'June Jewels' - Precious and shining through :)

[YB54321]

Jayne - I sent you a friend invite last week on FB - if you accept that I can add you to the group x

TaylorJ - just set up an account on FB (just add the absolute min info you need to and then you can set your account to private if you want ) if you then PM me your details and I'll send you a friend invite and then I can add you to the group x

[fimbo123]

Hi Fiona, good to hear from you again. I just wanted to reply about your sore hands and feet and the fact that, like me, you've had a bad time with Tax this first time. Sandra gave me a good tip which was to moisturise your feet last thing at night (I use Diprobase which I have for my eczema) and then wrap them in clingfilm for the night to keep the moisture in (I think this is like a treatment you can do for burns). I've done it for the past two nights and it's really worked a treat. There is still some redness and pain but I can walk now - I was very down when I couldn't so it has helped me a lot. While I was in hospital, I also asked my onc's registrar (onc on holiday) to prescribe vitamin B6 (based on a suggestion made in the BCC information booklet on Tax - have you got this?). He said it could all be hocus pocus and wasn't sure if it would work but prescribed it anyway, so I'm taking it once a day. My hands are fairly cleared up although the skin is peeling now as if I've been sunburnt, so I just continue to moisturise loads.

I saw the registrar at clinic yesterday and he is reducing my dose by 20% next time. I feel fairly mixed about this. Obviously I want to throw all I can at the cancer, so a reduction makes me nervous. On the other hand, he tells me that it is more important to be able to continue the cycles on schedule and to the full amount of cycles. He reckons if I had another dose like the first I wouldn't be able to have a third. As I really want to get the full four cycles without interruption or delay I guess I have to go with the dose reduction. I figure if it's all okay next time maybe I could ask if we could go up to a 15% or 10% reduction in the third Tax. Also, my weight is 5% less than they used to estimate the first dose, so I did get a bit too much first time anyway.

Good to hear from you again, I missed you and all the other Jewels not on FB during the week. x

[TaylorJ]

Hi ladies, I am not on Facebook but am happy to join to be able to keep in touch with you all. Chelle, please can you remind me what I need to do? Thanks. Xxx 

[Glasgow_Girl]

Morning everyone

I consider myself to be reasonably computer literate, but the upgrades to the site are driving me mad. Took ages this morning just to find our thread.
Missed you all so much., it's been a long week without hearing all your news and being able to share mine.

Think I might investigate setting myself up on Facebook later, never been on it as never had the time when I was working. Busy day today, including having lunch out with daughter.
Chelle, I'll PM you if I set myself up on FB.


GP on Wed, signed off for another two months, plus said she won't sign me off until all treatment complete plus another week or two as a "transition" to prepare myself for going back to work. She is very kind, but I do crave some kind of normality, which includes my job. So, looks like end November for work at the earliest. Even then, I will be having a phased return, already discussed with my employer.

Still struggling with the sore feet and hands, although the feet are improving slowly. Just worried my chemo next Thursday might be delayed because of this reaction to the Tax, GP thought it might be or likely that they might reduce the dose next time. Will see at clinic on Tuesday.

Hope everyone is well, still coping, keeping calm and carrying on.

Love to you all,
Fiona
xxxxxx

[jmeg]

Think I,ve managed to sort a few bits out on here but not sure defo prefer FB 

[Gussie_WW]

Think I've found you Jayne but Chelle will need to do the honours to add you. 🙂

[cassie1]

I cant find you on FB, can you try and find me? my name on there is edited by moderator the picture on there is with me with long hair with my daughter,,I missed you all last week because I didnt know how to find you :t

[Maxie]

Yes have to agree, facebook group so much easier & better for keeping track of everyone.

[Gussie_WW]

Also have to agree. FB is so good in the way you can comment on people's posts without needing to keep notes of who said what . If we could have sub-threads under June Jewels that would help of course.
Clare / Gus

[Guest user]

Have to agree, its not very user friendly at all! 

[artemis17]

Definately think this site is not as good, as you cant scroll through the messages once you are replying, and its more "spread out" so you cant see the avatars so well. Compared to the old format this is a bit pants..

I expect i will still come on here especially when looking for advice or have a query for something we've not yet been though like radiotherapy, herceptin, tamoxifen and the reconstruction etc, and definately to keep in touch with the Jewels not on fbook but cant see it being as nice as the chat we have in our "secret" group. So please Fiona and othes come onto facebook??? 🙂

xxx

[PeachyPal]

Couldn't agree more Chelle.  Facebook is so much easier with our private area.  Forum doesn't stay logged in for long either, I had to log back in after a short while.

[YB54321]

We need to get everyone over to Facebook - easier and more private

[YB54321]

Not liking the new format - cant access anything properly on my iPhone or iPad and I never use my laptop normally. I can't change my photo as all my stored ones are on my phone and I can't be bothered messing around so I'll have to stay as ice cream! (Very weird avatar choices!)

[pat_1949]

Hi Pat here, I had trouble getting on using my I pad but went on new password link and got through.
I had my 1st Tax today!!!! Was there all day didn't get home till 5 all ok so far, will keep you posted.
Not sure i like this new system, but I suppose we will get used to it. Hope all other Jewells are getting on ok, I've missed the forum. Xxxx

[Maxie]

Thanks Deb will try that I am on ipad but never had a prob before,......pic I wanted is only on ipad too (sulk!) x

[Guest user]

Sandra, I couldnt do it on my ipad had to use the PC as the same thing happened to me

[Marionblue]

Martha - Just noticed your post. Great to hear from you. re you well?

Marion
XXX

[Maxie]

This site is v weird still!!....tried & tried to upload my new avatar & it gets to the cropping bit which I do but when I click on the 'save & continue' button it won't budge...grrrr
Anyway enough of my tech problems good to see some of the gang on here again...yay!..xx

[cassie1]

Yeh were back, so glad I found you, now I need to try and work my way around this site xx

[artemis17]

hi there Fiona, missed you and your chattiness! xx

[artemis17]

ooh its all arse about face lol...xx

[PeachyPal]

Looking good..............just hope I am posting correctly, couldn't find any other way than replying to one of the posts - hope it works.

[Marionblue]

Woohoo We're back.

I've missed y'all.

Hope I've posted in right place.

Soon find out.

Marion

XXX

[Guest user]

Oops posts crossed Gus!

[Gussie_WW]

To change your avatar - go to My Profile
Select the Avatars tab
Under your current avatar look for the tiny words "upload an avatar"
(Eventually manage to hit the link with your chemo sausage fingers - or was that just me?)
Follow the steps to upload your pic of choice.

[Guest user]

To upload photo go to your profile, click on the 'avatars' tab and 'upload an avatar' and away you go.

x

[Guest user]

Hello Ladies

Welcome back!

Had a lovely couple of days away in Suffolk and was lovely to meet up for a coffee with Cress!

Hope everyone is doing ok and all that have been at the bar are doing ok.

Debs xx

[Suffolklady]

Haven't worked out how to do that Clare! Couldn't find the link to upload an image....

[Gussie_WW]

Just waded thru the login etc and I think I set my avatar ... Hello everyone, particularly the non-facebookers!
Clare aka Gus

[Glasgow_Girl]

OK, Sandra, the van must be a default. Just changed mine to a piano for now. Don't really like any of them, so will stretch my techno skills to upload something else - watch this space!

[Maxie]

I chose the pig in the avatar section, thought it was apt at the moment!! x

[Glasgow_Girl]

Why am I a van, Sandra a pig and Martha a giraffe.? Plus can't make out what Chelle's piccie is!
My next task is to figure out how to load a decent piccie.

Martha, welcome back lovely, missed you so much.. Hope you're ok?

xx

[Glasgow_Girl]

Hurrah, we're back, missed you all so much. The site looks quite different, so hope I'm doing this properly!!


Fiona
xx

[MarthasSOS]

It posted lol - Just to keep our Admin up to date. MY LAST CYCLE IS......11th September YAY xxxx

[Maxie]

Back on yay!...no idea what I'm doing tho so hope this posts!

[YB54321]

LaineyK - Lainey 23/8 (cycle 4)
Linsey 50 - 23/8 (cycle 4)
Trish1303 - Trish 23/8 (cycle 4)
ambercatz - Jan - 23/8 (cycle 4)
PeachyPal - Emma 27/8 (cycle 4)
Cassie1 - Jayne 27/8 (cycle 5)
Izzy1969 - Izzy 27/8 (cycle 5)
Maxie - Sandra 27/8(cycle 4)
pointy - Debs 27/8 (cycle 4) FINAL
flippantfox - 27/8 (cycle 4)
Artemis17 - Vicki 28/8 (cycle 4)
Suffolklady - Cress 28/8 (cycle 4)
cazzer1970 - Caroline 28/8 (cycle 4)
Fimbo 123 - Joan 28/8 (cycle 5)
titus4t - 28/8 (cycle 5)
Glasgow Girl - Fiona 29/8 (cycle 5)
Melrose15 - Emma 29/8 (cycle 4)
NicJ - NicJ 30/8 (cycle 5)
Gussie-WW - 30/8 (cycle 4)
Janet C - Janet 30/8 (cycle 4)
Katherine10 - Katherine 02/9 (cycle 4) FINAL
jmeg - Jill 02/9 (cycle 4)
LinsLleisio - Lins 03/9 (cycle 5)
BeckyJoan - Becky 03/9 (cycle 5)
jayney234 - 03/9 (cycle 5)
ChelleB15 - Chelle 04/9 (cycle 5)
Satsuma - Fi 05/9 (cycle 4)
Marionblue - Marion 05/9 (cycle 6) FINAL
Spurs79 - Claire 05/9 (cycle 5)
TaylorJ - 05/9 (cycle 5)
Jackiebee - Jackie 09/9 (cycle 4)
ethel1 - Elizabeth 09/9 (cycle 5)
Esther_1986 - Est 09/9 (cycle 5)
Meggy-moo - Agnes 11/9 (cycle 5)
MarthasSOS - Martha 11/9 (cycle 6) FINAL
pat_1949 - Pat 12/9 (cycle 5)
Deedee215 - Deedee 12/9 (cycle 5)
Flip Flop - Faye 12/9 (cycle 5)
March13 - Ann 12/9 (cycle 6) FINAL

[YB54321]

Whoo hoo we're back - hello my lovely Jewels x

[YB54321]

Good luck to Jackie, Elizabeth & Est today.

Anyone not on Facebook can set up an acct with really no info and set their profile to private which means nobody can find you there or read anything you post and then you can still join the Jewels group which again nobody can read apart from the members.
Just useful for after this crazy journey if people want to keep in touch x

[YB54321]

• Jackiebee - Jackie 19/8 (cycle 3)
• ethel1 - Elizabeth 19/8 (cycle 4)
• Esther_1986 - Est 19/8 (cycle 4)
• Meggy-moo - Agnes 21/8 (cycle 4)
• MarthasSOS - Martha 21/8 (cycle 5)
• pat_1949 - Pat 22/8 (cycle 4)
• Deedee215 - Deedee 22/8 (cycle 4)
• Flip Flop - Faye 22/8 (cycle 4)
• March13 - Ann 22/8 (cycle 5)
• LaineyK - Lainey 23/8 (cycle 4)
• Linsey 50 - 23/8 (cycle 4)
• Trish1303 - Trish 23/8 (cycle 4)
• ambercatz - Jan - 23/8 (cycle 4)
• PeachyPal - Emma 27/8 (cycle 4)
• Cassie1 - Jayne 27/8 (cycle 5)
• Izzy1969 - Izzy 27/8 (cycle 5)
• Maxie - Sandra 27/8(cycle 4)
• pointy - Debs 27/8 (cycle 4) FINAL
• flippantfox - 27/8 (cycle 4)
• Artemis17 - Vicki 28/8 (cycle 4)
• Suffolklady - Cress 28/8 (cycle 4)
• cazzer1970 - Caroline 28/8 (cycle 4)
• Fimbo 123 - Joan 28/8 (cycle 5)
• titus4t - 28/8 (cycle 5)
• Glasgow Girl - Fiona 29/8 (cycle 5)
• Melrose15 - Emma 29/8 (cycle 4)
• NicJ - NicJ 30/8 (cycle 5)
• Gussie-WW - 30/8 (cycle 4)
• Janet C - Janet 30/8 (cycle 4)
• Katherine10 - Katherine 02/9 (cycle 4) FINAL
• jmeg - Jill 02/9 (cycle 4)
• LinsLleisio - Lins 03/9 (cycle 5)
• BeckyJoan - Becky 03/9 (cycle 5)
• jayney234 - 03/9 (cycle 5)
• ChelleB15 - Chelle 04/9 (cycle 5)
• Satsuma - Fi 05/9 (cycle 4)
• Marionblue - Marion 05/9 (cycle 6) FINAL
• Spurs79 - Claire 05/9 (cycle 5)
• TaylorJ - 05/9 (cycle 5)

[Glasgow_Girl]

Just a quick post before lights out and the sleep fairies come (hopefully).

Emma (melrose) - sounds like you having fab time in France, great - you deserve it.

Marion - I don't do Facebook either, but we might be able to PM? Sorry you had bad day today, hope for better tomorrow.

Nicj - what a lovely Greek man - and a freebie scarf, how thoughtful. Hope you enjoy the yacht on Tuesday.

Cress - glad you bounced back after a downer. Enjoy a bit of ogling, no harm done.

Vicki - yes, a skateboard has been suggested. If feet get any worse, I will be crawling around and going up and downstairs on my bum. Catch you on the other side of the update.

Will miss you all dreadfully during the forum upgrade, hope it won't take too long.
Best wishes and hugs to all the JJs,

Fiona
xx

[Suffolklady]

Just got to write this quickly while I remember. Found this very useful saying for when you want to say to someone that you're not interested in their complaining.... it's translated from Polish I believe
'Not my circus, Not my monkeys'

I'm going to be using this one!!!
Catch you later shiny peeps. x

[artemis17]

Well a week without the site, hopefully some more Jj can join us on facebook. 🙂

To those who cant, i look forward to catching up on the other side. Oh for those in the know my porn star name is apparently Rusty Rolley...sounds painful!!!.

Nicj the holidays is keeping us entertained and sounds really special. Its good you are finding humour in situations still. Enjoy the rest of the break, weathers picking up here again so you may need your shirt...

Gus hope you find us on fbook, retail therapy is so nice when its stuff you fancy rather than need, a few little purchases "just because" always lighten the load.

Fiona, sorry youre still in pain re feet, this tax seems to be hitting everyone hard, does any of your family have a skateboard, you could kneel on that and scoot around the house ..or get things sent into you without having to stand up...i'll miss your chatty well thought out posts, so take care til we can post again.

Marion, same to you, stay well if you can, rest lots and catch up soon.

Peachy, i know its a hard thought to face, but ultimately like hearing about having cancer, we suprise ourselves by how much we can deal with...and its also one i will have to face soon as im being tested in November, before my reconstruction plan is to be looked at. They are currently looking at my mums tissue samples. (she died at 50 from secondarys)

Emma, enjoy France, i prefer white or rose as get major headaches with red, but its so nice to hear youre chilling, feeling good and having fun. Hope all your boys are keeping you well looke after.

Ok so thats the last post for a while, hope to catch up with any of you on fbook, and everyone else, see you soon. take care of yourselves as we're all part of a special group of strong, insprirational and fiesty wenches lol. The Jewels rock!!! 🙂
xxxxxx

[Maxie]

Cress Bondi rescue!!!...you do make me smile 🙂 glad your feeling better today...xx

[Maxie]

Fiona have pm'd you lovely!..x

Enma aww you missing us?! sounds like your having lovely time over there, know what you mean about wine, doesn't taste the same, had some white this aft tho & went down ok for first time in ages!
yes few MIA arent there, ditto re Martha not replied to text although I did say in it not to reply if busy etc, am still worried about her tho..x

Marion sad you've not had good day today hope you pick up again soon, hows your hand? X

Gus/Clare good to get a bit of retail therapy :-), think Chelle having trouble finding you on f/book, will pm you my name as its quite unusual (surname) & you might be able to find me then get added that way(complicated!)..x

Nic wow enjoy the day on the yacht!..aww God love the little greek man trying to get you in a tight shirt (i hate tight things even when not 30+ degrees!)& giving you the scarf thats lovely & great phrase to remember too..x

Good day today, long walks in sun & fresh air & couple of glasses of vino that I could actually taste for once!...night night ladies....hope to see some more of you in f/book land!...xx

[Suffolklady]

Had a real downer of a day yesterday - a real black cloud moment. Happily, it has blown away and I'm feeling better both physically and emotionally. Settling down to watch Bondi Rescue - lots of good looking Aussies wearing not very much - how very sad am I!!!
Hope you've all had a fab weekend Jewels - catch up when the new forum is up and running. xxx

[NicJ]

Going out on a yacht for the day on tues, will be 36 degrees and little shade. so went to a nice shop that had an oversized grandad shirt white with blue stripes in the window, that looked like the perfect coverall way past my knees.
scared the poor greek owner by first choosing swim trunks for Tim - had to get the useful greek phrase for autism out and show him, shrug and a sad face but an understanding "he is your son, what can you do?" Then I pointed to the big shirt, he tried to say a medium would be ok for me and insisted I try it on, it was a little tight and I really wanted voluminous , bear in mind that I am only 4ft 11, and now clock in at nearly 12 stone thanks to bloating, so not a great look, the man was trying to be kind saying medium ok only got extra large next. I had to try it on, shades of Demis Roussos without the hair and beard. It reminded me of when I was expecting the boys and hit 14 stone (before boys was 7.5 stone and a size six).
i took pity on the man giggled, quite alot and waived the "I have cancer, chemotherapy" greek phrase saying, must stay out of sun, boat trip. He shrugged again "this is the life we have, get through it with laughter" with the saddest expression on his face and while he was putting my stuff in a bag put a pink and black stripey scarf that goes brill with the shirt saying "much laughter, much life". I think i'll take his advice.
See some of you in Facebook land, or when the forum comes back again.
love to all
NicJ
xxx

[Gussie_WW]

Evening all Jewels. Just popping back on as been busy this weekend - went for another sacro cranial therapy on say morning and felt really good all weekend so been busy doing stuff. Even went shopping, something I haven't had energy for in ages! Yes, I know, I do use up my energy on walking the dog. Didn't exactly go mad, came away with a bar of fancy soap and a new notebook from paperchase. Mmm, stationery.
Chelle, I'm pm'd you my fb details. Not sure whether we can still message each other here meantime...
hope the holidayers are having a great time and those still detained at her majesty's pleasure at hotel NHS are released soon.
Clare aka Gus

[Marionblue]

Hi Everyone

Feeling very tired and achey today. Just posting to say I don't do Facebook so I'll catch up on other side of forum update. Hope those who have been at Hotel NHS are out soon and those with bad feet, hands, mouths etc.. get some relief soon. Wishing all the best to Emma (peachy). You lucky girls on holiday, have a great time. Bye for now.

Marion
XXX