick some make up on and get on with it. I'm sure I"ll enjoy it when I get there. I've become a bit of a recluse since being diagnosed....
Anyway, hope the tonsils aren't giving you too much pain. It's yoghurt for breakfast for me!
Thanks, all. I spoke to the BCN and she wants me to keep the pre assessment appointment on Friday and said chemo might go ahead anyway, depending on how I am. The GP has given me 8 antibiotics a day for 10 days which is a bit OTT if you ask me but I'm going with it for now. I just want to get treatment started now...
Looks like it's going to be another hot night. Good luck, everyone!
Get well soon Ali. How frustrating for you.
This heat is awful for everyone I think...chemo or not!
Hooe you can get on asap x
Quick update from me: I've been diagnosed with tonsilitis and given antibiotics. This means that treatment is probably going to be delayed. I'm just about to pluck up courage to speak to the nurses about it. I feel like I've waited so long already and can't bear the thought of more waiting. I think I might literally go round the bend. I had geared myself up to start a week today but I'm teetering on the edge of bottling out completely. Feel so frustrated!!!
I hope you are all coping with the hot weather and that side effects are not spoiling these lovely summery days too much.
We had a street party on Saturday so I can sympthaise with feeling hung over and being a bit spaced out. I like to call it training for chemo!
Anyway, happy Monday to you all.
Day 6 still got sore throat and some back muscle pain. Also more tired. But doable. Thanks everyone for encouragement and feedback. No hair loss yet.