I remember how much I wanted to learn about other people's experiences that had a similar diagnosis to mine. I was diagnosed with 115 mm high grade dcis Dec last year. It was a real shock because I had several mammograms and ultrasound scans due to repeated bouts of mastitis but they had all been clear, it was only when a doctor decided to do a biopsy and then MRI they found the dcis. I had mastectomy and sentinel node removal in Jan .Luckily ( although I didn't feel lucky at the time) it hadn't spread to my lymph nodes so I have needed no further treatment. As my dcis was only visible on MRI my consultant has agreed to include an MRI in my future check ups. I've just had my 1st one and everything clear. I wish you luck ,it's a scary rollercoaster of emotions which I found took longer to heal than any physical wounds.xx
Similar situation here too, diagnosed on 26 Oct, confirmed DCIS on 8 Nov and had mastectomy on 14 Dec.
Honestly do as much as you can to save natural tissue. I had DIEP reconstruction and healing well. It's hard to get over initial shock and think prevention of further recurrence is best but work with your specialist because your mental state is fragile not just with your own diagnosis but your recent family events. These psychological impact of a cancer diagnosis is huge so it will of course influence your decision.
My cancer surgeon called on Friday evening and gave me the all clear, so no further treatment for me despite them telling me initially the felt radiation therapy would be likely next. Have a little faith and trust in your specialists and ask a lot of questions.
Good luck and take care,
Try to have a happy christmas
After suffereing with bloody discharge and a lumpy left boob I visited the doctor on my mums birthday - 9th October. After various FNAs, a core biopsy and a micro ductecotomy 2 weeks ago (and after the consultant constantly telling me not to worry its likely just a papilomma) on Thursday I was diagnosed with hugh grade DCIS.
I always knew my own body and knew I wouldnt get an all clear result. Its been such a horrible few months as my Dad passed away from cancer on 1st November but my gut always told me I had something awful inside me.
Following the MDT I have been advised to have a wide exision on 8th January - if we can get clear margins then radiotherapy will follow and Tamoxifen if I test postive for it. If its not successful and we have no clear margins then I will need a masectomy.
Now because of my Dad dying, and not wanting to put myself at any more risk (especially with having young children) I really just want to have a masectomy. Im actually thinking of asking them to do a double masectomy as I have found lumps on my right side this morning too. This DCIS does not appear on any ultrasound or mammogram that I have had soit's invisible and thats my worry. If it cant be seen then any follow up scans I have in future would not show anything untoward.
Even more worrying is that i have had thisconstant pain under my left arm and across my collar bone so Im convinced that something untowards is going on there too.
Does anyone have any advice at all? I honestly think I just want both boobs gone.