'June Jewels' - Precious and shining through :)

[Guest user]

[color=#f00de0]Sandra- no offence taken..........................frankly any woman after my own heart 'you can NEVER have enough shoes' could never cause offence!!

[fimbo123]

Hello lovely ladies, good to catch up with all your news.

TaylorJ, Marion and Claire, good luck today at the bar. Virtual hand holding xx

Jill, so sorry about pops. Hope you get good news from the vet later x

Nicola, good to hear from you but sorry to hear you've been feeling bad. We're all going nowhere with you!

Agnes and Cress, really understand the whole spectator / living in a bubble thing. I find it hard to fully engage with normal life, if that makes sense! Hope today is a little better for you today, Cress.

Fiona, glad you seem to be feeling so much better this cycle. I try and go on a half hour walk every evening to avoid the heat, but I do notice I'm getting more tired in the evenings as the weeks progress. Go easy on the shoe shopping!

Sandra, thanks for the diet tips. I'm trying cutting out dairy because of the growth hormones but it's really hard. Tried almond milk and just gagged (not a big fan of nuts anyway!). Switched to skimmed goat's milk yesterday which is fine, but then I read it's got as many growth hormones as cow's milk. Cutting down on sugar and eating more veg is one thing, other things are much harder :-(.

Izzy, sorry to hear your lump hasn't shrunk. I hope your team will come up with a good plan today. My onc had said they would switch drugs if it didn't respond. Btw, what is the MDT? I heard my onc say they would discuss MRI results at the MDT (or was it MDM?) but I didn't know what it was. The chemo will still be mopping up around the rest of your body.

Well, last day of work yesterday (I work in a school). Felt quite scary saying "See you in September" because it feels like a long way off. I'll be on Tax by then and may not be able to go in... Children are also home now, but my husband is a teacher and finishes today so I'll have lots of help. Normally we have such great long summers, so I'm very nervous about this one, trying to keep the kids happy and stop feeling sorry for myself. Feel like I'm even separated from them by that bubble...

MRI tomorrow morning. Even I think it's shrinking now, but there's still a way to go. I'm willing it to shrink lots by tomorrow because I could do with some good news when they tell me the results next week.

Still feeling slightly nauseous this time (day 9 now), although in previous cycles it had all gone by now. Definite build up of toxins. Plus sleep fairies have deserted me again. And, in other news, keeping a close eye on a mozzie bite on my foot. My husband has drawn a circle around the reddened area in felt tip so we can check if the redness is spreading!

Apologies for long post but so much to catch up on. Hope all other Jewels we haven't heard from in a long time are ok.
Joan xxx

[Maxie]

Oops sorry Deb posts crossed & hope you don't take offence at my online dating joke....I did it too in between husbands (lol!) & met some really nice men who I went out with as friends( didn't really click romantically with any of them) .only one dodgy one who turned out to be a scammer, but agree as long asyou have your wits about you it can be great fun!...:-)

[Maxie]

Chelle it could have been worse at least you didn't go on a dating website.....God knows what you might hve ended up with!!!...I can see we're going to have trouble with you & Cress on our York trip....can't wait 🙂

Jill know what you mean about your dog , they are such constant companions & like one of the family...hope he's ok later...hugs...xx


Jackie, sounds like you've had a lovely time down there in Cornwall....cream teas & wine yum lovely!... Love the 'touch wood' comment too, feel like my hands are washed away with the constant scrubbing!....hope your bloods are ok tomorrow!...xx


Jayney, sorry you're feeling so poorly,if its really that bad maybe you should phone the chemo unit/ GP for advise?... think they can give you an injection if really bad sickness....gentle hugs to you...xx


Fiona, good idea getting your walk done first thing while its cooler....what is it with us ladies & the online shopping?.... Do you think its a s/e?...lol!....btw I believe you can never have enough shoes... 😉


Heavy weather here today, threatening rain but still v warm & humid, Oh just phoned to say London really muggy to the point he's had to buy himself a new shirt because he's walking round a lot today & got hot & bothered!!...mmmm maybe he's caught the shopping bug!...Catch you later Jewels...xx

[Guest user]

Good Morning Jewels
Good luck to all those at the bar today.
I am supposed to be working but I think my work ethic got up and went as I just cannot be ars**!

Cress- you have just bought back some lovely memories with the Midnight Express thing, its my all time favourite film and soundtrack. Most people have never heard of it and look at me strangely when I start wittering on about it!
I have to confess to having met my second (and current lol) husband through online dating. You have to be quite single minded about the type of person you are willing to meet and you soon learn to weedle out the pil***ks.

Fiona, I thought it was just me buying something online EVERYDAY. I really need to stop but am now thinking I need stuff for my hols and all those lovely sales are on. I am just slightly addicted to The White Company saleat the moment as I love their clothing and frankly everything else they do.
Managed to do 30 mins again (hill walking) on the treadmill and lost 4 pounds doing weight watchers this week. Next week may be a different story with my bread and butter cravings.
Janey I am on day 9 of second TC cycle and this time the monster headaches have hung around longer (they kick in around 5/6 and ease around day 9/10). I have found that Nurofen Migraine every four hours keeps the worst of them down a bit. I didnt have the Neulasta injection this time as it made me feel so ill last time so I havent been as bad with the aches.

Chelle - thanks for updating the list as always and may all your purchases be big ones! You deserve them!

Can anyone tell me if hair starts coming out again a couple of weeks after second cycle or does it just come out then stop?? I still have a covering of about 1/2 inch (although I am crap at measurements so its probably about 2mm) from the first clippering, lady garden thin but still got some (although fab bikini line), under arm hair now appears to be maybe trying to come back . Still have full eyelashes and eyebrows and really hoping they hang on in there. Just not sure whether another major shedding session will happen next week???y nails just keep getting softer and softer and breaking so just keeping them painted in very dark colours and hoping they dont get any worse.
Jackie- glad you have had a good week away, hopefully the liver thing will be something and nothing, fingers crossed.
OOh its raining.........garden needs a water.

Anyway, better do some work. Have a good day all and keep smiling.

Debs xxx

[pat_1949]

Good luck Marion, Claire and Taylor at the bar today.
Thank you Marion and Chelle for info re. Evonail I will try both see how I get on, I am worried about my nails I now have 3 going slightly black!!!!
Jill hope Pops is ok, disgusting, he must not get away with it.
Hope everyone has a good day today. Xxxx

[Glasgow_Girl]

Morning all

Marion and TaylorJ, all the best for today, hope you managed some sleep last night, despite the heat, the steroids ....

Sandra - of course you're not lecturing, lovely, don't be daft. All thoughts and tips gratefully received and we all take from them what we want and just do our best.
Been for half hour walk, it was reasonably cool with a breeze but head still boiling under Raquel. Feel better for it, so I think I'll try to do that most mornings. Just got back before a few heavy drops of rain, didn't last long though. Is it OK for wiggies to get wet in the rain or should I invest in one of those plastic rainmates my Gran used to have?

Chelle - ta for new list. I had a wideawake night too, the heat I think and listening out for daughter rocking back in a taxi at all hours after girls' night out in town.
The trip to S Ireland sounds lovely, a special something to look forward to with your Mum.
I order something online nearly every day, somebody stop me! Got Evonail delivered today, ready for the Tax onslaught and have got several pairs of shoes in several baskets on the Next, Debenhams and Office websites. I must not buy them all.

Agnes - lovely to hear from you. Struck a chord with me, feeling like a spectator while everyone else getting on with life, that just sums it up. I tried to describe it to one of my closest friends and could only describe it as feeling removed from everyone else, sort of in a bubble, still not really believing that all this is happening to me.

Jill - that is a disgrace, what's happened to Pops. Hope that ignorant, stupid guy gets into real trouble. Hope Pops will be ok, please keep us posted.

Jackie - great to hear you've had such a good week away. (How many antiseptic wipes did you get through? LOL)

Ok, off for a shower after my walk, then to empty out these online shopping baskets filled with shoes, I only need one pair of sandals really.
Catch up later,

Fiona
xx

[Suffolklady]

Jayney, you poor thing. I don't know if it's normal, but I understand the effects can be cumulative - my Tax no 2 was worse than the first one for sure. If in doubt, call your team, even for reassurance, that's what they're there for.
Clear the decks, do nothing, try and find a place you feel least ill. Sending massive cyber hugs. Gecmis Olsun - it's Turkish, it means 'may it pass quickly' (from the film Midnight Express - great soundtrack!)
Jackie - keep germ free! I hope it goes ahead on Monday - (love the 'touch wood and disinfect afterwards' - we should have that made into a T shirt!)
Jill, still thinking of you and your lovely dog, don't worry about the vet bill - it's only money! (says she who has done nothing but flex her credit cards since diagnosis!)
Chelle, perhaps we could open a dating/coffee shop! I'm definitely round for a cup! - I have had a couple of ventures into the online dating world... OMG - I'm thinking of joining a convent when this is all over - it's safer!
x

[jayney234]

Oh grief! After Fec3 - 3 days in - I have never felt so ill. Had bad nausea last two times but this is horrible. Despite Emend and everything else thrown at it. Indigestion headache feel dreadful. No temperature thank goodness but please someone tell me this is quite normal. Jayney xxx

[Guest user]

Morning all, our last day in Cornwall today and the sun is shining but a lovely breeze. I'm hoping that the cream teas and wine have helped the WBC count- blood tests tomorrow. If they are still low I'll be gutted. I've avoided infection (touch wood and disinfect hands straight afterwards!) but have a real ache in my right side (worried its my liver as the blood tests also showed some probs with liver function too...). Hopefully chemo will still go ahead on Monday.
Jill, what an awful thing to happen. My dog is like my 3rd child. The dog who attacked yours should be destroyed and the owner prosecuted. I do hope your dog is ok.
Welcome back Agnes 🙂
Anyway, beach is calling. Hope everyone is as well as possible. Looking forward to catching up properly soon.
jackie

[jmeg]

Morning Jewels quick update on pops they kept him sedated over night and on antibiotics vets going to have a proper look under anestic later and see what can be done,slept on settee couldnt bear to go to bed without him just latley he has shared as much with me as all you jewels,dreading the bill could never insure him because of his other heath probs but heyho mother and credit card could come in usfull
Melrose it called parotisus and yes its when the glads block up painful and as your friend had people do take the mick LOL just have to remember not to eat in public and avoid babies and small children.
Business wise looking at exploring local baby or craft shops locally and see if like hairdressers and nail techs do see if I can hire a corner-but better wait till face go,s down and possible wear wig LOL
Even though I want the world to stop and let me get off got to stay positive pick myself back up and Id say plod on but I dont plod at moment not exactly running but trying slow jog
Have a good morning stay safe
Jill xx

[YB54321]

Sandra - speak of the devil ..... Ordered a new Gaggia at 2:30am and rather than ordering the £179 I had picked I ordered the £400 bean to cup model ........oops! Oh well one of the few times I can use chemo brain to my advantage! Plus cos I'm not exactly active and sociable right now or spending as much on petrol to and from work I don't seem to be getting through my salary so it needs spending on something! 😉

Cress - with some of the weird blokes I've met in my lifetime I bet we could make a fortune. Not so much the Young & The Restless more the Bald & the Boobless x

[Suffolklady]

Morning all
Sleep fairies ran away last night leaving that bloody headache... grrr! Day 9 today - determined to feel better but might just stay in bed for a bit longer...
Agnes - so good to hear from you, we all understand about being a spectator while life continues around us, I sometimes feel like I'm in a bubble that no-one can see or hear as they get on with their lives. I'm screaming but no-one is listening.
Jill, I was in tears reading about your poor dog - praying that he makes a full recovery. Sending you hugs xx
Good luck to the girls at the bar, don't forget to keep up the fluids in this heat.
Chelle - Bald babes internet dating - we could be on to something!
Have a great day x

[Maxie]

Jill so sorry about Pops....so upsetting for you on top of everything else & makes me so mad that this man didn't have his dog muzzled...please let us know how he is...xx

Agnes great to hear from you! :-)...pleased that you've not had many s/e's, we're all different & sure it doesn't mean chemo not working, are you on fec T?... Must be worrying re OH's job, mine has been told his job may not be safe by December...great!...hope you stick around on the site we've missed you! 🙂

Chelle I was born in Dublin ( my mum was irish) & we went on holiday to Bray a few times, only have vague memories because I was very small but my parents both loved the place!...hope you didnt do any online ordering on your 'steroid high' last night like I did then forgot I'd done it!!..;-)

Fi good to hear from you too, how are you doing?

Cant scroll back to see who's at bar today but good luck to all of you...xxxx

[Meggy_moo]

Morning Jewels,
Jill I'm really sorry to hear about Pops.Let us know how he is you must be devastated.
Marion don't know about head hair as oh shaved it off as it was driving me crazy.Oh is back at the same job they just keep paying them off every so often,so they don't have to give them contracts.They don't even tell them they get a txt to tell them then another txt 2 or 3 weeks later to start back.
Chelle thanks for keeping the list up to date,I don't know how you concentrate if it was left to me we would all be going on the wrong dates.
Keep shining Agnes xx

[Melrose15]

Agnes lovely to hear from you. Happy birthday xx It's good your s/e's are minimal. Glad your OH has a new job sorted and you got to spend time together.
Fi, how are you getting on? X

[Melrose15]

Jill sending big hugs. I do hope Pops will be ok. We have a big problem with dog on dog attacks around here and it's like you say down to the owners and their need for a status symbol. Makes me so mad!!
I can't remember what the docs said your swelling was down to but adrew weeks ago my friend passed out whilst eating. The side of her face swelled up, like elephant man. When she went to the docs he said it was a blocked salivary gland and when she ate it irritated it causing swelling and faintness. She took ibrufen for a week and it sorted itself out. Strange though, she did get teased ;@
Let us know how Pops is xxx

[Guest user]

Jill, so sorry to hear about Pops. It makes me so **********angry!!! How dare he decide that he does not need to put a muzzle on that dog!!! Totally bloody irresponsible and should not be allowed to own an animal. this would have made me rant under normal circumstances let alone with this crappy disease and thinking about what you already have on your plate!
Love and hugs
debs xxx

[Satsuma]

Jill, so sorry to hear about pops, that's awful. I really hope the surgery goes well, thinking of you xx

[Marionblue]

Jill -
Posts crossed. So sorry about you pops. I hope he makes a good recovery. It makes me mad to when people turn their pouches into attack dogs. Its disgusting. As if you haven't enough on your plate. Love and hugs.

Marion
XXX

[Marionblue]

Well here I am' tucked up in bed (well lying on top of the duvet actually) fan going full blast, trying to get to sleep for early start but steroids buzzing away. Will try again in a bit. Perhaps but all the beaches I have fetched up on in order of preference then list swimsuit disasters I have worn. I think a navy polka dot number with a big skirt may be top of the list. Some of you have been getting rid of your old cossies but the mum of a lady at work is a brilliant seamstress; she makes medieval costumes, so I'm thinking of asking her to put pockets in my favourite ones.

Rain not arrived yet, wish it would get a move on and cool me down.

Agnes - Glad you OH has found another job, not easy at the moment. Try to be positive, like you I have had op so no lump to check, just have to believe they are giving me the best cocktail for my C and that the poison is blitzing any evil little devils that have got through. Do you still have your head hair ? I am on 4th cycle tomorrow but still have some lady garden and some hair growing from a mole on my arm like a witch. Didn't really have any leg hair to start with.

Chelle. - Ireland is beautiful if the rain keeps away. We went to Dublin a few years ago and had a great time. Living in north Wales it isn't far to the ferry at Holyhead. The locals quite often go on a booze cruise and never get off the ferry.

Maxie. - I can so relate to everyone knowing knowing everything about you in north Wales villages. I suppose its better than no one caring about you. Everyone has been really kind and the are all fascinated by wiggy. I haven't ventured out of doors in a scarf yet but have decided to wear one to cancer centre tomorrow.

Oh dear, I'm still not sleepy. Hope to catch up after cycle 4 tomorrow.

Marion
XXX

[jmeg]

My day cant get any worse just got back from emergency vet gone to bed for an hour came down let pops out in garden and some moron idiot walking past with pitbull pops barks next minute pitbull got him under gate and its ripped half his nose and face of had to leave pops for emergency surgery sat here sobbing thats my baby,dont blame the other dog blame the owner who apparently already has an order in place that he cant take dog out without a muzzle but he has ignored it informed police and theyve just rang me back with an appointment for 3 o clock on friday what a joke,think i terrified the owner picture this he is 6ft polish built like a brick shit house with his white pitbull fashion accesorie then youve got ME 5ft 2 in my pjs covered in blood no hair screaming like a mad woman whilst he stands there trying to apoligise WTF Iam a dog owner and lover and hate what the outcome maybe towards the dog but any of my grandchildren could off been sat with pops I have solid wood gates which were locked with about 3" gap underneath and have asked this owner in the past not to walk his dog next to the gate but to have it on his other side
Sorry for my bad tale but love my dog to bits
Jill xx

[YB54321]

Agnes - sorry to hear about OH but looks like it's worked out ok x please come and chat on here and get things off your chest as it really does help. Sounds like you've kept yourself busy anyway (I too have the spending bug!). Also same for me re SEs and panic that its not working so I asked my onc and he said - trust me .........we are def poisoning you! (Which made me chuckle x)

[Meggy_moo]

Evening Jewels,sorry I've not been on for a while but I have been keeping up with all your posts.I thought things couldn't get any worse then oh got laid off ,turned out to be a blessing in disguise as we were able to spend some quality time together for the first time in a couple of years,he is now back at work.I've just been trying to get on with life,not always easy.I've had a birthday,been to LGFB last week,done some decorating bought a new mattress,if I can't go on holiday may as well sleep in luxury.
Scared chemo is not working,I have hardly any side effects,still getting my periods,have made an appointment to have my waxing done as body hair is still growing.I've had 3 ops so no lump to check,will just have to hope for the best.
Going to start coming on here more often as I need you all.I have a really busy house but I still feel lonely,everyone seems to be getting on with life and I feel like a spectator.
Take care Agnes xx

[YB54321]

Gotta love those steroids.......NOT! shattered but wide awake! Oh well thought I'd update the list!

Best wishes to Marion, TaylorJ & Claire for tomorrow x may the JJ force be with you x

Asked my mum where she fancied going for her city break for her 60th next year - nowhere off limits - where does she want to go ?????? Ireland lol. She wants to visit Bray in Southern Ireland as its where her mums family are from and my gran (Queenie to all that knew her) passed away last year so she want to go back and show me around as I've never been but they went all the time as kids.

Love to all the lovely ladies on here xx

[YB54321]

• Marionblue - 25/7 (cycle 4)
• Spurs79 - Claire 25/7 (cycle 3)
• TaylorJ - 25/7 (cycle 3)
• Jackiebee - Jackie 29/7 (cycle 2)
• ethel1 - Elizabeth 29/7 (cycle 3)
• Esther_1986 - Est 29/7 (cycle 3)
• Meggy-moo - Agnes 31/7 (cycle 3)
• MarthasSOS - Martha 31/7 (cycle 4)
• pat_1949 - Pat 01/8 (cycle 3)
• Melrose15 - Emma 01/8 (cycle 3)
• Deedee215 - Deedee 01/8 (cycle 3)
• Flip Flop - Faye 01/8 (cycle 3)
• March13 - Ann 01/8 (cycle 4)
• LaineyK - Lainey 02/8 (cycle 3)
• Linsey 50 - 02/8 (cycle 3)
• Trish1303 - Trish 02/8 (cycle 3)
• ambercatz - Jan - 02/8 (cycle 3)
• PeachyPal - Emma 03/8 (cycle 3)
• jmeg - Jill 05/8 (cycle 3)
• Cassie1 - Jayne 05/8 (cycle 4)
• Izzy1969 - Izzy 05/8 (cycle 4)
• Maxie - Sandra 06/8 (cycle 3)
• pointy - Debs 06/8 (cycle 3)
• flippantfox - 06/8 (cycle 3)
• Gussie-WW - Gus 06/8 (cycle 3)
• Artemis17 - Vicki 07/8 (cycle 3)
• Suffolklady - Cress 07/8 (cycle 3)
• cazzer1970 - Caroline 07/8 (cycle 3)
• Fimbo 123 - Joan 07/8 (cycle 4)
• titus4t - 07/8 (cycle 4)
• NicJ - NicJ 08/8 (cycle 4)
• Satsuma - Fi 08/8 (cycle 3)
• Katherine10 - Katherine 08/8 (cycle 3)
• Glasgow Girl - Fiona 09/8 (cycle 4)
• Janet C - Janet 09/8 (cycle 3)
• LinsLleisio - Lins 13/8 (cycle 4)
• BeckyJoan - Becky 13/8 (cycle 4)
• jayney234 - 13/8 (cycle 4)
• ChelleB15 - Chelle 14/8 (cycle 4)

[Maxie]

Yes Fiona & all ladies the good thing (& something I forgot to say...doh!)about all the nutrition thing was you don't have to be absolutely strict (according to the nutrition lady).....just do the best you can but nothing banned because we all need treats!!!!....yay pass the wine...:-) ....hope nobody thinks Im lecturing them btw...would never do that especially as queen of the fish& chip diet!!...xx

You've had a busy day Fiona put your feet up now & have a treat!!.... makes you feel great when you get out & about doesn't it, I just can't wear my wig at the moment, still too hot, okay with scarves but whats helped me I've realised is that we haven't lived here for long so nobody (apart from a few) know me so don't get the enquiring looks....thank God Im not still in N Wales, our little town was gossip central!...xx

Same re the bedroom drawers, bedside table full of all sorts of meds/ thermometers etc....not very sexy lol!

Marion that was an odd experience re your sight, hope you're ok now...sounds scary..xx

Jill your story scary too...bloody drugs are doing allsorts of weird & wonderful things to us...hope it settles down soon or your kids will be scared to come home!!..xx

Have a nice evening Jewels xx

[Glasgow_Girl]

Evening all

Sandra - salad for lunch today, then couscous, veggies and some chicken for tea. Quite a healthy day for me, although I did have a bag of crisps. Managed a 40-minute reasonably brisk walk - only issue was whipping Raquel off immediately I'd closed the front door after, so hot. Just don't feel confident going out with just a scarf, so I'll have to try and pick the coolest part of the day.
Thanks for the nutrition tips, most of it I try and stick to, although I do like white rice and pasta. I'm going for a diet with occasional "naughties", I'm too miserable sticking to a strict regime, depriving myself of occasional treats.

Vicki - ditto re the bedroom drawer contents. All the BC stuff was taking over, so yesterday I had to empty out and rearrange a few drawers and shelves in the bedroom to accomodate all of it. The boob in a box takes up half a drawer on its own.

Jill - good idead to investigate the business set up, sounds like a plan.
Poor you with the liquid diet, must be miserable. The crisps incident does sound funny, though, I couldn't help laughing, I'm so sorry.

Izzy - so sorry you had disappointing news. I'm sure the onc and the rest of the team will come up with a plan after the meeting tomorrow. Stay strong, lovely, we're all with you x

Cress - glad the fog lifted a bit for you today, about bl***y time!

Marion - missed you yesterday, sorry about the eye problem, hope it's a one-off blip.

Chelle - glad you back home safe. Sounds like you've mastered the injections already, well done you. Enjoy a soak in the bath and a good sleep.

Fiona
xx

[YB54321]

Thanks for the info Sandra - that mirrors what we were told at the haven so good to know its right!
Just got back from the hospital - they rang saying onc really wanted me to start the injections today so had to go back and have been shown how to do it and gave it a go as I need 2 a day! But to be honest I felt the nurses go in but mine I didn't feel at all. Big brave soldier award given to myself x I'm proper tired now so making tea and I'm going to bath & bed!

Catch you tomorrow ladies and good luck to all at the bar x

[Maxie]

Hi Ladies,

Will try & do a proper catch-up later but some interesting things re nutrition, btw this nutritionist works with the Oncology Dept at one of best cancer hosps & doesn't deal with scaremongering or latest "diet fads"....just researched facts.
Main points were get fats from foods such as nuts, avocados &oily fish. Limit butter,remove fat and skin from meat.

Eat whole fruits (as has been mentioned before by Marion I think) as juices & smoothies only count as 1 portion of your5 a day no matter how much you drink & very high in sugar.

Veg veg & more veg, including beans & pulses, tinned /frozen absolutely fine too..

Drink 2 litres of water a day ( think we all know that one) also caffeine is ok!!!... New research has shown 5 cups tea/ coffee fine, avoid sugary drinks & ....ahem alcohol! ( not a chance!)


Avoid white refined foods like white rice & pasta, ( & potatoes) eat wholegrains, quinoa, sweet potato & butternut squash

Avoid cured or smoked meats & ham, bacon , salami. Limit red meat to once a week...choose fish, poultry , eggs (eggs are now good & rubbsh to only have a couple a week apparantly) beans, soy & nuts.

Two interesting things one ...especially for HAIR/ NAIL growth....Vit D supplements to be taken in winter when not enough sunshine around, ever noticed how hair/ nails grow quicker in summer?

Second is full fat milk a real no no...latest research has shown a link with hormones from cows milk being passed on to us.

Phew lecture over & I know a lot of this is common sense & what we already know but thought I'd pass it on to you all anyway!!

Sandra xx

p.s. Chelle, glad you're back from bar ok....pain about injections though....always something isn't there!...xx

[jmeg]

Good to have you back Chelle hopfully without to many problems at least you got the cocktails down so thats another one down
Felt bit peckish so ate/sucked pack of crisps LOL YS face was a picture of terror as the side of my face just changed shape he reckons it looked like something out of a horror movie I looked in mirror and sure enough back to GI Joe and the elephant man again,so suppose I better stay away from small children again scary enough without the hair.
Think I better stick to liquids for tea good job got no taste buds anyway.

[YB54321]

Well I'm back from the bar feeling perfectly fine (avoided the greasy nuts and not an Italian stallion in sight!).
however have now got to have Tinzaparin anticoagulant injections every day for the blood clot in my line:( always bloody something with this disease! Now waiting for BUPA to call back to see if I'm covered or the onc will need to send a referral to gp to get the prescriptions. Back to the hospital tomorrow to be shown how to do injections - oh the joys!

[YB54321]

Cress - York can be a manhunt for you and I xx or maybe we can start a bald babes dating site xx

[Suffolklady]

Chelle, I'm sure we can share! xx

[YB54321]

Izzy - stay strong. The lady I was speaking to had no shrinkage to start with but by end of treatment had really good results so am sure it won't be in vain. Your onc and team will come up with the best plan of action. Big hugs x

[Guest user]

So sorry Izzy, I'm sure they will sort something else out for you, and it may not be shrinking the lump very much but at least it's mopping up any other nasties that may be hanging around, keep positive and let us know what they say, i'm sending positive thoughts over to you 🙂 xx
Hope all other Jewels are okay, good lucky today Chelle 🙂

Caroline x

[YB54321]

Pat - re Evonail - it pretty much scratches off without using any remover so I wouldn't bother sending for the cleanser x

[Marionblue]

Hi evryone
Didn't post yesterday as I had this wierd thing with my eyes. I went to have my bloods done done and when I came back indoors it was like looking through a prism, a bit like a film they show of how an insect sees things. Thank heavens its gone today. It was probably to with with hayfever or because the light is so strong. Didn't like it what ever it was. Just never know if these things are down to chemo or would have happened anyway.
The trouble with not posting for a day is trying to catch up with what everyone is doing / going through.
Love to evreyone with problems an respect to those with the energy for doing something constructive.

Chell- Glad your getting your cocktail toaday and that it all goes well. Re- the wrap around: When we were babies, my Mum used to wrap a Welsh shawl around herself and baby and tie in a knot. She would do the housework and shopping with baby safely next to her body the only drawback was when she put me down for the night I screamed non stop as I'd had my security taken away.

Cycle number 4 tomorrow. That is 2/3rd of the way through chemo. We haven't had any rain in north Wales yet but are due a downpour tomorrow. This will be great for my hayfever but will be a nightmare driving over Denbigh Moor to the hospital.
Still, you can't have everything.

Pat - I am using Acetone Free nail varnish remover, which is supposed to be much more gentle with your nails than ordinary remover. My nails are ok so far.

Marion
XXX

[pat_1949]

Hi Jewells,
I don't post very often but I read posts every day, I am with you all the way.
Can anyone help with my nail problem? One of my nails has started going black, slightly from the cuticle end, I have purchased some Evonail but it says not to remove with nail varnish remover but to use Evoskin Cleanser, can I use anything else? or do I now have send for the cleanser. It's just annoying they dont give that information when you order, unless I missed it.
Good luck at the bar today Chelle.
Xxxx

[YB54321]

Well I can go ahead today as port still working but they think there is some clotting in my line so think I need 6 weeks of heparin injections to thin my blood 😞
Still waiting to start and Cress - you'll have to fight me for any hot italians lol x

[Flip_flop]

Morning jewels,
cloudy and rainy here but still hot. Might be going to my sisters later who lives on the coast but think its supposssed to pee it down there also, oh well might just have to take cover in the amusments on the front for a bit and waste money on the 2p machines- i get quite an addiction once i strart.
chelle- good luck at the bar today. half way there!!!!!!
maxie - you sound like youve been a busy bee already today, ive only just got up.
izzy - sorry you didnt get the news you were hoping for. Please dont think youve had the chemo for nothing, try to think that its giving your whole body a flush to make sure no nasties anywhere else.
emma - when i think of your name i now have the image of a naked person laid on a bed in the pose of that leonardo di vinci painting. If that wasnt weird enough in my vision you have hair!!!! you need to tell me another story so i can recompute my brain with that vision.
hope all those with headches, swollen faces, sore bums etc are doing ok.
faye x

[Suffolklady]

Morning lovelies.
Goodness me, it's muggy out there!
Fiona, I love the idea of you sneaking in as an extra in casualty! I used to watch it, years ago, when nurse 'Charlie' was in it but then I jumped ship for ER - got the entire 15 seasons to keep me company through chemo!
Debs - get list-making for your trips - they sound wonderful - I lived in Dubai in the mid-70's with my family - long before it became a tourist resort... it was a great place even then.
Chelle - you may be drinking alone but you know that we are all virtually by your side - don't forget to look out for any hot Italians for me....
Emma - glad you have a flusing loo! that was such a funny story!
Vicki - you're right, this C thing changes so much in our lives - I've been single too long to have a 'secret drawer' but you're right, everywhere I look I see antibac spray or wipes, boxes of pills, gauze dressings. The fridge is full of injections and cordial instead of white wine....
Jill, Good luck with your business, it sounds like a great idea. I've set up a couple in my time and never regretted it. Agree, tops and bottoms should never clash!!!
Izzy, hang in there, goodness that must be so tough not getting positive news on the shrinking front. sounds like you have a great team though - let us know how it goes, we're all here for you x
So, Cycle 2 day 8 - couldn't sleep last night - joints still aching and the Monster Headache coming and going - but then took some painkillers at 5am, slept for 2 hours - and woke feeling much better! My brain fog seems to have lifted which makes all the difference - still feeling a bit fatigued but not spaced out.
Hope you all have a great day, catch up later x

[YB54321]

Im still waiting to start as onc wanted a chest x-ray doing because of the pain round my port. Hope it doesn't stop them doing chemo!

Jill - my cousin makes baby carriers out of material that basically just wrap around the baby and the mum but just a big piece of material and she's doing really well but I bet if you made those and personlised them as well they'd sell well. Just a thought x

[Maxie]

Izzy, sorry you didnt get the news you wanted....the MDT. will take the best course for you I'm sure....please let us know how you get on....enjoy LGFB! 🙂

Jill, good that you're off for few days, like you say may be opportunity to get something else started....sounds like a good little business you could have there!..xx


Finally its cooler!...:-).already been into town & tidied house, new friend I met at local BC group arriving in a bit, she went to a nutrition workshop yesterday specifically aimed at BC patients, she's going to bring me some info,if anything stands out as important will pass it on to you all.

[jmeg]

Hi Melrose I do the birth blankets with name DOB weight n time on and christining shawls and the bibs with stupid sayings on if your on ebay you ll see what I mean I dont sell though ebay because of fees and postage but maybe an avenue to explore Ive always wanted to set myself up but with 4 kids always had to work now I work to pay the bills so maybe can put a positive note to this BC and come out the other side not having to slave for other people LOL I ve put a sick note in but if I go back after it and then end up of sick again I think I lose my first 3 days each time so really need to think about the costs.Then at the back of my mind I have the niggle of all the what ifs so cant afford to burn all my boats yet.One of the reasons my ONC is doing weekly T after EC is because it can effect the use of your hands and because of my embroidery there something I need so also got that worry as well I am feel that he is being brilliant with me and always seems more positive than me at times and dosnt come across as its only his job.
Izzy sorry you didnt get the news you wanted they took my lump and lymphs out before chemo,cant imagine how you and others feel still having it there I was like yeah I ve got it now just get it out which they did xx
Made a couple of scarfs up yesterday and my mum was like why bother with colours you always had brown hair so why colour co-ordinate everything now lol but not sure if its just me but you I wouldnt wear a top that clashed with my bottoms maybe I am just getting to fussy now
Lonely trip to the bar Chelle hope you dont pick up any strangers glad to know youve got mum to pamper you xx
Take care Jewels of to surf the net for ideas
Jill

[Melrose15]

Hi Izzy. Sorry you didn't hear good news. Maybe they'll change your cocktail? It's good you haven't side effects, mine have been more niggly and annoying than anything else. The fatigue is getting to me but the heat doesn't help. I can't wear my wig in this weather but have enjoyed trying different things with my scarves. Been on you tube looking them up. Enjoy LGFB It's definitely worth it and will cheer you up. Have good day and let us know what the onc decides xxx

[Izzy1969]

Hi all, it's been a week or so since I posted but been reading your posts and hope everyone is doing as best they possibly can be.

Chelle - sorry to hear about all the problems you've been having, its good you've able to have a some fun times too with the concert and the look good workshop (got mine today, really looking forward to it). You sound such a strong person. Good luck at the bar today. By the way my lashes and brows still fine too but I'm plastering them with rapid lash every night because I've heard they're the last thing to come out and can take ages to grow back.

Sandra thanks for mentioning my situation to your onc about the C part of the FEC being missed - I had a feeling the C part was a potent one but my BN has reassured me that the E is a wonder drug too and just missing C this once will have no affect on the overall treatment.

Jmeg sorry to hear your problems in hospital, hope you're feeling better now.

Benedictus thanks for the reassurance about tax and Cress and Katherine sorry to hear you've had such a bad time on it and hope you're feeling better too. I'm due to start tax six days before going abroad and I'm really worried. I had no SE with Fec but the tax sounds scary.

Joan I agree totally with not wanting to feel alone in this. We wouldn't wish it on anyone, but also it is comforting to know that someone else out there knows exactly how you're feeling. Have you had your MRI yet?

Caroline it is totally understandable to be upset at the hair loss. I feel shallow too but I just can't wait for it to grow back even though my wigs look nicer than my own hair!

My week has been the usual rollercoaster. I feel I'm turning into a cancer bore. I'm fed up having to wear the wigs in this heat. I'm fed up having to do my stomach injections. Then to top it all off I went for my xrays to check the lump is shrinking only to find out the chemo hasn't made any difference, the lump has not shrunk at all. I felt so angry and upset, my initial reaction was to just stop the chemo and just have surgery, I just want rid of it. They're discussing my case at the MDT tomorrow and I'm seeing them straight after when they'll let me know the best way forward. I feel that chemo hasn't done anything and I lost my hair for nothing. Has anyone else experienced this?

Oh well, got my look good workshop this afternoon so that's something to look forward to!

xx

[Melrose15]

Hi Jill. Glad you've taken some sick days, you're such a busy bee and could do with a rest. Do you have to go back to hospital at all? I hope you don't mind me asking but what do you sell on your stall? Sounds like your very handy making stuff?! X

[jmeg]

Good luck Chelle I also loved my goodie bag from LGFG session
Morning Jewels,had a really lazy couple of days definatley not like me aranged sick note for this week at least cant go in looking like elephant man not as painful today just wish swelling would go down,
Un decieded if I should take the full time on the sick and concentrate on getting my embroidery business up and running properly because I dont normally have the time whist working and even though I only get SSP at least its something and at the moment it seems to be one or the other and dont want to lose what trade I ve already built up,I should be out there making a killing on all this new HRH baby stuff but brains willing bodys not LOL may take laptop in the garden and do a bit of market reserch about setting up small business see if theres any goverment backed schemes last time I checked only available to people on benefits then body can chill and brain can work.
Part of my retail therpy on Monday was to buy a gazebo myself and YS spent 2 arguing hrs to build it and then it chucked it down most of yesterday just my sodding luck LOL reasons like this I dont do the lottery.
Well going to grab a shower and see if I can make myself feel remotley human.
Enjoy you day Jewels xx

[artemis17]

Just to add this observation lol...
My bedside bottom drawer used to be filled with "certain things" ie nice lingerie, fun stuff 😉 but it is now home to my picc line covers, hair net, boob in a box, themometer etc etc. Certainly shows how the "C" has changed my life albeit temporarily!!.

xx