76.1K
members
383
online
1.2M
posts
I usually love the sun but it is just getting on my nerves now, typical we will probably have the best summer weather wise we've had in ages.
Hope all that went to the bar yesterday are feeling ok.
Good luck to Vicki, Cress, Cazzer, Joan and Titus.
Joan - what a pain you're having with the suppossed professionals. They sound like right plonkers. As if you need all the stress. Big hug.
Ann- my onc said the fatigue will probably get worse with each cycle
Marion - hope your nose spray works as offers some relief
Fiona - think it was best to postpone your day out. I was suppossed to have met a friend yesterday but when got up just didnt feel right. I perked up by lunch but was glad I took it easy. Plenty more times to look forward to when we are finished with treatment, and we need to look after ourselves at the moment.
Chelle - I ordered my wig from China, but not from the company you used, so don't feel bad, and even if I had it wouldbn't have been your fault anyway. Sorry to hear the OH is being a moron. He def needs a kick up the bum. Having said that I suppose like we say you can never describe how this feels, and maybe that it what he is feeling if he is a bit depressed, but ultimatley at the minute you need to look after you. Hopefully you can work it out but if not us Jewels are here for you.
Izzy - i'm only have EC chemo. When I asked onc why no F or T he said he thought that was what i needed and that my body would be able to cope with. My 2nd cycle also got reduced by 20%. I was a bit worried but the chemo lady said changes happen quite often. We just have to think that whatever drugs they give us, they are strong otherwise there wouldn't be all the se and precautions we have to take. Hope you are feeling a bit better.
Might try and do a bit of housework today, as my mind keeps going to not nice places the last few days, so maybe being busy will help.
Catch you later
Faye
Hope all that went to the bar yesterday are feeling ok.
Good luck to Vicki, Cress, Cazzer, Joan and Titus.
Joan - what a pain you're having with the suppossed professionals. They sound like right plonkers. As if you need all the stress. Big hug.
Ann- my onc said the fatigue will probably get worse with each cycle
Marion - hope your nose spray works as offers some relief
Fiona - think it was best to postpone your day out. I was suppossed to have met a friend yesterday but when got up just didnt feel right. I perked up by lunch but was glad I took it easy. Plenty more times to look forward to when we are finished with treatment, and we need to look after ourselves at the moment.
Chelle - I ordered my wig from China, but not from the company you used, so don't feel bad, and even if I had it wouldbn't have been your fault anyway. Sorry to hear the OH is being a moron. He def needs a kick up the bum. Having said that I suppose like we say you can never describe how this feels, and maybe that it what he is feeling if he is a bit depressed, but ultimatley at the minute you need to look after you. Hopefully you can work it out but if not us Jewels are here for you.
Izzy - i'm only have EC chemo. When I asked onc why no F or T he said he thought that was what i needed and that my body would be able to cope with. My 2nd cycle also got reduced by 20%. I was a bit worried but the chemo lady said changes happen quite often. We just have to think that whatever drugs they give us, they are strong otherwise there wouldn't be all the se and precautions we have to take. Hope you are feeling a bit better.
Might try and do a bit of housework today, as my mind keeps going to not nice places the last few days, so maybe being busy will help.
Catch you later
Faye
Hi Chelle,
Thanks, yes id be interested to hear what other Onc's say, but same as you, 3 monthly heart scans mean we will be monitored and obviously they considered 12 months the bench mark to start with anyway. Plus with us being "younger women" then we have all the early menopausal stuff to deal with too...
Thanks, yes id be interested to hear what other Onc's say, but same as you, 3 monthly heart scans mean we will be monitored and obviously they considered 12 months the bench mark to start with anyway. Plus with us being "younger women" then we have all the early menopausal stuff to deal with too...
Hi all,
Re Herceptin, i have been doing some reading up about it, its only been used for early breast cancer since 2006, and costs the NHS on average £21,800. per year per woman. I wonder if this, along with the concern re side effects is anything to do with the study, as the study started in 2007?. The study wants to show 6 months herceptin is as effective as 12, in some countrys they are comparing it to 9 weeks!!.
It has been proven to be effective though, for any stage of cancer IF you are Her-2 positive, so is definately worth having. Having done the reading, i dont think i will enter the trial as her-2 is such an agressive cancer that i want to be sure ive had the full amount. However if the side effects are too much then you can choose to stop anyway. I think i will enter into it with a 12 month plan and see how it goes. I have been told also that i am going to have radiotherapy even though ive had a Mx and anc, so this is something i am going to question as the risk to concentrated "x-rays" to my heart as its my left side, as i have already had seveal different nuclear scans anyway.(which were all clear) and also they got clear margins with the mx. I think as my cancer is so inter-linked with my hormones (ER+8/8 & HER-2) that i'll stick with that. The annoying thing is that after all this, they can't tell us we are definately cancer-free and it wont come back which youd think there would be some sort of blood test or something to give us that peace of mind...maybe in the future???.
Anyway im just surmising, because as ive learnt, we just dont know whats round the corner..
Hope everyones doing ok in the heat and wwe all manage to get some sleep tonight!!.
xxx
Re Herceptin, i have been doing some reading up about it, its only been used for early breast cancer since 2006, and costs the NHS on average £21,800. per year per woman. I wonder if this, along with the concern re side effects is anything to do with the study, as the study started in 2007?. The study wants to show 6 months herceptin is as effective as 12, in some countrys they are comparing it to 9 weeks!!.
It has been proven to be effective though, for any stage of cancer IF you are Her-2 positive, so is definately worth having. Having done the reading, i dont think i will enter the trial as her-2 is such an agressive cancer that i want to be sure ive had the full amount. However if the side effects are too much then you can choose to stop anyway. I think i will enter into it with a 12 month plan and see how it goes. I have been told also that i am going to have radiotherapy even though ive had a Mx and anc, so this is something i am going to question as the risk to concentrated "x-rays" to my heart as its my left side, as i have already had seveal different nuclear scans anyway.(which were all clear) and also they got clear margins with the mx. I think as my cancer is so inter-linked with my hormones (ER+8/8 & HER-2) that i'll stick with that. The annoying thing is that after all this, they can't tell us we are definately cancer-free and it wont come back which youd think there would be some sort of blood test or something to give us that peace of mind...maybe in the future???.
Anyway im just surmising, because as ive learnt, we just dont know whats round the corner..
Hope everyones doing ok in the heat and wwe all manage to get some sleep tonight!!.
xxx
