Just been diagnosed

[Lisa_x]

So pleased that your scans are clear Purple, great news xxxx

[Guest user]

really chuffed your scans were clear purple! alex xx

[shazza_bazza]

really pleased to hear the good news it such a relief when your able to just focus on the treatment take care x

[Guest user]

Oh yes I could have kissed the onc lol I was spook relived I can tell u, now onwards n upwards start chemo in 2 weeks let's get this gremlin out!!!! Love n hugs to u all xxxxxxx

[Historygirl]

That's great news Purple! I'm really pleased for you. Now you can lift that particular weight from your shoulders and start getting on with the treatment. xx

[Guest user]

Phew just to let u all know cr scan came back all clear what a relief!!!! Start chemo in 2 weeks fect for 4 sessions every 3 weeks xxxx

[Guest user]

Aww thank you sweetheart good luck with u to and remember we are.all here for u darlin xxxxxx

[Historygirl]

All the best for today Purple, thinking of you.

Good luck with the MRI tomorrow Janey.

(Although I'm not officially diagnosed yet, I get results of biopsies on Friday, the consultant told me that I do probably have cancer).

Such a stressful time for all. Take care.

[Guest user]

Thanks alex will let u know how I got on xxxxxx

[Guest user]

good luck with your results tomorrow purple. will be thinking of you. try and get some sleep tonight!! alex xxx

[Guest user]

((((((((hugs))))))) Janey I feel the same got it in to my head it's spread but till I go 2 moz for results I try not to think about it, my lump isn't even hard no redness around it nothing , keep ur chin up and remember we are all here for you xxxxxxxx

[Guest user]

i feel dreadful today, i keep getting indigestion and heartburn and more painful than ive ever experienced. i woke this morning really early and felt so low.have my mri on thursday and im scared. my breast area where the thickening is looks bigger to me now. i dont know how im going to get through this i feel weak and scared all the time and treatment hasnt even started yet.im terrified its gone somewhere else.helpppppppppp.

[Guest user]

Thank you rose does any one get stabbing pains in the breast where the cancer is? I keep getting them not all the time but every now n again? Xxxx

[Guest user]

Hello
I am sorry to hear that you have been dignosed with BC.
I have an appointment today with my surgeon for a dignosis for my breast condition.
If it helps I know how you must feel right now, previously I had never given Cancer much thought but now I am dreading todays visit to the hospital myself.
However, if it's any help to you my advice is to ask for help and support from the Breast Cancer Nurse Team, where you live as they will be able to help you through all the future decisions you have to make and not least of all to us women help us with dealing with the loss of our hair and breast.
Also my advice to you is to read as much as you can absorb about your condition if you feel that knowing "everything" will help you through it.
When you are feeling low talk to a Breast Cancer survivor on the phone there are many woman who have been through this experience and they can help you a great deal in the future, 24/7/365 days a week.

I should have all my test results (mammogram, ultrasound,biopsy), together with a dignosis today, so I am just one step behind you in your journey, take heart you are not alone, there are millions of us walking with you on this path.
God Bless you
In friendship
rosa

[Guest user]

Hiya Jane ur son should meet my son we are a dart mad family!!! We watch it play it and even go and see the pro,s met loads of famous players in fact we goin to watch the premier league in April something for us all to look forward to!!!! Have a great day out with ur son xxxx

Thanks Lisa this forum does keeps me goin and reading all the stories .

My son is not copin very well with the news he has ashburgers soz can't spell
lol we try just go about our daily lives the best we can my son is 18 next month oh boy are we goin to throw one hell of a party for him!!!

Love n hugs to u all Amanda xxxxxx

[Lisa_x]

Hi Purple and Janey
Just a quick one to say I hope you both have something nice today to keep your minds busy. I don't think there's a right or wrong way to cope with the waiting room. Every lady on this forum has been there and understands just how terrifying it is. Ask questions here if you need to and there will always be someone to help. Thee are lots of good news stories about too.
Janey- there was a lady that posted here and was diagnosed about the same time as me. She had lobular and is out the other side of her treatment now. In her words, everything's 'tickety boo'

Lots of hugs and positive vibes xxxx

[Guest user]

morning amanda i think im off to barnsley today to watch my son play darts he,s an avid player just wanted to wish you a good day xxx

[Guest user]

Hi Lisa, thank you so much for ur reply , yea the waiting is the worst part I've got stage 3 with lyphm node involved how many not got a clue had ct yesterday I'm
Just praying it's not spread anywhere else!!!!!! I try to block it dint know if that's a good or bad thing???? Just want treatment to start and start the road to recovery!!!

Really pleased for you Lisa that ur all clear and doin well love n hugs xxxxx

[Guest user]

Hi Lisa, thank you so much for ur reply , yea the waiting is the worst part I've got stage 3 with lyphm node involved how many not got a clue had ct yesterday I'm
Just praying it's not spread anywhere else!!!!!! I try to block it dint know if that's a good or bad thing???? Just want treatment to start and start the road to recovery!!!

Really pleased for you Lisa that ur all clear and doin well love n hugs xxxxx

[Lisa_x]

Hi Purple,
I had similar diagnosis to you and am also in similar situation, being a single mum to an 18 year old boy. I was dx 23 Dec 2010 with grade 3, stage 3, 76mm IDC and also had DCIS of 94mm. I so remember feeling like you are now honey.
I didn't cope very well buried my head in the sand and I couldn't even look at leaflets without crying. I had panic attacks too. The earliest part of this journey really is the worse and the waiting is horrible. I'm sure that when your hospital has got a plan in place and you start your treatment, you'll feel better.
I had surgery first and also had 3 nodes that were positive too. I think of those nodes of being the bouncers and holding the nasty cells there. I was 39 when I was diagnosed and my son had his 18th last year. I'm a year down the line now,my cancer has gone and I finished radiotherapy in September. I'm back at work full time and life is pretty much back to normal. Sending you lots of love and positive vibes x x

[Guest user]

Hey up sweetheart cause we can swap numbers that would be lovely 🙂 where snouts in the uk are ya? I'm from Derbyshire , keep ur chin up the best u can snd if u want cry or have a rant then you do it I do I'm not as bad now I try not to think about it like I said yesterday I'm with u every step of the sweetheart love n hugs xxxxx

[Guest user]

hi amanda so happy your ct scan went well something else out of the way isnt it. ive woke feeling scared again so im going to take abrisk walk doesnt look as cold and frosty today. perhaps we could swap phone numbers amanda what do you think jane xxx

[Guest user]

Hi Janey sorry to hear ur havin to wait this is the worst part waitin. Scan went ok I think won't know till next we'd so more waiting for me to!! I have had all the emotions u are havin I'm with u every step of the way sweetheart xxxxxx

[Guest user]

hi purple hope everything goes well today im so waiting for you to get back and say things are looking better.. i had the appointment yesterday and she told me that the biopsy on my nodes came as fat so there was no conclusion they said it will show on my mri in two weeks so yet again the terrifying waiting game. my cancer is lobular and the fact that this type of cancer hides i have to have the mri to determine its size and whether its in the nodes or not.i had a terrible day yesterday just thinking negative worrying about the mri now and how long and hard this road is going to be.i had some of the most horrible emotions yesterday i was with my son and two sisters and i felt so envious of there healthy lives how horrible is that. i felt angry desperate sad frightened you name it i felt it. please messge me to let me know how you are im thinking of you hugs lots of them i send to you. xxx

[Guest user]

Thanks shazza fingers crossed like u said snd yea Janey how did u get on me darlin? Xxxxx
Not ate much today but sleepin ok thanks xxxxx

[shazza_bazza]

hiya purple glad to hear your eating and sleeping better and getting on with things even tho it's never far from your thoughts. just wanted to wish you well with your ct scan to-morrow everythings crossed for you.
hope all went well for janey and her visit to consultant,good luck to you both x

[Guest user]

Hi Janey how u feeling today? I'm
Doin keepin busy,go ct scan 2moz fingerscrossed all us ok with that!!! Then seeing on. The 25th hopefully with a plan of action ready, take care sweetie xxxxx much love xx

[Guest user]

hi purple im glad to hear your starting to eat better thats just something else to worry about isnt it. my eating has picked up a bit. some days i feel terrified and some days i feel more positive. somehow i felt i didnt have it yesterday bu`t i woke in the early hours this morning with the dread again.i have to go to talk to my consultant today and are worrying about that. you feel so alone in all this although i too have wonderful friends and family.on the side of my computer i have pictures when we were in america in september last year happy days i.ll be so glad to get those happy days back. take care purple much love sent to you speak soon xxx

[Guest user]

Hi Janey I'm sleeping better now eatin so so be alot better when I've had ct scan n results back I just go about my day ad normal as I can plus all my family n friends keep me goin and go about our daily lives no more tears cried enough for now,hope ur ok sweetie and always about if u want to chat take care me darling chin up we Will beat this!!!!! Xxxxxxx

[Guest user]

hi purple just like you i have just been diagnosed last wednesday, i too have been a jibbering wreck with no food or sleep.
i have to have an mri done first then surgery in two to four weeks and i am petrified.my lymph nodes they said looked clear but they have suggested i have a second biopsy just to be sure.
im sending many hugs to you i will keep looking for your posts.
god luck to us both xxx

[Guest user]

Thank you M for your kind words I'm starting to feel more positive but still do scared I've got my ct scan on Tuesday and I'm praying it hasnt spread anywhere else. . I know it's hind into my lymph nodes I'm just hoping that's the only place it's gone to, so fingers crossed then go n see onc on the 25th jan xxxxx

[applestreet]

Hi

haven't been on here for a while but as the sleep fairy has moved out I am reading through the posts.

I can really understand how you feel and can say that in all honesty where you are at the moment is quite normal in relation to the situation you have found yourself in.

I was diagnosed last August with grade 3 tumour in my right breast. I can honestly say that from being an independent and strong woman I turned into a gibbering wreck. 5 months on and I have had my op, and started my treatment and am now in a completely different place in my head.

All the ladies have said everything else but I offer you all my support and best wishes on your journey. M

[Guest user]

Thank you all for ur kind words and being very supportive and getting me through this very difficult time , I have a great family and really good friends to thank you again without this forum I think I would have gone insane , u all know what we are goin through this is the best site and lovely friendly people thank you all again so much xxxx

[sandra4]

Hi,
Dont come on much these days, have moved over to fb. with some breast cancer friends, just wanted to say it is the norm. to have scan first. Then they know what they are dealing with, think if it has spread you will get different chemo.
Just to let you know a friend of mine was diagnosed with grade 3 and had 26 out of 28 lymph nodes with cancer. she was devastated. That was just over 12 years ago, and she is absolutely fine! So keep your spirits up. I remember the worst time was waiting for treatment, felt like it was never coming.
xxx

[shazza_bazza]

good on you girl fighting talk! breast cancer is treatable and beatable even if i am sat here with one bosom and an inch of hair i'm still sat here and feeling ok about it, although would have preferred hair to be long blonde n glossy not short curly and very much like sheeps wool,still can't have everything,let us know how you get on, take care xx

[Guest user]

Sorry about my rant yesterday had a bit if a blip this morning then I thought more!!! No more tears n get on with it can't do owt till had my scan so wots the point keep getting worked up dnd upsetting everyone around me, time to bite this gremlin in the butt!! And say no more I'm in control not u!!!! More positive thinking than crying from now on x x x

[Guest user]

Thanks hunnie I'm shattered move went well , I just here how people have started treatment even while waitin fir a ct scan I've had nothing I've had the biopsy mamagram snd ultra sound soz rant over just tired I guess xx

[lbx157]

Yes I had Zopiclone too and would certainly recommend it. It allowed me a good 8 hours sleep every night and without that I don't know how I would have coped. Your mind goes into overdrive at this stage of the game and you really need to give it a rest and conserve your strength. Have a word with your GP and be really honest with him how you are and I'm sure he will prescribe it for you.

lbx157

[shazza_bazza]

hiya purple42
all the things you described i.e feeling sick,unable to eat, constant worrying not feeling your coping is similar to how i felt at the beginging,it seemed as if i were in "limbo" and everything was on hold there was a constant knot in my stomach from anxiety and like you i just wanted to get on with it and have all the facts. looking back this was probably the worst time,there were good days and bad sometimes i'd be really positive and other times i was picking my funeral songs.It was a case really of just going with the flow until i knew what i was dealing with.
It seems a good idea to see your gp I take zopiclone sleeping tablets on and off which has helped as i needed some respite from my thoughts and feeling tired from lack of sleep seems to highten the emotions,and a milky drink when i couldn't face food helped.
moving house and dealing with breast cancer sounds like one very capable lady to me.
hope your results are positive and the move went well good luck xx

[Guest user]

Hi thanks shazza my head is spinning still cant eat feel sick all the time , yea I scared really scared but just want to start treatment hate all this waiting around!! Got ct scan next Tuesday then see oncon the 25th more waiting!!! This us what I'm havin trouble copin with think I need to go n see my doctor to give me something to calm me down . And something to stop me feeling sick all the time is this normal??? I'm
Just not copin at all snd I'm moving house today aswell!! Xx

[shazza_bazza]

hiya purple,i can understand your fears i was diagnosed in april i also needed chemo first because the lymph nodes were affected this was followed by masectomy, tumour was appro 6cms then rads. i also had a ct and bone scan i found this the worst time waiting for results as your mind and thoughts are all over the place my son was only 15 so i had worries about him to.there doesn't seem to be many words that help and i thought if someone says "think positive" to me one more time i would throttle them even tho they meant well. i kept a diary which i found helped as i could put thoughts and feelings down and it kept a track of things as one day can roll into the next,it's quite good to read back as i can see how further on i am now mentally as well as physically. it does and will get better i hope all goes well with you and your treatment

[Guest user]

Thanks for that super I'll go to my local library and ask for that 🙂 earn out today with packing had wonderful friends helping me today snd my son n gf have been amazing xx

[supertrouper]

It's very difficult controlling your thoughts. If you are the member of a local library have a look to see if they can reserve you a copy of a book called "the power of now" by Eckhart Tolle. Reading this book certainly helped me. It is a rather spiritual book and might not be your "cup of tea"

You are certainly not on your own - we are all here, going through it at different stages and holding virtual hands with everyone else!

Good luck with the house move too! You certainly have a lot going on at the moment.

[Guest user]

Thank you for ur posotive thoughts its just hard not knowing how to feel still got no appetite but drinking plenty if tea lol havin a better day today Aslo movin house 2 Moro plenty of things to keep me busy, just taking eachday as it comes . U feel like ur the only person in the world goin through this yet were not,and thank you for all ur replies and support it is really helping me. Just wish I could stop my mind working overtime!! Xx

[lbx157]

Hi Ladies,

I just wanted to let you know that I've been where you are now so I know how scarey it is and how frightened and alone you are all feeling. But hang on in there, there will be light at the end of the tunnel. I was diagnosed 12 years ago with invasive lobular BC with spread to 5 lymph nodes. I had a lumpectomy, chemo, rads and Tamoxifen. Unfortunately I had a recurrence 7 years ago and had to have a mastectomy and Arimidex. I am now undergoing an igap reconstruction. But I am as fit as a fiddle now with no health worries and life is good (even better than before because now I know how precious life is and so I enjoy every second of it). It's a long journey I know but it will pass and you will get through it and end up a stronger person than you were before.

Sending you all lots of positive thoughts.
lbx157

[Guest user]

Thanks again super for makin me feel better I just wasn't sure what was wot just hope the little gremils as u put ut haven't spread will keep u posted and fingers crossed stil got over a week to go for ct scan xx

[supertrouper]

Not sure what "normal" is any more but I had my CT scan and bone scan before chemo to check to see if the naughty gremlin had spread anywhere else. I also had a Mugga (?) scan which checked my heart to make sure it could cope with the chemo. My Onc said I was having that because I had passed the magical age of 55!

You will feel a lot better once treatment has started - I promise you! Although your life will totally revolve around your chemo dates and your good days and "bad" days. I marked everything off on a calendar so that I could plan treats to look forward during my good week.

[Guest user]

Hi super thanks for your reply I just wondered is it normal to have ct scan first then chemo? I'm so confused with everything just want to get treatment started xx

[supertrouper]

Hi Purple

Mine was a grade 3 and also spread to the lymph nodes. CT scan and bone scan came back clear! Chemo shrank the tumour and Mastectomy plus axillary clearance removed what was left. Try not to think too far ahead and pre-guess results. Just focus on right now - that is all you have to deal with at the moment.

Also, like you, I couldn't eat - drinking lucozade helped me.

Good luck with everything - and do come back and let us know how the scans went and what the onc's plan of attack is.

And it is normal to feel like you are feeling now!

[Guest user]

Hi I'm having a really bad day today can't stop crying just been told it's grade 3???? And it's has gone into lymph nodes I really can't cope with all this waiting don't have my ct till the 17th jan and then see the oncologist till the 25th I'm so so scared please tell me this is normal to feel like this and pray it ain't spread I can't cope with any more bad news I'm goin out of my mind with worry I can't even eat im really sorry for havin a rant xx