'June Jewels' - Precious and shining through :)

[YB54321]

• jmeg - Jill 15/7 (cycle 2)
• Cassie1 - Jayne 15/7 (cycle 3)
• Maxie - Sandra 16/7 (cycle 2)
• pointy - Debs 16/7 (cycle 2)
• flippantfox - 16/7 (cycle 3)
• Gussie-WW - Gus 16/7 (cycle 2)
• Artemis17 - Vicki 17/7 (cycle 2)
• Suffolklady - Cress 17/7 (cycle 2)
• cazzer1970 - 17/7 (cycle 2)
• Fimbo 123 - Joan 17/7 (cycle 3)
• titus4t - 17/7 (cycle 3)
• NicJ - NicJ 18/7 (cycle 3)
• Jackiebee - Jackie 18/7 cycle 2)
• Satsuma - Fi 18/7 (cycle 2)
• Katherine10 - Katherine 18/7 (cycle 2)
• Glasgow Girl - Fiona 18/7 (cycle 3)
• Janet C - Janet 19/7 (cycle 2)
• LinsLleisio - Lins 23/7 (cycle 3)
• BeckyJoan - Becky 23/7 (cycle 3)
• jayney234 - 23/7 (cycle 3)
• ChelleB15 - Chelle 24/7 (cycle 3)
• Marionblue - 25/7 (cycle 4)
• Spurs79 - Claire 25/7 (cycle 3)
• TaylorJ - 25/7 (cycle 3)
• ethel1 - Elizabeth 29/7 (cycle 3)
• Esther_1986 - Est 29/7 (cycle 3)
• Meggy-moo - Agnes 31/7 (cycle 3)
• MarthasSOS - Martha 31/7 (cycle 4)
• pat_1949 - Pat 01/8 (cycle 3)
• Melrose15 - Emma 01/8 (cycle 3)
• Deedee215 - Deedee 01/8 (cycle 3)
• Flip Flop - Faye 01/8 (cycle 3)
• March13 - Ann 01/8 (cycle 4)
• LaineyK - Lainey 02/8 (cycle 3)
• Linsey 50 - 02/8 (cycle 3)
• Trish1303 - Trish 02/8 (cycle 3)
• ambercatz - Jan - 02/8 (cycle 3)
• PeachyPal - Emma 03/8 (cycle 3)

[NicJ]

No bar for me today. Removing the Picc line was a mistake should have been treated instead. Now going on thurs as long as phlebitis cleared up this mucks up all my arrangements and the holiday in Greece. So cross.
best wishes for everyone who is going today Ill be there in spirit.
NicJ xxxx

[YB54321]

Jayne, Jill & NicJ - best of luck at the bar ladies x - barring the migraine I got (which was prob more me over doing it than anything) I have been fairly free of SE's on cycle 2 so am sure if they get your meds right we can pull through this without too many battle scars.

I'm tempted to go shopping today but Im going to leave it til later this week just to get completely through week 2! I'm actually thinking of going to York at the end of the week and maybe staying over.

Vicki - I don't think there's any chance of your hair falling out if you don't need flower nets yet! Strangely my hair loss seems to have halted again so an expecting a sudden shed again at the end of this week. Still got leg and facial hair which I'm really not impressed about!

Jill - love that you whipped your hat off, people are so dumb at times! the parcel delivery lady who has been to my house loads of times just told me i look like a pirate with my bandana on so I did the same and said "what do you prefer......pirate or bald?" she actually apologised.

Well I'd better get dressed - don't know how I will ever get back to work as I'm usually up at 5:30!!!!
Got full day introduction at The Haven tomorrow (hope I stay awake!)

[Glasgow_Girl]

Jill - posts crossed. You can do it, come on, we're all there with you in spirit. (Know how you feel though, I've got clinic tomorrow and round 3 on Thursday. Like you, have had such a good week 3 , thinking after Thursday could have another 12 days feeling so rough again.) If you've had your meds changed, should be better this time, keeping everything crossed for you.
Love your story about whipping off the scarf in response to an ill-thought remark. And, the opposite, what a thoughtful customer bringing you a fan to cool you down.

Take care today and hope to hear from you later,

Fiona
xx

[Glasgow_Girl]

Morning everyone,

Jill, Jayne and NicJ - thinking of the three of you today, hope all goes well.

Chelle - 2914!! What am I like?? Typed my last post without glasses on, I think, and I had my pjs on ready for bed - that's my excuse anyway.

Vicki - I think that's awful just sending the questionnaire without checking your medical notes. Good for you with the capital letters and "in your face" response. I would have done the same.
I started needing the knicker net on day 14 of cycle 1, then head hair started shedding on day 16.

Have a good day everyone,

Fiona
xx

[jmeg]

Morning Jewels well I am up showered but definatley not ready for the bar due at 10.30 I know I am going but felt so good this week and now dreading the kick back down I just feel like a lamb to the slaughter but hopfully what ever he has upped my anti sickness upto works better but dosnt give me any other SEs already got my heartburn tabs in ready this time so think I ve covered all corners,heres hoping lol.
Worked OT yesterday so other BC girl could do race for life 2 of the other girls did it with her and they did the 5k in 1hr 20mins and raised over £600 beteween them considering she only had her last herceptin this week I think she is amazing and giving me so much support and advice. I wore the scarf I have personalised with "Bad hair day " and this ditzy little blonde (sorry blondies) said to me" are you allowed to wear that if your hairs a mess god my boss would throw a fit " well the girl on the till next to me collapsed in a fit of laughter and I just whipped scarf of and asked politley which her boss would prefer definatley cheered everyone up,all the fridges freezers and air cond had broke down so working in super high temps was fun having to go outside to cool down worse than that though having to throw away every bar of chocolate cos it had melted on the shelf and all the ben n jerrys icecream could of cried,best customer complaint was "do you keep the kinder eggs somewhere special" explained the situation to be told "well you might as well shut the shop "lol customer service skills being tested to the limit but one very kind customer came in felt how hot it was and went home and came back with a electric fan for me,bless such a small gesture but meant so much to me.
Anyway better go and get ready for the bar good luck to the others lets make it a good one with no hiccups hopfully catch up later depends on muzzy head.
Jill xx

[artemis17]

Good luck Jill, Jayne and Nic, drink responsibly and make sure have plenty of ice along with the cocktail umbrellas!!.

Back to work for me, although a wee reprieve later having bloods checked and seeing Onc. Oh I have been referred for genetic testing as my mum died at 50 from secondar breast cancer, but whoever sent me the paperwork obviously hasn't checked their notes as im asked things like "why do you feel you have a risk off developing cancer" and "are you aware that most worries about cancer are usually unnecessary"... I have completed the questionnaire mostly by writing in capitals " i am being treated for breast cancer at 45, my mum died of it at 50 and I have a daughter of 21!!.". I get the feeling that following on from the Angelina Jolie stuff they are fed up with constant referrals or requests, but that's no excuse for not reading the information they are sent.

Anyway hair wash today woohoo hopefully i'll get rid of the greasy itchy matted barnet at least for a couple of days..
Not losing any other body hair yet, ladies when did you dig out the knicker nets etc?. 😉

Ok well enjoy the sun and catch up later.
Xxx

[cassie1]

Wide awake, I dont want to go to the bar, Im enjoying the lovely weather and just about feel normal,aarrgg !
round three here we go,see you there Nic dont be to greeedy leave some for me
Jayne xx

[Melrose15]

Ha ha Chelle you make me giggle!
Night night all. Here's to another sunny week. Good luck Jayne, Jill and Ann tomorrow at the bar. Iced cocktails in this weather me thinks 😉
Xx

[YB54321]

Fiona - I think I may be bald and toothless for a whole different reason in 2914! lol x enjoy the tv

[Glasgow_Girl]

Vicki - no, I didn't get to Zumba, decided it was too hot today. Made picnic instead and went to watch son playing cricket, accompanied by OH and 4 friends. We all had a lovely, relaxing afternoon.
So pleased to hear you've had a good break. When we went to York, we too were v disappointed with that Jorvik centre. My kids were about 11 and 15 at the time and they thought it was rubbish. Loved York though, look forward to our Bald Babes on Tour there in 2914.

In my pjs, going to watch bit of telly or a film with daughter.

Night-night everyone,

Fiona
xx

[artemis17]

Ahh nice to be back online properly jewels...
What a lovely week off ive had. I said to my boyfriend that i didnt want to hear the C word unless i brought it up, which meant it was normal. I felt 100%, we walked, had a BBQ, had several drinks...met up with friends, did loads of driving about, and generally had completely cancer free time. It made me realise how much cancer dominates our/my day, whether taking meds, waiting for appointments, side effects, trying to plan stuff etc etc. No wonder we all get so down at times, i mean we have had to take on board a huge thing with no warning or preparation, and yet we are still trying to go about our daily lives, and "not be any trouble" to anyone....!!.
I think we are all blooming marvellous!!. 😉

Oh also my daughter came over for a 48hr flying visit, which was good although as i looked so well she didnt feel moved to do anything helpful, well unless you include letting me tidy up after she'd left today :-)!!

Jill, pleased youre keeping well and the baldness is being embraced..
I must say to all those who have temporarily said au revoir to their hair that you would not want to be me, though so far mines intact with no loss, its a swweaty greasy mess, as i can only wash it 2x a week, in this heat its a frizz ball, cant use any products, heat etc on it, and im sure ive got lice as we went to a medieval re-enactment and it was very realistic lol!.

Sorry youve been under the weather Emma,(Melrose), really hope its just a one off, as you seemed ok last time. maybe too much cock and not enough tail at the bar (sorry if thats too cheeky 😉 Hopefully youll be bouncing right back soon.

Ha ha Fiona, i did snigger re the "f'all"...sounds like youve been keeping well too, did you get to check out the Zumba?.

Chelle, fingers crossed you keep well this week and avoid being an in-patient (and dropping the phone)!. The gym would be a hot bed for germs and all that sweaty lycra clad lunch boxes...definately prefer a walk lol...

Marion, hows the cough/dripping nose..bet youll get your own back on the OH by kicking him out the bed when he starts to snore..

Sandra, hope youve had fun visiting family, glad youre doing well, are you feeling better with the wig now?.

Nicj glad to hear youre still around though terrible experience re the PICC line. I hope something gets sorted for you, and also that the staff apologie when you are next there. No water in thsi heat too, thats poor!.

Faye, Yorkshire was nice, i hadnt been there before, York was good, though the Jorvig centre a bit disappointing. The weather wasnt as hot and sunny as we expected, but it was lovely area. We also took in some of Lincolnshire too. A long drive back down south though.

TaylorJ, again i chuckled re the vasectomy costume, that would be a Borat style Mankini wouldnt it lol??

Ann, hope the wind is receeding and the fan/sofa combo are keeping you cool. get the OH to install one of those huge fans like on "aint half hot mum", (watched it as a kid ) then he could put on the loin cloth and be your own punkawalla or whatever the term was...

Cress, hope youve enjoyed a quiet time with your book and a long cold drink...

Emma-peachy_ lovong teh hosue, youre very organised to have got it all sorted while going through this too...

Phew, well hopefully im up to date with everyone, im now going to tackle the mountain of washing, hopefully it wont all need ironing..
Got my Onc chat and bloods tomorrow then hopefully full steam ahead for round 2 on Wednesday. At least in this heat the cold cap will feel not so bad( she says shuddering at the thought of it all again!!).
Ok special ladies, hope you are keeping ok and will catch up again tomorrow after work...to all those temporarily MIA, hope we hear from you soon..
xxxx

[YB54321]

Deedee - thats not good that your cover doesn't start til 65! My cover was very expensive as OH is a smoker but I'll prob cancel it at end of year for me as it wouldn't cover any type of cancer even if totally unrelated again so doesn't seem much point at the price of it. I used to be a financial advisor so I've always had lots of policies (must have scared myself into it).
Ive managed to 50% knocked off the price of the wig that I ordered so I'll just use it as a spare or I might get the length cut down at The Haven next week as its too long to be practical. I've spotted a Jon Renau wig that I like so I'm surfing to try and find it at a good price but its an American brand and not many places seem to stock them.

Im considering joining a gym as I'm so bored - just worried it might be a big germ fest with all the sweat etc 😞 at least it would give me something to do. Got a dicky tum so off for a snooze. It was 3 weeks ago tomorrow I ended up in hosp so am keeping my fingers crossed that the dose reduction worked!

keep shining jewels x

[Glasgow_Girl]

Hi everyone

Week 3 is going so well, thank goodness after 12 rough days.
Went over to friend for a drink at about 6 pm last night and stayed until 11pm. Was just a small group of really good friends, ended up throwing together some food, it was so relaxing - managed half a glass of wine, which I enjoyed but not like I used to.
About to prepare picnic, going to watch son play cricket this afternoon with same friends.
Planning to see another friend tomorrow evening and possibly lunch out and a seaside walk on Wednesday with 3 of last night's gang.
Got to squeeze it in - clinic on Tuesday, then round 3 of the poison on Thursday. Although hoping for a better round 3, expecting it to be the same i.e. around 12 days being housebound and feeling c**p.

Emma - glad things have calmed down for you. Thanks for the update about Martha.

Chelle - take it easy and recover from all that high living. Good for you giving that Financial Advisor what for - he should have done his homework and checked who you were first.

Gussie - welcome to the club. Yeah, GI Jane, that's what I look like too.

Cress - I'm hoping the bald head will chase away cold callers too. I did shove on a scarf to answer the door to the postie on Friday though.

Deedee - glad you managed to go to the party and your SEs are under control. Think T (Taxotere) and D (Doxetaxel) - sorry about the spelling - are the same thing. I'm 3 FEC and 3 T, 3rd FEC this week. Will ask on Tuesday at clinic if I remember.

Nicj - that is appalling, I felt so angry reading about your horrible experience. Sounds like a catalogue of incompetence and miscommunication between those medical staff. You don't need that on top of everything else. I do hope you get better staff on Monday and they sort you out. You should definitely complain.

All enjoy the sunshine, although it is tricky to stay cool,

Fiona
xx

[Guest user]

NicJ so good to hear from you despite your terrible experience. It makes me so angry when I hear stories like this- the personal treatment of patients is just as important as the medical treatment and it sounds like they failed on both this time. I do hope you get better soon.

[deedee215]

Stupid predictive text meant to doesn't start till I'm 65 x

[deedee215]

Hi Chelle, yes it is for Docetaxel and I thought it was the same as taxotere it was just when I seen the the nurse oh you have changed to docetaxel as if it was different I should've ask her but I always think of the questions when I leave the room lol. I loved the story about your employer lol. We phoned up about our critical illness claim and unfortunately it doesn't start tiyo I'would not have took that out if we had of known that 😞
Deedee xx

[YB54321]

Deedee - is the D for Docetaxel? I thought Docetaxel and Taxotere were the same thing but one is a brand name but I could be wrong.

[jmeg]

Morning Jewls
NicJ Dont know how you coped my tolerance levels at the moment are zero I would of had a major paddy and then emoitional breakdown If it was happening to one of your children would you of been as calm and understanding I know I wouldnt and at the moment we have to put ourselves first hope everything gets sorted for Monday.
As I am doing overtime today 2-10 not done the market so managed to catch up on housework and now being lazy in the garden loving this weather in the shade,worked 3-10 yesterday and all the fridges broke down then the air con broke down so ended up very stressful day customers complaining no cold beer and no burgers for barbeque and all the choclate bars melted I was like get a grip but must admit customer service skills were very sorely tested and may of lost us some customers but being hot tired and bald didnt help (anyone else noticed how much head sweats now )
Well jewels enjoy the rest of your day I am back at the bar in the morning veins still holding up so alls well just trying not to think of the next week or so week 3 has been my very good week.

[deedee215]

Hi nicj, that was awful what you had to go through and as Katherine had said let them know you weren't happy with this treatment, and how much effort does it take for to get a glass of water especially in this heat. Hope you will be ok for mon.
Does anyone know what the difference in treatment I started of with FEC T now it has been changed to FEC D.
Deedee xx

[Gussie_WW]

Nicj - so sorry you had such a nightmare day. A real shame the nurses were cold towards you when the issue was their own professional dispute! Will think of you on Monday (I go in for round 2 on Tues). Is your OH going to be at home for this cycle?
I also found fatigue to be my worst SE. Particularly in the mornings, when the sheer effort of getting up etc wiped me out. I started having 2-3 breakfasts (took packet of biscuits up to bed with me!) and realised that if I eat protein first thing that gave me a little more energy towards elevenses. I always was a bit prone to go a bit weird on low blood sugar though.

[Suffolklady]

Nicj - you poor thing - that sounds like a true nightmare of a situation. It is so strange how treatment standards vary from hospital to hospital. Mine offered me a portacath straightaway - even though I'm only having 6 sessions. My veins are also truly adept at hiding from anyone with a needle but I was still amazed that I could have one - do you think you might be able to persuade yours to put one in for you?
It's horrible to have these extra nasties - on top of everything else. I send you a big hug and hope it goes ok on Monday - do let us know... Cress xxx

Chelle - your story made me smile!

[Melrose15]

Hi Nic. Lovely to hear from you but sorry to read of your traumatic experience. You were definitely very patient.
Firstly on fri why didn't the nurse take blood from you picc? That's what it's there for!
My picc took a good 3 weeks to settle down. My arm ached alot and I felt like my glands were up under my armpit. It was also badly bruised around the site and very tender. Like you I didn't look when they put the line in. It took three attempts and I must say bloody hurt! My veins did a good job of hiding and shrinking!!
I had the picc fitted and chemo the same day. It was tiring as made for a long day but definitely worth it as you don't feel a thing once its up and running.
I hope Monday goes ok for you and my experience helps. Once it's in make sure the nurses take bloods from there not your hand. And if you haven't already get a Limb0 online for when bathing and shower.
Big hugs and enjoy the rest of the weekend
Emma xx

[Guest user]

hi nicJ
what an experience. trouble is because we are all vunerable to bouts of crying etc, (well i am) it seems bad peope seem to get away with things, the staff there could not understand how you must be feeling therefore do not show any signs of compassion really they need reporting bt its not easy is it.
When i had to go to the hospital neutropena sepsis, the staff from A/E to onc ward could nt have been better, so i was extemely lucky there, not being in hospital though, dont make a good patient.
I am having a PICC line thursday before my posion , cycle 2 feeling quite nervous about, it just hope i have better luck than you.
very good luck for monday, will be thinking of you and all the ofthers for that day.
heat not getting me down, know must be the only one, in fact feel quite cold, wearing a thick cardigan, how sad is that.
take care all xx

[NicJ]

Fec x6 cycle 2 day 21
Hi,
not been here for a while - just so knackered, overwhelmed by SEs and had to save energy for feeding and watering, kids, animals and plants. All side effects still being a pain, but opted to keep chemo at same level to blast the buggers.
Thanks to Jayne for phoning to see if I was ok, looking forward to seeing you on Mon when we get to the bar.
OPINIONS PLEASE.
I had a PICC line fitted last Wednesday and it was all text book, apart from a major amount of blood, which I didn't realise about until I saw the amount of paper towel in the bin (I had my eyes closed).
Bloods got taken from hand at Gp surgery on fri ready for chemo on mon. They wouldnt use the line this time as too new. but this reminded me why I had opted for a Picc line. Struggled to find a vein and then not much came out.
Despite doing the warm compress thing for a couple of days after Picc fitted, Friday night my arm felt quite painful so did the heat thing thru the night. Saturday morning my arm was very tender, a bit swollen and pink above the Picc site.
So called the chemo line and after a bit was told to get to hospital and report to the chemo ward. Got a friend to take me so OH who only came home from oil rig on fri night, could stay with boys (autistic for the newbies).
got to the ward to be told to go to the medical assessment unit, this is a long walk thru many corridors and downstairs. So hot and a bit breathless arrived at this unit, shown to a privat room and waited for nearly an hour. Told friend to go home and enjoy rest of lovely day. Arm very painful, nurse didn't know where to do blood pressure since shouldn't do it on cancer side and the other arm has the painful Picc. Completed triage(3/4 hour) and promised to bring water.
An hour later (no water) a young very good looking male dr examines arm and declares it is phlebitis and the Picc has to come out, he suggests putting a new line in my leg, assures me he knows all about lines and is very good at them, also will give antibiotics to clear up arm. Says he will get water delivered. 30 mins later on way to loo I am told nurse who did Picc from chemo is coming to have a look at me. I wait another 45 mins and a completely different mature nurse from chemo outreach comes in saying the Picc line is important and needs to be treated not removed, by using heat pads, I was a bit drowsy so didnt manage to say had done so thru night. There are then raised voices in corridors of the "I've been doing lines for 30 years" kind. Nurse then comes back a little flushed, saying since I had been trying heat pads, perhaps the line needed to come out but there woul be no new line particularly not in my leg.
She removed the line told me to call OH to get me since its an hour to get to hospital. I would be fine to go home and rest, and to phone chemo first thing on mon so they refit do a new line and then do chemo.
OH arrives over an hour later with most severely autistic son to be told I can't go until been seen by a consultant who wouldn't be doing rounds for another 2 hours. Naughtily we get son to jump up and down in the corridor and demonstrate some of his bizarre habits. suddenly another good looking male dr comes in and says he is ok for us to go but politics mean see consultant. He then asks why OH is sitting on son and we explain he's autistic and it is the best way to keep him calm. New dr then says yes can go, shouts to original Dr who agrees with this, I ask about antibiotics but he says dont worry about it.
Althrough this I have been polite, understanding about delays and cheerful. However as we left our room and pass the nurses station, I say thank you to the 2 drs I have seen and the triage nurse, but the response was very cold. I feel the row between chemo nurse and first dr has rebounded on me badly, but I am also not sure about the treatment and advice I was given. When I got home the protocol notes that I was given when having picc done, say phlebitis can occur and that it should be treated with warm compress and antibiotics and then it goes after a couple of days. I was sat in that room for a number of hours just waiting why couldn't they have tried the warm pack thing then - what if I hadn't been doing it right? Also will I really have a new line fitted and then have it used straight away. But also what vein will they use since ones in elbow not well and hand all bruised from having bloods taken.
also the chemo nurse on removing the line put a transparent sticky dressing on the wound without a pad thing so the sticky was directly on wound and the blood couldn't be soaked up or congeal? When removed wont the sticky damage the wound site further?
i had a major headache through out and kept falling asleep as fatigue is one of my most prevalent side effects, so I wasn't able to process or query what was going on. I do feel a little bothered about how chemo is now going to go on Mon.

What do you lot think?
(by the way I never got given any water)

thanks
nicj
hope everyone is keeping cool in this heat

[deedee215]

Hi all,
havent been on yesterday at all slept a lot during the day, then I went to another of my daughter's friends 21st birthday party. I stayed till 10.30 then oh took me home but must admit I feel really good this time comparing to the 1st cycle hopefully keeps up I got stronger anti sickness tablets this time she gave me (dexamethasone steroid) (cyclisine anti sickness) ( ondansetron antsicken ness) (fluconazole anti fungal tabs) plus chorhexidine mouthwash. Onc nurse said she would give me emend next time if I wasn't good but if I carry on the wayi am then I would just leave the emend out. Hope everyone is keeping minimal se's.
sorry i can't comment only your posts but my eyes are just about closed again lol.
Deedee xx

[YB54321]

Ha Cress - I had some fun with a Financial Advisor who cold called from my bank (also my employer!) as they'd noticed that my current account had a large balance in it (my critical illness policy had paid out - also from my employer). So he said that I must have had some good fortune and come into some cash - my response "Oh - didn't realise having cancer was good fortune these days?" I also mentioned that I was an employee and he may want to choose his words more carefully next time! I could hear him wishing the ground would swallow him at the I other end of the phone lol

[Suffolklady]

Last night there was a knock at the door, and, still not quite used to my new Jesse J look, I opened the door to find a charity worker there - she looked at me and clearly flummoxed, muttered something about the charity she was representing and then asked 'do you want to hear this?' to which I replied that I probably had enough going on and she wished me a good evening and left.
Two things - one, if only I knew that a bald head worked for cold callers
two - I'm obviously of an age where a bald head = illness!

Hey ho!

[Gussie_WW]

hi all. I'm now in the fuzzy felt club too as I was pulling handfuls out and there was what looked like a drowned rat in the shower tray this morning. So I went to my trusty hairdresser who gave me a buzz cut. I look like GI Jane, not a good look for me! been out and about with buff knotted at the back plus scarf in a sort of head wrap kinda stylee and it has stayed on even on quite a breezy day. Got some sideways glances from the other dog walkers but I'm sure they can guess what's up. I just know there'll be a head gear malfunction at some point but hey ho.
Hope everyone's doing okay.

[Gussie_WW]

hi all. I'm now in the fuzzy felt club too as I was pulling handfuls out and there was what looked like a drowned rat in the shower tray this morning. So I went to my trusty hairdresser who gave me a buzz cut. I look like GI Jane, not a good look for me! been out and about with buff knotted at the back plus scarf in a sort of head wrap kinda stylee and it has stayed on even on quite a breezy day. Got some sideways glances from the other dog walkers but I'm sure they can guess what's up. I just know there'll be a head gear malfunction at some point but hey ho.
Hope everyone's doing okay.

[Flip_flop]

Glad youre feeling a bit better chelle - i have ordered a wig which is apparently getting delivered on monday. Have read some horrendous reviews about the company i have ordered from since so am dreading it coming now. this is the type of stress we can do without. I will update you when it arrives

[YB54321]

Afternoon Jewels,

Well still feeling a bit fuzzy but at least I've crawled out of bed today. I had such a good time in Manchester and it feels like I'm paying for enjoying myself! Getting tired of all the ups and downs 😞 suppose I am smack bang in the middle of the cycle so will just take it easy for a couple more days.

Well I managed to get my parents some free tickets to see Kathryn Jenkins at Tatton Park next Sunday so they were really please. Think I'm going to tackle some of my pile of ironing in the hope I can so something more fun tomorrow.

Ordered another wig online last week from the same place I got my others and its rubbish, no way is it the wig I ordered as its 6" longer than it states! Going to ring on Monday and do some shouting!

Love to all x

[Suffolklady]

morning lovelies, goodness, warm isn't it!
Emma (peachy) and Jan's glad chemo went ok
Sorry to hear you have a migraine Chelle
Jackie - welcome to the fuzzy club! I had a circus fuzzy felt... still remember the sealions which is weird as I forget most things..
Sandra - enjoy your weekend away - I'm planning a weekend in Brighton before chemo 3 so that'll be the end of the hot weather
Faye - sorry you've been on a downer - it happens doesn't it - I'm either right up on a positive high or down in the dumps of despair
Ann, long may you continue to feel ok -
Marion - a week of coughing must be exhausting.. poor you
Emma (melrose) if your steroid high continues - pop over to my house - you'd be welcome to my ironing anytime!
Well, quiet day today, just me and a book! Hugs to all - sorry if I didn't mention you - there were 22 posts to catch up on! we certainly are chatty! x

[Melrose15]

Hi All. Just a quick check in as fuzzy head both inside and on top! Re vomitfest; Managed to take morning steroids and anti sick at lunch and keep down! Yay! Then topped up mid afternoon. By 8pm I was bouncing off the walls. Did all the ironing, cleaned the kitchen . . OH came in at 9.30pm 'I was ready to take you to A&E this morning! What happened?!' Steroids happened that's what! Eventually feel asleep at 3.15am awake again at 7.30pm. Getting ready for an almighty crash!!!
I've had a text from Martha and I'm sure she won't mind me filling you in. She's been very fatiqued and heavy headed since cycle 3. Shes hoping to check in soon but finding it hard to focus for long. I'm sure she'll update you when she's feeling better. At least she's managed to stay out of hospital!!
Have a happy day. Hope everyone with plans, trips away have a great time. xxx

[Marionblue]

Fiona Re your' f all' I thought blimey Fionas in a mood today .

Emma - Glad your back safe and sound. That was a quick trip to the bar. Is this a record do we know.

I am so tired today. I'm still in my nightie but going to throw myself into the shower in a minute and try and wake up. Its this darn cough keeping me awake. Now they know my blood count is ok its like Oh its only hayfever. Wekll I've had it for a week now and I 'm fed up with it. Moan, moan, moan.

Marion
XXX

[Guest user]

Windy bald eagle here, good morning all.
FEC 3/6 day 3 and still ok. I love Emend and Movicol/lactolose. Far too hot for me so my horses are handed over to a dear friend and I remain surrounded by fans on the sofa.
Fingers crossed I stay side effect minimal.

Stay cool ladies. xx

[TaylorJ]

Morning Jewels!
Have tried to track Martha down but had no luck this time.
Chelle, hope you are feeling a bit better this morning? Think I remember that last time you managed to speak to Martha on the phone, do you have her mobile number to try and track her down? Thanks for keeping the list up to date, you are a star!
My OH made me laugh today when I thought he had said that he had seen an ad for vasectomy costumes (chemo brain not working) but he actaully said mastectomy costumes! Ad was for Nicola Jane and they are worth checking out if you are in to swimming of course.
Emma, good luck at the exclusive Saturday bar today, check in later to let us know how you are.
For those of you recently at the bar, hope you are coping in this heat with any side effects.
It's good to hear that some of us are managing to fit in some trips away which am sure helps take the mind off chemo for a bit.
Hoping to get out for a walk this afternoon with OH, well covered up of course. Am not feeling too bad on day 10, mainly tiredness.
Take care precious ladies, catch up soon. Xxx

[Glasgow_Girl]

Emma ( peachy) - glad you in and out so quickly today. Get lots of rest, hope you'll be ok.

Fiona
xx

[Glasgow_Girl]

Sorry, don't know why my post started "f all"!!! I had typed "Morning everyone"???

Faye - good to hear from you, hope this cycle will be easier on you. I think if anyone who posts regularly doesn't post for a few days, we all worry that they're in hospital. But, as you say, sometimes you just need to try NOT talking about BC all the time, it is too hard if you're feeling low. Hope you can relax over the weekend.

Sandra - forgot to say, have a lovely weekend away. We won't send out a search party if we don't hear from you for a few days.

Fiona
xx

[PeachyPal]

Morning all,

Quick update - home already. I was in at 8.30 and out by 10.15. Popped to pharmacy to get some eye drops, they've been a bit sore the last couple of days (hayfeever I think).

OH is busy in the garden, I'm vegging on the sofa - bit of a fuzzy head, think I had too many cocktails!!!

Will try and post more later.

Hope you all enjoy the sun today - just make sure you are protected xxxxx

[Glasgow_Girl]

f all

Didn't make it on to post yesterday, had lunch and shopping with my lovely daughter. Got 2 dresses in the Monsoon sale, another dress and some sandals in New Look. I had a relaxing BC- free day, managed to switch off for a few hours. Wig off as soon as I got home, it was comfy enough, but the heat!!
Fuzzy felt!! I loved it as a child, had a Noddy- themed one - and my kids both loved it, born 1990 and 1994.

Emma (melrose) - sorry you've been so sick, you poor thing. Is it settling down today?

Marion - good news re blood test and your cough is inproving, phew.

Jan - glad your trip to the bar was ok yesterday.

Chelle - glad you ok, the heat is difficult just now. Rest up and hear from you soon.

Joan - hope you resting as much as poss after your busy day. When the SEs ease off, think we're all guilty of overdoing it, underestimating the tiredness and the pounding we're taking. It's such a relief to feel "normal" that we just go for it. After my shopping day yesterday, it's lolling in the shade for me today.

Jackie - well done with the head shave and the family being involved is great. My daughter keeps stroking my head, saying it's lovely and soft.

Becky - you really are super-Mum!! Hope you get away for the camping, especially in this fine weather.

Vicki - good to hear from you and you had lovely time in Yorkshire.
I might have a go at Zumba tomorrow, first time since started chemo. It's my "good" 3rd week. Based in the first 2 cycles, I've had 12 days feeling rough, then the remainder, just 9 days, feeling able to do anything.

Have a lovely day everyone, stay cool in the shade and relax,

Fiona
xx

Ditto being worried about Martha, Nicj and Lins, possibly a few others. Hope they're just busy and not unwell.

[Flip_flop]

Morning all,
not been on for a few days as was in a bit of a downer, and then been a bit dopey since chemo on thurs. it went ahead thank goodness but with a reduced dose to try and prevent hospital trips again. Sun is out here for the first time in a few days so going to try and get in the garden for tidbit.
jackiebee - enjoy BBQ. Well done on headshave
sandra- have a fab weekend aaway
pat- enjoy oh bd and bgt
marion- hope cough and nose get better
emma - good luck at the bar today. House looks fab, it's flippin massive, how many jewels can you fit in?????
izzy - good news on the scan and sshrinkage
cazzer- good news on shrinkage and cold capping working so far
vicki- glad you had fab time in Yorkshire, you should have called in for a cuppa. Don't be silly about being worried not been here for us for a few days, we all need a bit of me time
chelle- hope you are feeling better honey, take care. Bubble wrap being posted back your way
jan - glad chemo went ok and good news on shrinkage
emma- how are you today sweetie- big hugs
joan- good news from your appointment, take it easy
becky Joan - enjoy glamping wonder woman
sorry if I've missed anyone off that has posted over the last few days, hope all ok and have a fab day.
bit worried as we seem to have a few Mia
faye xxxx

[Guest user]

Great news Izzy!
And good luck today Emma 🙂
for once, nothing major happening in our household today apart from eldest daughter's 3 hour karate session- so, to make the most of the sunshine we are having a barbecue and doing NOTHING ELSE. I'll be the one sitting in the shade under a tree with factor 50 on my fuzzy felt head.
Have a good day everyone.

[Maxie]

Good luck Emma ( Peachy) for today....( btw love your new house....looks fab!)...xx


Chelle hope the Epsom salts have helped?...xx


Vicki sounds like you've had a great week off, don't worry about the no s/e's, we're all different, like Cazzer says it doesn't mean its not working...xx


Welcome Izzy, sorry I must've missed your previous post, you'll get lots of support from the lovely ladies on here!...xx


Jan, hope you continue to feel good, less steroids would be good for me too as barely slept for two weeks, let us know how you get on!...xx


Jackie just told OH about 'Eagle eye' comment, hethought was hilarious!!...xx

Marion & Pat, hope your coughs clear up soon, so annoying when it disturbs your sleep too....manuka honey helped mine, supposed to be good fo hayfever too....xx


Emma ( Melose ) how are you feeling today?....hope your a lot better....xx


Setting off soon for weekend away visiting family, its going to be a hot one!....hope all you Jewels are doing ok in the heat, I've been soooo much more tired this week & wonder whether the hot weather is to blame.....not that Im complaining, its lovely having sunshine...:-)


Hope to check in later

Sandra xx

[pat_1949]

Emma (Peachey) good luck at the bar today.
Marion, I had bad cough spoke to Doc about it before cocktail she said it could be Hay Fever and to go to docs and get something for it, I had antihistamines so have tried them first, I have only taken one so well have to see.
Well have been up all night had a doze on sofa but from 2am have been tidying up etc. OH birthday today so not sure what we are doing, he won't go out in the heat so we just might relax at home or go out for lunch, going to Braintree Got Talent tonight GS is singing in it, have to give him all the support we can, he's 12 and well in to his singing.
Hope everyone coping with s/e and have a good relaxing weekend in the sun.
Xxxx

[Marionblue]

Emma (peachy) - Have a good day Emma hope it goes well for you.


I've just been shoved out of bed for making too much noise coughing and quite honestly I'm getting on my own nerves now. Got a drippy nose as well today, sorry sun lovers but couldm do with a good downpour to wash the pollen away

Marion
XXX

[Melrose15]

Slowly does it with the cocktails Emma. X

[YB54321]

• PeachyPal - Emma 13/7 (cycle 2)
• jmeg - Jill 15/7 (cycle 2)
• Cassie1 - Jayne 15/7 (cycle 3)
• NicJ - NicJ 15/7 (cycle 3)
• Maxie - Sandra 16/7 (cycle 2)
• pointy - Debs 16/7 (cycle 2)
• flippantfox - 16/7 (cycle 3)
• Gussie-WW - Gus 16/7 (cycle 2)
• Artemis17 - Vicki 17/7 (cycle 2)
• Suffolklady - Cress 17/7 (cycle 2)
• cazzer1970 - 17/7 (cycle 2)
• Fimbo 123 - Joan 17/7 (cycle 3)
• titus4t - 17/7 (cycle 3)
• Jackiebee - Jackie 18/7 cycle 2)
• Satsuma - Fi 18/7 (cycle 2)
• Katherine10 - Katherine 18/7 (cycle 2)
• Glasgow Girl - Fiona 18/7 (cycle 3)
• Janet C - Janet 19/7 (cycle 2)
• LinsLleisio - Lins 23/7 (cycle 3)
• BeckyJoan - Becky 23/7 (cycle 3)
• jayney234 - 23/7 (cycle 3)
• ChelleB15 - Chelle 24/7 (cycle 3)
• Marionblue - 25/7 (cycle 4)
• Spurs79 - Claire 25/7 (cycle 3)
• TaylorJ - 25/7 (cycle 3)
• ethel1 - Elizabeth 29/7 (cycle 3)
• Esther_1986 - Est 29/7 (cycle 3)
• Meggy-moo - Agnes 31/7 (cycle 3)
• MarthasSOS - Martha 31/7 (cycle 4)
• pat_1949 - Pat 01/8 (cycle 3)
• Melrose15 - Emma 01/8 (cycle 3)
• Deedee215 - Deedee 01/8 (cycle 3)
• Flip Flop - Faye 01/8 (cycle 3)
• March13 - Ann 01/8 (cycle 4)
• LaineyK - Lainey 02/8 (cycle 3)
• Linsey 50 - 02/8 (cycle 3)
• Trish1303 - Trish 02/8 (cycle 3)
• ambercatz - Jan - 02/8 (cycle 3)

[Izzy1969]

Hi all thanks so much for your welcome messages and it's really to good to hear from the other ladies having chemo before surgery. I too have been wondering whether the chemo is working because I'm not having any side effects apart from being a bit bald (my head feels like fuzzy felt too!) Had pre-chemo appt today and got the results of my CT which confirmed no spread! The first bit of good news I've had! I was so happy and emotional about that bit of news that I completely forgot to ask any other questions today like is my lump actually shrinking? My third chemo is Monday and I can't believe that means hopefully I'm halfway through chemo already! Hope you're all enjoying the fab weather and have a great weekend. xx

[Guest user]

Hi Artemis, just wanted to add that I'm also cold capping and apart from some slight shedding my hair is still intact, I also had minimal SE's in fact just felt bruised and tired on the 6th/7th day. I asked my oncologist on Monday if this meant it wasn't working but she said that means nothing as my lump has shrunk considerably after one session! I'm having my second chemo Wednesday also so hopefully hair will stay for us both although I do have my wigs just in case:)
Have a nice peaceful night ladies:) x x