Hi Fiona, good to hear from you again. I just wanted to reply about your sore hands and feet and the fact that, like me, you've had a bad time with Tax this first time. Sandra gave me a good tip which was to moisturise your feet last thing at night (I use Diprobase which I have for my eczema) and then wrap them in clingfilm for the night to keep the moisture in (I think this is like a treatment you can do for burns). I've done it for the past two nights and it's really worked a treat. There is still some redness and pain but I can walk now - I was very down when I couldn't so it has helped me a lot. While I was in hospital, I also asked my onc's registrar (onc on holiday) to prescribe vitamin B6 (based on a suggestion made in the BCC information booklet on Tax - have you got this?). He said it could all be hocus pocus and wasn't sure if it would work but prescribed it anyway, so I'm taking it once a day. My hands are fairly cleared up although the skin is peeling now as if I've been sunburnt, so I just continue to moisturise loads.
I saw the registrar at clinic yesterday and he is reducing my dose by 20% next time. I feel fairly mixed about this. Obviously I want to throw all I can at the cancer, so a reduction makes me nervous. On the other hand, he tells me that it is more important to be able to continue the cycles on schedule and to the full amount of cycles. He reckons if I had another dose like the first I wouldn't be able to have a third. As I really want to get the full four cycles without interruption or delay I guess I have to go with the dose reduction. I figure if it's all okay next time maybe I could ask if we could go up to a 15% or 10% reduction in the third Tax. Also, my weight is 5% less than they used to estimate the first dose, so I did get a bit too much first time anyway.
Good to hear from you again, I missed you and all the other Jewels not on FB during the week. x
Hi ladies, I am not on Facebook but am happy to join to be able to keep in touch with you all. Chelle, please can you remind me what I need to do? Thanks. Xxx
Think I,ve managed to sort a few bits out on here but not sure defo prefer FB
I cant find you on FB, can you try and find me? my name on there is edited by moderator the picture on there is with me with long hair with my daughter,,I missed you all last week because I didnt know how to find you :t
Have to agree, its not very user friendly at all!
Definately think this site is not as good, as you cant scroll through the messages once you are replying, and its more "spread out" so you cant see the avatars so well. Compared to the old format this is a bit pants..
I expect i will still come on here especially when looking for advice or have a query for something we've not yet been though like radiotherapy, herceptin, tamoxifen and the reconstruction etc, and definately to keep in touch with the Jewels not on fbook but cant see it being as nice as the chat we have in our "secret" group. So please Fiona and othes come onto facebook??? 🙂
Couldn't agree more Chelle. Facebook is so much easier with our private area. Forum doesn't stay logged in for long either, I had to log back in after a short while.
Yeh were back, so glad I found you, now I need to try and work my way around this site xx
ooh its all arse about face lol...xx
Looking good..............just hope I am posting correctly, couldn't find any other way than replying to one of the posts - hope it works.
Woohoo We're back.
I've missed y'all.
Hope I've posted in right place.
Soon find out.
Oops posts crossed Gus!
To upload photo go to your profile, click on the 'avatars' tab and 'upload an avatar' and away you go.
Had a lovely couple of days away in Suffolk and was lovely to meet up for a coffee with Cress!
Hope everyone is doing ok and all that have been at the bar are doing ok.
Haven't worked out how to do that Clare! Couldn't find the link to upload an image....
I chose the pig in the avatar section, thought it was apt at the moment!! x
It posted lol - Just to keep our Admin up to date. MY LAST CYCLE IS......11th September YAY xxxx
Back on yay!...no idea what I'm doing tho so hope this posts!